Guest guest Posted July 19, 2010 Report Share Posted July 19, 2010 Hi Jenn First I would like to welcome you to the board. I have a 5 1/2 year old daughter with OCD repetitive and behaviour and high anxiety. I wish I could provide you with some advice, but I can not. What I can do is say that you have come to the right place, and send you tonnes of virtual hugs. Please note that you are not alone in this battle. Rakhi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2010 Report Share Posted July 19, 2010 HI Jenn, I just wanted to give you a quick welcome! I'm certain you will find alot of support in this group! I have an 8 yr old and a 13 yr old with OCD, and I also have it myself.We all have very severe anxiety.Both of my kids have sensory integration disorder as well. My daughter's has gotten better with age. I tend to think that goes along with the ocd. Does your son go to therapy? My suggestion is not to give in to his ocd. Talk with him about it and let him know that people with the bad thoughts ocd don't follow through with their actions. My son will say things like, " I'm afraid Im going to stab you " etc etc. He used to tell me he was afraid he would put the fork down his throat and choke, etc, etc, similar things like what your son says.Just ask him if he wants to choke on it and tell him that is not him saying it, but that it is ocd. Try to make him realize he is seperate from the ocd.My son tantrums half of the day as well over his ocd.  My son spends the entire day apologizing to me, crying , whining and telling me how bad he is because he thinks his thoughts are a part of him, and I tell him, " A thought is just a thought " It can't harm you and you will not act on it " Have you tried any of the children's workbooks?I have one that helps him to understand it somewhat. My son gets very confused with all of his horrendous thoughts. The thoughts and rituals do tend to change constantly.( the nature of the beast with ocd) I hope this makes some sense! I have to get going! Hugs Judy  ________________________________ To: Sent: Mon, July 19, 2010 8:03:41 PM Subject: 8 Yr old son getting far worse with obsessions...  Hello everyone. I am new to this group and hoping to find opinions, guidance, and support. We have an 8 yr old son, who has been diagnosed with severe OCD, PDD-NOS, a sensory processing disorder, and generalized anxiety disorder. The combination of disorders doesnt make things easy, however the OCD has taken over his life. We have tried Lexapro, Zoloft, and most recently Cymbalta. He also takes Resperdal for what has become aggressive/violent tantrums. Most effective was the Zoloft at 120 mg/daily, but the tantrums worsened and we were afraid he was going to seriously hurt himself or someone else. We discontinued the Cymbalta after only 5 days because they caused him to feel anxious and as if his heart was racing. His doctor wants us to restart the Cymbalta with hopes that those side effects will discontinue when his body adjusts. 's OCD has become increasingly worse. He is now starting to obsess over things that have never been an issue in the past, along with his normal obsessions/compulsions. He is obsessed with WWE and has well over 200 wrestling figures. It is basically all he wants to play with. Today he was hysterical because he keeps thinking he is going to have to put one of the costume pieces in his mouth... then he will choke, and die. He actually made me take all the costumes and hide them where he cant find them. It just seems like things are getting worse and worse on a daily basis. I am in need of ideas that have worked for others in this position... maybe even just justification for feeling like I may just loose it too. The worse feeling in the world is knowing your child is suffering, and you cant seem to make it better! Any ideas would be appreciated. I understand no 2 children are alike, and will not respond the same. I'm just looking for ideas! Thanks! Jenn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2010 Report Share Posted July 19, 2010 Hello, My name is and we have a lot in common, our son has sensory issues, severe OCD and anxiety. All of this sounds so familiar, although in different senario's. Our son was diagnoised at the age of 6.5 and now he is 11.5, we recently have put him on Flouxtine 10 mg and it has help him calm down. He was very high strung before and everything was escalated! He raged all the time which made me almost lose it. I also turned to Flouxtine 20 mg to help me get through this rough patch. I will tell you that it has helped both of us out. I hope things get better for you! ________________________________ To: Sent: Mon, July 19, 2010 5:03:41 PM Subject: 8 Yr old son getting far worse with obsessions...  Hello everyone. I am new to this group and hoping to find opinions, guidance, and support. We have an 8 yr old son, who has been diagnosed with severe OCD, PDD-NOS, a sensory processing disorder, and generalized anxiety disorder. The combination of disorders doesnt make things easy, however the OCD has taken over his life. We have tried Lexapro, Zoloft, and most recently Cymbalta. He also takes Resperdal for what has become aggressive/violent tantrums. Most effective was the Zoloft at 120 mg/daily, but the tantrums worsened and we were afraid he was going to seriously hurt himself or someone else. We discontinued the Cymbalta after only 5 days because they caused him to feel anxious and as if his heart was racing. His doctor wants us to restart the Cymbalta with hopes that those side effects will discontinue when his body adjusts. 's OCD has become increasingly worse. He is now starting to obsess over things that have never been an issue in the past, along with his normal obsessions/compulsions. He is obsessed with WWE and has well over 200 wrestling figures. It is basically all he wants to play with. Today he was hysterical because he keeps thinking he is going to have to put one of the costume pieces in his mouth... then he will choke, and die. He actually made me take all the costumes and hide them where he cant find them. It just seems like things are getting worse and worse on a daily basis. I am in need of ideas that have worked for others in this position... maybe even just justification for feeling like I may just loose it too. The worse feeling in the world is knowing your child is suffering, and you cant seem to make it better! Any ideas would be appreciated. I understand no 2 children are alike, and will not respond the same. I'm just looking for ideas! Thanks! Jenn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2010 Report Share Posted July 20, 2010 Hi Jenn, welcome! I'm a single mom, 3 sons, one with OCD, he's 21 now. His OCD began in 6th grade (few little quirks before that). He also has Aspergers. I'm sorry you're having such a trial with medication. But many have to go through this to fine *the* one that works for their child. You may want to try another SSRI. I know some have tried 2,3,4 and it's the *next* one that works well. We've only tried one, Celexa, and it was great, so luckily didn't have to go through the different ones. But have read here, over the years, where others have and then lucked up with *the* SSRI that helped, or even one of the non-SSRIs that treat OCD. I'm with you on the Cymbalta. I can see the doctor wanting to try again, wait and see if his body adjusts...perhaps you can start lower and go up really slowly? Best way, even with the SSRIs. But if he has the same effects after a couple weeks, then I'm with you, I'd rather not try longer. I know with SSRIs, some have split pills, shaved pills even, to work their child up slowly. Liquid SSRIs are great for that too. My son couldn't (still can't either) swallow pills, so we were on liquid Celexa. We can all identify with the feeling of " losing it " , this is a great place to vent on those days!! I'll add that sometimes when beginning an SSRI, the OCD will increase that first week or more but then calm down, that will lessen. Quick thoughts this a.m.! > > Hello everyone. I am new to this group and hoping to find opinions, guidance, and support. We have an 8 yr old son, who has been diagnosed with severe OCD, PDD-NOS, a sensory processing disorder, and generalized anxiety disorder. The combination of disorders doesnt make things easy, however the OCD has taken over his life. We have tried Lexapro, Zoloft, and most recently Cymbalta. He also takes Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2010 Report Share Posted July 20, 2010 Thanks to everyone for all your kind words and support! We started back on the Cymbalta today. Crossing our fingers can maybe tolerate it a little better with some time. The only other meds for the OCD we have tried were Lexapro, which after several months started making him very anxious at bed time, and Zoloft, which worked wonderfully for the OCD, but made the agressive behaviors unmanagable. We really like 's Psychiatrist, but it seems like he wants to try and find a medication that works for him before he introduces the therapy. Dont get me wrong, he talks with alot, but doesnt really dive into the correcting of the behaviors as of now. Because is very shy, probably more from the PDD, Imy thought was that he wanted to try and get things a little easier with the meds first. Not sure if this is the norm? I have read until I feel like I cant put anymore into my brain. LOL. My husband, not so much. Thats a little bit of a struggle as well. He gets frustrated alot easier then I do, and I contribute that to not knowing as much as he could regarding 's problems. Any reading suggestions are definitly welcomed! We are lucky to have a pretty supportive family. Unfortunetly goes through times where he is petrified to be anywhere other then with us. Believe me, we do take advantage of the times he is comfortable enough to stay with his grandparents. Sometimes just a few hours helps just gather yourself together enough to move forward. I'm wodering if anyone else has had problems with getting their family members to understand what is actually going on with their children. My husband's parents seem to be in complete denial almost. They say they dont have any problems with when he is with them. Yet, when everyone is together I can't imagine how they cant see the problems. Or if its the case of NOT WANTING to see the problems. How has everyone worked through this? And how do you explain this isnt just " a spoiled brat child who gets everything they want " , its a child who cant handle not having things the way he thinks is the only right way? Thanks again everyone! > > > > Hello everyone. I am new to this group and hoping to find opinions, guidance, and support. We have an 8 yr old son, who has been diagnosed with severe OCD, PDD-NOS, a sensory processing disorder, and generalized anxiety disorder. The combination of disorders doesnt make things easy, however the OCD has taken over his life. We have tried Lexapro, Zoloft, and most recently Cymbalta. He also takes Resperdal for what has become aggressive/violent tantrums. Most effective was the Zoloft at 120 mg/daily, but the tantrums worsened and we were afraid he was going to seriously hurt himself or someone else. We discontinued the Cymbalta after only 5 days because they caused him to feel anxious and as if his heart was racing. His doctor wants us to restart the Cymbalta with hopes that those side effects will discontinue when his body adjusts. 's OCD has become increasingly worse. He is now starting to obsess over things that have never been an issue in the past, along with his normal obsessions/compulsions. He is obsessed with WWE and has well over 200 wrestling figures. It is basically all he wants to play with. Today he was hysterical because he keeps thinking he is going to have to put one of the costume pieces in his mouth... then he will choke, and die. He actually made me take all the costumes and hide them where he cant find them. It just seems like things are getting worse and worse on a daily basis. I am in need of ideas that have worked for others in this position... maybe even just justification for feeling like I may just loose it too. The worse feeling in the world is knowing your child is suffering, and you cant seem to make it better! Any ideas would be appreciated. I understand no 2 children are alike, and will not respond the same. I'm just looking for ideas! > > Thanks! Jenn > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.