Guest guest Posted May 3, 2007 Report Share Posted May 3, 2007 I'm not sure what you mean by feeling like you look stupid. I have lost a lot of ability to write with my left hand, I've been left handed but this past semester began writing with my right. I also started having seizures last summer & my left eye began drooping, but stopped drooping when I went on the antileptics. I'm also having a big problem with short-term to long-term memory, organic chem has been a nightmare trying to memorize all the different molecules. I think I may have failed it. That said, I don't know if all the memory issues are condition/drug related or just getting older, I'm nearly 36. Debi > > > > > > Just wondering if anyone else has similar issues. My CRP level was > > 70.4 & > > > normal is less than 8. My sed rate was high, the exact # escapes me > > at the > > > moment, & I have positive Epstein Barr. I have also just developed > > asthma > > > symptoms that have laid me low, SOB, coughing & fatigued. I had been > > > diagnosed with fibromyalgia, but I agree with the new doc that it's > > not the > > > right diagnosis & he's been running a bunch of labs to try to get a > > correct > > > diagnosis. My thyroid is fine, cholesterol etc is fine. My BP was high > > > too, usually 110/70 to 120/80 & this time it was 145/96. He thinks it's > > > some type of collagen disease but doesn't have a diagnosis. I also had > > > scleritis a couple of months ago, which is a collagen autoimmune > > issue. Any > > > one know anything? I figure more brains to help figure this out > > would be > > > helpful, maybe. > > > > > > Thanks > > > > > > -- > > > Marie > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2007 Report Share Posted May 3, 2007 Wow, I'm impressed with what you're doing. Going to school with the cognitive deficits must be really difficult. The thought of going to school goes out the window since I can't retain anything. Even going to autism conferences is difficult since it's hard to keep up with the note taking & remembering what it was that I heard. I can see how organic chem was a nightmare; it was hard enough when I took it way back when, when I went to nursing school. How do you take notes if you're a lefty & writing with your right? I can't remember, but are you the one going to nursing school? I guess looking " stupid " is my self esteem issue? If I can't respond as quickly or the way I want to, it bothers me. Marie > > I'm not sure what you mean by feeling like you look stupid. I have > lost a lot of ability to write with my left hand, I've been left > handed but this past semester began writing with my right. I also > started having seizures last summer & my left eye began drooping, but > stopped drooping when I went on the antileptics. I'm also having a big > problem with short-term to long-term memory, organic chem has been a > nightmare trying to memorize all the different molecules. I think I > may have failed it. That said, I don't know if all the memory issues > are condition/drug related or just getting older, I'm nearly 36. > > Debi > > > > > > > > > > Just wondering if anyone else has similar issues. My CRP level was > > > 70.4 & > > > > normal is less than 8. My sed rate was high, the exact # escapes me > > > at the > > > > moment, & I have positive Epstein Barr. I have also just developed > > > asthma > > > > symptoms that have laid me low, SOB, coughing & fatigued. I had > been > > > > diagnosed with fibromyalgia, but I agree with the new doc that it's > > > not the > > > > right diagnosis & he's been running a bunch of labs to try to get a > > > correct > > > > diagnosis. My thyroid is fine, cholesterol etc is fine. My BP > was high > > > > too, usually 110/70 to 120/80 & this time it was 145/96. He > thinks it's > > > > some type of collagen disease but doesn't have a diagnosis. I > also had > > > > scleritis a couple of months ago, which is a collagen autoimmune > > > issue. Any > > > > one know anything? I figure more brains to help figure this out > > > would be > > > > helpful, maybe. > > > > > > > > Thanks > > > > > > > > -- > > > > Marie > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2007 Report Share Posted May 3, 2007 Wow, I'm impressed with what you're doing. Going to school with the cognitive deficits must be really difficult. The thought of going to school goes out the window since I can't retain anything. Even going to autism conferences is difficult since it's hard to keep up with the note taking & remembering what it was that I heard. I can see how organic chem was a nightmare; it was hard enough when I took it way back when, when I went to nursing school. How do you take notes if you're a lefty & writing with your right? I can't remember, but are you the one going to nursing school? I guess looking " stupid " is my self esteem issue? If I can't respond as quickly or the way I want to, it bothers me. Marie > > I'm not sure what you mean by feeling like you look stupid. I have > lost a lot of ability to write with my left hand, I've been left > handed but this past semester began writing with my right. I also > started having seizures last summer & my left eye began drooping, but > stopped drooping when I went on the antileptics. I'm also having a big > problem with short-term to long-term memory, organic chem has been a > nightmare trying to memorize all the different molecules. I think I > may have failed it. That said, I don't know if all the memory issues > are condition/drug related or just getting older, I'm nearly 36. > > Debi > > > > > > > > > > Just wondering if anyone else has similar issues. My CRP level was > > > 70.4 & > > > > normal is less than 8. My sed rate was high, the exact # escapes me > > > at the > > > > moment, & I have positive Epstein Barr. I have also just developed > > > asthma > > > > symptoms that have laid me low, SOB, coughing & fatigued. I had > been > > > > diagnosed with fibromyalgia, but I agree with the new doc that it's > > > not the > > > > right diagnosis & he's been running a bunch of labs to try to get a > > > correct > > > > diagnosis. My thyroid is fine, cholesterol etc is fine. My BP > was high > > > > too, usually 110/70 to 120/80 & this time it was 145/96. He > thinks it's > > > > some type of collagen disease but doesn't have a diagnosis. I > also had > > > > scleritis a couple of months ago, which is a collagen autoimmune > > > issue. Any > > > > one know anything? I figure more brains to help figure this out > > > would be > > > > helpful, maybe. > > > > > > > > Thanks > > > > > > > > -- > > > > Marie > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2007 Report Share Posted May 3, 2007 Yes, I start nursing school in the fall. I just found out I made a C in organic, couldn't be more thrilled!! I have taught myself to write with my right hand. It's amazing how much better it looks with my right, even though I've been a heavy lefty. I'm in the process of weaning off my depakote. While it helped immensely at first, I've gained 30lbs in the last six mos, after losing weight steadily for a year before. I wonder if some of my fuzzy headedness will resolve; my blood sugar has also gone up after being under control. I'm gonna see if the seizures return or not, perhaps it's been long enough. I'm also considering some dietary stuff. As to responding, I'm such a jokester we laugh a lot about my faux-paus. I also enjoy have found a benefit for people perceiving me as dingy -- you can get by with a lot more! Debi > > Wow, I'm impressed with what you're doing. Going to school with the > cognitive deficits must be really difficult. The thought of going to school > goes out the window since I can't retain anything. Even going to autism > conferences is difficult since it's hard to keep up with the note taking & > remembering what it was that I heard. I can see how organic chem was a > nightmare; it was hard enough when I took it way back when, when I went to > nursing school. > > How do you take notes if you're a lefty & writing with your right? > > I can't remember, but are you the one going to nursing school? > > I guess looking " stupid " is my self esteem issue? If I can't respond as > quickly or the way I want to, it bothers me. > > Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2007 Report Share Posted May 3, 2007 Yes, I start nursing school in the fall. I just found out I made a C in organic, couldn't be more thrilled!! I have taught myself to write with my right hand. It's amazing how much better it looks with my right, even though I've been a heavy lefty. I'm in the process of weaning off my depakote. While it helped immensely at first, I've gained 30lbs in the last six mos, after losing weight steadily for a year before. I wonder if some of my fuzzy headedness will resolve; my blood sugar has also gone up after being under control. I'm gonna see if the seizures return or not, perhaps it's been long enough. I'm also considering some dietary stuff. As to responding, I'm such a jokester we laugh a lot about my faux-paus. I also enjoy have found a benefit for people perceiving me as dingy -- you can get by with a lot more! Debi > > Wow, I'm impressed with what you're doing. Going to school with the > cognitive deficits must be really difficult. The thought of going to school > goes out the window since I can't retain anything. Even going to autism > conferences is difficult since it's hard to keep up with the note taking & > remembering what it was that I heard. I can see how organic chem was a > nightmare; it was hard enough when I took it way back when, when I went to > nursing school. > > How do you take notes if you're a lefty & writing with your right? > > I can't remember, but are you the one going to nursing school? > > I guess looking " stupid " is my self esteem issue? If I can't respond as > quickly or the way I want to, it bothers me. > > Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2007 Report Share Posted May 3, 2007 debbie I to noticed of my own left eye drooping in the eye lid areas as it is of sometimes touching the center or black dot of my eye and the other eye lids is still in the white parts of my eye. it is not a severe drop but a noticed one and usually is of more so when tired and not resting well. what causes of that? the mother of me had of this too and not know why but had to have an eye lift or tuck to repair of it. I to worry as medically I to be doing much of the same process as the mother of me in health things and so fear of getting parkinsons and I to know some to say cant get it because the mother has of it but it still fears me of her medical history things. I to not want to be of anythings like of my mother in life as it is of painful to me to have nay reflection of her but in the mirror it is as if seeing the mother there in imagage of her years ago. I to not have her heart though and I to not have her ways of being and so take of much pride to that. Yet at same am some like of the mother of me scary but true. I to be to going to go to a DAN doctor soon to begin of biomedical things to me as a Dr. Demio has just comed to my areas of living now and so now can pursue of this for the frist time to me. Sondra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2007 Report Share Posted May 3, 2007 debbie I to noticed of my own left eye drooping in the eye lid areas as it is of sometimes touching the center or black dot of my eye and the other eye lids is still in the white parts of my eye. it is not a severe drop but a noticed one and usually is of more so when tired and not resting well. what causes of that? the mother of me had of this too and not know why but had to have an eye lift or tuck to repair of it. I to worry as medically I to be doing much of the same process as the mother of me in health things and so fear of getting parkinsons and I to know some to say cant get it because the mother has of it but it still fears me of her medical history things. I to not want to be of anythings like of my mother in life as it is of painful to me to have nay reflection of her but in the mirror it is as if seeing the mother there in imagage of her years ago. I to not have her heart though and I to not have her ways of being and so take of much pride to that. Yet at same am some like of the mother of me scary but true. I to be to going to go to a DAN doctor soon to begin of biomedical things to me as a Dr. Demio has just comed to my areas of living now and so now can pursue of this for the frist time to me. Sondra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2007 Report Share Posted May 3, 2007 I don't know what causes the drooping eyelid. For me, it started when I started having seizures. I guess when we get tired though many body parts feel the strain. My eyelid feels worse than it looks, but it is noticeable to others. I still wonder if I have MS sometimes. I also have bladder problems that surgery last summer didn't fully correct & it seems to come & go. My scattered labs might be indicative of that but I have a normal MRI so far. <sigh> Sure ain't fun gettin old! I hope your DAN! can help you fix some of your problems. Debi > > debbie I to noticed of my own left eye drooping in the eye lid areas as > it is of sometimes touching the center or black dot of my eye and the > other eye lids is still in the white parts of my eye. it is not a > severe drop but a noticed one and usually is of more so when tired and > not resting well. what causes of that? the mother of me had of this too > and not know why but had to have an eye lift or tuck to repair of it. I > to worry as medically I to be doing much of the same process as the > mother of me in health things and so fear of getting parkinsons and I > to know some to say cant get it because the mother has of it but it > still fears me of her medical history things. I to not want to be of > anythings like of my mother in life as it is of painful to me to have > nay reflection of her but in the mirror it is as if seeing the mother > there in imagage of her years ago. I to not have her heart though and > I to not have her ways of being and so take of much pride to that. Yet > at same am some like of the mother of me scary but true. > > I to be to going to go to a DAN doctor soon to begin of biomedical > things to me as a Dr. Demio has just comed to my areas of living now > and so now can pursue of this for the frist time to me. > Sondra > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2007 Report Share Posted May 3, 2007 I don't know what causes the drooping eyelid. For me, it started when I started having seizures. I guess when we get tired though many body parts feel the strain. My eyelid feels worse than it looks, but it is noticeable to others. I still wonder if I have MS sometimes. I also have bladder problems that surgery last summer didn't fully correct & it seems to come & go. My scattered labs might be indicative of that but I have a normal MRI so far. <sigh> Sure ain't fun gettin old! I hope your DAN! can help you fix some of your problems. Debi > > debbie I to noticed of my own left eye drooping in the eye lid areas as > it is of sometimes touching the center or black dot of my eye and the > other eye lids is still in the white parts of my eye. it is not a > severe drop but a noticed one and usually is of more so when tired and > not resting well. what causes of that? the mother of me had of this too > and not know why but had to have an eye lift or tuck to repair of it. I > to worry as medically I to be doing much of the same process as the > mother of me in health things and so fear of getting parkinsons and I > to know some to say cant get it because the mother has of it but it > still fears me of her medical history things. I to not want to be of > anythings like of my mother in life as it is of painful to me to have > nay reflection of her but in the mirror it is as if seeing the mother > there in imagage of her years ago. I to not have her heart though and > I to not have her ways of being and so take of much pride to that. Yet > at same am some like of the mother of me scary but true. > > I to be to going to go to a DAN doctor soon to begin of biomedical > things to me as a Dr. Demio has just comed to my areas of living now > and so now can pursue of this for the frist time to me. > Sondra > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2007 Report Share Posted May 4, 2007 Marie I have been going thru the same testing. My ANA levels are sometimes high and then other times nonexistent. My doctor has been confused as well. He feels I have lupus and I tend to agree with him. I see a rhumatologist at the end of this month, I am eager to see what he says. The brain fog and fatigue are the worst parts. Pain I can deal with, memory loss is what scares me. I will think of something and something else comes out of my mouth. Very frustrating. Pennie Abby's Mom ************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2007 Report Share Posted May 4, 2007 Marie I have been going thru the same testing. My ANA levels are sometimes high and then other times nonexistent. My doctor has been confused as well. He feels I have lupus and I tend to agree with him. I see a rhumatologist at the end of this month, I am eager to see what he says. The brain fog and fatigue are the worst parts. Pain I can deal with, memory loss is what scares me. I will think of something and something else comes out of my mouth. Very frustrating. Pennie Abby's Mom ************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2007 Report Share Posted May 4, 2007 Hello Ladies, My mom has lupus and would gladly talk to any of you about her condition, if you want her email or phone number, email me and I will send if off to you. I know they had a hard time diagnosing her and she was also diagnosed with fibermyalgia at first. My grandma also has lupus so I worry about getting it to because I am already having some symptoms. My mom also was diagnosed with CML (chronic myeloid leukemia) in Feb. of 2004 Sorry if my spelling is bad I am not very good at spelling medical things. She has done great with the leukemia and instead of her cells being high they are way too low and they think the lupus is causing her more problems then the leukemia. Missy ('s mom) Re: Re: my lab question Marie I have been going thru the same testing. My ANA levels are sometimes high and then other times nonexistent. My doctor has been confused as well. He feels I have lupus and I tend to agree with him. I see a rhumatologist at the end of this month, I am eager to see what he says. The brain fog and fatigue are the worst parts. Pain I can deal with, memory loss is what scares me. I will think of something and something else comes out of my mouth. Very frustrating. Pennie Abby's Mom ************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2007 Report Share Posted May 4, 2007 Hello Ladies, My mom has lupus and would gladly talk to any of you about her condition, if you want her email or phone number, email me and I will send if off to you. I know they had a hard time diagnosing her and she was also diagnosed with fibermyalgia at first. My grandma also has lupus so I worry about getting it to because I am already having some symptoms. My mom also was diagnosed with CML (chronic myeloid leukemia) in Feb. of 2004 Sorry if my spelling is bad I am not very good at spelling medical things. She has done great with the leukemia and instead of her cells being high they are way too low and they think the lupus is causing her more problems then the leukemia. Missy ('s mom) Re: Re: my lab question Marie I have been going thru the same testing. My ANA levels are sometimes high and then other times nonexistent. My doctor has been confused as well. He feels I have lupus and I tend to agree with him. I see a rhumatologist at the end of this month, I am eager to see what he says. The brain fog and fatigue are the worst parts. Pain I can deal with, memory loss is what scares me. I will think of something and something else comes out of my mouth. Very frustrating. Pennie Abby's Mom ************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2007 Report Share Posted May 4, 2007 Debi & Sondra, Have either of you looked into the possibility of ophthalmic ptosis? I have it, and it can easily be hereditary (goes back 5 known generations in my family). I do not know if it commonly can be experienced in only one eye, but I do have one that bothers me more than the other. The usual treatment is a tuck at the hairline and above the eye, so that the eyelid can be raised to a functional height. Most of the women (and one man) in my family for the past 5 generations have had to have eye tucks once, and some twice, during their lifetime to be able to function. I haven't had my first yet, but I'll need it with 1-2 years. My Mom is talking about having her second. Sandi (Allie's Mom) Houston In a message dated 5/3/2007 10:06:57 P.M. Central Daylight Time, fightingautism@... writes: I don't know what causes the drooping eyelid. For me, it started when I started having seizures. I guess when we get tired though many body parts feel the strain. My eyelid feels worse than it looks, but it is noticeable to others. I still wonder if I have MS sometimes. I also have bladder problems that surgery last summer didn't fully correct & it seems to come & go. My scattered labs might be indicative of that but I have a normal MRI so far. <sigh> Sure ain't fun gettin old! I hope your DAN! can help you fix some of your problems. Debi ************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2007 Report Share Posted May 4, 2007 I have not, but sounds like a good excuse to " get some work done. " <g> Debi > > > Debi & Sondra, > > Have either of you looked into the possibility of ophthalmic ptosis? I have > it, and it can easily be hereditary (goes back 5 known generations in my > family). I do not know if it commonly can be experienced in only one eye, but I > do have one that bothers me more than the other. The usual treatment is a > tuck at the hairline and above the eye, so that the eyelid can be raised to a > functional height. > > Most of the women (and one man) in my family for the past 5 generations have > had to have eye tucks once, and some twice, during their lifetime to be able > to function. I haven't had my first yet, but I'll need it with 1-2 years. > My Mom is talking about having her second. > > Sandi (Allie's Mom) > Houston > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2007 Report Share Posted May 4, 2007 I have not, but sounds like a good excuse to " get some work done. " <g> Debi > > > Debi & Sondra, > > Have either of you looked into the possibility of ophthalmic ptosis? I have > it, and it can easily be hereditary (goes back 5 known generations in my > family). I do not know if it commonly can be experienced in only one eye, but I > do have one that bothers me more than the other. The usual treatment is a > tuck at the hairline and above the eye, so that the eyelid can be raised to a > functional height. > > Most of the women (and one man) in my family for the past 5 generations have > had to have eye tucks once, and some twice, during their lifetime to be able > to function. I haven't had my first yet, but I'll need it with 1-2 years. > My Mom is talking about having her second. > > Sandi (Allie's Mom) > Houston > Quote Link to comment Share on other sites More sharing options...
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