Re: Obsessive Compulsive Behavior--Jill

[Guest guest]

In a message dated 8/4/2007 6:03:48 PM Central Daylight Time,

jillplato@... writes:

She

asks for things on the schedule constantly sometimes 1000 times a day. She

will

verbalize it and I will say " yes " that is tomorrow at 1:00 etc., then she

asks again and again. We have tried showing it to her on her schedule. We

have

tried ignoring her...she will get up and be in my face asking. We have

tried redirecting her to other activities

Hi Jill,

I very seldom respond to any of the emails on this list however I always read

them all and have great admiration for the parents that have children with

autism.

My granddaughter, Kayla, age 14+1/2 repeats like your daughter does and I

have never heard of another child repeating to the extent that that Kayla does.

Only she repeats and obsesses over trucks, of all things. Colors of trucks,

makes of trucks, who drives what color trucks, over and over and over. Also

going back to her " old house " someday. She seems to hone in on the town she

previously lived in. Her family just moved here from Clayton, N. Carolina and

she obsesses 100 times a day on going back to Clayton.

Her language is very limited. She understands what you say to her and can

follow simple suggestions. She can tell you where her respite care worker took

her 8 years ago but can't remember how old she is. She is pretty low

functioning and I think that the perserverating is what holds her back from

making any

progress.

Nothing helps to stop her from repeating over and over. Only when she is

sent to her room to settle down for a while does she slow down, but then starts

all over again.

Is your daughter on any meds? KK has been on Risperdal since she was 6yo.

We don't really know if it is still effective for her but hesitate to withdraw

it completely. Have tried cutting back but were unsuccessful.

If you ever find the answer to the repetitive speech please let me know.

Good luck with your daughter.

Grandma

************************************** Get a sneak peek of the all-new AOL at

http://discover.aol.com/memed/aolcom30tour

[Guest guest]

In a message dated 8/4/2007 6:03:48 PM Central Daylight Time,

jillplato@... writes:

She

asks for things on the schedule constantly sometimes 1000 times a day. She

will

verbalize it and I will say " yes " that is tomorrow at 1:00 etc., then she

asks again and again. We have tried showing it to her on her schedule. We

have

tried ignoring her...she will get up and be in my face asking. We have

tried redirecting her to other activities

Hi Jill,

I very seldom respond to any of the emails on this list however I always read

them all and have great admiration for the parents that have children with

autism.

My granddaughter, Kayla, age 14+1/2 repeats like your daughter does and I

have never heard of another child repeating to the extent that that Kayla does.

Only she repeats and obsesses over trucks, of all things. Colors of trucks,

makes of trucks, who drives what color trucks, over and over and over. Also

going back to her " old house " someday. She seems to hone in on the town she

previously lived in. Her family just moved here from Clayton, N. Carolina and

she obsesses 100 times a day on going back to Clayton.

Her language is very limited. She understands what you say to her and can

follow simple suggestions. She can tell you where her respite care worker took

her 8 years ago but can't remember how old she is. She is pretty low

functioning and I think that the perserverating is what holds her back from

making any

progress.

Nothing helps to stop her from repeating over and over. Only when she is

sent to her room to settle down for a while does she slow down, but then starts

all over again.

Is your daughter on any meds? KK has been on Risperdal since she was 6yo.

We don't really know if it is still effective for her but hesitate to withdraw

it completely. Have tried cutting back but were unsuccessful.

If you ever find the answer to the repetitive speech please let me know.

Good luck with your daughter.

Grandma

************************************** Get a sneak peek of the all-new AOL at

http://discover.aol.com/memed/aolcom30tour

[Guest guest]

Jill and Grandma ,

Like you I hardly every responed either. But... I have a 19 year old

daughter with autism who repetitvely comments on peoples clothing, its like her

way of greeting someone.

If I walk into the room instead of saying " Hi Mom " she will say " Nice green

shirt " and sometimes she will associate a pattern or color of clothing with

something. For example if am wearing stripes she may say " Nice candy cane

stripes " etc. It wears on our nerves although most people expect it out of her

and are nice. We have tried eveything to get it to stop. Not sure but I feel it

does hinder her ability to move on to more appropriate conversation. She has

alot of language but cannot get passed remarking on peoples clothing. She is on

no medications so I don't know if they would be of any help. Sometimes if we

are going somewhere where I know that there will be alot of people I tell her

ahead of time to say hello to people and not talk about their clothing. Its as

if she really cannot help herself. She does not take criticism well so its hard

to be to strict with her about it as she then feels like she has done something

really wrong and sulks.

Just thought I would let you both know that I know what its like. Wish I had

the answer!

Jane in Ohio

renots123@... wrote:

In a message dated 8/4/2007 6:03:48 PM Central Daylight Time,

jillplato@... writes:

She

asks for things on the schedule constantly sometimes 1000 times a day. She

will

verbalize it and I will say " yes " that is tomorrow at 1:00 etc., then she

asks again and again. We have tried showing it to her on her schedule. We

have

tried ignoring her...she will get up and be in my face asking. We have

tried redirecting her to other activities

Hi Jill,

I very seldom respond to any of the emails on this list however I always read

them all and have great admiration for the parents that have children with

autism.

My granddaughter, Kayla, age 14+1/2 repeats like your daughter does and I

have never heard of another child repeating to the extent that that Kayla does.

Only she repeats and obsesses over trucks, of all things. Colors of trucks,

makes of trucks, who drives what color trucks, over and over and over. Also

going back to her " old house " someday. She seems to hone in on the town she

previously lived in. Her family just moved here from Clayton, N. Carolina and

she obsesses 100 times a day on going back to Clayton.

Her language is very limited. She understands what you say to her and can

follow simple suggestions. She can tell you where her respite care worker took

her 8 years ago but can't remember how old she is. She is pretty low

functioning and I think that the perserverating is what holds her back from

making any

progress.

Nothing helps to stop her from repeating over and over. Only when she is

sent to her room to settle down for a while does she slow down, but then starts

all over again.

Is your daughter on any meds? KK has been on Risperdal since she was 6yo.

We don't really know if it is still effective for her but hesitate to withdraw

it completely. Have tried cutting back but were unsuccessful.

If you ever find the answer to the repetitive speech please let me know.

Good luck with your daughter.

Grandma

************************************** Get a sneak peek of the all-new AOL at

http://discover.aol.com/memed/aolcom30tour

[Guest guest]

Jill and Grandma ,

Like you I hardly every responed either. But... I have a 19 year old

daughter with autism who repetitvely comments on peoples clothing, its like her

way of greeting someone.

If I walk into the room instead of saying " Hi Mom " she will say " Nice green

shirt " and sometimes she will associate a pattern or color of clothing with

something. For example if am wearing stripes she may say " Nice candy cane

stripes " etc. It wears on our nerves although most people expect it out of her

and are nice. We have tried eveything to get it to stop. Not sure but I feel it

does hinder her ability to move on to more appropriate conversation. She has

alot of language but cannot get passed remarking on peoples clothing. She is on

no medications so I don't know if they would be of any help. Sometimes if we

are going somewhere where I know that there will be alot of people I tell her

ahead of time to say hello to people and not talk about their clothing. Its as

if she really cannot help herself. She does not take criticism well so its hard

to be to strict with her about it as she then feels like she has done something

really wrong and sulks.

Just thought I would let you both know that I know what its like. Wish I had

the answer!

Jane in Ohio

renots123@... wrote:

In a message dated 8/4/2007 6:03:48 PM Central Daylight Time,

jillplato@... writes:

She

asks for things on the schedule constantly sometimes 1000 times a day. She

will

verbalize it and I will say " yes " that is tomorrow at 1:00 etc., then she

asks again and again. We have tried showing it to her on her schedule. We

have

tried ignoring her...she will get up and be in my face asking. We have

tried redirecting her to other activities

Hi Jill,

I very seldom respond to any of the emails on this list however I always read

them all and have great admiration for the parents that have children with

autism.

My granddaughter, Kayla, age 14+1/2 repeats like your daughter does and I

have never heard of another child repeating to the extent that that Kayla does.

Only she repeats and obsesses over trucks, of all things. Colors of trucks,

makes of trucks, who drives what color trucks, over and over and over. Also

going back to her " old house " someday. She seems to hone in on the town she

previously lived in. Her family just moved here from Clayton, N. Carolina and

she obsesses 100 times a day on going back to Clayton.

Her language is very limited. She understands what you say to her and can

follow simple suggestions. She can tell you where her respite care worker took

her 8 years ago but can't remember how old she is. She is pretty low

functioning and I think that the perserverating is what holds her back from

making any

progress.

Nothing helps to stop her from repeating over and over. Only when she is

sent to her room to settle down for a while does she slow down, but then starts

all over again.

Is your daughter on any meds? KK has been on Risperdal since she was 6yo.

We don't really know if it is still effective for her but hesitate to withdraw

it completely. Have tried cutting back but were unsuccessful.

If you ever find the answer to the repetitive speech please let me know.

Good luck with your daughter.

Grandma

************************************** Get a sneak peek of the all-new AOL at

http://discover.aol.com/memed/aolcom30tour

[Guest guest]

Jane this is of a common conversation among womans and she took of

the rule as a form of conversation that is of been maybe modeled to

her from observing womans. I to hate this part of words womans do,

they often comment on the fashion and sale and bargins of name brands

as if this is a social standard that places them in some pecking

order of value as men do with challenging and and strength and dares

of being more powerful and or stronger than their peers in those

social settings. I to often find rules that others have modeled and I

to observed in womans and people and so take of the scripts I to see

or observed and they often become of strong rules and or scripts for

me.

she sounds very social and friendly as though people understand and

like her in return. they accept this is just who she is in life and

that is a VERY good place to be..... she may need more scripts

modeled to her not scripted to her in un natural settings. But

modeled as in you sharing words with a good friend in front of her

make a comment of greets tehn about her clothing and then go to a new

script just add one new beyond the greetings. this will help her to

expand the social conversations .

the one mom who has of a weekly schedule and the child can see maybe

of tomorrows event that might be of causing too much stress and she

may need it to be only one day or even a half a day at a time instead

as it might be too much information and is of causing an overload of

emotions and feelings of expectations she feels she cant do. to

reduce that moutain of expectations reduce the visuals schedule to

reduce the stress levels and need for re-asking the same words over

and over. If you know of an event coming up do not let her know in

her schedule in advance but make up a social story and yet a story in

itself about a little girl going to a concert or movie and what the

little girl did there and such things as this but do not identify it

to her as she is going. you can retell the story a few times over

that week by reading it to her or letting her read it if she can read

yet? but then on the day of the movie place a surprize of question

mark in place of the time you plan to go to the movies . this will

help her not stress on the activity itself but she is now aware a

change will happen that day...

Hope this helps of that.

not doing my best today but wanted to come here. My doctor today put

me on prednisone because had been hurting so badly and felt such a

sad wihin me for it and so much exhaustions it kept to bring of tears

over and over within me. Feeling some better as took of 6 of those

pills this day as the doctor shared me to do and so feeling better

but with this it stops the medical but causes severe insomnia and

agitations at times but rather cope that than the pains.

the sister in law of the husband is now into hospice due to cancer

and so am of sad to this too. it seems she will not be with us by end

of this week. she is of such a strong person and so much with humor

always. It saddens me as she is not very old I to think in mid 40s or

so.

so just been too much into my world to function well.

Sondra

In Autism_in_Girls , JANE JOHNSON

wrote:

>

> Jill and Grandma ,

>

> Like you I hardly every responed either. But... I have a 19

year old daughter with autism who repetitvely comments on peoples

clothing, its like her way of greeting someone.

> If I walk into the room instead of saying " Hi Mom " she will

say " Nice green shirt " and sometimes she will associate a pattern or

color of clothing with something. For example if am wearing stripes

she may say " Nice candy cane stripes " etc. It wears on our nerves

although most people expect it out of her and are nice. We have

tried eveything to get it to stop. Not sure but I feel it does hinder

her ability to move on to more appropriate conversation. She has alot

of language but cannot get passed remarking on peoples clothing. She

is on no medications so I don't know if they would be of any help.

Sometimes if we are going somewhere where I know that there will be

alot of people I tell her ahead of time to say hello to people and

not talk about their clothing. Its as if she really cannot help

herself. She does not take criticism well so its hard to be to

strict with her about it as she then feels like she has done

something really wrong and sulks.

> Just thought I would let you both know that I know what its

like. Wish I had the answer!

>

> Jane in Ohio

>

> renots123@... wrote:

>

> In a message dated 8/4/2007 6:03:48 PM Central Daylight Time,

> jillplato@... writes:

>

> She

> asks for things on the schedule constantly sometimes 1000 times a

day. She

> will

> verbalize it and I will say " yes " that is tomorrow at 1:00 etc.,

then she

> asks again and again. We have tried showing it to her on her

schedule. We

> have

> tried ignoring her...she will get up and be in my face asking. We

have

> tried redirecting her to other activities

>

> Hi Jill,

>

> I very seldom respond to any of the emails on this list however I

always read

> them all and have great admiration for the parents that have

children with

> autism.

>

> My granddaughter, Kayla, age 14+1/2 repeats like your daughter does

and I

> have never heard of another child repeating to the extent that that

Kayla does.

> Only she repeats and obsesses over trucks, of all things. Colors of

trucks,

> makes of trucks, who drives what color trucks, over and over and

over. Also

> going back to her " old house " someday. She seems to hone in on the

town she

> previously lived in. Her family just moved here from Clayton, N.

Carolina and

> she obsesses 100 times a day on going back to Clayton.

>

> Her language is very limited. She understands what you say to her

and can

> follow simple suggestions. She can tell you where her respite care

worker took

> her 8 years ago but can't remember how old she is. She is pretty

low

> functioning and I think that the perserverating is what holds her

back from making any

> progress.

>

> Nothing helps to stop her from repeating over and over. Only when

she is

> sent to her room to settle down for a while does she slow down, but

then starts

> all over again.

>

> Is your daughter on any meds? KK has been on Risperdal since she

was 6yo.

> We don't really know if it is still effective for her but hesitate

to withdraw

> it completely. Have tried cutting back but were unsuccessful.

>

> If you ever find the answer to the repetitive speech please let me

know.

> Good luck with your daughter.

>

> Grandma

>

> ************************************** Get a sneak peek of the all-

new AOL at

> http://discover.aol.com/memed/aolcom30tour

>

>

[Guest guest]

Jane this is of a common conversation among womans and she took of

the rule as a form of conversation that is of been maybe modeled to

her from observing womans. I to hate this part of words womans do,

they often comment on the fashion and sale and bargins of name brands

as if this is a social standard that places them in some pecking

order of value as men do with challenging and and strength and dares

of being more powerful and or stronger than their peers in those

social settings. I to often find rules that others have modeled and I

to observed in womans and people and so take of the scripts I to see

or observed and they often become of strong rules and or scripts for

me.

she sounds very social and friendly as though people understand and

like her in return. they accept this is just who she is in life and

that is a VERY good place to be..... she may need more scripts

modeled to her not scripted to her in un natural settings. But

modeled as in you sharing words with a good friend in front of her

make a comment of greets tehn about her clothing and then go to a new

script just add one new beyond the greetings. this will help her to

expand the social conversations .

the one mom who has of a weekly schedule and the child can see maybe

of tomorrows event that might be of causing too much stress and she

may need it to be only one day or even a half a day at a time instead

as it might be too much information and is of causing an overload of

emotions and feelings of expectations she feels she cant do. to

reduce that moutain of expectations reduce the visuals schedule to

reduce the stress levels and need for re-asking the same words over

and over. If you know of an event coming up do not let her know in

her schedule in advance but make up a social story and yet a story in

itself about a little girl going to a concert or movie and what the

little girl did there and such things as this but do not identify it

to her as she is going. you can retell the story a few times over

that week by reading it to her or letting her read it if she can read

yet? but then on the day of the movie place a surprize of question

mark in place of the time you plan to go to the movies . this will

help her not stress on the activity itself but she is now aware a

change will happen that day...

Hope this helps of that.

not doing my best today but wanted to come here. My doctor today put

me on prednisone because had been hurting so badly and felt such a

sad wihin me for it and so much exhaustions it kept to bring of tears

over and over within me. Feeling some better as took of 6 of those

pills this day as the doctor shared me to do and so feeling better

but with this it stops the medical but causes severe insomnia and

agitations at times but rather cope that than the pains.

the sister in law of the husband is now into hospice due to cancer

and so am of sad to this too. it seems she will not be with us by end

of this week. she is of such a strong person and so much with humor

always. It saddens me as she is not very old I to think in mid 40s or

so.

so just been too much into my world to function well.

Sondra

In Autism_in_Girls , JANE JOHNSON

wrote:

>

> Jill and Grandma ,

>

> Like you I hardly every responed either. But... I have a 19

year old daughter with autism who repetitvely comments on peoples

clothing, its like her way of greeting someone.

> If I walk into the room instead of saying " Hi Mom " she will

say " Nice green shirt " and sometimes she will associate a pattern or

color of clothing with something. For example if am wearing stripes

she may say " Nice candy cane stripes " etc. It wears on our nerves

although most people expect it out of her and are nice. We have

tried eveything to get it to stop. Not sure but I feel it does hinder

her ability to move on to more appropriate conversation. She has alot

of language but cannot get passed remarking on peoples clothing. She

is on no medications so I don't know if they would be of any help.

Sometimes if we are going somewhere where I know that there will be

alot of people I tell her ahead of time to say hello to people and

not talk about their clothing. Its as if she really cannot help

herself. She does not take criticism well so its hard to be to

strict with her about it as she then feels like she has done

something really wrong and sulks.

> Just thought I would let you both know that I know what its

like. Wish I had the answer!

>

> Jane in Ohio

>

> renots123@... wrote:

>

> In a message dated 8/4/2007 6:03:48 PM Central Daylight Time,

> jillplato@... writes:

>

> She

> asks for things on the schedule constantly sometimes 1000 times a

day. She

> will

> verbalize it and I will say " yes " that is tomorrow at 1:00 etc.,

then she

> asks again and again. We have tried showing it to her on her

schedule. We

> have

> tried ignoring her...she will get up and be in my face asking. We

have

> tried redirecting her to other activities

>

> Hi Jill,

>

> I very seldom respond to any of the emails on this list however I

always read

> them all and have great admiration for the parents that have

children with

> autism.

>

> My granddaughter, Kayla, age 14+1/2 repeats like your daughter does

and I

> have never heard of another child repeating to the extent that that

Kayla does.

> Only she repeats and obsesses over trucks, of all things. Colors of

trucks,

> makes of trucks, who drives what color trucks, over and over and

over. Also

> going back to her " old house " someday. She seems to hone in on the

town she

> previously lived in. Her family just moved here from Clayton, N.

Carolina and

> she obsesses 100 times a day on going back to Clayton.

>

> Her language is very limited. She understands what you say to her

and can

> follow simple suggestions. She can tell you where her respite care

worker took

> her 8 years ago but can't remember how old she is. She is pretty

low

> functioning and I think that the perserverating is what holds her

back from making any

> progress.

>

> Nothing helps to stop her from repeating over and over. Only when

she is

> sent to her room to settle down for a while does she slow down, but

then starts

> all over again.

>

> Is your daughter on any meds? KK has been on Risperdal since she

was 6yo.

> We don't really know if it is still effective for her but hesitate

to withdraw

> it completely. Have tried cutting back but were unsuccessful.

>

> If you ever find the answer to the repetitive speech please let me

know.

> Good luck with your daughter.

>

> Grandma

>

> ************************************** Get a sneak peek of the all-

new AOL at

> http://discover.aol.com/memed/aolcom30tour

>

>

[Guest guest]

Sondra,

Thanks for your advice with Jenna and her clothes commenting, you are right in

that she hears this often among women in a social setting and has for some

reason picked up on this and it has lodged itself somewhere in her brain and she

cannot help herself in a social situation. We do prompt her to say " Hello " first

and she will, and then say something about the shirt they have on. Today is her

19th birthday so we are going to have a great day together and put aside all of

our worries and be so grateful of how far she has come in the past 15 years

since her diagnosis. Its sometimes both exciting and scary to see what the

future holds for her. Hard for her Dad and I to imaging her out on her own at

some point, but we also know that she will be and needs to be.

Sorry to hear that you are not feeling well, and I will say a prayer for you

and your sister-in law. Like I mentioned I do not post often, but I see where

you are a real sense of strength and support to this group. Thank-You

Jane

sondra wrote:

Jane this is of a common conversation among womans and she took of

the rule as a form of conversation that is of been maybe modeled to

her from observing womans. I to hate this part of words womans do,

they often comment on the fashion and sale and bargins of name brands

as if this is a social standard that places them in some pecking

order of value as men do with challenging and and strength and dares

of being more powerful and or stronger than their peers in those

social settings. I to often find rules that others have modeled and I

to observed in womans and people and so take of the scripts I to see

or observed and they often become of strong rules and or scripts for

me.

she sounds very social and friendly as though people understand and

like her in return. they accept this is just who she is in life and

that is a VERY good place to be..... she may need more scripts

modeled to her not scripted to her in un natural settings. But

modeled as in you sharing words with a good friend in front of her

make a comment of greets tehn about her clothing and then go to a new

script just add one new beyond the greetings. this will help her to

expand the social conversations .

the one mom who has of a weekly schedule and the child can see maybe

of tomorrows event that might be of causing too much stress and she

may need it to be only one day or even a half a day at a time instead

as it might be too much information and is of causing an overload of

emotions and feelings of expectations she feels she cant do. to

reduce that moutain of expectations reduce the visuals schedule to

reduce the stress levels and need for re-asking the same words over

and over. If you know of an event coming up do not let her know in

her schedule in advance but make up a social story and yet a story in

itself about a little girl going to a concert or movie and what the

little girl did there and such things as this but do not identify it

to her as she is going. you can retell the story a few times over

that week by reading it to her or letting her read it if she can read

yet? but then on the day of the movie place a surprize of question

mark in place of the time you plan to go to the movies . this will

help her not stress on the activity itself but she is now aware a

change will happen that day...

Hope this helps of that.

not doing my best today but wanted to come here. My doctor today put

me on prednisone because had been hurting so badly and felt such a

sad wihin me for it and so much exhaustions it kept to bring of tears

over and over within me. Feeling some better as took of 6 of those

pills this day as the doctor shared me to do and so feeling better

but with this it stops the medical but causes severe insomnia and

agitations at times but rather cope that than the pains.

the sister in law of the husband is now into hospice due to cancer

and so am of sad to this too. it seems she will not be with us by end

of this week. she is of such a strong person and so much with humor

always. It saddens me as she is not very old I to think in mid 40s or

so.

so just been too much into my world to function well.

Sondra

In Autism_in_Girls , JANE JOHNSON

wrote:

>

> Jill and Grandma ,

>

> Like you I hardly every responed either. But... I have a 19

year old daughter with autism who repetitvely comments on peoples

clothing, its like her way of greeting someone.

> If I walk into the room instead of saying " Hi Mom " she will

say " Nice green shirt " and sometimes she will associate a pattern or

color of clothing with something. For example if am wearing stripes

she may say " Nice candy cane stripes " etc. It wears on our nerves

although most people expect it out of her and are nice. We have

tried eveything to get it to stop. Not sure but I feel it does hinder

her ability to move on to more appropriate conversation. She has alot

of language but cannot get passed remarking on peoples clothing. She

is on no medications so I don't know if they would be of any help.

Sometimes if we are going somewhere where I know that there will be

alot of people I tell her ahead of time to say hello to people and

not talk about their clothing. Its as if she really cannot help

herself. She does not take criticism well so its hard to be to

strict with her about it as she then feels like she has done

something really wrong and sulks.

> Just thought I would let you both know that I know what its

like. Wish I had the answer!

>

> Jane in Ohio

>

> renots123@... wrote:

>

> In a message dated 8/4/2007 6:03:48 PM Central Daylight Time,

> jillplato@... writes:

>

> She

> asks for things on the schedule constantly sometimes 1000 times a

day. She

> will

> verbalize it and I will say " yes " that is tomorrow at 1:00 etc.,

then she

> asks again and again. We have tried showing it to her on her

schedule. We

> have

> tried ignoring her...she will get up and be in my face asking. We

have

> tried redirecting her to other activities

>

> Hi Jill,

>

> I very seldom respond to any of the emails on this list however I

always read

> them all and have great admiration for the parents that have

children with

> autism.

>

> My granddaughter, Kayla, age 14+1/2 repeats like your daughter does

and I

> have never heard of another child repeating to the extent that that

Kayla does.

> Only she repeats and obsesses over trucks, of all things. Colors of

trucks,

> makes of trucks, who drives what color trucks, over and over and

over. Also

> going back to her " old house " someday. She seems to hone in on the

town she

> previously lived in. Her family just moved here from Clayton, N.

Carolina and

> she obsesses 100 times a day on going back to Clayton.

>

> Her language is very limited. She understands what you say to her

and can

> follow simple suggestions. She can tell you where her respite care

worker took

> her 8 years ago but can't remember how old she is. She is pretty

low

> functioning and I think that the perserverating is what holds her

back from making any

> progress.

>

> Nothing helps to stop her from repeating over and over. Only when

she is

> sent to her room to settle down for a while does she slow down, but

then starts

> all over again.

>

> Is your daughter on any meds? KK has been on Risperdal since she

was 6yo.

> We don't really know if it is still effective for her but hesitate

to withdraw

> it completely. Have tried cutting back but were unsuccessful.

>

> If you ever find the answer to the repetitive speech please let me

know.

> Good luck with your daughter.

>

> Grandma

>

> ************************************** Get a sneak peek of the all-

new AOL at

> http://discover.aol.com/memed/aolcom30tour

>

>

[Guest guest]

Sondra,

Thanks for your advice with Jenna and her clothes commenting, you are right in

that she hears this often among women in a social setting and has for some

reason picked up on this and it has lodged itself somewhere in her brain and she

cannot help herself in a social situation. We do prompt her to say " Hello " first

and she will, and then say something about the shirt they have on. Today is her

19th birthday so we are going to have a great day together and put aside all of

our worries and be so grateful of how far she has come in the past 15 years

since her diagnosis. Its sometimes both exciting and scary to see what the

future holds for her. Hard for her Dad and I to imaging her out on her own at

some point, but we also know that she will be and needs to be.

Sorry to hear that you are not feeling well, and I will say a prayer for you

and your sister-in law. Like I mentioned I do not post often, but I see where

you are a real sense of strength and support to this group. Thank-You

Jane

sondra wrote:

Jane this is of a common conversation among womans and she took of

the rule as a form of conversation that is of been maybe modeled to

her from observing womans. I to hate this part of words womans do,

they often comment on the fashion and sale and bargins of name brands

as if this is a social standard that places them in some pecking

order of value as men do with challenging and and strength and dares

of being more powerful and or stronger than their peers in those

social settings. I to often find rules that others have modeled and I

to observed in womans and people and so take of the scripts I to see

or observed and they often become of strong rules and or scripts for

me.

she sounds very social and friendly as though people understand and

like her in return. they accept this is just who she is in life and

that is a VERY good place to be..... she may need more scripts

modeled to her not scripted to her in un natural settings. But

modeled as in you sharing words with a good friend in front of her

make a comment of greets tehn about her clothing and then go to a new

script just add one new beyond the greetings. this will help her to

expand the social conversations .

the one mom who has of a weekly schedule and the child can see maybe

of tomorrows event that might be of causing too much stress and she

may need it to be only one day or even a half a day at a time instead

as it might be too much information and is of causing an overload of

emotions and feelings of expectations she feels she cant do. to

reduce that moutain of expectations reduce the visuals schedule to

reduce the stress levels and need for re-asking the same words over

and over. If you know of an event coming up do not let her know in

her schedule in advance but make up a social story and yet a story in

itself about a little girl going to a concert or movie and what the

little girl did there and such things as this but do not identify it

to her as she is going. you can retell the story a few times over

that week by reading it to her or letting her read it if she can read

yet? but then on the day of the movie place a surprize of question

mark in place of the time you plan to go to the movies . this will

help her not stress on the activity itself but she is now aware a

change will happen that day...

Hope this helps of that.

not doing my best today but wanted to come here. My doctor today put

me on prednisone because had been hurting so badly and felt such a

sad wihin me for it and so much exhaustions it kept to bring of tears

over and over within me. Feeling some better as took of 6 of those

pills this day as the doctor shared me to do and so feeling better

but with this it stops the medical but causes severe insomnia and

agitations at times but rather cope that than the pains.

the sister in law of the husband is now into hospice due to cancer

and so am of sad to this too. it seems she will not be with us by end

of this week. she is of such a strong person and so much with humor

always. It saddens me as she is not very old I to think in mid 40s or

so.

so just been too much into my world to function well.

Sondra

In Autism_in_Girls , JANE JOHNSON

wrote:

>

> Jill and Grandma ,

>

> Like you I hardly every responed either. But... I have a 19

year old daughter with autism who repetitvely comments on peoples

clothing, its like her way of greeting someone.

> If I walk into the room instead of saying " Hi Mom " she will

say " Nice green shirt " and sometimes she will associate a pattern or

color of clothing with something. For example if am wearing stripes

she may say " Nice candy cane stripes " etc. It wears on our nerves

although most people expect it out of her and are nice. We have

tried eveything to get it to stop. Not sure but I feel it does hinder

her ability to move on to more appropriate conversation. She has alot

of language but cannot get passed remarking on peoples clothing. She

is on no medications so I don't know if they would be of any help.

Sometimes if we are going somewhere where I know that there will be

alot of people I tell her ahead of time to say hello to people and

not talk about their clothing. Its as if she really cannot help

herself. She does not take criticism well so its hard to be to

strict with her about it as she then feels like she has done

something really wrong and sulks.

> Just thought I would let you both know that I know what its

like. Wish I had the answer!

>

> Jane in Ohio

>

> renots123@... wrote:

>

> In a message dated 8/4/2007 6:03:48 PM Central Daylight Time,

> jillplato@... writes:

>

> She

> asks for things on the schedule constantly sometimes 1000 times a

day. She

> will

> verbalize it and I will say " yes " that is tomorrow at 1:00 etc.,

then she

> asks again and again. We have tried showing it to her on her

schedule. We

> have

> tried ignoring her...she will get up and be in my face asking. We

have

> tried redirecting her to other activities

>

> Hi Jill,

>

> I very seldom respond to any of the emails on this list however I

always read

> them all and have great admiration for the parents that have

children with

> autism.

>

> My granddaughter, Kayla, age 14+1/2 repeats like your daughter does

and I

> have never heard of another child repeating to the extent that that

Kayla does.

> Only she repeats and obsesses over trucks, of all things. Colors of

trucks,

> makes of trucks, who drives what color trucks, over and over and

over. Also

> going back to her " old house " someday. She seems to hone in on the

town she

> previously lived in. Her family just moved here from Clayton, N.

Carolina and

> she obsesses 100 times a day on going back to Clayton.

>

> Her language is very limited. She understands what you say to her

and can

> follow simple suggestions. She can tell you where her respite care

worker took

> her 8 years ago but can't remember how old she is. She is pretty

low

> functioning and I think that the perserverating is what holds her

back from making any

> progress.

>

> Nothing helps to stop her from repeating over and over. Only when

she is

> sent to her room to settle down for a while does she slow down, but

then starts

> all over again.

>

> Is your daughter on any meds? KK has been on Risperdal since she

was 6yo.

> We don't really know if it is still effective for her but hesitate

to withdraw

> it completely. Have tried cutting back but were unsuccessful.

>

> If you ever find the answer to the repetitive speech please let me

know.

> Good luck with your daughter.

>

> Grandma

>

> ************************************** Get a sneak peek of the all-

new AOL at

> http://discover.aol.com/memed/aolcom30tour

>

>