New Member Intro

[Guest guest]

Do you HAVE to heat milk to make yogurt. I really am convinced raw is best. I tried 2 days ago to make yogurt with out heating the milk first. I added 1+/- TBS of "'s Organic Whole Milk Yogurt" to a qaurt of unheated milk and then put it in the oven in a batch jar (from my yogurt maker) in a bowl of warm water. I then set the oven to 150 and let it set overnight. I didn't really get yogurt but a wonderful soft cheese and yummy whey! As I am writing this I'm thinking maybe the oven was too warm???

Hello Syrie, this sounds wonderful..I think I will try it..isnt it wonderful when we get lil surprises like this...Welcome to the group..good to have you...I am posting this to my recipe index, to use as soon as the darn goat freshens..LOL lisa in PA

[Guest guest]

I don't heat my raw milk past 105 and keep it more to100 degrees and it is thick yogurt. Shery

Re: New member Intro

Do you HAVE to heat milk to make yogurt. I really am convinced raw is best. I tried 2 days ago to make yogurt with out heating the milk first. I added 1+/- TBS of "'s Organic Whole Milk Yogurt" to a qaurt of unheated milk and then put it in the oven in a batch jar (from my yogurt maker) in a bowl of warm water. I then set the oven to 150 and let it set overnight. I didn't really get yogurt but a wonderful soft cheese and yummy whey! As I am writing this I'm thinking maybe the oven was too warm??? Hello Syrie, this sounds wonderful..I think I will try it..isnt it wonderful when we get lil surprises like this...Welcome to the group..good to have you...I am posting this to my recipe index, to use as soon as the darn goat freshens..LOL lisa in PA

[Guest guest]

I am so sorry you had to get this. You will find not only information

here but many many kind wonderful friends. I wish for you the longest and

fastest remssion. Rest helps if you can Hugs Liz NJ

[Guest guest]

Hi

Welcome to the group, although of course I am sorry you have had too!

I'm glad you have recovered to the point you can work again and seem

to be controlled on your meds. The stuff you are on are fairly

standard for Stills disease. You've come to the right place for

support and information. I know there is someone with Stills in

Seattle - Lorie - so she may be able to help you find a specialist

there.

Depression is very common with this illness as well. Many are on

antidepressants, which can be of great help. Reducing the pred may

cause you to feel depressed as well.

You've found a lot of kindred spirits here, that's for sure. I'm

Caroline no. 2 and actually have Lupus, but stay with this group as

it's so lovely. Lupus and Stills are very similar as well.

Stay in touch!

C2 (UK)

> Today I joined the Still's Disease Mailing List and was asked to

> write an introduction about myself and my experience with Stills. I

> am so pleased to find all of you. I have been feeling so isolated

> and a bit depressed lately. So for an introduction: My name is

> and I am a single, 41 year old, (birth date 9-24-64) woman

> with a 2-1/2 year old daughter. I work full-time for the

> Municipality of Anchorage and normally most friends and family

> members consider me a very busy, active, independent, happy person.

> I had my yearly, full physical September 2005. All labs, x-rays,

> etc. were normal. I had been exercising a lot, playing softball and

> felt pretty good. The only complaint I had was that I was tired and

> loosing my hair more so than normal.

>

> Early October 2005, I became sick with what appeared to be flu

> symptoms. High fever (102 to 105), body aches, chills, sore throat,

> headache, nausea, completely exhausted. I was hardly ever ill, so I

> went to the doctor and was sent home with antibiotics. I got a

> little better after a week, and then the next week was sick again.

> October 28, 2005, I was hospitalized with a " fever of unknown

> origin " and a high white blood cell count. I was in so much pain and

> could barely walk. After seven days a specialist was called in and

> diagnosed me with Still's. My father had to move in my condo to help

> take care of me and my daughter. I don't know what I would have done

> with out his help. I could barely get out of bed to get to the

> bathroom or lift my arms to dress or eat. I truly thought I was

> going to die. I was out of work for 1 month.

>

> Now three months later, I am doing much better. My daughter and I

> are living independently again and I am back to work full-time. I am

> taking prednisone (10mg), methotrexate (0.6ml injectable), naproxen

> 1,500mg, folic acid, fosamax, calcium, prevacid. There is only one

> Rheumatologist in Anchorage and she has only been here approximately

> 4 or 5 months. She has been great, but she hasn't had a lot of

> experience with Stills as she stated " It's pretty rare. " She is

> reducing the amount of prednisone I am taking every two weeks. I

> have been feeling very alone and a little depressed (I hate to admit

> it). I am looking into getting an appt with someone like Dr.

> Cush just for a second opinion and someone my Rheumatologist can

> work with. I was hoping to find someone in the Seattle area so it

> would be closer to Alaska, but am willing to travel any where to see

> someone who knows a lot about this disease and can help determine if

> I am taking the right medication.

>

> Sorry this is so long. Thanks for reading! I look forward to getting

> to know you and sharing ideas and experiences.

>

>

>

>

>

> Visit the Still's Disease Message Board

> http://disc.server.com/Indices/148599.html

>

> The materials and information contained in this message are not

> intended to replace the services of a trained health professional

> or to be a substitute for medical advice of physicians and/or other

> health care professionals. The International Still's Disease

> Foundation is not engaged in rendering medical or professional

> medical services. You should consult your physician on specific

> medical questions, particularly in matters requiring diagnosis or

> medical attention. The International Still's Disease Foundation

> makes no representations or warranties with respect to any

> treatment, action, application, medication or preparation by any

> person following the information offered or provided within this

> support form.

>

> ion by any person following the information offered or provided

> within this support form.

>

>

>

>

>

>

[Guest guest]

Hi ! Welcome to our group! My name is Carey I am married with two boys

ages 4 and 10. And I live in New Jersey. I'm am sorry that you had to come

looking for this group, another words, that you have Stills............But you

will find alot of comfort here. Because it makes one feel like they are " not

alone " with this disease. Your story is so familiar to mine. In the beginning I

was told I had the flu and was given Tamiflu. But of course this didnt help.

You will see when talking to alot of us, that our stories are very similar. Meds

I am on are: Remicade, MTX, Celebrex, Zoloft, Folic Acid, Lunesta and Zyrtec.

I hope you are having a " Pain Free " day!

Hugs,

Carey

[Guest guest]

,

Good Morning and Welcome,

We have a lot in common already, we are both 41 and single and have stills!

I am Lynn and live in WI.

So glad you found us. It is such a weight lifted when one finally finds

this group. You will find it very helpful to have others that understand

just what you are dealing with. It is hard for those that don't have the

disease.

The drugs you are on, like Caroline said, are standard. Stills may be rare,

but most auto-immune disorders are treated pretty much with the same stuff,

a few variances here and there. Most of us have rheumy's that are not all

that familiar and only have a few patients with this.

Caroline also mentioned the depression, and with chronic illness comes

depression, but she mentioned the prednisone too and that can really wreak

havoc with the emotions. It can also cause major depression. Talk to your

doctor about the depression, it is important to deal with that.

So, welcome, and feel free to ask us anything at all. That is what we are

here for.

Lynn

The materials and information contained in this message are not intended to

replace the services of a trained health professional or to be a substitute

for medical advice of physicians and/or other health care professionals. The

International Still's Disease Foundation is not engaged in rendering medical

or professional medical services. You should consult your physician on

specific medical questions, particularly in matters requiring diagnosis or

medical attention. The International Still's Disease Foundation makes no

representations or warranties with respect to any treatment, action,

application, medication or preparation by any person following the

information offered or provided within this support form.

ion by any person following the information offered or provided within this

support form.

[Guest guest]

Hi ,

Welcome to the group. You will find a whole lot of new friends here

and lots of support. I am a new member too, and everyone gave me a

warm welcome when I signed on, so I want to do the same for each new

member of our group!

-NY

>

> Today I joined the Still's Disease Mailing List and was asked to

> write an introduction about myself and my experience with Stills.

I

> am so pleased to find all of you. I have been feeling so isolated

> and a bit depressed lately. So for an introduction: My name is

> and I am a single, 41 year old, (birth date 9-24-64) woman

> with a 2-1/2 year old daughter. I work full-time for the

> Municipality of Anchorage and normally most friends and family

> members consider me a very busy, active, independent, happy

person.

> I had my yearly, full physical September 2005. All labs, x-rays,

> etc. were normal. I had been exercising a lot, playing softball

and

> felt pretty good. The only complaint I had was that I was tired

and

> loosing my hair more so than normal.

>

> Early October 2005, I became sick with what appeared to be flu

> symptoms. High fever (102 to 105), body aches, chills, sore

throat,

> headache, nausea, completely exhausted. I was hardly ever ill, so

I

> went to the doctor and was sent home with antibiotics. I got a

> little better after a week, and then the next week was sick again.

> October 28, 2005, I was hospitalized with a " fever of unknown

> origin " and a high white blood cell count. I was in so much pain

and

> could barely walk. After seven days a specialist was called in and

> diagnosed me with Still's. My father had to move in my condo to

help

> take care of me and my daughter. I don't know what I would have

done

> with out his help. I could barely get out of bed to get to the

> bathroom or lift my arms to dress or eat. I truly thought I was

> going to die. I was out of work for 1 month.

>

> Now three months later, I am doing much better. My daughter and I

> are living independently again and I am back to work full-time. I

am

> taking prednisone (10mg), methotrexate (0.6ml injectable),

naproxen

> 1,500mg, folic acid, fosamax, calcium, prevacid. There is only one

> Rheumatologist in Anchorage and she has only been here

approximately

> 4 or 5 months. She has been great, but she hasn't had a lot of

> experience with Stills as she stated " It's pretty rare. " She is

> reducing the amount of prednisone I am taking every two weeks. I

> have been feeling very alone and a little depressed (I hate to

admit

> it). I am looking into getting an appt with someone like Dr.

> Cush just for a second opinion and someone my Rheumatologist can

> work with. I was hoping to find someone in the Seattle area so it

> would be closer to Alaska, but am willing to travel any where to

see

> someone who knows a lot about this disease and can help determine

if

> I am taking the right medication.

>

> Sorry this is so long. Thanks for reading! I look forward to

getting

> to know you and sharing ideas and experiences.

>

[Guest guest]

I remember when I was first being treated with Prednisone and my rheumatologist

would always ask my husband how I was doing, because it must have been Hell to

live with me. I remember him asking Rick if " she has tried to set the bed on

fire yet " . We had a good laugh about it, but depression is a normal problem

when you feel lousy. I have been on antidepressants since my fibromyalgia

diagnosis (shortly after stills dx), and I am happy to say that I haven't set

the bed on fire yet!

Stay Healthy

#1

Caroline also mentioned the depression, and with chronic illness comes

depression, but she mentioned the prednisone too and that can really wreak

havoc with the emotions. It can also cause major depression. Talk to your

doctor about the depression, it is important to deal with that.

Lynn wrote:

,

Good Morning and Welcome,

We have a lot in common already, we are both 41 and single and have stills!

I am Lynn and live in WI.

So glad you found us. It is such a weight lifted when one finally finds

this group. You will find it very helpful to have others that understand

just what you are dealing with. It is hard for those that don't have the

disease.

The drugs you are on, like Caroline said, are standard. Stills may be rare,

but most auto-immune disorders are treated pretty much with the same stuff,

a few variances here and there. Most of us have rheumy's that are not all

that familiar and only have a few patients with this.

Caroline also mentioned the depression, and with chronic illness comes

depression, but she mentioned the prednisone too and that can really wreak

havoc with the emotions. It can also cause major depression. Talk to your

doctor about the depression, it is important to deal with that.

So, welcome, and feel free to ask us anything at all. That is what we are

here for.

Lynn

The materials and information contained in this message are not intended to

replace the services of a trained health professional or to be a substitute

for medical advice of physicians and/or other health care professionals. The

International Still's Disease Foundation is not engaged in rendering medical

or professional medical services. You should consult your physician on

specific medical questions, particularly in matters requiring diagnosis or

medical attention. The International Still's Disease Foundation makes no

representations or warranties with respect to any treatment, action,

application, medication or preparation by any person following the

information offered or provided within this support form.

ion by any person following the information offered or provided within this

support form.

[Guest guest]

Hello and welcome .I was in Alaska while still kinda ill with Stills

didnt care for Anchorage only because after all that open highway we hit

rushhour,couldnt beleive how bustling it was.Im 32 and from Edmonton,Canada

diagnosed Oct 2002 currently doing well off all meds for over 2 yrs knock on

wood.Hope your prednisone reduction keeps going well for you and even more

improvement and evenually remmission take care. d.Canada

New Member Intro

> Today I joined the Still's Disease Mailing List and was asked to

> write an introduction about myself and my experience with Stills. I

> am so pleased to find all of you. I have been feeling so isolated

> and a bit depressed lately. So for an introduction: My name is

> and I am a single, 41 year old, (birth date 9-24-64) woman

> with a 2-1/2 year old daughter. I work full-time for the

> Municipality of Anchorage and normally most friends and family

> members consider me a very busy, active, independent, happy person.

> I had my yearly, full physical September 2005. All labs, x-rays,

> etc. were normal. I had been exercising a lot, playing softball and

> felt pretty good. The only complaint I had was that I was tired and

> loosing my hair more so than normal.

>

> Early October 2005, I became sick with what appeared to be flu

> symptoms. High fever (102 to 105), body aches, chills, sore throat,

> headache, nausea, completely exhausted. I was hardly ever ill, so I

> went to the doctor and was sent home with antibiotics. I got a

> little better after a week, and then the next week was sick again.

> October 28, 2005, I was hospitalized with a " fever of unknown

> origin " and a high white blood cell count. I was in so much pain and

> could barely walk. After seven days a specialist was called in and

> diagnosed me with Still's. My father had to move in my condo to help

> take care of me and my daughter. I don't know what I would have done

> with out his help. I could barely get out of bed to get to the

> bathroom or lift my arms to dress or eat. I truly thought I was

> going to die. I was out of work for 1 month.

>

> Now three months later, I am doing much better. My daughter and I

> are living independently again and I am back to work full-time. I am

> taking prednisone (10mg), methotrexate (0.6ml injectable), naproxen

> 1,500mg, folic acid, fosamax, calcium, prevacid. There is only one

> Rheumatologist in Anchorage and she has only been here approximately

> 4 or 5 months. She has been great, but she hasn't had a lot of

> experience with Stills as she stated " It's pretty rare. " She is

> reducing the amount of prednisone I am taking every two weeks. I

> have been feeling very alone and a little depressed (I hate to admit

> it). I am looking into getting an appt with someone like Dr.

> Cush just for a second opinion and someone my Rheumatologist can

> work with. I was hoping to find someone in the Seattle area so it

> would be closer to Alaska, but am willing to travel any where to see

> someone who knows a lot about this disease and can help determine if

> I am taking the right medication.

>

> Sorry this is so long. Thanks for reading! I look forward to getting

> to know you and sharing ideas and experiences.

>

>

>

>

>

> Visit the Still's Disease Message Board

> http://disc.server.com/Indices/148599.html

>

> The materials and information contained in this message are not intended

> to replace the services of a trained health professional or to be a

> substitute for medical advice of physicians and/or other health care

> professionals. The International Still's Disease Foundation is not engaged

> in rendering medical or professional medical services. You should consult

> your physician on specific medical questions, particularly in matters

> requiring diagnosis or medical attention. The International Still's

> Disease Foundation makes no representations or warranties with respect to

> any treatment, action, application, medication or preparation by any

> person following the information offered or provided within this support

> form.

>

> ion by any person following the information offered or provided within

> this support form.

>

>

>

[Guest guest]

Hi , I was thinking of buying a new heifer of the same cross . How is she to handle and how is the milk? Gann wrote: Hi, My name is . I live on a farm with my husband and grandson. I milk a Jersey/Red Angus cross. We use her milk to drink and make butter and cheese. I sent an intro earlier, but didn't see it posted, so I thought I would try again. Yahoo! MailBring photos to life! New PhotoMail makes sharing a breeze.

Yahoo! Mail

Bring photos to life! New PhotoMail makes sharing a breeze.

[Guest guest]

Hello everyone!

My name is , and I have been a SAHM for the last two years raising twins (boy and a girl, 18 months old). I just recently took a PT job at our local Wal Mart.

We have seven other children ranging in age from 20 years down to ten, five girls and four boys. My youngest DD has had some issues r/t digestion/allergies and that is what began my quest to feed my family in a more healthy way which for us includes raw dairy. I have yet to find a source near me, but will continue to search.

I look forward to getting to know you all, and swapping ideas. )

~ married to DH Mark, and sharing the lives of nine busy children. <3 <3

[Guest guest]

Jim, the first I heard of problems was Jake Zooks being approached by a PDA undercover guy posing as someone wanting to buy his meat. When Jake said he had to become a member of CARE to do so, the guy flips out his badge, inspects his freezer, then tapes it up and takes a picture with it so the tape can't be tampered with. I think this was a couple weeks ago. Then I heard that last week PDA came back and took the tape off his freezer and told him he could GIVE his meat away, but not sell it!

I didn't hear anything about them doing anything about the milk, unless that just happened. I'm very interested in seeing how all this pans out. I'm a planning member of a cow share in Northern VA which is moving to a new farm soon. After our meeting with the new farmers today, we are getting quite excited that this could work out to be a very good arrangement and allow a nice expansion of the cow share and raw milk availablility in this area. The CARE problems are concerning, but I hope the legal challenge work bring this to the public's attention and helps the cause in the long run.

Sally Holdener

Nokesville, VA

New Member Intro

Hi All --

I am Jim, and with my partner Lori, am an avid raw dairy consumer. Lori grew up in Amish

Country near New Holland, PA. Her mother, an operating room nurse, poisoned by the sterilizing

agent gluteraldehyde, was assisted in her recovery by organic Amish produce and raw dairy (and

time and Drs. and Rey). This gave me my introduction to the benefits of raw dairy.

Since I first became interested in raw dairy, I have done a lot of reading, attended two

Weston A Price foundation conferences, and have routinely purchased raw milk etc via

a network set up to bring such produce into the District of Columbia metro area. I also

buy routinely from a farmer located in Bird in Hand PA, and particularly enjoy visits there.

That farmer, Leroy , was one of the founders of Citizens Alliance for Responsible

Eco-Farming (CARE), a sort of consumer / producer agreement established to protect the

sale of farm fresh produce direct to the consumer. In the last week, my two producers of raw

dairy have been cited by the Pennsylvania Department of Agriculture for selling raw

dairy. I'm not clear whether there is a broader crackdown by PDA, or whether the CARE

agreement has somehow antagonized them and mobilized their regulatory instincts.

So far, I haven't been able to garner any information about this from alerts at www.westonaprice.org

or www.paorganic.org. My notice from a fellow consumer of Leroy's milk follows:

__________________________________________________

NOTICE! NOTICE! NOTICE!

The following requires your immediate ATTENTION!

PDA HAD US BELIEVE THAT IF WE SET UP A PRIVATE MEMBERS ALLIANCE THEN THEY WOULD BE SATISFIED.

APPARENTLY THEY ARE NOT BECAUSE WE RECEIVED A CITATION / SUMMONS FOR SELLING RAW MILK. THEY ALSO CHARGED BOTH OF US A FINE. (See the copies below)

WE ARE PROVIDING FOOD TO PRIVATE MEMBERS BECAUSE OF THE HEALTH BENEFITS WE HAVE EXPERIENCED OURSELVES. WE WOULD LIKE TO SEE ALL MEMBERS ENJOY THE BENEFITS AS WELL, BUT THEY MIGHT FORCE US TO STOP!!

WE ARE BEING TAKEN TO COURT BECAUSE WE CARE ABOUT YOU. WILL YOU SUPPORT US? .

OR DO YOU WANT US TO STOP PROVIDING FOOD???????

PLEASE PLAN TO SHOW UP AT THE COURTROOM TO SHOW YOUR SUPPORT. ALSO PLEASE CONSIDER THE DONATIONS BOX TO HELP US (Not CARE) WITH LEGAL FEES AND FINES.

COURT DATE: SEPTEMBER 22, 2006TIME: 1:30 PMLOCATION: 14 CENTER ST. INTERCOURSE, PA 17543

NOTICE! NOTICE! NOTICE!

__________________________________________________

I may be attending. Though court rooms aren't usually the best venues to protest such actions, a few placards outside

the court house often get attention. If anyone else is attending, please contact me.

So, a possible crisis of supply prompted me to join this group. I've been aware of your existence for some time, but seemed to

be comfortable with my sources of raw dairy, and sources of information about it. A little more personal info might help you imagine

some of the many other newsgroups I typically digest.

In the past I have worked as a professional environmental organizer, campaign worker and direct lobbyist in varying

state houses and the U.S. Congress. For some time I've been a caterer focused on local foodshed issues, and nutrient dense foods. I was

diagnosed with MS in 1994, I am ambulatory, and since having all my amalgams removed and beginning a conservative chelation protocol in

March 2006, I have seen great improvement in my health. While I haven't experienced a "milk cure" by any means, I can feel the difference between

consuming raw dairy and pasteurized dairy, and will always seek the former.

I am very interested in hearing any news of PDA's citations of the CARE farmers, and any strategies for keeping PDA at bay.

Thank you,

Jim Stromseth

(and Lori Kenepp)

CARE member #3216