Re:4 Year Old with OCD - help

[Guest guest]

You said that your son's symptoms started during pneumonia? the Mycoplasma

Pneumonia bacteria is known to trigger the same neuro-psychiatrict symptoms as

strep can. I would recommend your son be tested for Myco Pnuemonia immediately.

It is a VERY difficult organism to kill and may still be lingering despite

previous treatment with antibiotics. We found that this was triggering my son's

PANDAS/PITANDS symptoms this winter (severe rages/panic/destruction/ OCD/ tics)

and he was much improved after beginning Biaxin. He is quite a bit older (14)

than your son, but has been on this antibiotic since April at full strength and

will remain on it at least until the end of the summer.

[Guest guest]

Thank you, I'm familiar with this organism from a medical standpoint but did not

know it could induce these symptoms. I'm going to take him to the doctor and

request this test right away.

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> You said that your son's symptoms started during pneumonia? the Mycoplasma

Pneumonia bacteria is known to trigger the same neuro-psychiatrict symptoms as

strep can. I would recommend your son be tested for Myco Pnuemonia immediately.

It is a VERY difficult organism to kill and may still be lingering despite

previous treatment with antibiotics. We found that this was triggering my son's

PANDAS/PITANDS symptoms this winter (severe rages/panic/destruction/ OCD/ tics)

and he was much improved after beginning Biaxin. He is quite a bit older (14)

than your son, but has been on this antibiotic since April at full strength and

will remain on it at least until the end of the summer.

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[Guest guest]

Now I'm realizing how difficult it is to find the help my son needs. I took my

son to his pediatrician today and she did not want to test for Mycoplasma. She

also discussed starting him on meds. I just don't know who to see to get him

properly diagnosed. I did make an appointment with another pediatrician in

Phoenix who is open to explore PANDAS. I also scheduled an appointment with a

psychiatrist next month, but it will be all out of pocket expense. It is very

hard to find a psychiatrist who will see a child under 5 who accepts insurance

and doesn't have a several month wait. Would seeing a psychologist be helpful

for making a diagnosis of his problems or should I stick with a psychiatrist?

Where should I begin to get him diagnosed and helped?

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> > You said that your son's symptoms started during pneumonia? the Mycoplasma

Pneumonia bacteria is known to trigger the same neuro-psychiatrict symptoms as

strep can. I would recommend your son be tested for Myco Pnuemonia immediately.

It is a VERY difficult organism to kill and may still be lingering despite

previous treatment with antibiotics. We found that this was triggering my son's

PANDAS/PITANDS symptoms this winter (severe rages/panic/destruction/ OCD/ tics)

and he was much improved after beginning Biaxin. He is quite a bit older (14)

than your son, but has been on this antibiotic since April at full strength and

will remain on it at least until the end of the summer.

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[Guest guest]

,

I'm sorry your running into brick walls. I hope the new pediatrician will be

willing to explore the mycoplasma. Just make sure the psychiatrist is open to

Pandas. A psychologist could make the diagnosis and ERP tools, but wouldn't be

able to help with any prescriptions.

Unfortunately, your experience is why so many families end up getting on a plane

to see one of the Pandas specialists. Here's a list compiled by parents of

doctors in various areas of the country

http://www.latitudes.org/forums/index.php?showtopic=5023

I hope you have better luck with the new doctors - don't give up!

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> > > You said that your son's symptoms started during pneumonia? the

Mycoplasma Pneumonia bacteria is known to trigger the same neuro-psychiatrict

symptoms as strep can. I would recommend your son be tested for Myco Pnuemonia

immediately. It is a VERY difficult organism to kill and may still be lingering

despite previous treatment with antibiotics. We found that this was triggering

my son's PANDAS/PITANDS symptoms this winter (severe rages/panic/destruction/

OCD/ tics) and he was much improved after beginning Biaxin. He is quite a bit

older (14) than your son, but has been on this antibiotic since April at full

strength and will remain on it at least until the end of the summer.

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[Guest guest]

I am so sorry your pediatrician turned down your request. I spent many many

months trying to get the right help locally for my son, to no avail, so I

realize your struggle. I am glad you are going to be able to see another

physician who is more open. Have you read the webpediatrics site and/or the

pandasnetwork information? If you read them and find things that fit for your

son, I would recommend that you print them out and share this with the new

pediatrician. A psychiatrist can diagnose PANDAS if familiar and open to it, but

will only treat with traditional psych meds. In our case though, the diagnosis

from our psychiatrist helped get the pediatrician on board a bit. A

psychologist can treat OCD, but must be an expert in ERP/CBT and have a track

record using it with young children or you might as well be throwing your money

away in my opinion (having thrown lots of money away...) The bottom line though,

is if it is PANDAS, it needs to be treated medically, and if you can't get help

locally, your best money will be spent consulting with one of the PANDAS docs.

Your son is very young and if this does turn out to be PANDAS/PITANDS, early

treatment provides the best future outcome.