New Here

[Guest guest]

Welcome all the newbies! I've been slacking on the boards this week.

Yes, we just had our in-laws anniversary party & all the extended

family were saying, " She doesn't look like she has autism... " Gee, I

guess if she sat in the yard rocking & foaming at the mouth she would

fit the part more? Lol. I think the average joe just still doesn't

know what autism is.

Yes, Allie did have, still has slight low tone. She walked at 17 mos

but had/has fine motor delays, though far better at this point. Even

when she did start walking she still didn't want to, pretty much laid

on her back with her feet & hands in the air, I realized later she had

significant vestibular issues. Swinging in the different planes helped

her SIGNIFICANTLY. She also has horrible tactile issues. I remember

the first time I saw her reach out to touch the cat with one finger, I

knew we were making progress; before then she couldn't stand to touch

anything furrry. Now if only we could get her to leave the cats

alone!! She also loves holding guinea pigs & rabbits at the pet store.

I'm scared of rabbits, lol.

Debi

[Guest guest]

Welcome all the newbies! I've been slacking on the boards this week.

Yes, we just had our in-laws anniversary party & all the extended

family were saying, " She doesn't look like she has autism... " Gee, I

guess if she sat in the yard rocking & foaming at the mouth she would

fit the part more? Lol. I think the average joe just still doesn't

know what autism is.

Yes, Allie did have, still has slight low tone. She walked at 17 mos

but had/has fine motor delays, though far better at this point. Even

when she did start walking she still didn't want to, pretty much laid

on her back with her feet & hands in the air, I realized later she had

significant vestibular issues. Swinging in the different planes helped

her SIGNIFICANTLY. She also has horrible tactile issues. I remember

the first time I saw her reach out to touch the cat with one finger, I

knew we were making progress; before then she couldn't stand to touch

anything furrry. Now if only we could get her to leave the cats

alone!! She also loves holding guinea pigs & rabbits at the pet store.

I'm scared of rabbits, lol.

Debi

[Guest guest]

Kai,

You said it well....private self-stimming; she organizes things into catagories

(especially playing cards), chews and sucks on fingers, twirls hair, flips

coloring book pages really close to her eyes, moves her favorite objects from

one container to another repeatedly, and asks questions over and over again,

etc. She doesn't really stim at school, because she doesn't have her " stuff "

there. She also hoards things and pushes them around in a baby

stroller....again, she can't do that in school. She also has the sensory issues

to sounds and touch. Yes, she is very sweet and charming and I think that is

what throws people off a bit.

A GREAT BIG THANKS TO ALL OF YOU FOR YOUR SUPPORT!!! Makes me feel normal =)

Thanks again, Gwen

New here

Hello,I am really excited to visit with other families who have girls with

Autism. Our daughter was diagnosed in July of this year, although we have

expected it for quite some time. She had a difficult time receiving this

diagnosis because she can be affectionate and she sometimes wants to be around

other children. My question is do you all find that girls are more affectionate

than boys with Autism? I know quite a few parents with children with Autism, but

all of them are boys. Can you tell me the major differences you find in boys and

girls with this disorder? Thank you so much, Gwen [Non-text portions of this

message have been removed]

__________________________________________________________

Help yourself to FREE treats served up daily at the Messenger Café. Stop by

today.

http://www.cafemessenger.com/info/info_sweetstuff2.html?ocid=TXT_TAGLM_OctWLtagl\

ine

[Guest guest]

Kai,

You said it well....private self-stimming; she organizes things into catagories

(especially playing cards), chews and sucks on fingers, twirls hair, flips

coloring book pages really close to her eyes, moves her favorite objects from

one container to another repeatedly, and asks questions over and over again,

etc. She doesn't really stim at school, because she doesn't have her " stuff "

there. She also hoards things and pushes them around in a baby

stroller....again, she can't do that in school. She also has the sensory issues

to sounds and touch. Yes, she is very sweet and charming and I think that is

what throws people off a bit.

A GREAT BIG THANKS TO ALL OF YOU FOR YOUR SUPPORT!!! Makes me feel normal =)

Thanks again, Gwen

New here

Hello,I am really excited to visit with other families who have girls with

Autism. Our daughter was diagnosed in July of this year, although we have

expected it for quite some time. She had a difficult time receiving this

diagnosis because she can be affectionate and she sometimes wants to be around

other children. My question is do you all find that girls are more affectionate

than boys with Autism? I know quite a few parents with children with Autism, but

all of them are boys. Can you tell me the major differences you find in boys and

girls with this disorder? Thank you so much, Gwen [Non-text portions of this

message have been removed]

__________________________________________________________

Help yourself to FREE treats served up daily at the Messenger Café. Stop by

today.

http://www.cafemessenger.com/info/info_sweetstuff2.html?ocid=TXT_TAGLM_OctWLtagl\

ine

[Guest guest]

Hi Gwen,

The answer is no. We really didn't think she was autistic at all because she

was very friendly and sweet. We thought she had a language delay.

We were still living in Tokyo when I noticed Sophie's rather odd play at age 9

months old. She was lining up her toys in a straight line and when I switched

some objects when she wasn't looking, she would know right away and correct

them. I thought to myself we have got a genius here or an alien. By the time

she was 11 months old, I was getting anxious because she wasn't pointing. We

moved to the States when she was 13 months old. She wasn't talking and walking

and getting overly sensitive to lights (esp. florescent lights), noise (even

people talking and laughing), rain drops (we are in Seattle, the Rain City!!),

clothing, etc. I changed pediatricians 11 times in order to get the necessary

referral to the specialists. No doctors wanted to say something was up with

her.

Even then, the neurologists were focusing on her dyspraxia and developmental

delays.

So it was not a clear-cut case with Sophie and was a frustrating journey for us

because we felt we were losing precious intervention time that could have been

specifically designed to her autistic challenges.

I think the medical field is getting better understanding that some girls

manifests autism differently, but still there is a long way to go.

Thanks,

Kai

New here

Hello,I am really excited to visit with other families who have girls with

Autism. Our daughter was diagnosed in July of this year, although we have

expected it for quite some time. She had a difficult time receiving this

diagnosis because she can be affectionate and she sometimes wants to be around

other children. My question is do you all find that girls are more affectionate

than boys with Autism? I know quite a few parents with children with Autism, but

all of them are boys. Can you tell me the major differences you find in boys and

girls with this disorder? Thank you so much, Gwen [Non-text portions of this

message have been removed]

__________________________________________________________

Help yourself to FREE treats served up daily at the Messenger Café. Stop by

today.

http://www.cafemessenger.com/info/info_sweetstuff2.html?ocid=TXT_TAGLM_OctWLtagl\

ine

[Guest guest]

Hi Gwen,

The answer is no. We really didn't think she was autistic at all because she

was very friendly and sweet. We thought she had a language delay.

We were still living in Tokyo when I noticed Sophie's rather odd play at age 9

months old. She was lining up her toys in a straight line and when I switched

some objects when she wasn't looking, she would know right away and correct

them. I thought to myself we have got a genius here or an alien. By the time

she was 11 months old, I was getting anxious because she wasn't pointing. We

moved to the States when she was 13 months old. She wasn't talking and walking

and getting overly sensitive to lights (esp. florescent lights), noise (even

people talking and laughing), rain drops (we are in Seattle, the Rain City!!),

clothing, etc. I changed pediatricians 11 times in order to get the necessary

referral to the specialists. No doctors wanted to say something was up with

her.

Even then, the neurologists were focusing on her dyspraxia and developmental

delays.

So it was not a clear-cut case with Sophie and was a frustrating journey for us

because we felt we were losing precious intervention time that could have been

specifically designed to her autistic challenges.

I think the medical field is getting better understanding that some girls

manifests autism differently, but still there is a long way to go.

Thanks,

Kai

New here

Hello,I am really excited to visit with other families who have girls with

Autism. Our daughter was diagnosed in July of this year, although we have

expected it for quite some time. She had a difficult time receiving this

diagnosis because she can be affectionate and she sometimes wants to be around

other children. My question is do you all find that girls are more affectionate

than boys with Autism? I know quite a few parents with children with Autism, but

all of them are boys. Can you tell me the major differences you find in boys and

girls with this disorder? Thank you so much, Gwen [Non-text portions of this

message have been removed]

__________________________________________________________

Help yourself to FREE treats served up daily at the Messenger Café. Stop by

today.

http://www.cafemessenger.com/info/info_sweetstuff2.html?ocid=TXT_TAGLM_OctWLtagl\

ine

[Guest guest]

My daughter also has low muscle tone and didn't walk

till she was 18months old. She is much better now (6)

but her abs are still weak. It looks like a budda

belly. She seems to tire easily and would rather stay

inside and draw than run around. Once some extra

money comes in I am thinking of putting her in dance

or gymnastics. Hopefully that will help some.

Rebekah

--- EbuyerMTC@... wrote:

> Gwen

> Jumping in late here, but since you asked; my 14

> year old has low tone and

> didn't walk until over two. Welcome, to you and the

> other new folks,

> Melinda

>

>

>

> ************************************** See what's

> new at http://www.aol.com

>

>

> [Non-text portions of this message have been

> removed]

>

>

________________________________________________________________________________\

____

Building a website is a piece of cake. Yahoo! Small Business gives you all the

tools to get online.

http://smallbusiness.yahoo.com/webhosting

[Guest guest]

My daughter also has low muscle tone and didn't walk

till she was 18months old. She is much better now (6)

but her abs are still weak. It looks like a budda

belly. She seems to tire easily and would rather stay

inside and draw than run around. Once some extra

money comes in I am thinking of putting her in dance

or gymnastics. Hopefully that will help some.

Rebekah

--- EbuyerMTC@... wrote:

> Gwen

> Jumping in late here, but since you asked; my 14

> year old has low tone and

> didn't walk until over two. Welcome, to you and the

> other new folks,

> Melinda

>

>

>

> ************************************** See what's

> new at http://www.aol.com

>

>

> [Non-text portions of this message have been

> removed]

>

>

________________________________________________________________________________\

____

Building a website is a piece of cake. Yahoo! Small Business gives you all the

tools to get online.

http://smallbusiness.yahoo.com/webhosting

[Guest guest]

Debi,

That is what I get all the time. Especially my

in-laws. They will not believe that she has anything

close to autism. I don't know what it will take for

them to finally come to grips with it. They say that

she doesn't look anything like they see on the tv

specials. I am thinking of giving them a book. I

just need to find the right one. Any thought that

have helped you?

Thanks

--- Debi wrote:

> Welcome all the newbies! I've been slacking on the

> boards this week.

>

> Yes, we just had our in-laws anniversary party & all

> the extended

> family were saying, " She doesn't look like she has

> autism... " Gee, I

> guess if she sat in the yard rocking & foaming at

> the mouth she would

> fit the part more? Lol. I think the average joe just

> still doesn't

> know what autism is.

>

> Yes, Allie did have, still has slight low tone. She

> walked at 17 mos

> but had/has fine motor delays, though far better at

> this point. Even

> when she did start walking she still didn't want to,

> pretty much laid

> on her back with her feet & hands in the air, I

> realized later she had

> significant vestibular issues. Swinging in the

> different planes helped

> her SIGNIFICANTLY. She also has horrible tactile

> issues. I remember

> the first time I saw her reach out to touch the cat

> with one finger, I

> knew we were making progress; before then she

> couldn't stand to touch

> anything furrry. Now if only we could get her to

> leave the cats

> alone!! She also loves holding guinea pigs & rabbits

> at the pet store.

> I'm scared of rabbits, lol.

>

> Debi

>

>

>

>

Rebekah Phil 4:8 & #10084;

________________________________________________________________________________\

____

Be a better Heartthrob. Get better relationship answers from someone who knows.

Yahoo! Answers - Check it out.

http://answers.yahoo.com/dir/?link=list & sid=396545433

[Guest guest]

Debi,

That is what I get all the time. Especially my

in-laws. They will not believe that she has anything

close to autism. I don't know what it will take for

them to finally come to grips with it. They say that

she doesn't look anything like they see on the tv

specials. I am thinking of giving them a book. I

just need to find the right one. Any thought that

have helped you?

Thanks

--- Debi wrote:

> Welcome all the newbies! I've been slacking on the

> boards this week.

>

> Yes, we just had our in-laws anniversary party & all

> the extended

> family were saying, " She doesn't look like she has

> autism... " Gee, I

> guess if she sat in the yard rocking & foaming at

> the mouth she would

> fit the part more? Lol. I think the average joe just

> still doesn't

> know what autism is.

>

> Yes, Allie did have, still has slight low tone. She

> walked at 17 mos

> but had/has fine motor delays, though far better at

> this point. Even

> when she did start walking she still didn't want to,

> pretty much laid

> on her back with her feet & hands in the air, I

> realized later she had

> significant vestibular issues. Swinging in the

> different planes helped

> her SIGNIFICANTLY. She also has horrible tactile

> issues. I remember

> the first time I saw her reach out to touch the cat

> with one finger, I

> knew we were making progress; before then she

> couldn't stand to touch

> anything furrry. Now if only we could get her to

> leave the cats

> alone!! She also loves holding guinea pigs & rabbits

> at the pet store.

> I'm scared of rabbits, lol.

>

> Debi

>

>

>

>

Rebekah Phil 4:8 & #10084;

________________________________________________________________________________\

____

Be a better Heartthrob. Get better relationship answers from someone who knows.

Yahoo! Answers - Check it out.

http://answers.yahoo.com/dir/?link=list & sid=396545433

[Guest guest]

My 5 year old is also very affectionate to those she knows closely,

which had me convinced she couldn't have autism when she was

younger. Someone else wrote about the extended family's comments

re:she doesn't seem autistic. We have also had that challenge. I

kind of understand it given my own self doubt earlier about the

possibility. But....it's just seems hard enough trying to accept

such a diagnosis to begin with, and comments like those from family

can be really, really hard to take.

Pat

>

> Hi Gwen,

>

> The answer is no. We really didn't think she was autistic at all

because she was very friendly and sweet. We thought she had a

language delay.

>

> We were still living in Tokyo when I noticed Sophie's rather odd

play at age 9 months old. She was lining up her toys in a straight

line and when I switched some objects when she wasn't looking, she

would know right away and correct them. I thought to myself we have

got a genius here or an alien. By the time she was 11 months old, I

was getting anxious because she wasn't pointing. We moved to the

States when she was 13 months old. She wasn't talking and walking

and getting overly sensitive to lights (esp. florescent lights),

noise (even people talking and laughing), rain drops (we are in

Seattle, the Rain City!!), clothing, etc. I changed pediatricians 11

times in order to get the necessary referral to the specialists. No

doctors wanted to say something was up with her.

> Even then, the neurologists were focusing on her dyspraxia and

developmental delays.

>

> So it was not a clear-cut case with Sophie and was a frustrating

journey for us because we felt we were losing precious intervention

time that could have been specifically designed to her autistic

challenges.

> I think the medical field is getting better understanding that some

girls manifests autism differently, but still there is a long way to

go.

>

> Thanks,

> Kai

>

> New here

>

> Hello,I am really excited to visit with other families who have

girls with Autism. Our daughter was diagnosed in July of this year,

although we have expected it for quite some time. She had a difficult

time receiving this diagnosis because she can be affectionate and she

sometimes wants to be around other children. My question is do you

all find that girls are more affectionate than boys with Autism? I

know quite a few parents with children with Autism, but all of them

are boys. Can you tell me the major differences you find in boys and

girls with this disorder? Thank you so much, Gwen [Non-text portions

of this message have been removed]

>

> __________________________________________________________

> Help yourself to FREE treats served up daily at the Messenger

Café. Stop by today.

> http://www.cafemessenger.com/info/info_sweetstuff2.html?

ocid=TXT_TAGLM_OctWLtagline

>

>

[Guest guest]

Hi ,

I recognize you from other Yahoo! groups. :-)

The two I would recommend are:

Mullan, M.D.

2829 W. Burbank Blvd., # 202

Burbank, CA 91505

Karima Hirani, M.D., M.P.H.

12732 W. Washington Blvd. #B

Los Angeles, CA 90066

> Hi

>

> I'm new to the group. I am the grandmother of a 8 1/2 year old

> girl. Classic Autism. She's moderate functioning....more on the

> aggresive side...she attends a special school in Sherman Oaks.

> She is on gfcf/no soy/corn/food dyes and completely organic. Diet

> has helped her a lot. She also takes supplements and enzymes. Next

> step is to put her on a yeast free diet. We are still looking for

> a good DAN doctor in the area of San Valley or Los

> Angeles. Anyone have any suggestions?

>

> Thank you so much

>

>

>

> Western Pacific International

> 1201 So. Los Angeles St. #4

> Los Angeles, Ca 90015

> 213 747-7088 phone

> fax

>

> ---------------------------------

> Shape Yahoo! in your own image. Join our Network Research Panel

> today!

>

>

[Guest guest]

Hi ,

I recognize you from other Yahoo! groups. :-)

The two I would recommend are:

Mullan, M.D.

2829 W. Burbank Blvd., # 202

Burbank, CA 91505

Karima Hirani, M.D., M.P.H.

12732 W. Washington Blvd. #B

Los Angeles, CA 90066

> Hi

>

> I'm new to the group. I am the grandmother of a 8 1/2 year old

> girl. Classic Autism. She's moderate functioning....more on the

> aggresive side...she attends a special school in Sherman Oaks.

> She is on gfcf/no soy/corn/food dyes and completely organic. Diet

> has helped her a lot. She also takes supplements and enzymes. Next

> step is to put her on a yeast free diet. We are still looking for

> a good DAN doctor in the area of San Valley or Los

> Angeles. Anyone have any suggestions?

>

> Thank you so much

>

>

>

> Western Pacific International

> 1201 So. Los Angeles St. #4

> Los Angeles, Ca 90015

> 213 747-7088 phone

> fax

>

> ---------------------------------

> Shape Yahoo! in your own image. Join our Network Research Panel

> today!

>

>

[Guest guest]

Hi Jody,

 

We have all become people with steely determination.  It's what it takes to

fight back.  I, too have lyme, plus a zillion other things going on.  I am

putting most of my eggs in the ozone basket, however just to be on the safe side

also use other things.  Most of us are also battling relentless candida, heavy

metal toxicity, co-infections with the lyme, parasites, toxins.  I also take a

sauna 4 or so times a week and I can tell you that my skin erupts in toxins

eliminating.  BTW not ozone saunas, just infrared.  A journey of 10,000 miles

begins with the first step.  You begin it with ozone....excellent.  My ears used

to drain profusely, now down to just a few days,  vaginal...forget about it, but

now I can do one every few days.  Stick to it and soldier on....this is your

best option at this point in time.

Subject: new here

To: oxyplus

Date: Saturday, June 27, 2009, 12:22 PM

Hi Gang-

My name is Jody and I am new to this group. Fighting Lyme. Been doing ozone for

the past 7 weeks under Saul's guidance and I can't say enough of how much I

admire him. This has been a rough week for me. The rash is out of control. I

have been taking the protease every hour and am also doing another liver/GB

cleanse this evening. Dream Cream helps alot but nothing really makes it

tolerable.

I am looking for encouragment. This is tough. Who knew getting well was hard

work. I am committed to getting well so I will keep on keeping on. Any advice?

Thanks

[Guest guest]

Hi Jody,

Welcome and good job. It is hard getting well... but it is worth it. I got over

FM and CFS with the help of ozone and Saul, hell I liked ozone so much I married

Saul LOL... kidding...the one thing I noticed, was that I was oblivious to

getting sick, living my life, unconscious half the time to the cost of what I

was doing (drinking, smoking and...) but to get well, truly well, you have to be

alert, conscious and dedicated every single minute of every day... hardest work

I ever did.

SO good luck, keep up the good fight, the liver cleanse will help you will get

through it,

Sherri-Lee

http://www.mail4kids.ca

Because kids love getting mail!

new here

Hi Gang-

My name is Jody and I am new to this group. Fighting Lyme. Been doing ozone

for the past 7 weeks under Saul's guidance and I can't say enough of how much I

admire him. This has been a rough week for me. The rash is out of control. I

have been taking the protease every hour and am also doing another liver/GB

cleanse this evening. Dream Cream helps alot but nothing really makes it

tolerable.

I am looking for encouragment. This is tough. Who knew getting well was hard

work. I am committed to getting well so I will keep on keeping on. Any advice?

Thanks

[Guest guest]

> I am committed to getting well so I will keep on keeping on. Any advice?

>

> Thanks

>

Hi Jody,

Have you tried using Homozon or some other form of magnesium oxide to increase

motility and/or clear out your digestive tract?

http://www.excellentthings.com/Homozon.html

http://www.envirohealthtech.com/homozon.htm

I'm not sure what Saul has already recommended to you, but another thing that

might be helpful is to take some clay baths. Soaking in clayish water is not

only very soothing to the skin, but is also a very effective way to draw toxins

out of the body.

http://www.eytonsearth.org/clay-baths.php

Hydrated clay taken internally is another very beneficial way of helping the

body to offload toxicity.

http://www.aboutclay.com/info/Uses/internal_cleanser.htm

You also might consider drinking some activated charcoal slurries. Taking

charcoal internally is a very effective way to support the body through any kind

of healing crisis, as it adsorbs pathogens and other toxins and wastes,

electromagnetically pulling them into the charcoal itself and out of the body in

the form of stool.

http://www.vrp.com/articles.aspx?page=LIST & ProdID=327 & zType=2

Dry skin brushing on a daily basis is another good way to encourage and support

detoxification as it helps to remove dead skin and also stimulates the flow of

lymph, which is very beneficial anytime, but especially when going through a

cleansing reaction. You don't want to brush broken skin though, so avoid any

areas where the rash is breaking out and concentrate instead on the rest of the

body.

http://www.racingsmarter.com/health/natural/skin_brushing.htm

Also, make sure to drink plenty of the purest water you can find to keep

yourself hydrated and encourage the continual flushing out of toxins.

Adding some chlorella to your diet would be beneficial too, as it's a great way

to chelate heavy metals and other toxins out of the body.

And if all else fails, you can always back off on the ozone some until your

detox reaction becomes more bearable, and then adjust the duration and frequency

of your treatments so your healing crises are more manageable.

Hang in there! Keep at it and don't give up. You're surely on the right track.

Elan

[Guest guest]

sherri and elan-

thanks for the encouragment. i won't give up. the liver cleanse really helped,

left brand new skin where the rash was. amazing. i am planning on doing

another one friday. alo, the charcoal slurry helped. i ordered 5 lbs of it on

saturday. lol. i will join you sherri in the " land of the healthy " ....

jody

>

>

>

> > I am committed to getting well so I will keep on keeping on. Any advice?

> >

> > Thanks

> >

>

>

>

> Hi Jody,

>

> Have you tried using Homozon or some other form of magnesium oxide to increase

motility and/or clear out your digestive tract?

>

>

> http://www.excellentthings.com/Homozon.html

>

> http://www.envirohealthtech.com/homozon.htm

>

>

> I'm not sure what Saul has already recommended to you, but another thing that

might be helpful is to take some clay baths. Soaking in clayish water is not

only very soothing to the skin, but is also a very effective way to draw toxins

out of the body.

>

>

> http://www.eytonsearth.org/clay-baths.php

>

>

> Hydrated clay taken internally is another very beneficial way of helping the

body to offload toxicity.

>

>

> http://www.aboutclay.com/info/Uses/internal_cleanser.htm

>

>

> You also might consider drinking some activated charcoal slurries. Taking

charcoal internally is a very effective way to support the body through any kind

of healing crisis, as it adsorbs pathogens and other toxins and wastes,

electromagnetically pulling them into the charcoal itself and out of the body in

the form of stool.

>

>

> http://www.vrp.com/articles.aspx?page=LIST & ProdID=327 & zType=2

>

>

>

> Dry skin brushing on a daily basis is another good way to encourage and

support detoxification as it helps to remove dead skin and also stimulates the

flow of lymph, which is very beneficial anytime, but especially when going

through a cleansing reaction. You don't want to brush broken skin though, so

avoid any areas where the rash is breaking out and concentrate instead on the

rest of the body.

>

>

> http://www.racingsmarter.com/health/natural/skin_brushing.htm

>

>

>

> Also, make sure to drink plenty of the purest water you can find to keep

yourself hydrated and encourage the continual flushing out of toxins.

>

> Adding some chlorella to your diet would be beneficial too, as it's a great

way to chelate heavy metals and other toxins out of the body.

>

> And if all else fails, you can always back off on the ozone some until your

detox reaction becomes more bearable, and then adjust the duration and frequency

of your treatments so your healing crises are more manageable.

>

> Hang in there! Keep at it and don't give up. You're surely on the right

track.

>

>

>

> Elan

>

[Guest guest]

Hi Jody,

Use some activated charcoal or bentonite clay. Both will help bind the toxins

to it and take some of the added burden off the liver.

MMS will also help wipe the toxins out very nicely. Wouldn't stay on the stuff

long term, but it helps to make life easier with the rashing.

Gail

>

> Hi Gang-

> My name is Jody and I am new to this group. Fighting Lyme. Been doing ozone

for the past 7 weeks under Saul's guidance and I can't say enough of how much I

admire him. This has been a rough week for me. The rash is out of control. I

have been taking the protease every hour and am also doing another liver/GB

cleanse this evening. Dream Cream helps alot but nothing really makes it

tolerable.

>

> I am looking for encouragment. This is tough. Who knew getting well was hard

work. I am committed to getting well so I will keep on keeping on. Any advice?

>

> Thanks

>

[Guest guest]

Good Morning to everyone!

My name is and my daughter Sara is 11 years old and has OCD, symmetry and

hypersensitivity. (We live in Florida)

She has always had ocd as far back as 18 months old, it has never been a

" problem " just quirky in ways. Over this past summer it has taken over her life.

Our insurance will not pay for treatment so we got her into a " study " that

includes medication or placebo (convinced she is on the meds)and CBT and that

lasts 17 weeks.

I just feel powerless, she is home from school today because as of last night

she couldnt walk on carpet or sit on the floor...she goes to a Montessori school

so they sit on the floor a lot. Her grades are suffering because she spends all

day trying to hide her compulsions that she doesnt get her work done. She hasnt

started CBT yet, that starts monday so I feel like I just have to go with how

she feels right now.

I would love some information about symmetry, I cant seem to find much about it

or talk to someone who is also dealing with it.

Thanks!!

[Guest guest]

Hi ,

Welcome! This is not a group that you WANT to feel a need to join, but this is

a great community to come to for support with dealing with everything that comes

up around living with OCD.

Your statement of feeling powerless hit a chord for me. Our son is 19, and is

doing quite well for 2 years now. But when the OCD spikes it can still become

the focus, and affects the whole household. Our son has learned how to work the

principles of ERP on his own, and does not see a doctor, so I'm the soundboard

when needed and it is wearing.

That's great that you have treatment lined up. You will notice a big difference

when your daughter starts doing the ERP. The anxiety will go up at first, and

can get pretty intense even, because they are being asked to go out of their

comfort zone. But when they learn how to work with the OCD everything becomes

more managable. It can shift quite quickly once they understand what to do and

work steadily at it.

We also " just went with how (our son) felt " , at the outset, and he actually had

to stop school because it was pointless, he was very severe and couldn't sleep

or do anything other than obsess. It can be a tricky line to walk, because you

don't want them to close in on themselves and stop doing everything.

But when it is all encompassing, or the specific OCD issues are too big, it's

best to let them decide what they feel they can do. We still go by this. They

have to be the ones to decide how to pace themselves, as living with OCD is

exhausting for them, and there is just less energy to cope with life in general.

As well, they have in a sense lost control, so need to feel a sense of control

over choices and their movements.

That's interesting that your daughter is in a research study, I'm glad it was

there for you, treatment is indeed very costly. How rapidly did you notice a

change when she started the " medication " , and how long has she been on it now?

Is the ERP included in the study? All the best with this!

Do keep posting your questions and concerns. As I say, this is a great bunch

here! Even come and vent when needed - and it is usually needed often!!

Warmly,

Barb

Canada

Son, 19, OCD, LD plus

>

> Good Morning to everyone!

>

> My name is and my daughter Sara is 11 years old and has OCD, symmetry

and hypersensitivity. (We live in Florida)

>

> She has always had ocd as far back as 18 months old, it has never been a

" problem " just quirky in ways. Over this past summer it has taken over her life.

Our insurance will not pay for treatment so we got her into a " study " that

includes medication or placebo (convinced she is on the meds)and CBT and that

lasts 17 weeks.

>

> I just feel powerless, she is home from school today because as of last night

she couldnt walk on carpet or sit on the floor...she goes to a Montessori school

so they sit on the floor a lot. Her grades are suffering because she spends all

day trying to hide her compulsions that she doesnt get her work done. She hasnt

started CBT yet, that starts monday so I feel like I just have to go with how

she feels right now.

>

> I would love some information about symmetry, I cant seem to find much about

it or talk to someone who is also dealing with it.

>

> Thanks!!

>

>

[Guest guest]

Thank You for your responses.

First I dont know what a heirarchy is.....I do hope to lean as much as I can

from everyone here.

Her teachers know about the OCD, i went in today and said she wasnt coming in

and they quickly got about a weeks worth of work for her to do. She works better

at home because she doesnt have to hide her compulsions...they are constant.

They are mostly with her own body, every movement she makes...she has to do

evenly on the other side. She is exhausted at the end of the day.

She is very involved with activities, last night she chose not to go to Tae Kwon

Do for fear that she would have to touch the carpet...if this happens then she

has to roll around on the carpet until her whole body has been touched by

it...this is a new compuslion as of yesterday. She did not go to gymnastics

tonight because of it. She is on a sailing team and she loves it...she says both

of her hands are busy and she doesnt get touched by anything.

The drug being used in the study is Zoloft, she had some side effects from it

after the first increase. They labled her as " active hypomania " that has since

gotten better...so that told me she is actually in the group that is getting the

medicine. And since the medicine she no longer taps food on her face before she

eats it.

We are going on a family cruise in 38 days, my parents gift to us and I and

reaally stressing over it.

[Guest guest]

So sorry, . Our son is on Celexa. It has done wonders. His OCD was mild

to moderate, and he's responding well to the meds. He tried Zoloft first and

became very aggressive, defiant and suicidal. It was horrible, but things are

looking up now. I was an " even " OCD person and still am somewhat. That's a

horrible feeling to have to have things even. I hope that she gets relief from

the Zoloft.

Steffanie

To:

From: kfrajerman@...

Date: Wed, 22 Sep 2010 19:17:04 -0700

Subject: Re: New Here

Thank You for your responses.

First I dont know what a heirarchy is.....I do hope to lean as much as I can

from everyone here.

Her teachers know about the OCD, i went in today and said she wasnt coming in

and they quickly got about a weeks worth of work for her to do. She works better

at home because she doesnt have to hide her compulsions...they are constant.

They are mostly with her own body, every movement she makes...she has to do

evenly on the other side. She is exhausted at the end of the day.

She is very involved with activities, last night she chose not to go to Tae Kwon

Do for fear that she would have to touch the carpet...if this happens then she

has to roll around on the carpet until her whole body has been touched by

it...this is a new compuslion as of yesterday. She did not go to gymnastics

tonight because of it. She is on a sailing team and she loves it...she says both

of her hands are busy and she doesnt get touched by anything.

The drug being used in the study is Zoloft, she had some side effects from it

after the first increase. They labled her as " active hypomania " that has since

gotten better...so that told me she is actually in the group that is getting the

medicine. And since the medicine she no longer taps food on her face before she

eats it.

We are going on a family cruise in 38 days, my parents gift to us and I and

reaally stressing over it.

[Guest guest]

Hi ,

A heirarchy refers to a listing of a persons OCD issues, rated from 0-10, with

" 0 " being least and 10 being most bothersome. When they are working ERP they

usually start with the smallest things to build confidence that they can manage

the anxiety that come up, and move up gradually to the 10's.

That's good that she IS one of the members in the study receiving medication.

The hypomania can come with any of the ssri's, esp on higher doses. Our son

experienced this. In the end we found he does best on a lower dose. Just

curious how rapidly they increase the dose? Guess you probably don't have a

choice on this, being in a study? But if you do, the more gradually you adjust

the dose the less side effects of all kinds. These kids can be very med

sensitive.

Not sure if you or your daughter are up to trying to challenge the OCD stuff on

your own? If you are, you might suggest to your daughter to delay her rituals,

maybe for a count of 10secs at first, and try to keep increasing the delay time.

This will give her a chance to " habituate " to the anxiety. She can decide how

long she'll wait, and increase, so she has a sense of power over it. Can also

try decreasing number of times she does a ritual gradually.

It's hard to contemplate travelling when your child is not doing well. We've

been in the situation too. Sometimes they do better than you expect, sometimes

the change makes the OCD take a holiday, as some do better away from home.

Can't say that was the case with ours, but still the distraction of being

somewhere " fun " was something. Really depends what the issues are.

Since you have the appointment on Monday to start the ERP, it won't be long now

that she will start to learn how to manage these things. When our son finally

did take on the ERP things shifted rapidly. Once they understand how to work

with the OCD, they at least feel more hopeful and positive about living with it,

even if they can't always do what they need to. So, it's possible that by the

time you are taking the trip things will be in a better place.

Warmly,

Barb

>

> Thank You for your responses.

>

> First I dont know what a heirarchy is.....I do hope to lean as much as I can

from everyone here.

>

> Her teachers know about the OCD, i went in today and said she wasnt coming in

and they quickly got about a weeks worth of work for her to do. She works better

at home because she doesnt have to hide her compulsions...they are constant.

They are mostly with her own body, every movement she makes...she has to do

evenly on the other side. She is exhausted at the end of the day.

>

> She is very involved with activities, last night she chose not to go to Tae

Kwon Do for fear that she would have to touch the carpet...if this happens then

she has to roll around on the carpet until her whole body has been touched by

it...this is a new compuslion as of yesterday. She did not go to gymnastics

tonight because of it. She is on a sailing team and she loves it...she says both

of her hands are busy and she doesnt get touched by anything.

>

> The drug being used in the study is Zoloft, she had some side effects from it

after the first increase. They labled her as " active hypomania " that has since

gotten better...so that told me she is actually in the group that is getting the

medicine. And since the medicine she no longer taps food on her face before she

eats it.

>

> We are going on a family cruise in 38 days, my parents gift to us and I and

reaally stressing over it.

>

[Guest guest]

Hi , adding my welcome to the others!

Glad she is in the actual medication group. Wanted to say that OC behaviors

sometimes increase when beginning a medication, or increasing, and that, from

what some doctors say, can be a GOOD sign that the medication will work well to

fight the OCD. Seems odd, but true. Hope that is the case for your daughter.

Also some children do better with increasing more slowly, but know with the

study they probably have their increments that they go by.

As others have said, sometimes on vacations the OCD actually seems better, some

children do well away from home; and then you wonder why it ALL has to come back

as soon as you return home! 38 days, hopefully the medication will REALLY be

helping by then.

I saw others explained the heirarchy. Yes, you can't work on all the behaviors

at one time, so picking something lower on their list to work on (1,2,3 things)

helps; you sort of ignore/accommodate the rest of the behaviors while they work

on their selected behaviors.

Glad the school is working well with you on this.

Keep us updated and ask any questions, we were all " beginners " at one time when

OCD appeared in our children!

single mom, 3 sons

, 21, with OCD, Aspergers, dysgraphia

>

> Thank You for your responses.

>

> First I dont know what a heirarchy is.....I do hope to lean as much as I can

from everyone here.

>

> Her teachers know about the OCD, i went in today and said she wasnt coming in

and they quickly got about a weeks worth of work for her to do. She works better

at home because she doesnt have to hide her compulsions...they are constant.

They are mostly with her own body,