Guest guest Posted November 30, 2007 Report Share Posted November 30, 2007 welcome! I'm Debi, mom to 3 girls, 10, 8, & 5. My 8 yr old Allie has autism. Debi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2007 Report Share Posted November 30, 2007 Hi Sharisa, Glad you took me up on my offer. Whatever insights you can offer is always welcome. It's so helpful to me to read responses from Sondra & Kassi & now we have you. You mentioned you didn't have a job, which is unfortunate & seems so common amongst the adults on the spectrum. Do you ever do speaking engagements, maybe on a panel of adults on the spectrum. Where do you live? Jim & I run Autism Conferences (boring name but that's what we do) but maybe some day we might have you come & speak if you're able. Nothing in concrete, just tossing it out there to see if it might even be a possiblilty. I have 2 girls at home, one's 17 & a senior in high school & my youngest is 15 with autism. Their older half brother lives in Oakland, CA & is married with 2 NT kids, a girl & a boy. I also have a niece who kind of fell into our laps by running away from grandma & into a boyfriends, so we had to take her in. She's biologically 19, but PDDNOS,ADHD & now possibly showing shizophrenia from a brain map. Looking forward to your comments. Marie A. On Nov 30, 2007 4:50 PM, Sharisa Joy Kochmeister wrote: > I just joined at Marie ' request - I'm 29, have autism, CP, and > epilepsy among other gifts, graduated from denver University in 2004 > with honors and a dual degree in Psychology and Sociology, am still > unemployed, am president of Autcom and an advisor to ASA. How can I > help you all? > > Sharisa Joy > > > > Autism_in_Girls-subscribe > ------------------------ > Autism_in_Girls-unsubscribe > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2007 Report Share Posted November 30, 2007 Quite a description! I do remember you! > > > I just joined at Marie ' request - I'm 29, have > > autism, CP, and > > epilepsy among other gifts, graduated from denver > > University in 2004 > > with honors and a dual degree in Psychology and > > Sociology, am still > > unemployed, am president of Autcom and an advisor to > > ASA. How can I > > help you all? > > > > Sharisa Joy > > > > > > > > ________________________________________________________________________________\ ____ > Be a better sports nut! Let your teams follow you > with Yahoo Mobile. Try it now. http://mobile.yahoo.com/sports;_ylt=At9_qDKvtAbMuh1G1SQtBI7ntAcJ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2007 Report Share Posted November 30, 2007 Nope, eventually she'll be man-crazy! Like me! LOL! Thanks for the compliment about my name - I love it too! I always tell Daddy he gave me the perfect name for a poet & composer, so what choice did I have but to become both of those and so much more? What is your daughter's name and where do you live - you can always write me privately if you'd prefer as well. I hope to be an asset everywhere I go, and I think this group and I need each other and will be mutually beneficial. :-) > > > I just joined at Marie ' request - I'm 29, have autism, CP, and > > epilepsy among other gifts, graduated from denver University in 2004 > > with honors and a dual degree in Psychology and Sociology, am still > > unemployed, am president of Autcom and an advisor to ASA. How can I > > help you all? > > > > Sharisa Joy > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2007 Report Share Posted November 30, 2007 Thank you Debbie, I'm here to learn as well as teach. > > welcome! I'm Debi, mom to 3 girls, 10, 8, & 5. My 8 yr old Allie has > autism. > > Debi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2007 Report Share Posted November 30, 2007 Thank you Gail - some days I have too many insights, some days I need some from other people because I confuse myself at times! I do speaking and advocacy and consulting whenever and wherever I have the opportunity - at this point, nothing is scheduled till June when I do the closing inspirational address at the Assistive Technology Conference of the Rockies here in Denver - I live in Lakewood, a Dnever suburb - been here since 2000, first 22 years I was a Noo Yawkuh! I have done panels as well as keynotes and workshops - and I do guest lecture at colleges and universities when asked. Not asked nearly enough for my taste, though. Where do you run conferences? I'd be glad to come speak, for sure. I was in sdale attending the ASA Conference last July as a member of the panel of advisors on the spectrum and will definitely be presenting next July at their conference in Orlando and at the Autcom Conference in October in Ann Arbor, Michigan. I cause a bit of a stir when I joined the Professional Panel in sdale and spoke my mind - apparently that wasn't the plan - but I had to say what I thought, and it was well-received by about 95% of those who heard. :-) How old were your daughter and niece when diagnosed? My Dad's family seems to carry the Asperger's gene but I am somewhere else on the Spectrum entirely. I would NEVER want to conform, after all! <big grin> Well, enough of my rattling, apparently I'm on the upside of a bipolar swing - I look forward to your reply and to sharing with this group. Thanks again for inviting me in! Sharisa Joy > > > I just joined at Marie ' request - I'm 29, have autism, CP, and > > epilepsy among other gifts, graduated from denver University in 2004 > > with honors and a dual degree in Psychology and Sociology, am still > > unemployed, am president of Autcom and an advisor to ASA. How can I > > help you all? > > > > Sharisa Joy > > > > > > > > Autism_in_Girls-subscribe > > ------------------------ > > Autism_in_Girls-unsubscribe > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2007 Report Share Posted November 30, 2007 It's good to see you here. This is probably my favorite list, even if things get a little heated. After a dual degree, " heated " debates online are probably nothing... Kassiane --- Sharisa Joy Kochmeister wrote: > Quite a description! I do remember you! > > > > > > > > > I just joined at Marie ' request - I'm 29, > have > > > autism, CP, and > > > epilepsy among other gifts, graduated from > denver > > > University in 2004 > > > with honors and a dual degree in Psychology and > > > Sociology, am still > > > unemployed, am president of Autcom and an > advisor to > > > ASA. How can I > > > help you all? > > > > > > Sharisa Joy > > > > > > > > > > > > > > > ________________________________________________________________________________\ ____ > > Be a better sports nut! Let your teams follow you > > > with Yahoo Mobile. Try it now. > http://mobile.yahoo.com/sports;_ylt=At9_qDKvtAbMuh1G1SQtBI7ntAcJ > > > > > ________________________________________________________________________________\ ____ Be a better sports nut! Let your teams follow you with Yahoo Mobile. Try it now. http://mobile.yahoo.com/sports;_ylt=At9_qDKvtAbMuh1G1SQtBI7ntAcJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2007 Report Share Posted November 30, 2007 --- Sharisa Joy Kochmeister wrote: > Thank > Where do you run conferences? I'd be glad to come > speak, for sure. I was in sdale attending the > ASA Conference last July as a member of the panel of > > advisors on the spectrum and will definitely be > presenting next July at their conference in Orlando > and at the Autcom Conference in October in Ann > Arbor, > Michigan. I cause a bit of a stir when I joined the > > Professional Panel in sdale and spoke my mind - > > apparently that wasn't the plan - but I had to say > what I thought, and it was well-received by about > 95% > of those who heard. :-) Having heard you speak your mind, and as a veteran of a few ASAs...I laughed so hard I fell out of the chair when I read this. Did the other 5% reject what you said outright, or did their brains just explode? *grins* ________________________________________________________________________________\ ____ Never miss a thing. Make Yahoo your home page. http://www.yahoo.com/r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2007 Report Share Posted November 30, 2007 Never lost a debate yet... wonder what that feels like... :-) > > > > > > > I just joined at Marie ' request - I'm 29, > > have > > > > autism, CP, and > > > > epilepsy among other gifts, graduated from > > denver > > > > University in 2004 > > > > with honors and a dual degree in Psychology and > > > > Sociology, am still > > > > unemployed, am president of Autcom and an > > advisor to > > > > ASA. How can I > > > > help you all? > > > > > > > > Sharisa Joy > > > > > > > > > > > > > > > > > > > > > > > ________________________________________________________________________________\ ____ > > > Be a better sports nut! Let your teams follow you > > > > > with Yahoo Mobile. Try it now. > > > http://mobile.yahoo.com/sports;_ylt=At9_qDKvtAbMuh1G1SQtBI7ntAcJ > > > > > > > > > > > > > ________________________________________________________________________________\ ____ > Be a better sports nut! Let your teams follow you > with Yahoo Mobile. Try it now. http://mobile.yahoo.com/sports;_ylt=At9_qDKvtAbMuh1G1SQtBI7ntAcJ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2007 Report Share Posted November 30, 2007 I think their brains suddenly imploded, along with their egos, dogmas and paradigms about the " disease " that needs to be " cured! " > > > Thank > > Where do you run conferences? I'd be glad to come > > speak, for sure. I was in sdale attending the > > ASA Conference last July as a member of the panel of > > > > advisors on the spectrum and will definitely be > > presenting next July at their conference in Orlando > > and at the Autcom Conference in October in Ann > > Arbor, > > Michigan. I cause a bit of a stir when I joined the > > > > Professional Panel in sdale and spoke my mind - > > > > apparently that wasn't the plan - but I had to say > > what I thought, and it was well-received by about > > 95% > > of those who heard. :-) > > Having heard you speak your mind, and as a veteran of > a few ASAs...I laughed so hard I fell out of the chair > when I read this. Did the other 5% reject what you > said outright, or did their brains just explode? > *grins* > > > > ________________________________________________________________________________\ ____ > Never miss a thing. Make Yahoo your home page. > http://www.yahoo.com/r/hs > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2007 Report Share Posted November 30, 2007 Usually I don't like witnessing self destruction, but that implosion is one that has been a LONG time coming. And one that needed to happen. There is much rejoicing throughout the land from those who are not broken. --- Sharisa Joy Kochmeister wrote: > I think their brains suddenly imploded, along with > their egos, dogmas > and paradigms about the " disease " that needs to be > " cured! " > > > > > > > Thank > > > Where do you run conferences? I'd be glad to > come > > > speak, for sure. I was in sdale attending > the > > > ASA Conference last July as a member of the > panel of > > > > > > advisors on the spectrum and will definitely be > > > presenting next July at their conference in > Orlando > > > and at the Autcom Conference in October in Ann > > > Arbor, > > > Michigan. I cause a bit of a stir when I joined > the > > > > > > Professional Panel in sdale and spoke my > mind - > > > > > > apparently that wasn't the plan - but I had to > say > > > what I thought, and it was well-received by > about > > > 95% > > > of those who heard. :-) > > > > Having heard you speak your mind, and as a veteran > of > > a few ASAs...I laughed so hard I fell out of the > chair > > when I read this. Did the other 5% reject what you > > said outright, or did their brains just explode? > > *grins* > > > > > > > > > ________________________________________________________________________________\ ____ > > Never miss a thing. Make Yahoo your home page. > > http://www.yahoo.com/r/hs > > > > > ________________________________________________________________________________\ ____ Be a better pen pal. Text or chat with friends inside Yahoo! Mail. See how. http://overview.mail.yahoo.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2010 Report Share Posted May 3, 2010 Hello, my name is and my younger dd, age 10, was diagnosed with OCD Hoarding in Nov, when she started therapy. In March she added hair pulling to her list. I have no idea if or when something new will pop up. We've been in weekly therapy since Nov and some areas are better but others are worse, like the new hair pulling. She has no eye lashes and a stripe through one eyebrow. But she isn't waking us up at 3AM because she MIGHT have thrown away something important anymore. I worry a lot about her future, will it be normal? Will she be able to get married and have a family, her dearest wish since she was 4? How is the kid's list? If it might help her talk to othr kids, I'll sign her up. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2010 Report Share Posted May 3, 2010 I'm not sure what meds people take for trich. I take something called Luvox for my OCD. Both of my daughters take Luvox as well. The suggestions the therapist made are good ones. I can remember when I started pulling out my eyelashes. I was thirteen and it was rather sudden. The thing about the trich is that it feels good to pull the hair out. It is hard to describe to people who don't experience it. Some people are able to control the OCD without meds while others really need them. My family needs them. My girls have some other issues as well. My youngest also has Asperger's Syndrome and the older one has Narcolepsy. There is never a dull moment in our house. Neither one of them have trich, thank goodness. Kelley in NV a New Topic Messages in this topic (122) Recent Activity: New Members 14 New Files 3 Visit Your Group Our list archives feature may be accessed at: http://health.groups.yahoo.com/group// by scrolling down to the archives calendar . Our links may be accessed at http://health.groups.yahoo.com/group//links . Our files may be accessed at http://health.groups.yahoo.com/group//files . Our list advisors are Gail B. , Ed.D.(http://www.ocdawareness.com ), Tamar Chansky, Ph.D.( http://www.worrywisekids.org ), and Dan Geller, M.D. ( http://www.massgeneral.org/doctors/doctor.aspx?ID=18068 ). You may ask a question of any of these mental health professionals by inserting the words " Ask Dr.(insert name) " in the subject line of a post to the list. Our list moderators are Castle, Judy Chabot, BJ Closner, and Barb Nesrallah. You may contact the moderators at -owner . OCDKidsLoop membership may be accessed at http://health.groups.yahoo.com/group/ocdkidsloop/ . Our group and related groups are listed at http:// health.groups.yahoo.com/group/ocdsupportgroups/links . IOCDF treatment providers list may be viewed at http://www.ocfoundation.info/treatment-providers-list.php . NLM-NIH Drug Information Portal may be viewed at http://druginfo.nlm.nih.gov/drugportal/drugportal.jsp?APPLICATION_NAME=drugporta\ l . IOCDF recommended reading list may be accessed at http://www.ocfoundation.org/Books.aspx . IOCDF glossary of terms may be accessed at http://www.ocfoundation.org/glossary.aspx . IOCDF membership link may be accessed at http://www.ocfoundation.net/membership/ . Drugs.com pill identification wizard may be accessed at http://www.drugs.com/imprints.php . Mayo Clinic Drug and Herb Index may be accessed at http://www.mayoclinic.com/health/drug-information/DrugHerbIndex . Switch to: Text-Only, Daily Digest • Unsubscribe • Terms of Use .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2010 Report Share Posted May 3, 2010 Hi , I'm not a hoarder, but I have OCD with primarily compulsive checking. I was worst in my 20s when living alone over 100 miles from family (except an elderly grandmother) in NYC. I had just graduated from college, started my first job, and knew no one except people I worked with. My OCD was moderately severe, and I was seriously depressed as well. Now, in my late 40s, I am a married mother of 2 very bright, creative girls, one of whom has OCD. We have two geriatric pets, and I teach preschool part-time, and have previously worked as an editor, and a speech-language pathologist. Most of the people I know (outside of family and close friends) do not know that I have OCD. So, there is hope and there are new medications and new treatments available or in research. Hang in there. Your daughter's life may not turn out exactly the way she or you expect, but then at 4, many of us wanted to marry Prince Charming and live happily ever after in a castle, and not many of us do! Hang in there, (mom w/OCD, 10 yo dd w/OCD) > > Subject: Introduction > To: > Date: Monday, May 3, 2010, 10:30 AM > Hello, my name is and my > younger dd, age 10, was diagnosed with OCD Hoarding in Nov, > when she started therapy. In March she added hair > pulling to her list. I have no idea if or when > something new will pop up. > > We've been in weekly therapy since Nov and some areas are > better but others are worse, like the new hair > pulling. She has no eye lashes and a stripe through > one eyebrow. But she isn't waking us up at 3AM because > she MIGHT have thrown away something important anymore. > > I worry a lot about her future, will it be normal? > Will she be able to get married and have a family, her > dearest wish since she was 4? > > How is the kid's list? If it might help her talk to othr > kids, I'll sign her up. > > > > > > ------------------------------------ > > Our list archives feature may be accessed at: http://health.groups.yahoo.com/group// > by scrolling down to the archives calendar . Our links > may be accessed at http://health.groups.yahoo.com/group//links > . Our files may be accessed at > http://health.groups.yahoo.com/group//files > . > Our list advisors are Gail B. , Ed.D.(http://www.ocdawareness.com ), Tamar Chansky, Ph.D.( http://www.worrywisekids.org ), and Dan Geller, M.D. ( > http://www.massgeneral.org/doctors/doctor.aspx?ID=18068 > ). You may ask a question of any of these mental health > professionals by inserting the words " Ask Dr.(insert name) " > in the subject line of a post to the list. Our list > moderators are Castle, Judy Chabot, BJ Closner, and > Barb Nesrallah. You may contact the moderators at -owner > . OCDKidsLoop membership may be accessed at http://health.groups.yahoo.com/group/ocdkidsloop/ > . Our group and related groups are listed at http://health.groups.yahoo.com/group/ocdsupportgroups/links > . IOCDF treatment providers list may be viewed at http://www.ocfoundation.info/treatment-providers-list.php > . > NLM-NIH Drug Information Portal may be viewed at > http://druginfo.nlm.nih.gov/drugportal/drugportal.jsp?APPLICATION_NAME=drugporta\ l > . IOCDF recommended reading list may be accessed at http://www.ocfoundation.org/Books.aspx . IOCDF > glossary of terms may be accessed at http://www.ocfoundation.org/glossary.aspx > . IOCDF membership link may be accessed at http://www.ocfoundation.net/membership/ . Drugs.com > pill identification wizard may be accessed at http://www.drugs.com/imprints.php . Mayo Clinic > Drug and Herb Index may be accessed at http://www.mayoclinic.com/health/drug-information/DrugHerbIndex > . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2010 Report Share Posted May 3, 2010 Hi Angi, likes Club Penguin, Webkinz and, most of all, American Girl. I haven't signed her up yet, maybe after our schoolwoork is done. Yes, she must be stressed, but we can't figure out about what. We homeschool, so that is a known and much lower than when she was in school. She often puts her stress in her stomach and I was picking her up at least once a week from school because of it. It was also carrying over to the weekends. What is your dds name? That way I can tell to watch out for soandso on the boards. How old is she? Jen is 10. > > I pull on my eyelashes and brows, too. Since my 10-yr-old dd was diagnosed with OCD a couple of months ago, I've become more aware of my own OCD tendencies; so I've noticed that there are times when I *think* I feel relaxed and calm, but will be pulling. When I stop and think it through, I realize I am actually anxious, but am so used to high anxiety levels that it doesn't register. > > And the kids list has beena little slow, but I think that's because my dd and a couple other of the girls kept gabbing about Club Penguin, and others weren't interested in that. I'll have my daughter get things moving again: and NO Club Penguin :-D > > -Angi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2010 Report Share Posted May 3, 2010 My daughter s name is Maia. She ll be thrilled to find another homeschooler on the list. I know she just posted something a little while ago to try to get conversation going. >Hi Angi, > > likes Club Penguin, Webkinz and, most of all, American Girl. I haven't signed her up yet, maybe after our schoolwoork is done. > >Yes, she must be stressed, but we can't figure out about what. We homeschool, so that is a known and much lower than when she was in school. She often puts her stress in her stomach and I was picking her up at least once a week from school because of it. It was also carrying over to the weekends. > >What is your dds name? That way I can tell to watch out for soandso on the boards. How old is she? Jen is 10. > > > > > > >> >> I pull on my eyelashes and brows, too. Since my 10-yr-old dd was diagnosed with OCD a couple of months ago, I've become more aware of my own OCD tendencies; so I've noticed that there are times when I *think* I feel relaxed and calm, but will be pulling. When I stop and think it through, I realize I am actually anxious, but am so used to high anxiety levels that it doesn't register. >> >> And the kids list has beena little slow, but I think that's because my dd and a couple other of the girls kept gabbing about Club Penguin, and others weren't interested in that. I'll have my daughter get things moving again: and NO Club Penguin :-D >> >> -Angi > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2010 Report Share Posted May 4, 2010 Judy and Stormy, Thank you for your support! We aren't giving up on by any means. We do weekly therapy and will try meds if the therapist recommends that. But when I see those people on tv, I worry. A lot. I would love to take this all away from her, but I can't. > > Hi , > Yes, that is the nature of the beast with ocd. It seems as soon as you have got one thing under control, something else pops up. > At least your daughter is making progress with the hoarding! > > I wanted to mention that I have ocd as well as two of my kids. I am married with three children, and manage the household, work part time, etc. > Your daughter can get better.!! Always have hope and think positively!!!( as hard as that can be at times) > > Welcome to the group! >  You will find lots of support here! > Hugs > Judy > > > > > ________________________________ > > To: > Sent: Mon, May 3, 2010 10:30:31 AM > Subject: Introduction > >  > Hello, my name is and my younger dd, age 10, was diagnosed with OCD Hoarding in Nov, when she started therapy. In March she added hair pulling to her list. I have no idea if or when something new will pop up. > > We've been in weekly therapy since Nov and some areas are better but others are worse, like the new hair pulling. She has no eye lashes and a stripe through one eyebrow. But she isn't waking us up at 3AM because she MIGHT have thrown away something important anymore. > > I worry a lot about her future, will it be normal? Will she be able to get married and have a family, her dearest wish since she was 4? > > How is the kid's list? If it might help her talk to othr kids, I'll sign her up. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2010 Report Share Posted May 4, 2010 The people you see on television are older and if they are in treatment, they probably haven't been in treatment for long. I think that just knowing it is OCD helps and the fact that your child is receiving treatment now makes me think she won't be like those people on those shows. They are the " worst case " scenarios and are on tv for that reason. Your daughter has you in her corner and you are doing everything you can to help her. Kelley in NV Introduction > > Â > Hello, my name is and my younger dd, age 10, was diagnosed with OCD Hoarding in Nov, when she started therapy. In March she added hair pulling to her list. I have no idea if or when something new will pop up. > > We've been in weekly therapy since Nov and some areas are better but others are worse, like the new hair pulling. She has no eye lashes and a stripe through one eyebrow. But she isn't waking us up at 3AM because she MIGHT have thrown away something important anymore. > > I worry a lot about her future, will it be normal? Will she be able to get married and have a family, her dearest wish since she was 4? > > How is the kid's list? If it might help her talk to othr kids, I'll sign her up. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2010 Report Share Posted May 4, 2010 Boy, I hope she isn't like those people on tv. Therapy has been very, very slow so far. Initially the therapist thought she was a much more mild case than she is. It's been a constant revising upwards in severity since Nov. > > > > > > > > > > > > > > > > > > > > > > > > > > The people you see on television are older and if they are in treatment, they probably haven't been in treatment for long. I think that just knowing it is OCD helps and the fact that your child is receiving treatment now makes me think she won't be like those people on those shows. They are the " worst case " scenarios and are on tv for that reason. Your daughter has you in her corner and you are doing everything you can to help her. Kelley in NV > > Introduction >> >> Â >> Hello, my name is and my younger dd, age 10, was diagnosed with OCD Hoarding in Nov, when she started therapy. In March she added hair pulling to her list. I have no idea if or when something new will pop up. >> >> We've been in weekly therapy since Nov and some areas are better but others are worse, like the new hair pulling. She has no eye lashes and a stripe through one eyebrow. But she isn't waking us up at 3AM because she MIGHT have thrown away something important anymore. >> >> I worry a lot about her future, will it be normal? Will she be able to get married and have a family, her dearest wish since she was 4? >> >> How is the kid's list? If it might help her talk to othr kids, I'll sign her up. >> >> >> >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2010 Report Share Posted May 4, 2010 What said is SO true. And these are people who have likely suffered with OCD for most of their lives (notice how many of us are receiving our kids' diagnoses at age 10, 8, even 5?), so not only are their adult brains less adaptable to the change that ERT promotes, but they most certainly have more psychological damage to wade through as well, having been forced to live with it for so many years, always feeling weird or like a freak, possibly feeling like they had to try to hide it, etc. I fall victim to some hopeless worries once in awhile, too, with the forwards/backwards/forwards nature of this illness, too. That;s why we have each other here; the more experienced parents can give support and encouragement to those of us who are newer at it! -Angi Subject: Re: Re: Introduction To: Date: Tuesday, May 4, 2010, 8:31 AM  The people you see on television are older and if they are in treatment, they probably haven't been in treatment for long. I think that just knowing it is OCD helps and the fact that your child is receiving treatment now makes me think she won't be like those people on those shows. They are the " worst case " scenarios and are on tv for that reason. Your daughter has you in her corner and you are doing everything you can to help her. Kelley in NV Introduction > > Â > Hello, my name is and my younger dd, age 10, was diagnosed with OCD Hoarding in Nov, when she started therapy. In March she added hair pulling to her list. I have no idea if or when something new will pop up. > > We've been in weekly therapy since Nov and some areas are better but others are worse, like the new hair pulling. She has no eye lashes and a stripe through one eyebrow. But she isn't waking us up at 3AM because she MIGHT have thrown away something important anymore. > > I worry a lot about her future, will it be normal? Will she be able to get married and have a family, her dearest wish since she was 4? > > How is the kid's list? If it might help her talk to othr kids, I'll sign her up. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2010 Report Share Posted May 4, 2010 I think it is fairly normal for therapists to revise and revisit their severity levels as they get to know the patient better. People with OCD and/or hoarding are fairly good at hiding their symptoms with strangers, especially if the treatment is occurring in an office (as it usually does) and not in your home (some therapists do make home visits). (mom w/OCD, 10 yo dd w/OCD) > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >     The people you see on > television are older and if they are in treatment, they > probably haven't been in treatment for long. I think > that just knowing it is OCD helps and the fact that your > child is receiving treatment now makes me think she won't be > like those people on those shows.   They are > the " worst case " scenarios and are on tv for that > reason. Your daughter has you in her corner and you > are doing everything you can to help her. Kelley in NV > > > > Introduction > >> > >> Â > >> Hello, my name is and my younger dd, age > 10, was diagnosed with OCD Hoarding in Nov, when she started > therapy. In March she added hair pulling to her list. I have > no idea if or when something new will pop up. > >> > >> We've been in weekly therapy since Nov and some > areas are better but others are worse, like the new hair > pulling. She has no eye lashes and a stripe through one > eyebrow. But she isn't waking us up at 3AM because she MIGHT > have thrown away something important anymore. > >> > >> I worry a lot about her future, will it be normal? > Will she be able to get married and have a family, her > dearest wish since she was 4? > >> > >> How is the kid's list? If it might help her talk > to othr kids, I'll sign her up. > >> > >> > >> > >> > >> > >> > >> [Non-text portions of this message have been > removed] > >> > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2010 Report Share Posted May 4, 2010 I suppose, but it seems like no overall progress has been made. Advances in the hoarding seems undone with the appearance of the Trich. Sigh. Is it normal for treatment to take so long to truly begin? It seems like the OCD comes from my hubby's family, especially his mother. But is much worse already. It is fairly mild, if even actually OCD, in mil. How does puberty affect OCD and treatment? It's another concern of mine. > > > > > > Hi , > > > Yes, that is the nature of the beast with ocd. It seems as soon as you have got one thing under control, something else pops up. > > > At least your daughter is making progress with the hoarding! > > > > > > I wanted to mention that I have ocd as well as two of my kids. I am married with three children, and manage the household, work part time, etc. > > > Your daughter can get better.!! Always have hope and think positively!! !( as hard as that can be at times) > > > > > > Welcome to the group! > > >  You will find lots of support here! > > > Hugs > > > Judy > > > > > > > > > > > > > > > ____________ _________ _________ __ > > > From: <dcubed2@ > > > > To: @ yahoogroups. com > > > Sent: Mon, May 3, 2010 10:30:31 AM > > > Subject: Introduction > > > > > >  > > > Hello, my name is and my younger dd, age 10, was diagnosed with OCD Hoarding in Nov, when she started therapy. In March she added hair pulling to her list. I have no idea if or when something new will pop up. > > > > > > We've been in weekly therapy since Nov and some areas are better but others are worse, like the new hair pulling. She has no eye lashes and a stripe through one eyebrow. But she isn't waking us up at 3AM because she MIGHT have thrown away something important anymore. > > > > > > I worry a lot about her future, will it be normal? Will she be able to get married and have a family, her dearest wish since she was 4? > > > > > > How is the kid's list? If it might help her talk to othr kids, I'll sign her up. > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2010 Report Share Posted May 4, 2010 Yes, we thought she was worse, but hopeful we were wrong and that we would go from weekly to biweekly visits after a couple of months. Now, we are on weekly indefinitely. The therapist will do house visits as a last resort, especially as we live on opposite sides of the city. I am glad I found this group, thank you all! > > >> > > >> Hi , > > >> Yes, that is the nature of the beast with ocd. It > > seems as soon as you have got one thing under control, > > something else pops up. > > >> At least your daughter is making progress with the > > hoarding! > > >> > > >> I wanted to mention that I have ocd as well as two > > of my kids. I am married with three children, and manage the > > household, work part time, etc. > > >> Your daughter can get better.!! Always have hope > > and think positively!!!( as hard as that can be at times) > > >> > > >> Welcome to the group! > > >>  You will find lots of support here! > > >> Hugs > > >> Judy > > >> > > >> > > >> > > >> > > >> ________________________________ > > >> From: <dcubed2@> > > >> To: > > >> Sent: Mon, May 3, 2010 10:30:31 AM > > >> Subject: Introduction > > >> > > >>  > > >> Hello, my name is and my younger dd, age > > 10, was diagnosed with OCD Hoarding in Nov, when she started > > therapy. In March she added hair pulling to her list. I have > > no idea if or when something new will pop up. > > >> > > >> We've been in weekly therapy since Nov and some > > areas are better but others are worse, like the new hair > > pulling. She has no eye lashes and a stripe through one > > eyebrow. But she isn't waking us up at 3AM because she MIGHT > > have thrown away something important anymore. > > >> > > >> I worry a lot about her future, will it be normal? > > Will she be able to get married and have a family, her > > dearest wish since she was 4? > > >> > > >> How is the kid's list? If it might help her talk > > to othr kids, I'll sign her up. > > >> > > >> > > >> > > >> > > >> > > >> > > >> [Non-text portions of this message have been > > removed] > > >> > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2010 Report Share Posted May 4, 2010 I think puberty is a huge factor in it. My daughter started having really obvious symptoms that something was truly " off " about the time she started to develop body odor once in awhile - around age 9. I've also read that the hormones and hormone fluctuations have a huge impact on brain function (PMS, anyone?). I keep hearing that it's completely par for the course for it to get worse before it gets better, especially as treatment is begun. We've certainly noticed that. Subject: Re: Introduction To: Date: Tuesday, May 4, 2010, 1:28 PM  I suppose, but it seems like no overall progress has been made. Advances in the hoarding seems undone with the appearance of the Trich. Sigh. Is it normal for treatment to take so long to truly begin? It seems like the OCD comes from my hubby's family, especially his mother. But is much worse already. It is fairly mild, if even actually OCD, in mil. How does puberty affect OCD and treatment? It's another concern of mine. > > > > > > Hi , > > > Yes, that is the nature of the beast with ocd. It seems as soon as you have got one thing under control, something else pops up. > > > At least your daughter is making progress with the hoarding! > > > > > > I wanted to mention that I have ocd as well as two of my kids. I am married with three children, and manage the household, work part time, etc. > > > Your daughter can get better.!! Always have hope and think positively!! !( as hard as that can be at times) > > > > > > Welcome to the group! > > >  You will find lots of support here! > > > Hugs > > > Judy > > > > > > > > > > > > > > > ____________ _________ _________ __ > > > From: <dcubed2@ > > > > To: @ yahoogroups. com > > > Sent: Mon, May 3, 2010 10:30:31 AM > > > Subject: Introduction > > > > > >  > > > Hello, my name is and my younger dd, age 10, was diagnosed with OCD Hoarding in Nov, when she started therapy. In March she added hair pulling to her list. I have no idea if or when something new will pop up. > > > > > > We've been in weekly therapy since Nov and some areas are better but others are worse, like the new hair pulling. She has no eye lashes and a stripe through one eyebrow. But she isn't waking us up at 3AM because she MIGHT have thrown away something important anymore. > > > > > > I worry a lot about her future, will it be normal? Will she be able to get married and have a family, her dearest wish since she was 4? > > > > > > How is the kid's list? If it might help her talk to othr kids, I'll sign her up. > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2010 Report Share Posted May 4, 2010 What is she doing at weekly therapy? Is the therapist using ERP and CBT or is it talk therapy? Is she on meds? For my dd we tried everything. In the end she went to a 60 day intensive inpatient hospitalization program which gave her back her life. My dd was nonfunctional before she went and was no longer even able to attend school. Stormy ________________________________ To: Sent: Tue, May 4, 2010 3:28:30 PM Subject: Re: Introduction I suppose, but it seems like no overall progress has been made. Advances in the hoarding seems undone with the appearance of the Trich. Sigh. Is it normal for treatment to take so long to truly begin? It seems like the OCD comes from my hubby's family, especially his mother. But is much worse already. It is fairly mild, if even actually OCD, in mil. How does puberty affect OCD and treatment? It's another concern of mine. > > > > > > Hi , > > > Yes, that is the nature of the beast with ocd. It seems as soon as you have got one thing under control, something else pops up. > > > At least your daughter is making progress with the hoarding! > > > > > > I wanted to mention that I have ocd as well as two of my kids. I am married with three children, and manage the household, work part time, etc. > > > Your daughter can get better.!! Always have hope and think positively!! !( as hard as that can be at times) > > > > > > Welcome to the group! > > >  You will find lots of support here! > > > Hugs > > > Judy > > > > > > > > > > > > > > > ____________ _________ _________ __ > > > From: <dcubed2@ > > > > To: @ yahoogroups. com > > > Sent: Mon, May 3, 2010 10:30:31 AM > > > Subject: Introduction > > > > > >  > > > Hello, my name is and my younger dd, age 10, was diagnosed with OCD Hoarding in Nov, when she started therapy. In March she added hair pulling to her list. I have no idea if or when something new will pop up. > > > > > > We've been in weekly therapy since Nov and some areas are better but others are worse, like the new hair pulling. She has no eye lashes and a stripe through one eyebrow. But she isn't waking us up at 3AM because she MIGHT have thrown away something important anymore. > > > > > > I worry a lot about her future, will it be normal? Will she be able to get married and have a family, her dearest wish since she was 4? > > > > > > How is the kid's list? If it might help her talk to othr kids, I'll sign her up. > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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