Guest guest Posted November 2, 2007 Report Share Posted November 2, 2007 I have been needing to get my daughter a full eval that wasn't from the school district. I need one that is not biased at all. All of the other ones cost big bucks so unfortunately it hasn't happened yet. We are able to do it now but the question is where. I have narrowed it down to either San Diego Children's Hospital or UCLA. I am leaning towards UCLA even though it is a bit of a hike and about a thousand more than Childrens. Can anyone chime in any preferences? I need to go to the best because I won't have the money to get it done again. Also I need to go where they are qualified to see the details in high-functioning girls that might not be so main stream with symptoms as the usual case would be. Thanks so much! Rebekah mother to Serena 6 and her siblings Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2007 Report Share Posted November 2, 2007 We went to UCLA with both our girls. Our oldest is extremely high functioning and had originally been given a diagnosis of Aspergers from the Regional Center dr. UCLA changed her official diagnosis to autistic disorder. Their explanation for this change was that it's a mistake to diagnose Aspergers solely based on how high-functioning someone is. When a child is delayed in their speech along with all their other autistic symptoms they rule it autistic disorder. If the child has precocious speech (speaking early) they're more likely to call that Aspergers. Our daughter didn't babble but she sang when she was very young. She didn't begin to speak until after she was 2 but she started out speaking in full sentences. Even though her official dx is autistic disorder she identifies herself as having Aspergers because she believes it more accurately represents her current level of function. But, having the dx does allow her to be a regional center client. We haven't needed any of their services yet. But, we think it's important for her to have a case worker as she ventures out into the world. It's a safety net in case she has difficulty with employment. She also could have access to SSI if she does have trouble providing for herself. My bro probably has Aspergers and has always had a difficult time being adequately employed so this is a big concern for us. As far as UCLA diagnosing girls, we really had an interesting experience working with them. We talked a lot about the differences between boys and girls on the spectrum. For instance, boys seem to have obsessions like trains or weather, girls don't usually do that. In fact, our dd gets very bothered by boys on the spectrum when they're obsessing over things like science or maps. She thinks that's weird. Girls seem to be more isolated because girls generally are all about social stuff. Boys bond over common interests so often-times boys on the spectrum are able to make friends through their obsessions. Typical girls are obsessed with things like fashion, which most girls on the spectrum aren't really interested in. Anyway, we were given a 15 page report from UCLA that continues to be helpful to us even though it's been 5 years. The recommendations section is 5 pages long and it details things clear into her adulthood. Hope this helps. need developmental eval in souther CA I have been needing to get my daughter a full eval that wasn't from the school district. I need one that is not biased at all. All of the other ones cost big bucks so unfortunately it hasn't happened yet. We are able to do it now but the question is where. I have narrowed it down to either San Diego Children's Hospital or UCLA. I am leaning towards UCLA even though it is a bit of a hike and about a thousand more than Childrens. Can anyone chime in any preferences? I need to go to the best because I won't have the money to get it done again. Also I need to go where they are qualified to see the details in high-functioning girls that might not be so main stream with symptoms as the usual case would be. Thanks so much! Rebekah mother to Serena 6 and her siblings Autism_in_Girls-subscribe ------------------------ Autism_in_Girls-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2007 Report Share Posted November 2, 2007 We went to UCLA with both our girls. Our oldest is extremely high functioning and had originally been given a diagnosis of Aspergers from the Regional Center dr. UCLA changed her official diagnosis to autistic disorder. Their explanation for this change was that it's a mistake to diagnose Aspergers solely based on how high-functioning someone is. When a child is delayed in their speech along with all their other autistic symptoms they rule it autistic disorder. If the child has precocious speech (speaking early) they're more likely to call that Aspergers. Our daughter didn't babble but she sang when she was very young. She didn't begin to speak until after she was 2 but she started out speaking in full sentences. Even though her official dx is autistic disorder she identifies herself as having Aspergers because she believes it more accurately represents her current level of function. But, having the dx does allow her to be a regional center client. We haven't needed any of their services yet. But, we think it's important for her to have a case worker as she ventures out into the world. It's a safety net in case she has difficulty with employment. She also could have access to SSI if she does have trouble providing for herself. My bro probably has Aspergers and has always had a difficult time being adequately employed so this is a big concern for us. As far as UCLA diagnosing girls, we really had an interesting experience working with them. We talked a lot about the differences between boys and girls on the spectrum. For instance, boys seem to have obsessions like trains or weather, girls don't usually do that. In fact, our dd gets very bothered by boys on the spectrum when they're obsessing over things like science or maps. She thinks that's weird. Girls seem to be more isolated because girls generally are all about social stuff. Boys bond over common interests so often-times boys on the spectrum are able to make friends through their obsessions. Typical girls are obsessed with things like fashion, which most girls on the spectrum aren't really interested in. Anyway, we were given a 15 page report from UCLA that continues to be helpful to us even though it's been 5 years. The recommendations section is 5 pages long and it details things clear into her adulthood. Hope this helps. need developmental eval in souther CA I have been needing to get my daughter a full eval that wasn't from the school district. I need one that is not biased at all. All of the other ones cost big bucks so unfortunately it hasn't happened yet. We are able to do it now but the question is where. I have narrowed it down to either San Diego Children's Hospital or UCLA. I am leaning towards UCLA even though it is a bit of a hike and about a thousand more than Childrens. Can anyone chime in any preferences? I need to go to the best because I won't have the money to get it done again. Also I need to go where they are qualified to see the details in high-functioning girls that might not be so main stream with symptoms as the usual case would be. Thanks so much! Rebekah mother to Serena 6 and her siblings Autism_in_Girls-subscribe ------------------------ Autism_in_Girls-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2007 Report Share Posted November 2, 2007 Thank you very much. This does help a lot. It helps to know that the $2800 won't be spent for something that is not really going to help. Now if I can only get the paperwork done soon! =) --- The Jueschkes wrote: > We went to UCLA with both our girls. Our oldest is > extremely high functioning and had originally been > given a diagnosis of Aspergers from the Regional > Center dr. UCLA changed her official diagnosis to > autistic disorder. Their explanation for this > change was that it's a mistake to diagnose Aspergers > solely based on how high-functioning someone is. > When a child is delayed in their speech along with > all their other autistic symptoms they rule it > autistic disorder. If the child has precocious > speech (speaking early) they're more likely to call > that Aspergers. Our daughter didn't babble but she > sang when she was very young. She didn't begin to > speak until after she was 2 but she started out > speaking in full sentences. > > Even though her official dx is autistic disorder she > identifies herself as having Aspergers because she > believes it more accurately represents her current > level of function. But, having the dx does allow > her to be a regional center client. We haven't > needed any of their services yet. But, we think > it's important for her to have a case worker as she > ventures out into the world. It's a safety net in > case she has difficulty with employment. She also > could have access to SSI if she does have trouble > providing for herself. > > My bro probably has Aspergers and has always had a > difficult time being adequately employed so this is > a big concern for us. > > As far as UCLA diagnosing girls, we really had an > interesting experience working with them. We talked > a lot about the differences between boys and girls > on the spectrum. For instance, boys seem to have > obsessions like trains or weather, girls don't > usually do that. In fact, our dd gets very bothered > by boys on the spectrum when they're obsessing over > things like science or maps. She thinks that's > weird. Girls seem to be more isolated because girls > generally are all about social stuff. Boys bond > over common interests so often-times boys on the > spectrum are able to make friends through their > obsessions. Typical girls are obsessed with things > like fashion, which most girls on the spectrum > aren't really interested in. > > Anyway, we were given a 15 page report from UCLA > that continues to be helpful to us even though it's > been 5 years. The recommendations section is 5 > pages long and it details things clear into her > adulthood. > > Hope this helps. > > > > > > need developmental eval > in souther CA > > > I have been needing to get my daughter a full eval > that wasn't from the school district. I > need one that is not biased at all. All of the > other ones cost big bucks so unfortunately it > hasn't happened yet. We are able to do it now but > the question is where. I have narrowed it > down to either San Diego Children's Hospital or > UCLA. I am leaning towards UCLA even > though it is a bit of a hike and about a thousand > more than Childrens. Can anyone chime in > any preferences? > I need to go to the best because I won't have the > money to get it done again. Also I need to > go where they are qualified to see the details in > high-functioning girls that might not be so > main stream with symptoms as the usual case would > be. > > Thanks so much! > > Rebekah > mother to Serena 6 and her siblings > > > > Autism_in_Girls-subscribe > ------------------------ > Autism_in_Girls-unsubscribe > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2007 Report Share Posted November 5, 2007 Do, keep us informed on how this goes. Re: need developmental eval in souther CA Thank you very much. This does help a lot. It helps to know that the $2800 won't be spent for something that is not really going to help. Now if I can only get the paperwork done soon! =) --- The Jueschkes wrote: > We went to UCLA with both our girls. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2007 Report Share Posted November 5, 2007 Do, keep us informed on how this goes. Re: need developmental eval in souther CA Thank you very much. This does help a lot. It helps to know that the $2800 won't be spent for something that is not really going to help. Now if I can only get the paperwork done soon! =) --- The Jueschkes wrote: > We went to UCLA with both our girls. Quote Link to comment Share on other sites More sharing options...
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