Guest guest Posted May 3, 2007 Report Share Posted May 3, 2007 sorry you are of sick but it is of common for autoimmune diseases and disfunctions of the immune system to be among those with and the families of autism. Sondra In Autism_in_Girls , " Marie " wrote: > > Just wondering if anyone else has similar issues. My CRP level was 70.4 & > normal is less than 8. My sed rate was high, the exact # escapes me at the > moment, & I have positive Epstein Barr. I have also just developed asthma > symptoms that have laid me low, SOB, coughing & fatigued. I had been > diagnosed with fibromyalgia, but I agree with the new doc that it's not the > right diagnosis & he's been running a bunch of labs to try to get a correct > diagnosis. My thyroid is fine, cholesterol etc is fine. My BP was high > too, usually 110/70 to 120/80 & this time it was 145/96. He thinks it's > some type of collagen disease but doesn't have a diagnosis. I also had > scleritis a couple of months ago, which is a collagen autoimmune issue. Any > one know anything? I figure more brains to help figure this out would be > helpful, maybe. > > Thanks > > -- > Marie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2007 Report Share Posted May 3, 2007 sorry you are of sick but it is of common for autoimmune diseases and disfunctions of the immune system to be among those with and the families of autism. Sondra In Autism_in_Girls , " Marie " wrote: > > Just wondering if anyone else has similar issues. My CRP level was 70.4 & > normal is less than 8. My sed rate was high, the exact # escapes me at the > moment, & I have positive Epstein Barr. I have also just developed asthma > symptoms that have laid me low, SOB, coughing & fatigued. I had been > diagnosed with fibromyalgia, but I agree with the new doc that it's not the > right diagnosis & he's been running a bunch of labs to try to get a correct > diagnosis. My thyroid is fine, cholesterol etc is fine. My BP was high > too, usually 110/70 to 120/80 & this time it was 145/96. He thinks it's > some type of collagen disease but doesn't have a diagnosis. I also had > scleritis a couple of months ago, which is a collagen autoimmune issue. Any > one know anything? I figure more brains to help figure this out would be > helpful, maybe. > > Thanks > > -- > Marie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2007 Report Share Posted May 3, 2007 Has lupus been ruled out? > In Autism_in_Girls , " Marie " > wrote: >> >> Just wondering if anyone else has similar issues. My CRP level was > 70.4 & >> normal is less than 8. My sed rate was high, the exact # escapes > me at the >> moment, & I have positive Epstein Barr. I have also just developed > asthma >> symptoms that have laid me low, SOB, coughing & fatigued. I had > been >> diagnosed with fibromyalgia, but I agree with the new doc that it's > not the >> right diagnosis & he's been running a bunch of labs to try to get a > correct >> diagnosis. My thyroid is fine, cholesterol etc is fine. My BP was > high >> too, usually 110/70 to 120/80 & this time it was 145/96. He thinks > it's >> some type of collagen disease but doesn't have a diagnosis. I also > had >> scleritis a couple of months ago, which is a collagen autoimmune > issue. Any >> one know anything? I figure more brains to help figure this out > would be >> helpful, maybe. >> >> Thanks >> >> -- >> Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2007 Report Share Posted May 3, 2007 Has lupus been ruled out? > In Autism_in_Girls , " Marie " > wrote: >> >> Just wondering if anyone else has similar issues. My CRP level was > 70.4 & >> normal is less than 8. My sed rate was high, the exact # escapes > me at the >> moment, & I have positive Epstein Barr. I have also just developed > asthma >> symptoms that have laid me low, SOB, coughing & fatigued. I had > been >> diagnosed with fibromyalgia, but I agree with the new doc that it's > not the >> right diagnosis & he's been running a bunch of labs to try to get a > correct >> diagnosis. My thyroid is fine, cholesterol etc is fine. My BP was > high >> too, usually 110/70 to 120/80 & this time it was 145/96. He thinks > it's >> some type of collagen disease but doesn't have a diagnosis. I also > had >> scleritis a couple of months ago, which is a collagen autoimmune > issue. Any >> one know anything? I figure more brains to help figure this out > would be >> helpful, maybe. >> >> Thanks >> >> -- >> Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2007 Report Share Posted May 3, 2007 Yes, it's negative. Marie > > Has lupus been ruled out? > > > > > In Autism_in_Girls , " Marie " > > wrote: > >> > >> Just wondering if anyone else has similar issues. My CRP level was > > 70.4 & > >> normal is less than 8. My sed rate was high, the exact # escapes > > me at the > >> moment, & I have positive Epstein Barr. I have also just developed > > asthma > >> symptoms that have laid me low, SOB, coughing & fatigued. I had > > been > >> diagnosed with fibromyalgia, but I agree with the new doc that it's > > not the > >> right diagnosis & he's been running a bunch of labs to try to get a > > correct > >> diagnosis. My thyroid is fine, cholesterol etc is fine. My BP was > > high > >> too, usually 110/70 to 120/80 & this time it was 145/96. He thinks > > it's > >> some type of collagen disease but doesn't have a diagnosis. I also > > had > >> scleritis a couple of months ago, which is a collagen autoimmune > > issue. Any > >> one know anything? I figure more brains to help figure this out > > would be > >> helpful, maybe. > >> > >> Thanks > >> > >> -- > >> Marie > > > > Autism_in_Girls-subscribe > ------------------------ > Autism_in_Girls-unsubscribe > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2007 Report Share Posted May 3, 2007 Yes, it's negative. Marie > > Has lupus been ruled out? > > > > > In Autism_in_Girls , " Marie " > > wrote: > >> > >> Just wondering if anyone else has similar issues. My CRP level was > > 70.4 & > >> normal is less than 8. My sed rate was high, the exact # escapes > > me at the > >> moment, & I have positive Epstein Barr. I have also just developed > > asthma > >> symptoms that have laid me low, SOB, coughing & fatigued. I had > > been > >> diagnosed with fibromyalgia, but I agree with the new doc that it's > > not the > >> right diagnosis & he's been running a bunch of labs to try to get a > > correct > >> diagnosis. My thyroid is fine, cholesterol etc is fine. My BP was > > high > >> too, usually 110/70 to 120/80 & this time it was 145/96. He thinks > > it's > >> some type of collagen disease but doesn't have a diagnosis. I also > > had > >> scleritis a couple of months ago, which is a collagen autoimmune > > issue. Any > >> one know anything? I figure more brains to help figure this out > > would be > >> helpful, maybe. > >> > >> Thanks > >> > >> -- > >> Marie > > > > Autism_in_Girls-subscribe > ------------------------ > Autism_in_Girls-unsubscribe > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2007 Report Share Posted May 3, 2007 Yes, it was negative. Marie > > Has lupus been ruled out? > > > > > In Autism_in_Girls , " Marie " > > wrote: > >> > >> Just wondering if anyone else has similar issues. My CRP level was > > 70.4 & > >> normal is less than 8. My sed rate was high, the exact # escapes > > me at the > >> moment, & I have positive Epstein Barr. I have also just developed > > asthma > >> symptoms that have laid me low, SOB, coughing & fatigued. I had > > been > >> diagnosed with fibromyalgia, but I agree with the new doc that it's > > not the > >> right diagnosis & he's been running a bunch of labs to try to get a > > correct > >> diagnosis. My thyroid is fine, cholesterol etc is fine. My BP was > > high > >> too, usually 110/70 to 120/80 & this time it was 145/96. He thinks > > it's > >> some type of collagen disease but doesn't have a diagnosis. I also > > had > >> scleritis a couple of months ago, which is a collagen autoimmune > > issue. Any > >> one know anything? I figure more brains to help figure this out > > would be > >> helpful, maybe. > >> > >> Thanks > >> > >> -- > >> Marie > > > > Autism_in_Girls-subscribe > ------------------------ > Autism_in_Girls-unsubscribe > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2007 Report Share Posted May 3, 2007 Yes, it was negative. Marie > > Has lupus been ruled out? > > > > > In Autism_in_Girls , " Marie " > > wrote: > >> > >> Just wondering if anyone else has similar issues. My CRP level was > > 70.4 & > >> normal is less than 8. My sed rate was high, the exact # escapes > > me at the > >> moment, & I have positive Epstein Barr. I have also just developed > > asthma > >> symptoms that have laid me low, SOB, coughing & fatigued. I had > > been > >> diagnosed with fibromyalgia, but I agree with the new doc that it's > > not the > >> right diagnosis & he's been running a bunch of labs to try to get a > > correct > >> diagnosis. My thyroid is fine, cholesterol etc is fine. My BP was > > high > >> too, usually 110/70 to 120/80 & this time it was 145/96. He thinks > > it's > >> some type of collagen disease but doesn't have a diagnosis. I also > > had > >> scleritis a couple of months ago, which is a collagen autoimmune > > issue. Any > >> one know anything? I figure more brains to help figure this out > > would be > >> helpful, maybe. > >> > >> Thanks > >> > >> -- > >> Marie > > > > Autism_in_Girls-subscribe > ------------------------ > Autism_in_Girls-unsubscribe > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2007 Report Share Posted May 3, 2007 I was just going to ask the same thing about the lupus . That can take a long time to get a diagnosis, especially if the ANA levels are all over the place. Pennie Abby's Mom ************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2007 Report Share Posted May 3, 2007 I was just going to ask the same thing about the lupus . That can take a long time to get a diagnosis, especially if the ANA levels are all over the place. Pennie Abby's Mom ************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2007 Report Share Posted May 3, 2007 You can have a negative ANA and still have lupus. Pennie Abby's mom ************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2007 Report Share Posted May 3, 2007 You can have a negative ANA and still have lupus. Pennie Abby's mom ************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2007 Report Share Posted May 3, 2007 The sedimentation rate and C-reactive protein are very general tests which indicate the presence of inflammation somewhere in the body. You should definitely be evaluated by a rheumatologist. In light of your eye symptoms, Sjogren's Syndrome is certainly a possibility your doctor should consider. Marsha Marie wrote: Yes, it's negative. Marie > > Has lupus been ruled out? > > > > > In Autism_in_Girls , " Marie " > > wrote: > >> > >> Just wondering if anyone else has similar issues. My CRP level was > > 70.4 & > >> normal is less than 8. My sed rate was high, the exact # escapes > > me at the > >> moment, & I have positive Epstein Barr. I have also just developed > > asthma > >> symptoms that have laid me low, SOB, coughing & fatigued. I had > > been > >> diagnosed with fibromyalgia, but I agree with the new doc that it's > > not the > >> right diagnosis & he's been running a bunch of labs to try to get a > > correct > >> diagnosis. My thyroid is fine, cholesterol etc is fine. My BP was > > high > >> too, usually 110/70 to 120/80 & this time it was 145/96. He thinks > > it's > >> some type of collagen disease but doesn't have a diagnosis. I also > > had > >> scleritis a couple of months ago, which is a collagen autoimmune > > issue. Any > >> one know anything? I figure more brains to help figure this out > > would be > >> helpful, maybe. > >> > >> Thanks > >> > >> -- > >> Marie > > > > Autism_in_Girls-subscribe > ------------------------ > Autism_in_Girls-unsubscribe > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2007 Report Share Posted May 3, 2007 Very true, particularly early on in the disease. > You can have a negative ANA and still have lupus. > > Pennie > Abby's mom > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2007 Report Share Posted May 3, 2007 What's ANA? Marie > > Very true, particularly early on in the disease. > > > > > > > You can have a negative ANA and still have lupus. > > > > Pennie > > Abby's mom > > > > > > Autism_in_Girls-subscribe > ------------------------ > Autism_in_Girls-unsubscribe > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2007 Report Share Posted May 3, 2007 What's ANA? Marie > > Very true, particularly early on in the disease. > > > > > > > You can have a negative ANA and still have lupus. > > > > Pennie > > Abby's mom > > > > > > Autism_in_Girls-subscribe > ------------------------ > Autism_in_Girls-unsubscribe > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2007 Report Share Posted May 3, 2007 Antinuclear antibody titer....it's the primary diagnostic criterion for lupus diagnosis. I'm assuming that if your test was negative, it was an ANA test of less than 1:40 > What's ANA? > > Marie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2007 Report Share Posted May 3, 2007 Antinuclear antibody titer....it's the primary diagnostic criterion for lupus diagnosis. I'm assuming that if your test was negative, it was an ANA test of less than 1:40 > What's ANA? > > Marie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2007 Report Share Posted May 3, 2007 I do have abnormal sed rate & a few others, along with joint pain. Since I have psoriasis we came to a thought of psoriatic arthritis. Seems to me a lot of these disorders are from the same root, over-inflammation from our environment. Going all-natural organic, lots of fresh fruits & veggies helps me a lot. Debi > > Just wondering if anyone else has similar issues. My CRP level was 70.4 & > normal is less than 8. My sed rate was high, the exact # escapes me at the > moment, & I have positive Epstein Barr. I have also just developed asthma > symptoms that have laid me low, SOB, coughing & fatigued. I had been > diagnosed with fibromyalgia, but I agree with the new doc that it's not the > right diagnosis & he's been running a bunch of labs to try to get a correct > diagnosis. My thyroid is fine, cholesterol etc is fine. My BP was high > too, usually 110/70 to 120/80 & this time it was 145/96. He thinks it's > some type of collagen disease but doesn't have a diagnosis. I also had > scleritis a couple of months ago, which is a collagen autoimmune issue. Any > one know anything? I figure more brains to help figure this out would be > helpful, maybe. > > Thanks > > -- > Marie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2007 Report Share Posted May 3, 2007 I do have abnormal sed rate & a few others, along with joint pain. Since I have psoriasis we came to a thought of psoriatic arthritis. Seems to me a lot of these disorders are from the same root, over-inflammation from our environment. Going all-natural organic, lots of fresh fruits & veggies helps me a lot. Debi > > Just wondering if anyone else has similar issues. My CRP level was 70.4 & > normal is less than 8. My sed rate was high, the exact # escapes me at the > moment, & I have positive Epstein Barr. I have also just developed asthma > symptoms that have laid me low, SOB, coughing & fatigued. I had been > diagnosed with fibromyalgia, but I agree with the new doc that it's not the > right diagnosis & he's been running a bunch of labs to try to get a correct > diagnosis. My thyroid is fine, cholesterol etc is fine. My BP was high > too, usually 110/70 to 120/80 & this time it was 145/96. He thinks it's > some type of collagen disease but doesn't have a diagnosis. I also had > scleritis a couple of months ago, which is a collagen autoimmune issue. Any > one know anything? I figure more brains to help figure this out would be > helpful, maybe. > > Thanks > > -- > Marie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2007 Report Share Posted May 3, 2007 And then if you're like me, it's elevated one time, not the next. <sigh> > > Antinuclear antibody titer....it's the primary diagnostic criterion > for lupus diagnosis. I'm assuming that if your test was negative, it > was an ANA test of less than 1:40 > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2007 Report Share Posted May 3, 2007 And then if you're like me, it's elevated one time, not the next. <sigh> > > Antinuclear antibody titer....it's the primary diagnostic criterion > for lupus diagnosis. I'm assuming that if your test was negative, it > was an ANA test of less than 1:40 > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2007 Report Share Posted May 3, 2007 Do you have cognitive issues, executive functioning problems too? I find that the hardest to deal with cause so many times I feel like I look " stupid " & embarassing. Marie > > I do have abnormal sed rate & a few others, along with joint pain. > Since I have psoriasis we came to a thought of psoriatic arthritis. > Seems to me a lot of these disorders are from the same root, > over-inflammation from our environment. Going all-natural organic, > lots of fresh fruits & veggies helps me a lot. > > Debi > > > > > > Just wondering if anyone else has similar issues. My CRP level was > 70.4 & > > normal is less than 8. My sed rate was high, the exact # escapes me > at the > > moment, & I have positive Epstein Barr. I have also just developed > asthma > > symptoms that have laid me low, SOB, coughing & fatigued. I had been > > diagnosed with fibromyalgia, but I agree with the new doc that it's > not the > > right diagnosis & he's been running a bunch of labs to try to get a > correct > > diagnosis. My thyroid is fine, cholesterol etc is fine. My BP was high > > too, usually 110/70 to 120/80 & this time it was 145/96. He thinks it's > > some type of collagen disease but doesn't have a diagnosis. I also had > > scleritis a couple of months ago, which is a collagen autoimmune > issue. Any > > one know anything? I figure more brains to help figure this out > would be > > helpful, maybe. > > > > Thanks > > > > -- > > Marie > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2007 Report Share Posted May 3, 2007 Do you have cognitive issues, executive functioning problems too? I find that the hardest to deal with cause so many times I feel like I look " stupid " & embarassing. Marie > > I do have abnormal sed rate & a few others, along with joint pain. > Since I have psoriasis we came to a thought of psoriatic arthritis. > Seems to me a lot of these disorders are from the same root, > over-inflammation from our environment. Going all-natural organic, > lots of fresh fruits & veggies helps me a lot. > > Debi > > > > > > Just wondering if anyone else has similar issues. My CRP level was > 70.4 & > > normal is less than 8. My sed rate was high, the exact # escapes me > at the > > moment, & I have positive Epstein Barr. I have also just developed > asthma > > symptoms that have laid me low, SOB, coughing & fatigued. I had been > > diagnosed with fibromyalgia, but I agree with the new doc that it's > not the > > right diagnosis & he's been running a bunch of labs to try to get a > correct > > diagnosis. My thyroid is fine, cholesterol etc is fine. My BP was high > > too, usually 110/70 to 120/80 & this time it was 145/96. He thinks it's > > some type of collagen disease but doesn't have a diagnosis. I also had > > scleritis a couple of months ago, which is a collagen autoimmune > issue. Any > > one know anything? I figure more brains to help figure this out > would be > > helpful, maybe. > > > > Thanks > > > > -- > > Marie > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2007 Report Share Posted May 3, 2007 I'm not sure what you mean by feeling like you look stupid. I have lost a lot of ability to write with my left hand, I've been left handed but this past semester began writing with my right. I also started having seizures last summer & my left eye began drooping, but stopped drooping when I went on the antileptics. I'm also having a big problem with short-term to long-term memory, organic chem has been a nightmare trying to memorize all the different molecules. I think I may have failed it. That said, I don't know if all the memory issues are condition/drug related or just getting older, I'm nearly 36. Debi > > > > > > Just wondering if anyone else has similar issues. My CRP level was > > 70.4 & > > > normal is less than 8. My sed rate was high, the exact # escapes me > > at the > > > moment, & I have positive Epstein Barr. I have also just developed > > asthma > > > symptoms that have laid me low, SOB, coughing & fatigued. I had been > > > diagnosed with fibromyalgia, but I agree with the new doc that it's > > not the > > > right diagnosis & he's been running a bunch of labs to try to get a > > correct > > > diagnosis. My thyroid is fine, cholesterol etc is fine. My BP was high > > > too, usually 110/70 to 120/80 & this time it was 145/96. He thinks it's > > > some type of collagen disease but doesn't have a diagnosis. I also had > > > scleritis a couple of months ago, which is a collagen autoimmune > > issue. Any > > > one know anything? I figure more brains to help figure this out > > would be > > > helpful, maybe. > > > > > > Thanks > > > > > > -- > > > Marie > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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