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Re: My son just can't stop-more venting

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The last trip I made into his room I just wanted to cry. I feel so sad and

frustrated all at the same time. Why aren't the professionals helping him and

why can't I have good insurance to get other professionals???

>

> I have no idea what to do with my 7 yr old anymore. He is on 50mg zolft,

..50mg risperdal, 3mg meletonin and supposed to start tennex when insurance

approves it. He has been awful. Need to make the toy car leak. It has gotten

progressively worse since school let out. Tonight he wanted bath at 6 (where he

makes his cars leak is the bath usually). I tried to tell him it was too early

and he had already gotten inthe tub. He used two bottles of shower gel (his,

thank god) and then after 40 minutes, said he wanted to go to bed-I thought this

was odd and said no. He then proceeded to watch the same car drip onto the

kitchen floor. I ws able to get a bedtime story in then at 7:15 he swore he was

tired and wanted to go to bed. So I got him into bed, he took the car to bed.

Then I heard the car opening and closing-he was making it leak. I took his water

away. Still heard sounds, he had dumped shower gel into the car engine then onto

papers into his room from the car-took anything liquid out of room-he swore he

wasn;t going to bed I swore he was and hauled him back to bed. Checked on him a

few minutes later- car was in bed with him-remains of shower gel all over his

sheets. I am ready to run. I cannot handle this. It gets more sevre by the day.

I have no idea how to stop him. I think he gets up in the middle of the night to

do this too. He is very good at sneaking around to do it.Ahhhhh!

>

>

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I am so sorry u are going through this. I cant imagine how frustrating this is.

You have to take a break ( i know easier said then done -i have 5 kids) but for

ur sanity u have to get away . Is their anyone that could come over and watch

him or tomarrow. Can u go to a theripist(ms) ? My son has adhd,high functioning

form of austism and ocd. I know its hard. I have been their too not knowing what

to do and just wanting to run away! but if we did what would our kids do? None

knows how to care for our children better then we do--truely.. sometimes i feel

like their is no need for me (when mother in law is around-she seems to get

everything done that needs done and take care of everyone in minutes.... ) but

i know she doesnt have what i have....i am their mom..Try and take a break and

remeber the clothes,sheets and stuff can be washed(not as if u need more to

wash,,lol) but it can. hugs, christy 

 

________________________________

To:

Sent: Mon, June 14, 2010 7:52:44 PM

Subject: Re: My son just can't stop-more venting

 

The last trip I made into his room I just wanted to cry. I feel so sad and

frustrated all at the same time. Why aren't the professionals helping him and

why can't I have good insurance to get other professionals???

>

> I have no idea what to do with my 7 yr old anymore. He is on 50mg zolft, .50mg

risperdal, 3mg meletonin and supposed to start tennex when insurance approves

it. He has been awful. Need to make the toy car leak. It has gotten

progressively worse since school let out. Tonight he wanted bath at 6 (where he

makes his cars leak is the bath usually). I tried to tell him it was too early

and he had already gotten inthe tub. He used two bottles of shower gel (his,

thank god) and then after 40 minutes, said he wanted to go to bed-I thought this

was odd and said no. He then proceeded to watch the same car drip onto the

kitchen floor. I ws able to get a bedtime story in then at 7:15 he swore he was

tired and wanted to go to bed. So I got him into bed, he took the car to bed.

Then I heard the car opening and closing-he was making it leak. I took his water

away. Still heard sounds, he had dumped shower gel into the car engine then onto

papers into his room from the

car-took anything liquid out of room-he swore he wasn;t going to bed I swore he

was and hauled him back to bed. Checked on him a few minutes later- car was in

bed with him-remains of shower gel all over his sheets. I am ready to run. I

cannot handle this. It gets more sevre by the day. I have no idea how to stop

him. I think he gets up in the middle of the night to do this too. He is very

good at sneaking around to do it.Ahhhhh!

>

>

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Guest guest

Hi ,

I am so sorry to hear what you are going through! This is a rough time! With our

son what worked best for us is giving him warnings. For instance, if you tell

him he has 10 more minutes in the tub to finish up, then keep your eye on the

timer and let him know that he only has 9 more minutes, until it time to get out

and tell him play by play minute by minute. The warnings have helped us. But we

had to do it with everything!!! If we where visiting friends or family, we would

have to say we are leaving in 30 minutes. But it was something that we had to

stick too. You can't give in and give them more minutes. When the time is up it

is up, no ifs and or buts! After a day or so it works, but you have to stick to

it. You can't give in! I am the worst at that because I always say just a few

more minutes, but you can't! You have to stick to the time. Eventually he will

know that he only has a few more minutes. He will make the most of his time and

he will learn

that it is over. I know what you are going through, it is really hard! But if I

can do this then I know you can do it! Our son is now 11, we still have issues.

It seems like it runs in months, 6 months horrible, then realive for 6 months.

It is really hard! You are a strong woman, you can do this! Your kids will

someday thank you and you will be so happy that you stuck with it! This will

pass, and one day you will laugh about it, but until then hang in there! Anytime

you need a pep talk, I am here for you! I will be your cheerleader! If I could

do this from the time my son was in first grade (age 6) then you to can do it. I

had to go on Prozac for 6 years to help me deal. It was the best thing I ever

did. Right now I am off Prozac, but thinking about going back on until, I can

get our son on board. Life does get better, just hang on!

________________________________

To:

Sent: Mon, June 14, 2010 5:25:07 PM

Subject: My son just can't stop-more venting

 

I have no idea what to do with my 7 yr old anymore. He is on 50mg zolft, .50mg

risperdal, 3mg meletonin and supposed to start tennex when insurance approves

it. He has been awful. Need to make the toy car leak. It has gotten

progressively worse since school let out. Tonight he wanted bath at 6 (where he

makes his cars leak is the bath usually). I tried to tell him it was too early

and he had already gotten inthe tub. He used two bottles of shower gel (his,

thank god) and then after 40 minutes, said he wanted to go to bed-I thought this

was odd and said no. He then proceeded to watch the same car drip onto the

kitchen floor. I ws able to get a bedtime story in then at 7:15 he swore he was

tired and wanted to go to bed. So I got him into bed, he took the car to bed.

Then I heard the car opening and closing-he was making it leak. I took his water

away. Still heard sounds, he had dumped shower gel into the car engine then onto

papers into his room from the

car-took anything liquid out of room-he swore he wasn;t going to bed I swore he

was and hauled him back to bed. Checked on him a few minutes later- car was in

bed with him-remains of shower gel all over his sheets. I am ready to run. I

cannot handle this. It gets more sevre by the day. I have no idea how to stop

him. I think he gets up in the middle of the night to do this too. He is very

good at sneaking around to do it.Ahhhhh!

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Guest guest

I have locked things up in the truck of my car so they are

out of sight. Therapists will tell you they don't like this

strategy (they want the child to develop self control).

But it works. He doesn't have to know where they are at.

He sounds on the autism spectrum (ASD) more than purely OCD.

He is getting satisfaction out of these activites. If it was

pure OCD he would be upset that he has to keep doing these

things. In ASD the kids find some relief from stress by

focusing in on something like this.

The tried and true therapy for kids on the autism spectrum is

Behavior Therapy. Often more medication does not help

reduce repetitive behaviors. There are 101 suggestions people

will make to try and substitute this activity with something

more acceptable. There is no crsytal ball which one will help.

There are baby toys that shift water in the toy around for

bedtime as a substitute and there are alarm clocks that

make water and other sounds. Toy stores sell tubes that

you can squeeze. He is likely to not want these subsitutes. All you can do is

try to gradually introduce them and have he try for 1 minute using a

replacement. And keep increasing the time.

It is exhausting.

I enjoyed Dr. Greenspan's book on " Engaging Autism " . When

he is pouring in the tub you can join in taking a turn,

he may not want you too. But you can stay persistent and

calm. Pretend you are doing what he is then. You can try to help him regulate

himself and find an end to the play.

Pam

>

> I have no idea what to do with my 7 yr old anymore. He is on 50mg zolft,

..50mg risperdal, 3mg meletonin and supposed to start tennex when insurance

approves it. He has been awful. Need to make the toy car leak. It has gotten

progressively worse since school let out. Tonight he wanted bath at 6 (where he

makes his cars leak is the bath usually). I tried to tell him it was too early

and he had already gotten inthe tub. He used two bottles of shower gel (his,

thank god) and then after 40 minutes, said he wanted to go to bed-I thought this

was odd and said no. He then proceeded to watch the same car drip onto the

kitchen floor. I ws able to get a bedtime story in then at 7:15 he swore he was

tired and wanted to go to bed. So I got him into bed, he took the car to bed.

Then I heard the car opening and closing-he was making it leak. I took his water

away. Still heard sounds, he had dumped shower gel into the car engine then onto

papers into his room from the car-took anything liquid out of room-he swore he

wasn;t going to bed I swore he was and hauled him back to bed. Checked on him a

few minutes later- car was in bed with him-remains of shower gel all over his

sheets. I am ready to run. I cannot handle this. It gets more sevre by the day.

I have no idea how to stop him. I think he gets up in the middle of the night to

do this too. He is very good at sneaking around to do it.Ahhhhh!

>

>

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Guest guest

,

 

My son has autism and OCD. His " thing " is printing hundreds of paper out of our

printer or tearing up papers. Watching paper printed out of that printer again

and again and again ( repetitively) brings my son the biggest releif or he will

just grab anything is paper and tear them all up again and again.... So, we have

to lock up the room where the printer is, or put away all the books, documents..

However, this is what we use to help him slow down these repetitive impulsive

behaviors

 

1) Make him exercise regularly throughout a day. And the exercise has to be some

form of repetition. We bought him a big gynastic ball, he can sit down it and

bounce it again and again and again all over the house. Give him that ball to

bounce on it for 20 mintues, it consume him engery, and excersise can help him

overcome the desire of being repetitive, also make him tired, reduce anxiety.

You may have your son try some repetitive type of exercise before bed time, sort

of wear him out. He will sleep better, deeper, too. We also use work-out bike to

have him pedal the bike repetitively, wear out his energy.

 

2) We give my son a very structure schedule throuought a day by writing these

tasks down on the board, or use visualized picture such as

7 am--breakfast

7:30 am--clean up plates and wash hands

7:45 am--brush teeth, wash face

8:00 am--changing clothes ( old navy jeans and spider man T-shirt today)

8:15 am--taking a walk with our dog by the lake

9:15 am--snack and cold drink

10 am---watching shrek part II

12 pm--lunch--chicken sandwich and grapejuice and baby carrots

1 pm--quite time--option: 1) coloring 2) print out 5 coloring pages ( we blend

in the printing thing into his daily task..)

2 pm--playing with dog

2:30 pm--washing hands and snacks ( my son can choose)

3:00 pm---do home work (writing numbers and practice sentences...)....

 

So and so forth.

 

In the beginning, he will resist following schedule. But you have to be firm and

make sure he is on schedule. If your son has autism, put everything as schedule,

actually he follows them, that make him feel safe and feel certain, reduce

anxiety, too.  Some day, my son will ask for printing in the early morning

(skip the schedule), but we show him the schedule written down on the board, he

knows he has to get all the tasks done to get to the point where he gets

to print paper.

 

It helps reduce the times of repeating that same tasks. And for a long run, he

will learn that if he wants to print paper, he needs to get all these tasks

done.

 

 

Hugs and love,

 

Rei

 

Subject: Re: My son just can't stop-more venting

To:

Date: Tuesday, June 15, 2010, 7:59 AM

 

I have locked things up in the truck of my car so they are

out of sight. Therapists will tell you they don't like this

strategy (they want the child to develop self control).

But it works. He doesn't have to know where they are at.

He sounds on the autism spectrum (ASD) more than purely OCD.

He is getting satisfaction out of these activites. If it was

pure OCD he would be upset that he has to keep doing these

things. In ASD the kids find some relief from stress by

focusing in on something like this.

The tried and true therapy for kids on the autism spectrum is

Behavior Therapy. Often more medication does not help

reduce repetitive behaviors. There are 101 suggestions people

will make to try and substitute this activity with something

more acceptable. There is no crsytal ball which one will help.

There are baby toys that shift water in the toy around for

bedtime as a substitute and there are alarm clocks that

make water and other sounds. Toy stores sell tubes that

you can squeeze. He is likely to not want these subsitutes. All you can do is

try to gradually introduce them and have he try for 1 minute using a

replacement. And keep increasing the time.

It is exhausting.

I enjoyed Dr. Greenspan's book on " Engaging Autism " . When

he is pouring in the tub you can join in taking a turn,

he may not want you too. But you can stay persistent and

calm. Pretend you are doing what he is then. You can try to help him regulate

himself and find an end to the play.

Pam

>

> I have no idea what to do with my 7 yr old anymore. He is on 50mg zolft, .50mg

risperdal, 3mg meletonin and supposed to start tennex when insurance approves

it. He has been awful. Need to make the toy car leak. It has gotten

progressively worse since school let out. Tonight he wanted bath at 6 (where he

makes his cars leak is the bath usually). I tried to tell him it was too early

and he had already gotten inthe tub. He used two bottles of shower gel (his,

thank god) and then after 40 minutes, said he wanted to go to bed-I thought this

was odd and said no. He then proceeded to watch the same car drip onto the

kitchen floor. I ws able to get a bedtime story in then at 7:15 he swore he was

tired and wanted to go to bed. So I got him into bed, he took the car to bed.

Then I heard the car opening and closing-he was making it leak. I took his water

away. Still heard sounds, he had dumped shower gel into the car engine then onto

papers into his room from the

car-took anything liquid out of room-he swore he wasn;t going to bed I swore he

was and hauled him back to bed. Checked on him a few minutes later- car was in

bed with him-remains of shower gel all over his sheets. I am ready to run. I

cannot handle this. It gets more sevre by the day. I have no idea how to stop

him. I think he gets up in the middle of the night to do this too. He is very

good at sneaking around to do it.Ahhhhh!

>

>

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Guest guest

Very good description! I agree completely that this type of strategy works. You

have to be firm about sticking to the routine, as hard as that will be.

Pam

> >

> > I have no idea what to do with my 7 yr old anymore. He is on 50mg zolft,

..50mg risperdal, 3mg meletonin and supposed to start tennex when insurance

approves it. He has been awful. Need to make the toy car leak. It has gotten

progressively worse since school let out. Tonight he wanted bath at 6 (where he

makes his cars leak is the bath usually). I tried to tell him it was too early

and he had already gotten inthe tub. He used two bottles of shower gel (his,

thank god) and then after 40 minutes, said he wanted to go to bed-I thought this

was odd and said no. He then proceeded to watch the same car drip onto the

kitchen floor. I ws able to get a bedtime story in then at 7:15 he swore he was

tired and wanted to go to bed. So I got him into bed, he took the car to bed.

Then I heard the car opening and closing-he was making it leak. I took his water

away. Still heard sounds, he had dumped shower gel into the car engine then onto

papers into his room from the

> car-took anything liquid out of room-he swore he wasn;t going to bed I swore

he was and hauled him back to bed. Checked on him a few minutes later- car was

in bed with him-remains of shower gel all over his sheets. I am ready to run. I

cannot handle this. It gets more sevre by the day. I have no idea how to stop

him. I think he gets up in the middle of the night to do this too. He is very

good at sneaking around to do it.Ahhhhh!

> >

> >

>

>

>

>

>

>

>

>

>

>

>

>

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Guest guest

HI ,

I think at this point, I would lock up all the shower gels and allow him only

bar soap.

Hugs

Judy

________________________________

To:

Sent: Mon, June 14, 2010 8:25:07 PM

Subject: My son just can't stop-more venting

 

I have no idea what to do with my 7 yr old anymore. He is on 50mg zolft, .50mg

risperdal, 3mg meletonin and supposed to start tennex when insurance approves

it. He has been awful. Need to make the toy car leak. It has gotten

progressively worse since school let out. Tonight he wanted bath at 6 (where he

makes his cars leak is the bath usually). I tried to tell him it was too early

and he had already gotten inthe tub. He used two bottles of shower gel (his,

thank god) and then after 40 minutes, said he wanted to go to bed-I thought this

was odd and said no. He then proceeded to watch the same car drip onto the

kitchen floor. I ws able to get a bedtime story in then at 7:15 he swore he was

tired and wanted to go to bed. So I got him into bed, he took the car to bed.

Then I heard the car opening and closing-he was making it leak. I took his water

away. Still heard sounds, he had dumped shower gel into the car engine then onto

papers into his room from the

car-took anything liquid out of room-he swore he wasn;t going to bed I swore he

was and hauled him back to bed. Checked on him a few minutes later- car was in

bed with him-remains of shower gel all over his sheets. I am ready to run. I

cannot handle this. It gets more sevre by the day. I have no idea how to stop

him. I think he gets up in the middle of the night to do this too. He is very

good at sneaking around to do it.Ahhhhh!

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Guest guest

That is my thinking too. He may throw a fit but it will stop at some point. I

think each time he does it, his need to do it is becoming stronger. Stormy

________________________________

To:

Sent: Tue, June 15, 2010 11:46:13 AM

Subject: Re: My son just can't stop-more venting

HI ,

I think at this point, I would lock up all the shower gels and allow him only

bar soap.

Hugs

Judy

________________________________

To:

Sent: Mon, June 14, 2010 8:25:07 PM

Subject: My son just can't stop-more venting

I have no idea what to do with my 7 yr old anymore. He is on 50mg zolft, .50mg

risperdal, 3mg meletonin and supposed to start tennex when insurance approves

it. He has been awful. Need to make the toy car leak. It has gotten

progressively worse since school let out. Tonight he wanted bath at 6 (where he

makes his cars leak is the bath usually). I tried to tell him it was too early

and he had already gotten inthe tub. He used two bottles of shower gel (his,

thank god) and then after 40 minutes, said he wanted to go to bed-I thought this

was odd and said no. He then proceeded to watch the same car drip onto the

kitchen floor. I ws able to get a bedtime story in then at 7:15 he swore he was

tired and wanted to go to bed. So I got him into bed, he took the car to bed.

Then I heard the car opening and closing-he was making it leak. I took his water

away. Still heard sounds, he had dumped shower gel into the car engine then onto

papers into his room from the

car-took anything liquid out of room-he swore he wasn;t going to bed I swore he

was and hauled him back to bed. Checked on him a few minutes later- car was in

bed with him-remains of shower gel all over his sheets. I am ready to run. I

cannot handle this. It gets more sevre by the day. I have no idea how to stop

him. I think he gets up in the middle of the night to do this too. He is very

good at sneaking around to do it.Ahhhhh!

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