Guest guest Posted May 19, 2010 Report Share Posted May 19, 2010 , I did not see a private post, would you try to resend it? I am going to start looking into PANDAS. I keep saying that my daughter *cannot* control this, but I keep getting the same response from the (few) people I've talked to-----------that's she gonna just have to get used to not getting her way! It's so much more complicated that. > , > I sent you a private message. (hope that is ok) but I just wanted > to say on > list that our stories are so similar that its uncanny. Please, I > beg you, > look into the PANDAS diagnosis and don't stop until you've exhausted > the > possibility. Everything from frequent urination to ocd and anxiety > make me > think you are in the same boat as I am. You have not caused this > and kids > with PANDAS just can't control the OCD. They can't help it. No > matter how > much I tried to not enable it, when she was in an exacerbation, > there was no > helping her. (despite how I tried to take myself out of the > picture) It > was our therapist that really felt strongly she had PANDAS and I am > ever > grateful to her for sending us down this path. > > > > Right now awaiting insurance approval for IVIG. Antibiotics and > prednisone > have been life savers in the meantime. We would all be in a psych > ward > without them, at this point. > > Quote Link to comment Share on other sites More sharing options...
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