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Re: How to detect autism

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If I were you, I would call your local early intervention and request

a developmental assessment. I would also suggest at your next doctor

visit to put down every concern in writing, then bring in a list of

autism characteristics and ask him/her why you should *not* be

concerned. If your child doesn't have autism, then the ped should be

able to point out why, despite these concerns, they do not add up.

Your daughter may not have autism. At the same time, my experience

along with countless others, was that my ped would not listen to me. I

went to him for over six months with hallmark signs. For us, it was

loss of appropriate babble/language, increasing restrictive eating,

motor skills delays/regression (didn't walk until 17 mos), not giving

eye contact, episodes of seeming to stare off with an odd look on her

face, failure to recognize her name, failure to point to objects of

interest or follow my gaze & pointing, and loose stools. With all

this, he kept telling me " kids develop at different rates. " What ever.

If your daughter does have delays, even if not autism, getting her

help is the best thing you can do for her. Speech therapy is like play

time, as is occupational therapy, as was ABA. " If she doesn't have

autism, then she may get some unnecessary play time; if she does have

autism, it might change her entire future. " That's the way I would

phrase it to your ped and ask why he should not refer you to a speech

pathologist for testing.

I would also suggest you consider biomedical issues. My daughter began

talking 5 days after starting her on something called the gluten-free,

casein-free diet, or gfcf. It's the one McCarthy put her son on.

There are also other safe, effective ways to help kids that may have

autism, called " DAN! " or " Defeat Autism Now! " practitioners. One word

of caution though, some on the list are quacks. I would highly

recommend if you consider seeking one of these physicians/nurse

practitioners that you check with other families near your area for

who they all respect as a good one. IF you're comfortable sharing the

region in which you live, I'm sure we could give you some good names.

Hope this isn't too much info.

Debi

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If I were you, I would call your local early intervention and request

a developmental assessment. I would also suggest at your next doctor

visit to put down every concern in writing, then bring in a list of

autism characteristics and ask him/her why you should *not* be

concerned. If your child doesn't have autism, then the ped should be

able to point out why, despite these concerns, they do not add up.

Your daughter may not have autism. At the same time, my experience

along with countless others, was that my ped would not listen to me. I

went to him for over six months with hallmark signs. For us, it was

loss of appropriate babble/language, increasing restrictive eating,

motor skills delays/regression (didn't walk until 17 mos), not giving

eye contact, episodes of seeming to stare off with an odd look on her

face, failure to recognize her name, failure to point to objects of

interest or follow my gaze & pointing, and loose stools. With all

this, he kept telling me " kids develop at different rates. " What ever.

If your daughter does have delays, even if not autism, getting her

help is the best thing you can do for her. Speech therapy is like play

time, as is occupational therapy, as was ABA. " If she doesn't have

autism, then she may get some unnecessary play time; if she does have

autism, it might change her entire future. " That's the way I would

phrase it to your ped and ask why he should not refer you to a speech

pathologist for testing.

I would also suggest you consider biomedical issues. My daughter began

talking 5 days after starting her on something called the gluten-free,

casein-free diet, or gfcf. It's the one McCarthy put her son on.

There are also other safe, effective ways to help kids that may have

autism, called " DAN! " or " Defeat Autism Now! " practitioners. One word

of caution though, some on the list are quacks. I would highly

recommend if you consider seeking one of these physicians/nurse

practitioners that you check with other families near your area for

who they all respect as a good one. IF you're comfortable sharing the

region in which you live, I'm sure we could give you some good names.

Hope this isn't too much info.

Debi

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In a message dated 12/25/07 8:16:33 PM Eastern Standard Time,

speed_angel84@... writes:

daughter has almost all the textbook signs of autism, but when I ask her

pediatrician about it, the doctor says she is fine

find a differant doctor. what state do you live in? we got help from the

local schools p.p.i. program. thats how our daughter was diagnosed. does

she have reposeive speach? hope you find as much help with this group as we

have.

we are in michigan. my wife pennie my daughter abby now 10 and me eric.

welcome to the group :)

eric abbys dad

**************************************See AOL's top rated recipes

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In a message dated 12/25/07 8:16:33 PM Eastern Standard Time,

speed_angel84@... writes:

daughter has almost all the textbook signs of autism, but when I ask her

pediatrician about it, the doctor says she is fine

find a differant doctor. what state do you live in? we got help from the

local schools p.p.i. program. thats how our daughter was diagnosed. does

she have reposeive speach? hope you find as much help with this group as we

have.

we are in michigan. my wife pennie my daughter abby now 10 and me eric.

welcome to the group :)

eric abbys dad

**************************************See AOL's top rated recipes

(http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004)

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you mention hearing impairment and in very young childrens with

hearing impairments they can appear to have of autism, so she may be

just developmentally differnet due to that alone. But there is of

also a small portions of those with true autism who also have hearing

impairments so you cannot be to rule autism out simply due to her

having of hearing impairment.

It isof best to call local childrens hospital places and see if they

have a department of developmental pediatrics to see if she can be

screened for developemental issues. You can also see if they have of

a department of psychology department that can screen you child for

autism?

Sometime in you areas they will have an early intervention place

which is free to do a complete developmental screen from child find

perspectives. they can give you in breif some ideas, they are not

the best always, but a good begin place if you want of something more

quickly. some EI places are very good at detecting autism because

they may see much of it in toddlers and preschoolers.

If insurance will cover she can begin of seeing of an OT and speech

professional for delays and such because if she gets a dx of autism

many insurances will no longer cover of the serivices.

Good luck in seeking the care you are of seeking forher . you are of

a wise mom to be of to see things so early in her. the sooner the

better she can begin the journey of supports to help her reach of her

potential.

Sondra adult with autism in state of OHIO usa

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you mention hearing impairment and in very young childrens with

hearing impairments they can appear to have of autism, so she may be

just developmentally differnet due to that alone. But there is of

also a small portions of those with true autism who also have hearing

impairments so you cannot be to rule autism out simply due to her

having of hearing impairment.

It isof best to call local childrens hospital places and see if they

have a department of developmental pediatrics to see if she can be

screened for developemental issues. You can also see if they have of

a department of psychology department that can screen you child for

autism?

Sometime in you areas they will have an early intervention place

which is free to do a complete developmental screen from child find

perspectives. they can give you in breif some ideas, they are not

the best always, but a good begin place if you want of something more

quickly. some EI places are very good at detecting autism because

they may see much of it in toddlers and preschoolers.

If insurance will cover she can begin of seeing of an OT and speech

professional for delays and such because if she gets a dx of autism

many insurances will no longer cover of the serivices.

Good luck in seeking the care you are of seeking forher . you are of

a wise mom to be of to see things so early in her. the sooner the

better she can begin the journey of supports to help her reach of her

potential.

Sondra adult with autism in state of OHIO usa

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Hello,

My 8yo daughter just got her diagnosis and also has a hearing loss.

This also contributed to years of being misdiagnosed. However, the

extent of her hearing loss is mild and therefore should not have

caused the type of delays that Hannah showed early on. I am learning

that it's possible to have both of these things going on at the same

time.

>

> If I were you, I would call your local early intervention and

request

> a developmental assessment. I would also suggest at your next doctor

> visit to put down every concern in writing, then bring in a list of

> autism characteristics and ask him/her why you should *not* be

> concerned. If your child doesn't have autism, then the ped should be

> able to point out why, despite these concerns, they do not add up.

>

> Your daughter may not have autism. At the same time, my experience

> along with countless others, was that my ped would not listen to

me. I

> went to him for over six months with hallmark signs. For us, it was

> loss of appropriate babble/language, increasing restrictive eating,

> motor skills delays/regression (didn't walk until 17 mos), not

giving

> eye contact, episodes of seeming to stare off with an odd look on

her

> face, failure to recognize her name, failure to point to objects of

> interest or follow my gaze & pointing, and loose stools. With all

> this, he kept telling me " kids develop at different rates. " What

ever.

>

> If your daughter does have delays, even if not autism, getting her

> help is the best thing you can do for her. Speech therapy is like

play

> time, as is occupational therapy, as was ABA. " If she doesn't have

> autism, then she may get some unnecessary play time; if she does

have

> autism, it might change her entire future. " That's the way I would

> phrase it to your ped and ask why he should not refer you to a

speech

> pathologist for testing.

>

> I would also suggest you consider biomedical issues. My daughter

began

> talking 5 days after starting her on something called the gluten-

free,

> casein-free diet, or gfcf. It's the one McCarthy put her son

on.

> There are also other safe, effective ways to help kids that may have

> autism, called " DAN! " or " Defeat Autism Now! " practitioners. One

word

> of caution though, some on the list are quacks. I would highly

> recommend if you consider seeking one of these physicians/nurse

> practitioners that you check with other families near your area for

> who they all respect as a good one. IF you're comfortable sharing

the

> region in which you live, I'm sure we could give you some good

names.

>

> Hope this isn't too much info.

>

> Debi

>

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Hello,

My 8yo daughter just got her diagnosis and also has a hearing loss.

This also contributed to years of being misdiagnosed. However, the

extent of her hearing loss is mild and therefore should not have

caused the type of delays that Hannah showed early on. I am learning

that it's possible to have both of these things going on at the same

time.

>

> If I were you, I would call your local early intervention and

request

> a developmental assessment. I would also suggest at your next doctor

> visit to put down every concern in writing, then bring in a list of

> autism characteristics and ask him/her why you should *not* be

> concerned. If your child doesn't have autism, then the ped should be

> able to point out why, despite these concerns, they do not add up.

>

> Your daughter may not have autism. At the same time, my experience

> along with countless others, was that my ped would not listen to

me. I

> went to him for over six months with hallmark signs. For us, it was

> loss of appropriate babble/language, increasing restrictive eating,

> motor skills delays/regression (didn't walk until 17 mos), not

giving

> eye contact, episodes of seeming to stare off with an odd look on

her

> face, failure to recognize her name, failure to point to objects of

> interest or follow my gaze & pointing, and loose stools. With all

> this, he kept telling me " kids develop at different rates. " What

ever.

>

> If your daughter does have delays, even if not autism, getting her

> help is the best thing you can do for her. Speech therapy is like

play

> time, as is occupational therapy, as was ABA. " If she doesn't have

> autism, then she may get some unnecessary play time; if she does

have

> autism, it might change her entire future. " That's the way I would

> phrase it to your ped and ask why he should not refer you to a

speech

> pathologist for testing.

>

> I would also suggest you consider biomedical issues. My daughter

began

> talking 5 days after starting her on something called the gluten-

free,

> casein-free diet, or gfcf. It's the one McCarthy put her son

on.

> There are also other safe, effective ways to help kids that may have

> autism, called " DAN! " or " Defeat Autism Now! " practitioners. One

word

> of caution though, some on the list are quacks. I would highly

> recommend if you consider seeking one of these physicians/nurse

> practitioners that you check with other families near your area for

> who they all respect as a good one. IF you're comfortable sharing

the

> region in which you live, I'm sure we could give you some good

names.

>

> Hope this isn't too much info.

>

> Debi

>

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Debi,

When you said your daughter was staring off into space with an odd look on her

face....was that absence seizures? My daughter does that...her eyes cross and

it is hard to get her attention for a few seconds and her eyes look kind of

glassy too. She had a 30 minute EEG done and they didn't see anything abnormal.

I tried getting them to do the sleep study, but they wouldn't :( ARGH Anyway,

just thought it was interesting that you mentioned that. Have a good night,

Gwen

Re: How to detect autism

If I were you, I would call your local early intervention and request

a developmental assessment. I would also suggest at your next doctor

visit to put down every concern in writing, then bring in a list of

autism characteristics and ask him/her why you should *not* be

concerned. If your child doesn't have autism, then the ped should be

able to point out why, despite these concerns, they do not add up.

Your daughter may not have autism. At the same time, my experience

along with countless others, was that my ped would not listen to me. I

went to him for over six months with hallmark signs. For us, it was

loss of appropriate babble/language, increasing restrictive eating,

motor skills delays/regression (didn't walk until 17 mos), not giving

eye contact, episodes of seeming to stare off with an odd look on her

face, failure to recognize her name, failure to point to objects of

interest or follow my gaze & pointing, and loose stools. With all

this, he kept telling me " kids develop at different rates. " What ever.

If your daughter does have delays, even if not autism, getting her

help is the best thing you can do for her. Speech therapy is like play

time, as is occupational therapy, as was ABA. " If she doesn't have

autism, then she may get some unnecessary play time; if she does have

autism, it might change her entire future. " That's the way I would

phrase it to your ped and ask why he should not refer you to a speech

pathologist for testing.

I would also suggest you consider biomedical issues. My daughter began

talking 5 days after starting her on something called the gluten-free,

casein-free diet, or gfcf. It's the one McCarthy put her son on.

There are also other safe, effective ways to help kids that may have

autism, called " DAN! " or " Defeat Autism Now! " practitioners. One word

of caution though, some on the list are quacks. I would highly

recommend if you consider seeking one of these physicians/nurse

practitioners that you check with other families near your area for

who they all respect as a good one. IF you're comfortable sharing the

region in which you live, I'm sure we could give you some good names.

Hope this isn't too much info.

Debi

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In a message dated 12/27/07 12:11:55 AM Eastern Standard Time,

gmoyers@... writes:

She had a 30 minute EEG done and they didn't see anything abnormal.

my daughters nuralogist has has kids on the eeg haveing a sezure and nothing

showed up. eegs help but dont always show everything.

eric abbys dad

**************************************See AOL's top rated recipes

(http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004)

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Yep, I had an normal EEG and I have seizures. Allie had a normal EEG

during a time we thought she was having absence seizures.

Debi

>

>

> In a message dated 12/27/07 12:11:55 AM Eastern Standard Time,

> gmoyers@... writes:

>

> She had a 30 minute EEG done and they didn't see anything abnormal.

>

>

> my daughters nuralogist has has kids on the eeg haveing a sezure and

nothing

> showed up. eegs help but dont always show everything.

> eric abbys dad

>

>

>

> **************************************See AOL's top rated recipes

> (http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004)

>

>

>

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Share on other sites

Yep, I had an normal EEG and I have seizures. Allie had a normal EEG

during a time we thought she was having absence seizures.

Debi

>

>

> In a message dated 12/27/07 12:11:55 AM Eastern Standard Time,

> gmoyers@... writes:

>

> She had a 30 minute EEG done and they didn't see anything abnormal.

>

>

> my daughters nuralogist has has kids on the eeg haveing a sezure and

nothing

> showed up. eegs help but dont always show everything.

> eric abbys dad

>

>

>

> **************************************See AOL's top rated recipes

> (http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004)

>

>

>

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Rose had a 24 hr EEG and we know she has " mini " seizures. She showed

nothing on her EEG.

Rochelle

Re: How to detect autism

Yep, I had an normal EEG and I have seizures. Allie had a normal EEG

during a time we thought she was having absence seizures.

Debi

>

>

> In a message dated 12/27/07 12:11:55 AM Eastern Standard Time,

> gmoyers@... writes:

>

> She had a 30 minute EEG done and they didn't see anything abnormal.

>

>

> my daughters nuralogist has has kids on the eeg haveing a sezure and

nothing

> showed up. eegs help but dont always show everything.

> eric abbys dad

>

>

>

> ************ ********* ********* ********See AOL's top rated recipes

> (http://food. aol.com/top- rated-recipes? NCID=aoltop00030 000000004)

>

>

>

Link to comment
Share on other sites

Rose had a 24 hr EEG and we know she has " mini " seizures. She showed

nothing on her EEG.

Rochelle

Re: How to detect autism

Yep, I had an normal EEG and I have seizures. Allie had a normal EEG

during a time we thought she was having absence seizures.

Debi

>

>

> In a message dated 12/27/07 12:11:55 AM Eastern Standard Time,

> gmoyers@... writes:

>

> She had a 30 minute EEG done and they didn't see anything abnormal.

>

>

> my daughters nuralogist has has kids on the eeg haveing a sezure and

nothing

> showed up. eegs help but dont always show everything.

> eric abbys dad

>

>

>

> ************ ********* ********* ********See AOL's top rated recipes

> (http://food. aol.com/top- rated-recipes? NCID=aoltop00030 000000004)

>

>

>

Link to comment
Share on other sites

Wow, actually having a seizure and it not showing up on the EEG! Thanks for

your input, Gwen

Re: Re: How to detect autism

In a message dated 12/27/07 12:11:55 AM Eastern Standard Time,

gmoyers@... writes:

She had a 30 minute EEG done and they didn't see anything abnormal.

my daughters nuralogist has has kids on the eeg haveing a sezure and nothing

showed up. eegs help but dont always show everything.

eric abbys dad

**************************************See AOL's top rated recipes

(http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004)

Link to comment
Share on other sites

Wow, actually having a seizure and it not showing up on the EEG! Thanks for

your input, Gwen

Re: Re: How to detect autism

In a message dated 12/27/07 12:11:55 AM Eastern Standard Time,

gmoyers@... writes:

She had a 30 minute EEG done and they didn't see anything abnormal.

my daughters nuralogist has has kids on the eeg haveing a sezure and nothing

showed up. eegs help but dont always show everything.

eric abbys dad

**************************************See AOL's top rated recipes

(http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004)

Link to comment
Share on other sites

So did they diagnose her as having the seizures even though the 24 hour EEG was

normal?

When my daughter is sick or upset is mainly when it happens, but it happens

other times too; but she will stare off into space, eyes glassy and they cross.

Even though she is still somewhat alert, it is difficult to get her attention,

etc. I guess I just don't know where to go when the doctors think she is fine

because the EEG was normal?? Thanks, Gwen

Re: How to detect autism

Yep, I had an normal EEG and I have seizures. Allie had a normal EEG

during a time we thought she was having absence seizures.

Debi

>

>

> In a message dated 12/27/07 12:11:55 AM Eastern Standard Time,

> gmoyers@... writes:

>

> She had a 30 minute EEG done and they didn't see anything abnormal.

>

>

> my daughters nuralogist has has kids on the eeg haveing a sezure and

nothing

> showed up. eegs help but dont always show everything.

> eric abbys dad

>

>

>

> ************ ********* ********* ********See AOL's top rated recipes

> (http://food. aol.com/top- rated-recipes? NCID=aoltop00030 000000004)

>

>

>

Link to comment
Share on other sites

So did they diagnose her as having the seizures even though the 24 hour EEG was

normal?

When my daughter is sick or upset is mainly when it happens, but it happens

other times too; but she will stare off into space, eyes glassy and they cross.

Even though she is still somewhat alert, it is difficult to get her attention,

etc. I guess I just don't know where to go when the doctors think she is fine

because the EEG was normal?? Thanks, Gwen

Re: How to detect autism

Yep, I had an normal EEG and I have seizures. Allie had a normal EEG

during a time we thought she was having absence seizures.

Debi

>

>

> In a message dated 12/27/07 12:11:55 AM Eastern Standard Time,

> gmoyers@... writes:

>

> She had a 30 minute EEG done and they didn't see anything abnormal.

>

>

> my daughters nuralogist has has kids on the eeg haveing a sezure and

nothing

> showed up. eegs help but dont always show everything.

> eric abbys dad

>

>

>

> ************ ********* ********* ********See AOL's top rated recipes

> (http://food. aol.com/top- rated-recipes? NCID=aoltop00030 000000004)

>

>

>

Link to comment
Share on other sites

Do you have Absence Seizures? How did you get it diagnosed? What did it look

like when Allie was having the seizures? Thanks so much, Gwen

Re: How to detect autism

Yep, I had an normal EEG and I have seizures. Allie had a normal EEG

during a time we thought she was having absence seizures.

Debi

>

>

> In a message dated 12/27/07 12:11:55 AM Eastern Standard Time,

> gmoyers@... writes:

>

> She had a 30 minute EEG done and they didn't see anything abnormal.

>

>

> my daughters nuralogist has has kids on the eeg haveing a sezure and

nothing

> showed up. eegs help but dont always show everything.

> eric abbys dad

>

>

>

> **************************************See AOL's top rated recipes

> (http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004)

>

>

>

Link to comment
Share on other sites

Do you have Absence Seizures? How did you get it diagnosed? What did it look

like when Allie was having the seizures? Thanks so much, Gwen

Re: How to detect autism

Yep, I had an normal EEG and I have seizures. Allie had a normal EEG

during a time we thought she was having absence seizures.

Debi

>

>

> In a message dated 12/27/07 12:11:55 AM Eastern Standard Time,

> gmoyers@... writes:

>

> She had a 30 minute EEG done and they didn't see anything abnormal.

>

>

> my daughters nuralogist has has kids on the eeg haveing a sezure and

nothing

> showed up. eegs help but dont always show everything.

> eric abbys dad

>

>

>

> **************************************See AOL's top rated recipes

> (http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004)

>

>

>

Link to comment
Share on other sites

In a message dated 12/28/07 8:55:19 AM Eastern Standard Time,

gmoyers@... writes:

When my daughter is sick or upset is mainly when it happens, but it happens

other times too;

tiredness or overwhelming feelings can cause it. sometimes it just happens.

so we are sure abby gets her rest. and destresses when she had a bad day.

eric abbys dad

**************************************See AOL's top rated recipes

(http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004)

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In a message dated 12/28/07 8:55:19 AM Eastern Standard Time,

gmoyers@... writes:

When my daughter is sick or upset is mainly when it happens, but it happens

other times too;

tiredness or overwhelming feelings can cause it. sometimes it just happens.

so we are sure abby gets her rest. and destresses when she had a bad day.

eric abbys dad

**************************************See AOL's top rated recipes

(http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004)

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The doctors think she is fine, I have my doubts. She is not being treated for

them. I even pointed out one of them on the video EEG but they said that was

" not a seizure. " My sister has seen them, my mom, my friend and of course, my

husband... I do notice less of them than I did before but, they are definitely

still there. They happen mostly when she is tired (coming in or out of sleep)

although we have seen them at other times too.

Rochelle

Re: How to detect autism

Yep, I had an normal EEG and I have seizures. Allie had a normal EEG

during a time we thought she was having absence seizures.

Debi

>

>

> In a message dated 12/27/07 12:11:55 AM Eastern Standard Time,

> gmoyers@... writes:

>

> She had a 30 minute EEG done and they didn't see anything abnormal.

>

>

> my daughters nuralogist has has kids on the eeg haveing a sezure and

nothing

> showed up. eegs help but dont always show everything.

> eric abbys dad

>

>

>

> ************ ********* ********* ********See AOL's top rated recipes

> (http://food. aol.com/top- rated-recipes? NCID=aoltop00030 000000004)

>

>

>

Link to comment
Share on other sites

The doctors think she is fine, I have my doubts. She is not being treated for

them. I even pointed out one of them on the video EEG but they said that was

" not a seizure. " My sister has seen them, my mom, my friend and of course, my

husband... I do notice less of them than I did before but, they are definitely

still there. They happen mostly when she is tired (coming in or out of sleep)

although we have seen them at other times too.

Rochelle

Re: How to detect autism

Yep, I had an normal EEG and I have seizures. Allie had a normal EEG

during a time we thought she was having absence seizures.

Debi

>

>

> In a message dated 12/27/07 12:11:55 AM Eastern Standard Time,

> gmoyers@... writes:

>

> She had a 30 minute EEG done and they didn't see anything abnormal.

>

>

> my daughters nuralogist has has kids on the eeg haveing a sezure and

nothing

> showed up. eegs help but dont always show everything.

> eric abbys dad

>

>

>

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I do not, Allie appeared to, though. She would just sorta look off in

space, we'd say her name, no response, we'd touch her, not always a

response, but usually within a few seconds, she'd be back. When we put

her on the gluten-free, casein-free diet those episodes went away,

we've not seen them since she's started back on gluten, so that's all

good.

Debi

>

> Do you have Absence Seizures? How did you get it diagnosed? What

did it look like when Allie was having the seizures? Thanks so much,

Gwen

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