Guest guest Posted September 22, 2003 Report Share Posted September 22, 2003 I didn't read the original post that you are referring to below. I have 760 unread messages in my LBDCaregivers mailbox!!! But I wanted to share with you that my mother is 78 has been diagnosed with LBD since 1999, has had symptoms since probably 1995. She tends to have periods of decline for a few months and then plateaus for a long time 8-12 months. The last two declines were actually from other acute conditions, the first being a moderate stroke in Nov 2001 and the second being a virulent UTI in May of 2003. Each time her physician ordered her in hospice because she assumed this was the beginning of the end. She will most likely be discharged from hospice for the 2nd time in October when the 6 months medicare allows runs out. I keep trying to tell Hospice and her doctor that from what I have read on this list, LBD can look like end stage for years before it actually occurs. They all nod their heads and say they understand but my intuition tells me that they are thinking " Oh the daughter is in denial that her mother is dying " . Meanwhile my mother keeps on trucking, FULLY impaired, but still present. The first time she was ordered into Hospice, she told a caregiver, " I hear everyone talking about me dying, I don't want to die " . She normally could not get a clear sentence out but she was able to communicate that absolutely clearly. I believe I will know intuitively when it is nearing the end. Nobody will listen though. They all see her as half-dead already instead of a fully-alive human being that is impaired. Recently I read an article that advocated that people with dementia should be considered disabled rather than dying. That way health care providers might think more about quality of life than just getting by until they die. Last night I was visiting my mother and I asked her in the middle of the visit if she knew who I was. I started doing that when she didn't know who I was due to a UTI clouding her mind. So now I always ask and sometimes she says " Of course " or Yes pleasantly or " where are the boys? " her grandsons. But last night she didn't answer so I said to her caregiver, " I think she may be annoyed that I ask her that all the time " She immediately cracked a huge grin! I do know my mom. She also cracked a grin and laughed the other day when I jokingly referred to myself as her " Mishugge Daughter " . Mishugge means crazy in Yiddish. Hi, , This morning I read your post about your mom's doctor thinking your mom only has a few more months to live. Do you mind me asking what leads him or her to that time frame? It seems so hard to know what the future is with LBD so I just wondered if there is some sign that would be an indication for which we should be looking. Hugs, Piper Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2003 Report Share Posted September 22, 2003 TIAs are minnie stokes or ----------guess what I can't spell the medical meaning. Oh well, will look it up tomorrow and let you know. Jayn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2003 Report Share Posted September 22, 2003 TIAs are minnie stokes or ----------guess what I can't spell the medical meaning. Oh well, will look it up tomorrow and let you know. Jayn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2003 Report Share Posted September 22, 2003 What does TIA mean? And it is a direct symptom of LBD? -Coyote > My mothers TIA's are coming more often and stronger. She had 2 strokes in > one week. Her body is not absorbing nutrients. > That is all that I know of. > > > >From: ppark4915@a... > >Reply-To: LBDcaregivers > >To: LBDcaregivers > >Subject: > >Date: Mon, 22 Sep 2003 15:14:07 EDT > >MIME-Version: 1.0 > >Received: from n23.grp.scd.yahoo.com ([66.218.66.79]) by > >mc10-f9.hotmail.com with Microsoft SMTPSVC(5.0.2195.5600); Mon, 22 Sep 2003 > >12:30:51 -0700 > >Received: from [66.218.66.96] by n23.grp.scd.yahoo.com with NNFMP; 22 Sep > >2003 19:14:19 -0000 > >Received: (qmail 46874 invoked from network); 22 Sep 2003 19:14:17 -0000 > >Received: from unknown (66.218.66.218) by m13.grp.scd.yahoo.com with QMQP; > >22 Sep 2003 19:14:17 -0000 > >Received: from unknown (HELO imo-m04.mx.aol.com) (64.12.136.7) by > >mta3.grp.scd.yahoo.com with SMTP; 22 Sep 2003 19:14:17 -0000 > >Received: from Ppark4915@a... imo-m04.mx.aol.com (mail_out_v36_r1.1.) > >id r.14d.2431f332 (3956) for <LBDcaregivers >; Mon, 22 Sep > >2003 15:14:07 -0400 (EDT) > >X-Message-Info: JGTYoYF78jH83vGnduLJjNJREsr8eJUf > >X-eGroups-Return: > >sentto-2141318-20277-1064258058-cat86443=hotmail.com@r... > >X-Sender: Ppark4915@a... > >X-Apparently-To: LBDcaregivers > >Message-ID: <14d.2431f332.2ca0a3ff@a...> > >X-Mailer: 8.0 for Windows sub 6015 > >X-Yahoo-Profile: wheatonpark > >Mailing-List: list LBDcaregivers ; contact > >LBDcaregivers-owner > >Delivered-To: mailing list LBDcaregivers > >Precedence: bulk > >List-Unsubscribe: <mailto:LBDcaregivers- unsubscribe > > >Return-Path: > >sentto-2141318-20277-1064258058-cat86443=hotmail.com@r... > >X-OriginalArrivalTime: 22 Sep 2003 19:30:53.0047 (UTC) > >FILETIME=[094D8070:01C38140] > > > >Hi, , > > > >This morning I read your post about your mom's doctor thinking your mom > >only > >has a few more months to live. Do you mind me asking what leads him or her > >to > >that time frame? It seems so hard to know what the future is with LBD so I > >just wondered if there is some sign that would be an indication for which > >we > >should be looking. > > > >Hugs, > > > >Piper > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2003 Report Share Posted September 22, 2003 What does TIA mean? And it is a direct symptom of LBD? -Coyote > My mothers TIA's are coming more often and stronger. She had 2 strokes in > one week. Her body is not absorbing nutrients. > That is all that I know of. > > > >From: ppark4915@a... > >Reply-To: LBDcaregivers > >To: LBDcaregivers > >Subject: > >Date: Mon, 22 Sep 2003 15:14:07 EDT > >MIME-Version: 1.0 > >Received: from n23.grp.scd.yahoo.com ([66.218.66.79]) by > >mc10-f9.hotmail.com with Microsoft SMTPSVC(5.0.2195.5600); Mon, 22 Sep 2003 > >12:30:51 -0700 > >Received: from [66.218.66.96] by n23.grp.scd.yahoo.com with NNFMP; 22 Sep > >2003 19:14:19 -0000 > >Received: (qmail 46874 invoked from network); 22 Sep 2003 19:14:17 -0000 > >Received: from unknown (66.218.66.218) by m13.grp.scd.yahoo.com with QMQP; > >22 Sep 2003 19:14:17 -0000 > >Received: from unknown (HELO imo-m04.mx.aol.com) (64.12.136.7) by > >mta3.grp.scd.yahoo.com with SMTP; 22 Sep 2003 19:14:17 -0000 > >Received: from Ppark4915@a... imo-m04.mx.aol.com (mail_out_v36_r1.1.) > >id r.14d.2431f332 (3956) for <LBDcaregivers >; Mon, 22 Sep > >2003 15:14:07 -0400 (EDT) > >X-Message-Info: JGTYoYF78jH83vGnduLJjNJREsr8eJUf > >X-eGroups-Return: > >sentto-2141318-20277-1064258058-cat86443=hotmail.com@r... > >X-Sender: Ppark4915@a... > >X-Apparently-To: LBDcaregivers > >Message-ID: <14d.2431f332.2ca0a3ff@a...> > >X-Mailer: 8.0 for Windows sub 6015 > >X-Yahoo-Profile: wheatonpark > >Mailing-List: list LBDcaregivers ; contact > >LBDcaregivers-owner > >Delivered-To: mailing list LBDcaregivers > >Precedence: bulk > >List-Unsubscribe: <mailto:LBDcaregivers- unsubscribe > > >Return-Path: > >sentto-2141318-20277-1064258058-cat86443=hotmail.com@r... > >X-OriginalArrivalTime: 22 Sep 2003 19:30:53.0047 (UTC) > >FILETIME=[094D8070:01C38140] > > > >Hi, , > > > >This morning I read your post about your mom's doctor thinking your mom > >only > >has a few more months to live. Do you mind me asking what leads him or her > >to > >that time frame? It seems so hard to know what the future is with LBD so I > >just wondered if there is some sign that would be an indication for which > >we > >should be looking. > > > >Hugs, > > > >Piper > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2003 Report Share Posted September 23, 2003 KJ, Please check with the Hospice. I think you can only go on and off Hospice 3 times and then it won't be paid by Medicare. I don't know if there is a time frame to the 3 times or what, but I do remember the SW saying we could go off and on 3 times. Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2003 Report Share Posted September 23, 2003 KJ, Please check with the Hospice. I think you can only go on and off Hospice 3 times and then it won't be paid by Medicare. I don't know if there is a time frame to the 3 times or what, but I do remember the SW saying we could go off and on 3 times. Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2003 Report Share Posted September 24, 2003 And how does one get these sugars that we need. What foods?? M > >Reply-To: LBDcaregivers >To: lBDcaregivers >Subject: Fwd: >Date: Tue, 23 Sep 2003 22:02:56 +1000 >MIME-Version: 1.0 >Received: from n23.grp.scd.yahoo.com ([66.218.66.79]) by >mc4-f18.hotmail.com with Microsoft SMTPSVC(5.0.2195.5600); Tue, 23 Sep 2003 >18:28:20 -0700 >Received: from [66.218.66.156] by n23.grp.scd.yahoo.com with NNFMP; 23 Sep >2003 12:03:12 -0000 >Received: (qmail 24038 invoked from network); 23 Sep 2003 12:03:09 -0000 >Received: from unknown (66.218.66.166) by m16.grp.scd.yahoo.com with QMQP; >23 Sep 2003 12:03:09 -0000 >Received: from unknown (HELO relay01.kbs.net.au) (203.220.32.149) by >mta5.grp.scd.yahoo.com with SMTP; 23 Sep 2003 12:03:08 -0000 >Received: from [220.240.126.62] (helo=dodo.com.au)by relay01.kbs.net.au >with esmtp (Exim 3.36 #1)id 1A1lsw-0006uZ-00for >lBDcaregivers ; Tue, 23 Sep 2003 22:03:14 +1000 >X-Message-Info: JGTYoYF78jHPZUtEeOtWVroKeyiW+vBu >X-eGroups-Return: >sentto-2141318-20317-1064318590-cat86443=hotmail.com@... >X-Sender: aschenbrenner2@... >X-Apparently-To: lBDcaregivers >Message-Id: >X-Mailer: Apple Mail (2.552) >X-Yahoo-Profile: wolf4ram >Mailing-List: list LBDcaregivers ; contact >LBDcaregivers-owner >Delivered-To: mailing list LBDcaregivers >Precedence: bulk >List-Unsubscribe: <mailto:LBDcaregivers-unsubscribe > >Return-Path: >sentto-2141318-20317-1064318590-cat86443=hotmail.com@... >X-OriginalArrivalTime: 24 Sep 2003 01:28:21.0587 (UTC) >FILETIME=[240ABA30:01C3823B] > >, if your Mum is not absorbing her nutrients very well it could >well be because she may be missing sugars that form the glycoproteins >on the cells receptors. Without that no nutrients cannot be absorbed >properly, but has any Doctor ever told you that! Exactly what makes >our bodies run is just minor importance it seems. > >If she is still willing to fight then the battle is definitely not >lost, but you must give her body the tools to fight the battle with. >Hope this makes sense to you. >Ilse > > >Begin forwarded message: > > > > > Date: Tue Sep 23, 2003 9:44:24 PM Australia/Melbourne > > To: LBDcaregivers > > Subject: RE: > > Reply-To: LBDcaregivers > > > > I understand what you are saying. I think the big difference here is > > that my > > mother is saying she is tired of the doctors, tired of having to > > depend on > > some one for her care, tired of the meds and tired of feeling bad. She > > is > > getting ready to give up completely. Also her body is not absorbing the > > nutrients it needs. > > I believe that as long as they are willing to fight then the battle > > has not > > been lost. > > > > M > > > > > >> > >> Reply-To: LBDcaregivers > >> To: " 'LBDcaregivers ' " <LBDcaregivers > > >> Subject: RE: > >> Date: Mon, 22 Sep 2003 16:02:13 -0500 > >> MIME-Version: 1.0 > >> Received: from n31.grp.scd.yahoo.com ([66.218.66.99]) by > >> mc12-f9.hotmail.com with Microsoft SMTPSVC(5.0.2195.5600); Mon, 22 > >> Sep 2003 > >> 17:18:50 -0700 > >> Received: from [66.218.67.195] by n31.grp.scd.yahoo.com with NNFMP; > >> 22 Sep > >> 2003 21:05:59 -0000 > >> Received: (qmail 12612 invoked from network); 22 Sep 2003 21:05:57 > >> -0000 > >> Received: from unknown (66.218.66.172) by m2.grp.scd.yahoo.com with > >> QMQP; > >> 22 Sep 2003 21:05:57 -0000 > >> Received: from unknown (HELO solvnetmail.net) (128.121.116.82) by > >> mta4.grp.scd.yahoo.com with SMTP; 22 Sep 2003 21:05:57 -0000 > >> Received: from kjlaptop (c66.168.18.250.mad.wi.charter.com > >> [66.168.18.250]) > >> by solvnetmail.net (8.12.9p1) id h8ML5vnt072299; Mon, 22 Sep 2003 > >> 15:05:57 > >> -0600 (MDT) > >> Received: by localhost with Microsoft MAPI; Mon, 22 Sep 2003 16:02:15 > >> -0500 > >> X-Message-Info: JGTYoYF78jEwdDklJ54F0VX1DiU1BFo2 > >> X-eGroups-Return: > >> sentto-2141318-20285-1064264759- > >> cat86443=hotmail.com@... > >> X-Sender: kjjakob@... > >> X-Apparently-To: LBDcaregivers > >> Message-ID: > >> X-Mailer: Microsoft Internet E-mail/MAPI - 8.0.0.4211 > >> X-Yahoo-Profile: kjjakobson > >> Mailing-List: list LBDcaregivers ; contact > >> LBDcaregivers-owner > >> Delivered-To: mailing list LBDcaregivers > >> Precedence: bulk > >> List-Unsubscribe: <mailto:LBDcaregivers-unsubscribe > > >> Return-Path: > >> sentto-2141318-20285-1064264759- > >> cat86443=hotmail.com@... > >> X-OriginalArrivalTime: 23 Sep 2003 00:18:50.0546 (UTC) > >> FILETIME=[437EA120:01C38168] > >> > >> I didn't read the original post that you are referring to below. I > >> have 760 > >> unread messages in my LBDCaregivers mailbox!!! But I wanted to share > >> with > >> you that my mother is 78 has been diagnosed with LBD since 1999, has > >> had > >> symptoms since probably 1995. She tends to have periods of decline > >> for a > >> few months and then plateaus for a long time 8-12 months. The last two > >> declines were actually from other acute conditions, the first being a > >> moderate stroke in Nov 2001 and the second being a virulent UTI in > >> May of > >> 2003. Each time her physician ordered her in hospice because she > >> assumed > >> this was the beginning of the end. She will most likely be discharged > >> from > >> hospice for the 2nd time in October when the 6 months medicare allows > >> runs > >> out. > >> > >> I keep trying to tell Hospice and her doctor that from what I have > >> read on > >> this list, LBD can look like end stage for years before it actually > >> occurs. > >> They all nod their heads and say they understand but my intuition > >> tells me > >> that they are thinking " Oh the daughter is in denial that her mother > >> is > >> dying " . Meanwhile my mother keeps on trucking, FULLY impaired, but > >> still > >> present. The first time she was ordered into Hospice, she told a > >> caregiver, > >> " I hear everyone talking about me dying, I don't want to die " . She > >> normally > >> could not get a clear sentence out but she was able to communicate > >> that > >> absolutely clearly. > >> > >> I believe I will know intuitively when it is nearing the end. Nobody > >> will > >> listen though. They all see her as half-dead already instead of a > >> fully-alive human being that is impaired. Recently I read an article > >> that > >> advocated that people with dementia should be considered disabled > >> rather > >> than dying. That way health care providers might think more about > >> quality > >> of life than just getting by until they die. > >> > >> Last night I was visiting my mother and I asked her in the middle of > >> the > >> visit if she knew who I was. I started doing that when she didn't > >> know who > >> I was due to a UTI clouding her mind. So now I always ask and > >> sometimes she > >> says " Of course " or Yes pleasantly or " where are the boys? " her > >> grandsons. > >> But last night she didn't answer so I said to her caregiver, " I think > >> she > >> may be annoyed that I ask her that all the time " She immediately > >> cracked a > >> huge grin! I do know my mom. She also cracked a grin and laughed the > >> other > >> day when I jokingly referred to myself as her " Mishugge Daughter " . > >> Mishugge > >> means crazy in Yiddish. > >> > >> > >> > >> > >> > >> > >> Hi, , > >> > >> This morning I read your post about your mom's doctor thinking your > >> mom > >> only > >> has a few more months to live. Do you mind me asking what leads him > >> or her > >> to > >> that time frame? It seems so hard to know what the future is with > >> LBD so I > >> just wondered if there is some sign that would be an indication for > >> which > >> we > >> should be looking. > >> > >> Hugs, > >> > >> Piper > >> > >> > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2003 Report Share Posted September 26, 2003 Thank you for the information. Not sure at age 85 she is going to accept any change to her diet but it can't hurt to talk to her about it. M > >Reply-To: LBDcaregivers >To: lBDcaregivers >Subject: Fwd: >Date: Thu, 25 Sep 2003 14:32:24 +1000 >MIME-Version: 1.0 >Received: from n1.grp.scd.yahoo.com ([66.218.66.64]) by >mc10-f37.hotmail.com with Microsoft SMTPSVC(5.0.2195.5600); Thu, 25 Sep >2003 22:48:27 -0700 >Received: from [66.218.66.158] by n1.grp.scd.yahoo.com with NNFMP; 25 Sep >2003 04:32:35 -0000 >Received: (qmail 96506 invoked from network); 25 Sep 2003 04:32:31 -0000 >Received: from unknown (66.218.66.172) by m18.grp.scd.yahoo.com with QMQP; >25 Sep 2003 04:32:31 -0000 >Received: from unknown (HELO relay01.kbs.net.au) (203.220.32.149) by >mta4.grp.scd.yahoo.com with SMTP; 25 Sep 2003 04:32:30 -0000 >Received: from [220.240.126.62] (helo=dodo.com.au)by relay01.kbs.net.au >with esmtp (Exim 3.36 #1)id 1A2Nno-00033q-00for >lBDcaregivers ; Thu, 25 Sep 2003 14:32:28 +1000 >X-Message-Info: JGTYoYF78jFnfHOK0POUnt2AtPhfa1QW >X-eGroups-Return: >sentto-2141318-20370-1064464353-cat86443=hotmail.com@... >X-Sender: aschenbrenner2@... >X-Apparently-To: lBDcaregivers >Message-Id: >X-Mailer: Apple Mail (2.552) >X-Yahoo-Profile: wolf4ram >Mailing-List: list LBDcaregivers ; contact >LBDcaregivers-owner >Delivered-To: mailing list LBDcaregivers >Precedence: bulk >List-Unsubscribe: <mailto:LBDcaregivers-unsubscribe > >Return-Path: >sentto-2141318-20370-1064464353-cat86443=hotmail.com@... >X-OriginalArrivalTime: 26 Sep 2003 05:48:27.0546 (UTC) >FILETIME=[CEBE97A0:01C383F1] > >Hi , they should be in a fruit and vegies, but will only be so if >you grow them organically and pick them when they are vine ripened. >Everything is harvested green, now a days, for transport reasons, so >these sugars are left back in the stems and roots of the plants. Aloe >Vera is a good source of the Mannose sugar, but again you will need it >fresh, without traces of the yellow sap, as there are natural enzymes >in the plant that start to break the sugar down as soon as the leaf is >broken. Shitaki mushrooms are also a source on one of the sugars. I am >not sure which one. There are two good books on the subject, which as >far as I am aware mentions the foods they are in. One is called Miracle >Sugars by Rita Elkins M.H >Another is: >Sugars That Heal by Dr. Emil Mondoa MD > >They are available from www.motivationalmedia.biz > >This is an Australian website. If you tell me whereabouts you are >located I might be able to tell you of another website in your country >where these books are available to save on the postage, if you are >interested that is. > >Also worth listening to is an audio tape. this is also available there. >.Supercarbs; Super, Natural Supplements by Dr. Omelchuk MD. > >Here is Dr Omelchuk's background and story: >Dr. Omelchuk is one of Canada's leading medical professionals. He >was President and Chief of Staff of Royal andra Hospital, Edmonton, >Alberta when he suffered a stroke and massive brain aneurysm. This is >the story of his full recovery and the role glyconutrients played in >it. Told with emotion, from the perspective of a medical doctor. > >Also for anyone else reading this post, for all you women out there ( >and men who have a prostrate gland) by the way I suggest reading. >The Hormone From Heaven by Tonita d'Raye >also available from there. > >You can also get the sugars from supplements as suggested by Dr >Omelchuk. Look into it all first and if you want to know where from I >can tell you. If you are serious about making use of this dont waste >your time trying to get them out of vegies. Your mother will need a >concentrated dosage. I am not saying that for a sell, although I would >make maybe $5.00 on you if you wish to have some, I am saying that >because if you are going to take it serious then dont expect to get >enough out of foods to make a difference in a hurry. > >You can also listen to Dr Omelchuk on conference telephone calls and >present any questions you may wish to ask. I can give you those >contacts if you wish. > >To get a general understanding go to: >Is Saccharide Supplementation Necessary? >http://www.glycoscience.com/glycoscience/start_frames.wm?FILENAME=D008 > >You may also find the following link interesting reading. It talks >about children, but never the less I think it says it basically. > > >Glyconutritionals and Glycoconjugates: Implications in >Failure-to-Thrive Syndrome >http://www.glycoscience.com/glycoscience/start_frames.wm?FILENAME=G008 > >Hope it all helps and I hope you understand the seriousness of it. I >havent managed to get that through to anyone in this group yet. Just >remember the decision is totally yours but you cant make the decisions >until you are informed by asking the questions. Asking questions is a >must, thanks for asking, Ilse > > >Begin forwarded message: > > > > > Date: Thu Sep 25, 2003 12:18:04 PM Australia/Melbourne > > To: LBDcaregivers > > Subject: Re: Fwd: > > Reply-To: LBDcaregivers > > > > And how does one get these sugars that we need. What foods?? > > > > M > > > > > >> > >> Reply-To: LBDcaregivers > >> To: lBDcaregivers > >> Subject: Fwd: > >> Date: Tue, 23 Sep 2003 22:02:56 +1000 > >> MIME-Version: 1.0 > >> Received: from n23.grp.scd.yahoo.com ([66.218.66.79]) by > >> mc4-f18.hotmail.com with Microsoft SMTPSVC(5.0.2195.5600); Tue, 23 > >> Sep 2003 > >> 18:28:20 -0700 > >> Received: from [66.218.66.156] by n23.grp.scd.yahoo.com with NNFMP; > >> 23 Sep > >> 2003 12:03:12 -0000 > >> Received: (qmail 24038 invoked from network); 23 Sep 2003 12:03:09 > >> -0000 > >> Received: from unknown (66.218.66.166) by m16.grp.scd.yahoo.com with > >> QMQP; > >> 23 Sep 2003 12:03:09 -0000 > >> Received: from unknown (HELO relay01.kbs.net.au) (203.220.32.149) by > >> mta5.grp.scd.yahoo.com with SMTP; 23 Sep 2003 12:03:08 -0000 > >> Received: from [220.240.126.62] (helo=dodo.com.au)by > >> relay01.kbs.net.au > >> with esmtp (Exim 3.36 #1)id 1A1lsw-0006uZ-00for > >> lBDcaregivers ; Tue, 23 Sep 2003 22:03:14 +1000 > >> X-Message-Info: JGTYoYF78jHPZUtEeOtWVroKeyiW+vBu > >> X-eGroups-Return: > >> sentto-2141318-20317-1064318590- > >> cat86443=hotmail.com@... > >> X-Sender: aschenbrenner2@... > >> X-Apparently-To: lBDcaregivers > >> Message-Id: > >> X-Mailer: Apple Mail (2.552) > >> X-Yahoo-Profile: wolf4ram > >> Mailing-List: list LBDcaregivers ; contact > >> LBDcaregivers-owner > >> Delivered-To: mailing list LBDcaregivers > >> Precedence: bulk > >> List-Unsubscribe: <mailto:LBDcaregivers-unsubscribe > > >> Return-Path: > >> sentto-2141318-20317-1064318590- > >> cat86443=hotmail.com@... > >> X-OriginalArrivalTime: 24 Sep 2003 01:28:21.0587 (UTC) > >> FILETIME=[240ABA30:01C3823B] > >> > >> , if your Mum is not absorbing her nutrients very well it could > >> well be because she may be missing sugars that form the glycoproteins > >> on the cells receptors. Without that no nutrients cannot be absorbed > >> properly, but has any Doctor ever told you that! Exactly what makes > >> our bodies run is just minor importance it seems. > >> > >> If she is still willing to fight then the battle is definitely not > >> lost, but you must give her body the tools to fight the battle with. > >> Hope this makes sense to you. > >> Ilse > >> > >> > >> Begin forwarded message: > >> > >>> > >>> Date: Tue Sep 23, 2003 9:44:24 PM Australia/Melbourne > >>> To: LBDcaregivers > >>> Subject: RE: > >>> Reply-To: LBDcaregivers > >>> > >>> I understand what you are saying. I think the big difference here is > >>> that my > >>> mother is saying she is tired of the doctors, tired of having to > >>> depend on > >>> some one for her care, tired of the meds and tired of feeling bad. > >>> She > >>> is > >>> getting ready to give up completely. Also her body is not absorbing > >>> the > >>> nutrients it needs. > >>> I believe that as long as they are willing to fight then the battle > >>> has not > >>> been lost. > >>> > >>> M > >>> > >>> > >>>> > >>>> Reply-To: LBDcaregivers > >>>> To: " 'LBDcaregivers ' " > >>>> <LBDcaregivers > > >>>> Subject: RE: > >>>> Date: Mon, 22 Sep 2003 16:02:13 -0500 > >>>> MIME-Version: 1.0 > >>>> Received: from n31.grp.scd.yahoo.com ([66.218.66.99]) by > >>>> mc12-f9.hotmail.com with Microsoft SMTPSVC(5.0.2195.5600); Mon, 22 > >>>> Sep 2003 > >>>> 17:18:50 -0700 > >>>> Received: from [66.218.67.195] by n31.grp.scd.yahoo.com with NNFMP; > >>>> 22 Sep > >>>> 2003 21:05:59 -0000 > >>>> Received: (qmail 12612 invoked from network); 22 Sep 2003 21:05:57 > >>>> -0000 > >>>> Received: from unknown (66.218.66.172) by m2.grp.scd.yahoo.com with > >>>> QMQP; > >>>> 22 Sep 2003 21:05:57 -0000 > >>>> Received: from unknown (HELO solvnetmail.net) (128.121.116.82) by > >>>> mta4.grp.scd.yahoo.com with SMTP; 22 Sep 2003 21:05:57 -0000 > >>>> Received: from kjlaptop (c66.168.18.250.mad.wi.charter.com > >>>> [66.168.18.250]) > >>>> by solvnetmail.net (8.12.9p1) id h8ML5vnt072299; Mon, 22 Sep 2003 > >>>> 15:05:57 > >>>> -0600 (MDT) > >>>> Received: by localhost with Microsoft MAPI; Mon, 22 Sep 2003 > >>>> 16:02:15 > >>>> -0500 > >>>> X-Message-Info: JGTYoYF78jEwdDklJ54F0VX1DiU1BFo2 > >>>> X-eGroups-Return: > >>>> sentto-2141318-20285-1064264759- > >>>> cat86443=hotmail.com@... > >>>> X-Sender: kjjakob@... > >>>> X-Apparently-To: LBDcaregivers > >>>> Message-ID: > >>>> X-Mailer: Microsoft Internet E-mail/MAPI - 8.0.0.4211 > >>>> X-Yahoo-Profile: kjjakobson > >>>> Mailing-List: list LBDcaregivers ; contact > >>>> LBDcaregivers-owner > >>>> Delivered-To: mailing list LBDcaregivers > >>>> Precedence: bulk > >>>> List-Unsubscribe: <mailto:LBDcaregivers-unsubscribe > > >>>> Return-Path: > >>>> sentto-2141318-20285-1064264759- > >>>> cat86443=hotmail.com@... > >>>> X-OriginalArrivalTime: 23 Sep 2003 00:18:50.0546 (UTC) > >>>> FILETIME=[437EA120:01C38168] > >>>> > >>>> I didn't read the original post that you are referring to below. I > >>>> have 760 > >>>> unread messages in my LBDCaregivers mailbox!!! But I wanted to share > >>>> with > >>>> you that my mother is 78 has been diagnosed with LBD since 1999, has > >>>> had > >>>> symptoms since probably 1995. She tends to have periods of decline > >>>> for a > >>>> few months and then plateaus for a long time 8-12 months. The last > >>>> two > >>>> declines were actually from other acute conditions, the first being > >>>> a > >>>> moderate stroke in Nov 2001 and the second being a virulent UTI in > >>>> May of > >>>> 2003. Each time her physician ordered her in hospice because she > >>>> assumed > >>>> this was the beginning of the end. She will most likely be > >>>> discharged > >>>> from > >>>> hospice for the 2nd time in October when the 6 months medicare > >>>> allows > >>>> runs > >>>> out. > >>>> > >>>> I keep trying to tell Hospice and her doctor that from what I have > >>>> read on > >>>> this list, LBD can look like end stage for years before it actually > >>>> occurs. > >>>> They all nod their heads and say they understand but my intuition > >>>> tells me > >>>> that they are thinking " Oh the daughter is in denial that her mother > >>>> is > >>>> dying " . Meanwhile my mother keeps on trucking, FULLY impaired, but > >>>> still > >>>> present. The first time she was ordered into Hospice, she told a > >>>> caregiver, > >>>> " I hear everyone talking about me dying, I don't want to die " . She > >>>> normally > >>>> could not get a clear sentence out but she was able to communicate > >>>> that > >>>> absolutely clearly. > >>>> > >>>> I believe I will know intuitively when it is nearing the end. Nobody > >>>> will > >>>> listen though. They all see her as half-dead already instead of a > >>>> fully-alive human being that is impaired. Recently I read an article > >>>> that > >>>> advocated that people with dementia should be considered disabled > >>>> rather > >>>> than dying. That way health care providers might think more about > >>>> quality > >>>> of life than just getting by until they die. > >>>> > >>>> Last night I was visiting my mother and I asked her in the middle of > >>>> the > >>>> visit if she knew who I was. I started doing that when she didn't > >>>> know who > >>>> I was due to a UTI clouding her mind. So now I always ask and > >>>> sometimes she > >>>> says " Of course " or Yes pleasantly or " where are the boys? " her > >>>> grandsons. > >>>> But last night she didn't answer so I said to her caregiver, " I > >>>> think > >>>> she > >>>> may be annoyed that I ask her that all the time " She immediately > >>>> cracked a > >>>> huge grin! I do know my mom. She also cracked a grin and laughed the > >>>> other > >>>> day when I jokingly referred to myself as her " Mishugge Daughter " . > >>>> Mishugge > >>>> means crazy in Yiddish. > >>>> > >>>> > >>>> > >>>> > >>>> > >>>> > >>>> Hi, , > >>>> > >>>> This morning I read your post about your mom's doctor thinking your > >>>> mom > >>>> only > >>>> has a few more months to live. Do you mind me asking what leads him > >>>> or her > >>>> to > >>>> that time frame? It seems so hard to know what the future is with > >>>> LBD so I > >>>> just wondered if there is some sign that would be an indication for > >>>> which > >>>> we > >>>> should be looking. > >>>> > >>>> Hugs, > >>>> > >>>> Piper > >>>> > >>>> > >>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2003 Report Share Posted September 26, 2003 Thank you for the information. Not sure at age 85 she is going to accept any change to her diet but it can't hurt to talk to her about it. M > >Reply-To: LBDcaregivers >To: lBDcaregivers >Subject: Fwd: >Date: Thu, 25 Sep 2003 14:32:24 +1000 >MIME-Version: 1.0 >Received: from n1.grp.scd.yahoo.com ([66.218.66.64]) by >mc10-f37.hotmail.com with Microsoft SMTPSVC(5.0.2195.5600); Thu, 25 Sep >2003 22:48:27 -0700 >Received: from [66.218.66.158] by n1.grp.scd.yahoo.com with NNFMP; 25 Sep >2003 04:32:35 -0000 >Received: (qmail 96506 invoked from network); 25 Sep 2003 04:32:31 -0000 >Received: from unknown (66.218.66.172) by m18.grp.scd.yahoo.com with QMQP; >25 Sep 2003 04:32:31 -0000 >Received: from unknown (HELO relay01.kbs.net.au) (203.220.32.149) by >mta4.grp.scd.yahoo.com with SMTP; 25 Sep 2003 04:32:30 -0000 >Received: from [220.240.126.62] (helo=dodo.com.au)by relay01.kbs.net.au >with esmtp (Exim 3.36 #1)id 1A2Nno-00033q-00for >lBDcaregivers ; Thu, 25 Sep 2003 14:32:28 +1000 >X-Message-Info: JGTYoYF78jFnfHOK0POUnt2AtPhfa1QW >X-eGroups-Return: >sentto-2141318-20370-1064464353-cat86443=hotmail.com@... >X-Sender: aschenbrenner2@... >X-Apparently-To: lBDcaregivers >Message-Id: >X-Mailer: Apple Mail (2.552) >X-Yahoo-Profile: wolf4ram >Mailing-List: list LBDcaregivers ; contact >LBDcaregivers-owner >Delivered-To: mailing list LBDcaregivers >Precedence: bulk >List-Unsubscribe: <mailto:LBDcaregivers-unsubscribe > >Return-Path: >sentto-2141318-20370-1064464353-cat86443=hotmail.com@... >X-OriginalArrivalTime: 26 Sep 2003 05:48:27.0546 (UTC) >FILETIME=[CEBE97A0:01C383F1] > >Hi , they should be in a fruit and vegies, but will only be so if >you grow them organically and pick them when they are vine ripened. >Everything is harvested green, now a days, for transport reasons, so >these sugars are left back in the stems and roots of the plants. Aloe >Vera is a good source of the Mannose sugar, but again you will need it >fresh, without traces of the yellow sap, as there are natural enzymes >in the plant that start to break the sugar down as soon as the leaf is >broken. Shitaki mushrooms are also a source on one of the sugars. I am >not sure which one. There are two good books on the subject, which as >far as I am aware mentions the foods they are in. One is called Miracle >Sugars by Rita Elkins M.H >Another is: >Sugars That Heal by Dr. Emil Mondoa MD > >They are available from www.motivationalmedia.biz > >This is an Australian website. If you tell me whereabouts you are >located I might be able to tell you of another website in your country >where these books are available to save on the postage, if you are >interested that is. > >Also worth listening to is an audio tape. this is also available there. >.Supercarbs; Super, Natural Supplements by Dr. Omelchuk MD. > >Here is Dr Omelchuk's background and story: >Dr. Omelchuk is one of Canada's leading medical professionals. He >was President and Chief of Staff of Royal andra Hospital, Edmonton, >Alberta when he suffered a stroke and massive brain aneurysm. This is >the story of his full recovery and the role glyconutrients played in >it. Told with emotion, from the perspective of a medical doctor. > >Also for anyone else reading this post, for all you women out there ( >and men who have a prostrate gland) by the way I suggest reading. >The Hormone From Heaven by Tonita d'Raye >also available from there. > >You can also get the sugars from supplements as suggested by Dr >Omelchuk. Look into it all first and if you want to know where from I >can tell you. If you are serious about making use of this dont waste >your time trying to get them out of vegies. Your mother will need a >concentrated dosage. I am not saying that for a sell, although I would >make maybe $5.00 on you if you wish to have some, I am saying that >because if you are going to take it serious then dont expect to get >enough out of foods to make a difference in a hurry. > >You can also listen to Dr Omelchuk on conference telephone calls and >present any questions you may wish to ask. I can give you those >contacts if you wish. > >To get a general understanding go to: >Is Saccharide Supplementation Necessary? >http://www.glycoscience.com/glycoscience/start_frames.wm?FILENAME=D008 > >You may also find the following link interesting reading. It talks >about children, but never the less I think it says it basically. > > >Glyconutritionals and Glycoconjugates: Implications in >Failure-to-Thrive Syndrome >http://www.glycoscience.com/glycoscience/start_frames.wm?FILENAME=G008 > >Hope it all helps and I hope you understand the seriousness of it. I >havent managed to get that through to anyone in this group yet. Just >remember the decision is totally yours but you cant make the decisions >until you are informed by asking the questions. Asking questions is a >must, thanks for asking, Ilse > > >Begin forwarded message: > > > > > Date: Thu Sep 25, 2003 12:18:04 PM Australia/Melbourne > > To: LBDcaregivers > > Subject: Re: Fwd: > > Reply-To: LBDcaregivers > > > > And how does one get these sugars that we need. What foods?? > > > > M > > > > > >> > >> Reply-To: LBDcaregivers > >> To: lBDcaregivers > >> Subject: Fwd: > >> Date: Tue, 23 Sep 2003 22:02:56 +1000 > >> MIME-Version: 1.0 > >> Received: from n23.grp.scd.yahoo.com ([66.218.66.79]) by > >> mc4-f18.hotmail.com with Microsoft SMTPSVC(5.0.2195.5600); Tue, 23 > >> Sep 2003 > >> 18:28:20 -0700 > >> Received: from [66.218.66.156] by n23.grp.scd.yahoo.com with NNFMP; > >> 23 Sep > >> 2003 12:03:12 -0000 > >> Received: (qmail 24038 invoked from network); 23 Sep 2003 12:03:09 > >> -0000 > >> Received: from unknown (66.218.66.166) by m16.grp.scd.yahoo.com with > >> QMQP; > >> 23 Sep 2003 12:03:09 -0000 > >> Received: from unknown (HELO relay01.kbs.net.au) (203.220.32.149) by > >> mta5.grp.scd.yahoo.com with SMTP; 23 Sep 2003 12:03:08 -0000 > >> Received: from [220.240.126.62] (helo=dodo.com.au)by > >> relay01.kbs.net.au > >> with esmtp (Exim 3.36 #1)id 1A1lsw-0006uZ-00for > >> lBDcaregivers ; Tue, 23 Sep 2003 22:03:14 +1000 > >> X-Message-Info: JGTYoYF78jHPZUtEeOtWVroKeyiW+vBu > >> X-eGroups-Return: > >> sentto-2141318-20317-1064318590- > >> cat86443=hotmail.com@... > >> X-Sender: aschenbrenner2@... > >> X-Apparently-To: lBDcaregivers > >> Message-Id: > >> X-Mailer: Apple Mail (2.552) > >> X-Yahoo-Profile: wolf4ram > >> Mailing-List: list LBDcaregivers ; contact > >> LBDcaregivers-owner > >> Delivered-To: mailing list LBDcaregivers > >> Precedence: bulk > >> List-Unsubscribe: <mailto:LBDcaregivers-unsubscribe > > >> Return-Path: > >> sentto-2141318-20317-1064318590- > >> cat86443=hotmail.com@... > >> X-OriginalArrivalTime: 24 Sep 2003 01:28:21.0587 (UTC) > >> FILETIME=[240ABA30:01C3823B] > >> > >> , if your Mum is not absorbing her nutrients very well it could > >> well be because she may be missing sugars that form the glycoproteins > >> on the cells receptors. Without that no nutrients cannot be absorbed > >> properly, but has any Doctor ever told you that! Exactly what makes > >> our bodies run is just minor importance it seems. > >> > >> If she is still willing to fight then the battle is definitely not > >> lost, but you must give her body the tools to fight the battle with. > >> Hope this makes sense to you. > >> Ilse > >> > >> > >> Begin forwarded message: > >> > >>> > >>> Date: Tue Sep 23, 2003 9:44:24 PM Australia/Melbourne > >>> To: LBDcaregivers > >>> Subject: RE: > >>> Reply-To: LBDcaregivers > >>> > >>> I understand what you are saying. I think the big difference here is > >>> that my > >>> mother is saying she is tired of the doctors, tired of having to > >>> depend on > >>> some one for her care, tired of the meds and tired of feeling bad. > >>> She > >>> is > >>> getting ready to give up completely. Also her body is not absorbing > >>> the > >>> nutrients it needs. > >>> I believe that as long as they are willing to fight then the battle > >>> has not > >>> been lost. > >>> > >>> M > >>> > >>> > >>>> > >>>> Reply-To: LBDcaregivers > >>>> To: " 'LBDcaregivers ' " > >>>> <LBDcaregivers > > >>>> Subject: RE: > >>>> Date: Mon, 22 Sep 2003 16:02:13 -0500 > >>>> MIME-Version: 1.0 > >>>> Received: from n31.grp.scd.yahoo.com ([66.218.66.99]) by > >>>> mc12-f9.hotmail.com with Microsoft SMTPSVC(5.0.2195.5600); Mon, 22 > >>>> Sep 2003 > >>>> 17:18:50 -0700 > >>>> Received: from [66.218.67.195] by n31.grp.scd.yahoo.com with NNFMP; > >>>> 22 Sep > >>>> 2003 21:05:59 -0000 > >>>> Received: (qmail 12612 invoked from network); 22 Sep 2003 21:05:57 > >>>> -0000 > >>>> Received: from unknown (66.218.66.172) by m2.grp.scd.yahoo.com with > >>>> QMQP; > >>>> 22 Sep 2003 21:05:57 -0000 > >>>> Received: from unknown (HELO solvnetmail.net) (128.121.116.82) by > >>>> mta4.grp.scd.yahoo.com with SMTP; 22 Sep 2003 21:05:57 -0000 > >>>> Received: from kjlaptop (c66.168.18.250.mad.wi.charter.com > >>>> [66.168.18.250]) > >>>> by solvnetmail.net (8.12.9p1) id h8ML5vnt072299; Mon, 22 Sep 2003 > >>>> 15:05:57 > >>>> -0600 (MDT) > >>>> Received: by localhost with Microsoft MAPI; Mon, 22 Sep 2003 > >>>> 16:02:15 > >>>> -0500 > >>>> X-Message-Info: JGTYoYF78jEwdDklJ54F0VX1DiU1BFo2 > >>>> X-eGroups-Return: > >>>> sentto-2141318-20285-1064264759- > >>>> cat86443=hotmail.com@... > >>>> X-Sender: kjjakob@... > >>>> X-Apparently-To: LBDcaregivers > >>>> Message-ID: > >>>> X-Mailer: Microsoft Internet E-mail/MAPI - 8.0.0.4211 > >>>> X-Yahoo-Profile: kjjakobson > >>>> Mailing-List: list LBDcaregivers ; contact > >>>> LBDcaregivers-owner > >>>> Delivered-To: mailing list LBDcaregivers > >>>> Precedence: bulk > >>>> List-Unsubscribe: <mailto:LBDcaregivers-unsubscribe > > >>>> Return-Path: > >>>> sentto-2141318-20285-1064264759- > >>>> cat86443=hotmail.com@... > >>>> X-OriginalArrivalTime: 23 Sep 2003 00:18:50.0546 (UTC) > >>>> FILETIME=[437EA120:01C38168] > >>>> > >>>> I didn't read the original post that you are referring to below. I > >>>> have 760 > >>>> unread messages in my LBDCaregivers mailbox!!! But I wanted to share > >>>> with > >>>> you that my mother is 78 has been diagnosed with LBD since 1999, has > >>>> had > >>>> symptoms since probably 1995. She tends to have periods of decline > >>>> for a > >>>> few months and then plateaus for a long time 8-12 months. The last > >>>> two > >>>> declines were actually from other acute conditions, the first being > >>>> a > >>>> moderate stroke in Nov 2001 and the second being a virulent UTI in > >>>> May of > >>>> 2003. Each time her physician ordered her in hospice because she > >>>> assumed > >>>> this was the beginning of the end. She will most likely be > >>>> discharged > >>>> from > >>>> hospice for the 2nd time in October when the 6 months medicare > >>>> allows > >>>> runs > >>>> out. > >>>> > >>>> I keep trying to tell Hospice and her doctor that from what I have > >>>> read on > >>>> this list, LBD can look like end stage for years before it actually > >>>> occurs. > >>>> They all nod their heads and say they understand but my intuition > >>>> tells me > >>>> that they are thinking " Oh the daughter is in denial that her mother > >>>> is > >>>> dying " . Meanwhile my mother keeps on trucking, FULLY impaired, but > >>>> still > >>>> present. The first time she was ordered into Hospice, she told a > >>>> caregiver, > >>>> " I hear everyone talking about me dying, I don't want to die " . She > >>>> normally > >>>> could not get a clear sentence out but she was able to communicate > >>>> that > >>>> absolutely clearly. > >>>> > >>>> I believe I will know intuitively when it is nearing the end. Nobody > >>>> will > >>>> listen though. They all see her as half-dead already instead of a > >>>> fully-alive human being that is impaired. Recently I read an article > >>>> that > >>>> advocated that people with dementia should be considered disabled > >>>> rather > >>>> than dying. That way health care providers might think more about > >>>> quality > >>>> of life than just getting by until they die. > >>>> > >>>> Last night I was visiting my mother and I asked her in the middle of > >>>> the > >>>> visit if she knew who I was. I started doing that when she didn't > >>>> know who > >>>> I was due to a UTI clouding her mind. So now I always ask and > >>>> sometimes she > >>>> says " Of course " or Yes pleasantly or " where are the boys? " her > >>>> grandsons. > >>>> But last night she didn't answer so I said to her caregiver, " I > >>>> think > >>>> she > >>>> may be annoyed that I ask her that all the time " She immediately > >>>> cracked a > >>>> huge grin! I do know my mom. She also cracked a grin and laughed the > >>>> other > >>>> day when I jokingly referred to myself as her " Mishugge Daughter " . > >>>> Mishugge > >>>> means crazy in Yiddish. > >>>> > >>>> > >>>> > >>>> > >>>> > >>>> > >>>> Hi, , > >>>> > >>>> This morning I read your post about your mom's doctor thinking your > >>>> mom > >>>> only > >>>> has a few more months to live. Do you mind me asking what leads him > >>>> or her > >>>> to > >>>> that time frame? It seems so hard to know what the future is with > >>>> LBD so I > >>>> just wondered if there is some sign that would be an indication for > >>>> which > >>>> we > >>>> should be looking. > >>>> > >>>> Hugs, > >>>> > >>>> Piper > >>>> > >>>> > >>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2003 Report Share Posted September 26, 2003 Hi , it wouldnt mean much change in diet. Only a sprinkling of powder on her breakfast, lunch and tea. The biggest change has to be in your belief system. If she still has the willingness, look into it seriously for her. There will be a lot you need to look into and listen to before you can talk to her about it. If you want any contacts to Doctors who are in the know, I will endeavour to get contacts for you. All the best, Ilse Begin forwarded message: > > Date: Fri Sep 26, 2003 9:32:12 PM Australia/Melbourne > To: LBDcaregivers > Subject: Re: Fwd: > Reply-To: LBDcaregivers > > Thank you for the information. > Not sure at age 85 she is going to accept any change to her diet but it > can't hurt to talk to her about it. > > M > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2003 Report Share Posted September 27, 2003 Thank you for the info. She is still having TIA's so not sure we want to do any thing at this time but should she turn around we might consider. M > >Reply-To: LBDcaregivers >To: lBDcaregivers >Subject: Fwd: >Date: Fri, 26 Sep 2003 21:43:10 +1000 >MIME-Version: 1.0 >Received: from n15.grp.scd.yahoo.com ([66.218.66.70]) by >mc11-f30.hotmail.com with Microsoft SMTPSVC(5.0.2195.5600); Sat, 27 Sep >2003 00:34:21 -0700 >Received: from [66.218.66.160] by n15.grp.scd.yahoo.com with NNFMP; 26 Sep >2003 11:43:13 -0000 >Received: (qmail 11858 invoked from network); 26 Sep 2003 11:43:12 -0000 >Received: from unknown (66.218.66.172) by m20.grp.scd.yahoo.com with QMQP; >26 Sep 2003 11:43:12 -0000 >Received: from unknown (HELO relay01.kbs.net.au) (203.220.32.149) by >mta4.grp.scd.yahoo.com with SMTP; 26 Sep 2003 11:43:12 -0000 >Received: from [220.240.126.62] (helo=dodo.com.au)by relay01.kbs.net.au >with esmtp (Exim 3.36 #1)id 1A2r0I-0004kk-00for >lBDcaregivers ; Fri, 26 Sep 2003 21:43:19 +1000 >X-Message-Info: JGTYoYF78jHb3N5g3jpabaPmDIDr570T >X-eGroups-Return: >sentto-2141318-20404-1064576593-cat86443=hotmail.com@... >X-Sender: aschenbrenner2@... >X-Apparently-To: lBDcaregivers >Message-Id: >X-Mailer: Apple Mail (2.552) >X-Yahoo-Profile: wolf4ram >Mailing-List: list LBDcaregivers ; contact >LBDcaregivers-owner >Delivered-To: mailing list LBDcaregivers >Precedence: bulk >List-Unsubscribe: <mailto:LBDcaregivers-unsubscribe > >Return-Path: >sentto-2141318-20404-1064576593-cat86443=hotmail.com@... >X-OriginalArrivalTime: 27 Sep 2003 07:34:21.0894 (UTC) >FILETIME=[C4A4E660:01C384C9] > > >Hi , it wouldnt mean much change in diet. Only a sprinkling of >powder on her breakfast, lunch and tea. The biggest change has to be in >your belief system. If she still has the willingness, look into it >seriously for her. There will be a lot you need to look into and listen >to before you can talk to her about it. > >If you want any contacts to Doctors who are in the know, I will >endeavour to get contacts for you. > >All the best, Ilse > > > > > > >Begin forwarded message: > > > > > Date: Fri Sep 26, 2003 9:32:12 PM Australia/Melbourne > > To: LBDcaregivers > > Subject: Re: Fwd: > > Reply-To: LBDcaregivers > > > > Thank you for the information. > > Not sure at age 85 she is going to accept any change to her diet but it > > can't hurt to talk to her about it. > > > > M > > > _________________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2004 Report Share Posted February 1, 2004 : My condolences go out to you and your today. I know we've known the end of the illness and what it meant but I imagine it's still so difficult when we're faced with it. The only way to make sense of any of this is that your mom is no longer suffering. No one, least of all her, wanted her to go on that way. I'll pray for you and your mom again today and recall that she's no longer troubled by LBD. Abby Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2004 Report Share Posted February 5, 2004 Abby, We handled it well. Dad is even doing better than we expected. They had been married for 70 years. Not sure how he will do after all of the other siblings have gone home. We will just take it one day at a time. M > >Reply-To: LBDcaregivers >To: LBDcaregivers >Subject: Re: >Date: Tue, 03 Feb 2004 21:23:22 -0000 >MIME-Version: 1.0 >X-Originating-IP: 64.12.97.11 >X-Sender: BBagam@... >Received: from n29.grp.scd.yahoo.com ([66.218.66.85]) by >mc11-f22.hotmail.com with Microsoft SMTPSVC(5.0.2195.6824); Tue, 3 Feb 2004 >14:15:09 -0800 >Received: from [66.218.66.94] by n29.grp.scd.yahoo.com with NNFMP; 03 Feb >2004 21:25:13 -0000 >Received: (qmail 30571 invoked from network); 3 Feb 2004 21:24:52 -0000 >Received: from unknown (66.218.66.172) by m1.grp.scd.yahoo.com with QMQP; >3 Feb 2004 21:24:52 -0000 >Received: from unknown (HELO n37.grp.scd.yahoo.com) (66.218.66.105) by >mta4.grp.scd.yahoo.com with SMTP; 3 Feb 2004 21:24:51 -0000 >Received: from [66.218.67.252] by n37.grp.scd.yahoo.com with NNFMP; 03 Feb >2004 21:23:23 -0000 >X-Message-Info: JGTYoYF78jGRel6cf7CZ17hk71NJY7PH >X-eGroups-Return: >sentto-2141318-24607-1075843494-cat86443=hotmail.com@... >X-Apparently-To: LBDcaregivers >Message-ID: <bvp3ga+im1teGroups> >In-Reply-To: >User-Agent: eGroups-EW/0.82 >X-Mailer: Yahoo Groups Message Poster >X-eGroups-Remote-IP: 66.218.66.105 >X-Yahoo-Profile: abbybb1 >Mailing-List: list LBDcaregivers ; contact >LBDcaregivers-owner >Delivered-To: mailing list LBDcaregivers >Precedence: bulk >List-Unsubscribe: <mailto:LBDcaregivers-unsubscribe > >Return-Path: >sentto-2141318-24607-1075843494-cat86443=hotmail.com@... >X-OriginalArrivalTime: 03 Feb 2004 22:15:09.0671 (UTC) >FILETIME=[2FA97770:01C3EAA3] > >: > >I agree that reality will hit you once you see her at the funeral >home (which you probably already have done at this time). > >I'm hoping that reality doesn't hit you too hard. > >Once again, my condolenses.. > >Abby > _________________________________________________________________ Click here for a FREE online computer virus scan from McAfee. http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2004 Report Share Posted February 5, 2004 Abby, We handled it well. Dad is even doing better than we expected. They had been married for 70 years. Not sure how he will do after all of the other siblings have gone home. We will just take it one day at a time. M > >Reply-To: LBDcaregivers >To: LBDcaregivers >Subject: Re: >Date: Tue, 03 Feb 2004 21:23:22 -0000 >MIME-Version: 1.0 >X-Originating-IP: 64.12.97.11 >X-Sender: BBagam@... >Received: from n29.grp.scd.yahoo.com ([66.218.66.85]) by >mc11-f22.hotmail.com with Microsoft SMTPSVC(5.0.2195.6824); Tue, 3 Feb 2004 >14:15:09 -0800 >Received: from [66.218.66.94] by n29.grp.scd.yahoo.com with NNFMP; 03 Feb >2004 21:25:13 -0000 >Received: (qmail 30571 invoked from network); 3 Feb 2004 21:24:52 -0000 >Received: from unknown (66.218.66.172) by m1.grp.scd.yahoo.com with QMQP; >3 Feb 2004 21:24:52 -0000 >Received: from unknown (HELO n37.grp.scd.yahoo.com) (66.218.66.105) by >mta4.grp.scd.yahoo.com with SMTP; 3 Feb 2004 21:24:51 -0000 >Received: from [66.218.67.252] by n37.grp.scd.yahoo.com with NNFMP; 03 Feb >2004 21:23:23 -0000 >X-Message-Info: JGTYoYF78jGRel6cf7CZ17hk71NJY7PH >X-eGroups-Return: >sentto-2141318-24607-1075843494-cat86443=hotmail.com@... >X-Apparently-To: LBDcaregivers >Message-ID: <bvp3ga+im1teGroups> >In-Reply-To: >User-Agent: eGroups-EW/0.82 >X-Mailer: Yahoo Groups Message Poster >X-eGroups-Remote-IP: 66.218.66.105 >X-Yahoo-Profile: abbybb1 >Mailing-List: list LBDcaregivers ; contact >LBDcaregivers-owner >Delivered-To: mailing list LBDcaregivers >Precedence: bulk >List-Unsubscribe: <mailto:LBDcaregivers-unsubscribe > >Return-Path: >sentto-2141318-24607-1075843494-cat86443=hotmail.com@... >X-OriginalArrivalTime: 03 Feb 2004 22:15:09.0671 (UTC) >FILETIME=[2FA97770:01C3EAA3] > >: > >I agree that reality will hit you once you see her at the funeral >home (which you probably already have done at this time). > >I'm hoping that reality doesn't hit you too hard. > >Once again, my condolenses.. > >Abby > _________________________________________________________________ Click here for a FREE online computer virus scan from McAfee. http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2004 Report Share Posted February 5, 2004 Abby, We handled it well. Dad is even doing better than we expected. They had been married for 70 years. Not sure how he will do after all of the other siblings have gone home. We will just take it one day at a time. M > >Reply-To: LBDcaregivers >To: LBDcaregivers >Subject: Re: >Date: Tue, 03 Feb 2004 21:23:22 -0000 >MIME-Version: 1.0 >X-Originating-IP: 64.12.97.11 >X-Sender: BBagam@... >Received: from n29.grp.scd.yahoo.com ([66.218.66.85]) by >mc11-f22.hotmail.com with Microsoft SMTPSVC(5.0.2195.6824); Tue, 3 Feb 2004 >14:15:09 -0800 >Received: from [66.218.66.94] by n29.grp.scd.yahoo.com with NNFMP; 03 Feb >2004 21:25:13 -0000 >Received: (qmail 30571 invoked from network); 3 Feb 2004 21:24:52 -0000 >Received: from unknown (66.218.66.172) by m1.grp.scd.yahoo.com with QMQP; >3 Feb 2004 21:24:52 -0000 >Received: from unknown (HELO n37.grp.scd.yahoo.com) (66.218.66.105) by >mta4.grp.scd.yahoo.com with SMTP; 3 Feb 2004 21:24:51 -0000 >Received: from [66.218.67.252] by n37.grp.scd.yahoo.com with NNFMP; 03 Feb >2004 21:23:23 -0000 >X-Message-Info: JGTYoYF78jGRel6cf7CZ17hk71NJY7PH >X-eGroups-Return: >sentto-2141318-24607-1075843494-cat86443=hotmail.com@... >X-Apparently-To: LBDcaregivers >Message-ID: <bvp3ga+im1teGroups> >In-Reply-To: >User-Agent: eGroups-EW/0.82 >X-Mailer: Yahoo Groups Message Poster >X-eGroups-Remote-IP: 66.218.66.105 >X-Yahoo-Profile: abbybb1 >Mailing-List: list LBDcaregivers ; contact >LBDcaregivers-owner >Delivered-To: mailing list LBDcaregivers >Precedence: bulk >List-Unsubscribe: <mailto:LBDcaregivers-unsubscribe > >Return-Path: >sentto-2141318-24607-1075843494-cat86443=hotmail.com@... >X-OriginalArrivalTime: 03 Feb 2004 22:15:09.0671 (UTC) >FILETIME=[2FA97770:01C3EAA3] > >: > >I agree that reality will hit you once you see her at the funeral >home (which you probably already have done at this time). > >I'm hoping that reality doesn't hit you too hard. > >Once again, my condolenses.. > >Abby > _________________________________________________________________ Click here for a FREE online computer virus scan from McAfee. http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2007 Report Share Posted October 11, 2007 , I am not sure who makes it. Our chiropractor had to order it, he didn't have any more in stock. Glad that it works well. Abby is having a lot of hormone induced anxiety. That period will be coming any time now. I just know it. Not looking forward to that at all. Abby had several full blown anxiety attacks over the last few days. Last night, she was back to her normal self. She gets so sad and cries inconsolably during these attacks. It is my hopes that the D-Stress will help. Over the past week is the first time that we have seen this behavior from her. Pennie Abby's Mom Who probably needs a little D-Stress herself ************************************** See what's new at http://www.aol.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2007 Report Share Posted October 11, 2007 , I am not sure who makes it. Our chiropractor had to order it, he didn't have any more in stock. Glad that it works well. Abby is having a lot of hormone induced anxiety. That period will be coming any time now. I just know it. Not looking forward to that at all. Abby had several full blown anxiety attacks over the last few days. Last night, she was back to her normal self. She gets so sad and cries inconsolably during these attacks. It is my hopes that the D-Stress will help. Over the past week is the first time that we have seen this behavior from her. Pennie Abby's Mom Who probably needs a little D-Stress herself ************************************** See what's new at http://www.aol.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2007 Report Share Posted October 11, 2007 Pennie, is doing great! Back at school like nothing happened. She is an amazing healer. Is D-Stress made by Synergia? That one is really good and primarily contains magnesium glycerophosphate, which is great for stress, the amino acids taurine and arginine, and b-vitamins, also for stress. Very safe and works well. > First of all , how is feeling? > > Also, have you heard of a supplement called D-Stress? Our chiropractor > suggested it for Abby. She is having some anxiety issues. Thanks! > > Pennie > Abby's Mom > > > > ************************************** See what's new at http:// > www.aol.com > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2007 Report Share Posted October 11, 2007 Pennie, is doing great! Back at school like nothing happened. She is an amazing healer. Is D-Stress made by Synergia? That one is really good and primarily contains magnesium glycerophosphate, which is great for stress, the amino acids taurine and arginine, and b-vitamins, also for stress. Very safe and works well. > First of all , how is feeling? > > Also, have you heard of a supplement called D-Stress? Our chiropractor > suggested it for Abby. She is having some anxiety issues. Thanks! > > Pennie > Abby's Mom > > > > ************************************** See what's new at http:// > www.aol.com > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2007 Report Share Posted October 11, 2007 Don't we all?? > Pennie > Abby's Mom > Who probably needs a little D-Stress herself Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2007 Report Share Posted October 11, 2007 Don't we all?? > Pennie > Abby's Mom > Who probably needs a little D-Stress herself Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2008 Report Share Posted January 10, 2008 That to me sounds like classic autoimmune symptoms but so many overlap I dunno how they keep 'em all straight. Endocrine problems (endocrine are glands, like adrenal, thyroid, pituitary) could have both low pressure and weight gain, depending on which hormones were getting activated. I don't know if this would help your kidneys or not, might upset your stomach, but my grandmother was told by her nurse practitioner to take lots of vitamin C each day, like 5,000 mgs or so. The vit is water-soluble which means when your body gets all it needs the kidneys take out the rest, and evidently when the kidneys get lots of extra vitamin C it helps prevent infections. If you decide to try it, you may want to take 1-2 tablets in the morning after a meal, then 1-2 more in the afternoon or evening with food to help keep it from hurting your stomach. Granny went several years without urine problems after she started doing that but it doesn't help everyone. Have you ever been tested for yeast in your poop? The reason I ask is that if you took a lot of strong antibiotics for h pylori it's possible you got a lot of yeast growing, which would cause dizziness, mouth sores, and bowel/gut problems. I dunno about any of it, just thought I'd mention it, I'm sure will get you fixed right up! HTH, Debi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2008 Report Share Posted January 10, 2008 Hi Sondra, I will e-mail you off-list, as you asked. > > I to also have of some questions in medical things and wonder if you > will post of me off the lists for them/. > Sondra > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2008 Report Share Posted January 16, 2008 I'm glad you're looking into it, Sondra. I have a gut feeling about it. Please keep us informed. > I to did get of you post that asnwered one of my questions and will > ask > of the rheumatologist if they have of tested of me for that. I to had > strong memory of being around age of 11 and getted bit by a tick on my > left hand on top of it and seen of the flat black tic but did not know > it was of a tick back then but the visual of it never left of me so > when learned of ticks did know that was of the critter that bit of me > years ago so a lyme disease is of a possible since had been of so > sickly like since being of little girl. > Quote Link to comment Share on other sites More sharing options...
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