Guest guest Posted July 29, 2010 Report Share Posted July 29, 2010 Hi Misty, glad you have some results and now a path to follow! Did the GFCF diet help with her OCD as well, or more just the tics? I mentioned the GFCF diet - or rather first mentioned trying to eliminate gluten - to one of my other sons recently to sort of test to see if he noted any difference (he gets what we call tonsil rocks) and was just talking about trying to eliminate gluten, then maybe try dairy...he said he's not giving up his healthy diet! I've wondered with , never have tried (OCD, Aspergers). I'm not sure what would be left for him to eat! And at age 21, he'd also have to be willing to try it. Did you do the bloodwork for that on your own or through your doctor? > > We did the Cunningham test and it looks like my daughter's levels are all in the > normal range.. She has Tourette's Syndrome and OCD and is Asperger-ish. I am > thrilled to have that ruled out so now we can focus on diet and other biomedical > interventions.. She has improved dramatically on the GFCF diet.. She was > tic-free for months and then just this past weekend we decided to try a little > bit of dairy.. Now she has a neck tic that is so bad, her neck is in horrible > pain. > > > We did do blood testing before doing this diet and she is, indeed, gluten > intolerant as well as casein sensitive. So I now know that we are on the > correct road to recovery through diet and we do not need to pursue the PANDAS > thing any longer!! Yay! > > Anyway, just thought you all would like to know that PANDAS isn't always the > cause.. Sometimes it's food intolerances/sensitivities. > > Misty > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2010 Report Share Posted July 29, 2010 Misty, I'm glad you're now able to focus your energies where they may yield the best results! Some of us beat the Pandas drum because many people haven't heard of it. But as your post makes clear, there can be many reasons behind behaviors. No parent wants a mis-diagnosis for their child. I'm glad the Cunningham test was able to give you some confidence in the path you're on and I'm glad you're finding what works for your child! > > We did the Cunningham test and it looks like my daughter's levels are all in the > normal range.. She has Tourette's Syndrome and OCD and is Asperger-ish. I am > thrilled to have that ruled out so now we can focus on diet and other biomedical > interventions.. She has improved dramatically on the GFCF diet.. She was > tic-free for months and then just this past weekend we decided to try a little > bit of dairy.. Now she has a neck tic that is so bad, her neck is in horrible > pain. > > > We did do blood testing before doing this diet and she is, indeed, gluten > intolerant as well as casein sensitive. So I now know that we are on the > correct road to recovery through diet and we do not need to pursue the PANDAS > thing any longer!! Yay! > > Anyway, just thought you all would like to know that PANDAS isn't always the > cause.. Sometimes it's food intolerances/sensitivities. > > Misty > > > > > Quote Link to comment Share on other sites More sharing options...
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