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  • 4 years later...

Hi I am new here my name is Crystal. I have a daughter Lexi she is 6 and was

recently diagnosed with OCD and anxiety issues. Lexi has sensory issues as

well. She hates lunch because it is to loud. Recently she was losing a tooth

this caused extreme fear and trama for 48 hours. She became so obsessed with it

being lose that she was wiggling it in her sleep. she would wake me crying in

the middle of the night. Some mornings it takes us 20 minutes to find a pair of

socks that are acceptable. Lexi also does not seem to understand " social " cues.

When something is not right she has melt downs this is translated to other

people as a lack of dicipline. Lexi does not seem to have issues with her

grades she is getting all A's in school. She does hate school and stresses about

going daily.

I am finding the hardest part is that Lexi on the outside does not seem to have

any issues to most people. Lexi is very good at hiding her fears in front of

others. She comes across as a little shy and sometimes " bratty " when she has a

melt down. I have noticed that consistency is the best. she needs to follow

set routines or meltdown occurs. Most people feel i am just giving her her way.

I am exhuasted with the emotional roller coaster that I go on daily with her. I

have had to cut my hours down at work to 5-10 hours due to trying to keep things

in her routine. I get tired of either explaining or defending my actions and

Lexi's issues with others. Every day I am on pin's and needles wondering what

has set her off during the day. I find that the school is willing to work with

somewhat but feel that they don't seem to fully understand what Lexi goes thru.

Does anyone else struggle with this?

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Hi Crystal,

Your daughter sound much like mine. Very intelligent and can appear very

normal so the problems get overlooked, with sensory problems that make

school very difficult. My daughter also has aspergers traits and your

description sounds like that for your daughter also. We finally have an

IEP for my daughter and that is helping tremendously. I would get an

evaluation through a good neuropsychologist and have the school develop

an IEP for her. Because my daughter did so well in school, her other

issues were not recognized for a very long time. But now that they have

acknowledged that she has issues, they seem willing to accommodate her.

Sandy

--

Seaman, 57 Park Road, West Lawn, PA 19609, ,

sandree@...

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