Guest guest Posted October 6, 2006 Report Share Posted October 6, 2006 Welcome, Gill, I think you will find this a very welcoming place -- especially for a slightly mad redhead. Enjoy! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2006 Report Share Posted October 7, 2006 Welcome to the group Gill, I'm glad to meet you. Same here, FM and CFS, severe osteoartheritis in the knees. Hope to see you around. Rhonda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2006 Report Share Posted October 14, 2006 Thanks P.J., you're a star. :-) I've had a very bad week, but also made some headway as my consultant has started me on Gabapentin (to accompany the oxycontin, brufen and paracetamol I already take for pain), in the hopes it'll ease some of my pain symptoms. I'm going through side-effects at the moment and feel totally wiped out, but here's hoping things will get better! Everyone's been so supportive here, I'm really grateful for it... Hugs, Gill x > > WELCOME to the group, Gill!! > You've come to a supportive place of good information and caring > members. > You'll fit in perfectly, > P.J. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2006 Report Share Posted October 14, 2006 There's some Special Entry Scheme for slightly mad redheads? Cool! I love this place already! LOL. Seriously though, thanks for the welcome . :-) > > Welcome, Gill, > > I think you will find this a very welcoming place -- especially for a > slightly mad redhead. Enjoy! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2006 Report Share Posted October 14, 2006 Hi Rhonda, and thanks for your welcoming words. :-) Sounds like you've got a lot to contend with, so I hope this post finds you smiling, having a good day and relatively healthy. Take care of you. Gill x > > Welcome to the group Gill, I'm glad to meet you. Same here, FM and CFS, > severe osteoartheritis in the knees. > > Hope to see you around. > > Rhonda > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2007 Report Share Posted September 23, 2007 Hi Pat, Welcome...my name is and I am the mother of an almost 3 year old girl diagnosed with Autism....nice to meet you. > > Hello, > My name is Pat and I am the mother of 4 children, ages 18, 15, 12, > and 5. We leave near Toledo, Ohio. My 5 year old has recently been > diagnosed with Autism. We are still working with a developmental > pediatrician to get a bit more of a refined diagnosis. We originally > thought, although she is verbal and independent in self care that she > could not have Aspergers because she does have a language delay. That > is, she has no problem pronouncing words and has a large vocabulary, > but she can't sustain a conversation and just doesn't get some things > as far as what you are asking. But she knows colors, letters, numbers, > shapes, etc. Now I am reading that kids with Aspergers can have such > language delays. I read some articles on somantic pragmatic disorder > (SPD)and that seems to fit my daughter perfectly, but it evidently > isn't a diagnosis used in the United States. So, right now I'm very > confused and worried. I asked to join the group because I can find so > little on girls with autism, and my daughter seems to fit so much more > with the few things I can find specifically related to how girls with > this behave. Thank you very much for letting me join. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2007 Report Share Posted September 23, 2007 Hi Pat, Welcome...my name is and I am the mother of an almost 3 year old girl diagnosed with Autism....nice to meet you. > > Hello, > My name is Pat and I am the mother of 4 children, ages 18, 15, 12, > and 5. We leave near Toledo, Ohio. My 5 year old has recently been > diagnosed with Autism. We are still working with a developmental > pediatrician to get a bit more of a refined diagnosis. We originally > thought, although she is verbal and independent in self care that she > could not have Aspergers because she does have a language delay. That > is, she has no problem pronouncing words and has a large vocabulary, > but she can't sustain a conversation and just doesn't get some things > as far as what you are asking. But she knows colors, letters, numbers, > shapes, etc. Now I am reading that kids with Aspergers can have such > language delays. I read some articles on somantic pragmatic disorder > (SPD)and that seems to fit my daughter perfectly, but it evidently > isn't a diagnosis used in the United States. So, right now I'm very > confused and worried. I asked to join the group because I can find so > little on girls with autism, and my daughter seems to fit so much more > with the few things I can find specifically related to how girls with > this behave. Thank you very much for letting me join. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2007 Report Share Posted September 23, 2007 Thanks ! > > > > Hello, > > My name is Pat and I am the mother of 4 children, ages 18, 15, > 12, > > and 5. We leave near Toledo, Ohio. My 5 year old has recently > been > > diagnosed with Autism. We are still working with a developmental > > pediatrician to get a bit more of a refined diagnosis. We > originally > > thought, although she is verbal and independent in self care that > she > > could not have Aspergers because she does have a language delay. > That > > is, she has no problem pronouncing words and has a large > vocabulary, > > but she can't sustain a conversation and just doesn't get some > things > > as far as what you are asking. But she knows colors, letters, > numbers, > > shapes, etc. Now I am reading that kids with Aspergers can have > such > > language delays. I read some articles on somantic pragmatic > disorder > > (SPD)and that seems to fit my daughter perfectly, but it evidently > > isn't a diagnosis used in the United States. So, right now I'm > very > > confused and worried. I asked to join the group because I can find > so > > little on girls with autism, and my daughter seems to fit so much > more > > with the few things I can find specifically related to how girls > with > > this behave. Thank you very much for letting me join. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2007 Report Share Posted September 23, 2007 Thanks ! > > > > Hello, > > My name is Pat and I am the mother of 4 children, ages 18, 15, > 12, > > and 5. We leave near Toledo, Ohio. My 5 year old has recently > been > > diagnosed with Autism. We are still working with a developmental > > pediatrician to get a bit more of a refined diagnosis. We > originally > > thought, although she is verbal and independent in self care that > she > > could not have Aspergers because she does have a language delay. > That > > is, she has no problem pronouncing words and has a large > vocabulary, > > but she can't sustain a conversation and just doesn't get some > things > > as far as what you are asking. But she knows colors, letters, > numbers, > > shapes, etc. Now I am reading that kids with Aspergers can have > such > > language delays. I read some articles on somantic pragmatic > disorder > > (SPD)and that seems to fit my daughter perfectly, but it evidently > > isn't a diagnosis used in the United States. So, right now I'm > very > > confused and worried. I asked to join the group because I can find > so > > little on girls with autism, and my daughter seems to fit so much > more > > with the few things I can find specifically related to how girls > with > > this behave. Thank you very much for letting me join. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2007 Report Share Posted September 24, 2007 Our oldest dd has Aspergers Syndrome. She had a language delay. She didn't speak until she was 2. Then she began speaking in full sentences. Since then she's always spoken as if she's older than she really is. She was originally diagnosed with Aspergers syndrome probably due to how high functioning she is. But when we took our youngest dd to UCLA for her evaluations we took the oldest one in just to see what they said. They changed her official dx to Autism primarily because of her history of a language delay. They did express to us that they want Aspergers Syndrome to always be a sub-classification of autism not a dx of it's own. That's because they believe it's the same condition just at a higher place on the spectrum. So, I guess my point is.... speech delays or not, if the rest of the symptoms point to a functioning level associated with Aspergers, it's a fine dx. But in the end it's all autism. Hello from new member Hello, My name is Pat and I am the mother of 4 children, ages 18, 15, 12, and 5. We leave near Toledo, Ohio. My 5 year old has recently been diagnosed with Autism. We are still working with a developmental pediatrician to get a bit more of a refined diagnosis. We originally thought, although she is verbal and independent in self care that she could not have Aspergers because she does have a language delay. That is, she has no problem pronouncing words and has a large vocabulary, but she can't sustain a conversation and just doesn't get some things as far as what you are asking. But she knows colors, letters, numbers, shapes, etc. Now I am reading that kids with Aspergers can have such language delays. I read some articles on somantic pragmatic disorder (SPD)and that seems to fit my daughter perfectly, but it evidently isn't a diagnosis used in the United States. So, right now I'm very confused and worried. I asked to join the group because I can find so little on girls with autism, and my daughter seems to fit so much more with the few things I can find specifically related to how girls with this behave. Thank you very much for letting me join. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2007 Report Share Posted September 24, 2007 Our oldest dd has Aspergers Syndrome. She had a language delay. She didn't speak until she was 2. Then she began speaking in full sentences. Since then she's always spoken as if she's older than she really is. She was originally diagnosed with Aspergers syndrome probably due to how high functioning she is. But when we took our youngest dd to UCLA for her evaluations we took the oldest one in just to see what they said. They changed her official dx to Autism primarily because of her history of a language delay. They did express to us that they want Aspergers Syndrome to always be a sub-classification of autism not a dx of it's own. That's because they believe it's the same condition just at a higher place on the spectrum. So, I guess my point is.... speech delays or not, if the rest of the symptoms point to a functioning level associated with Aspergers, it's a fine dx. But in the end it's all autism. Hello from new member Hello, My name is Pat and I am the mother of 4 children, ages 18, 15, 12, and 5. We leave near Toledo, Ohio. My 5 year old has recently been diagnosed with Autism. We are still working with a developmental pediatrician to get a bit more of a refined diagnosis. We originally thought, although she is verbal and independent in self care that she could not have Aspergers because she does have a language delay. That is, she has no problem pronouncing words and has a large vocabulary, but she can't sustain a conversation and just doesn't get some things as far as what you are asking. But she knows colors, letters, numbers, shapes, etc. Now I am reading that kids with Aspergers can have such language delays. I read some articles on somantic pragmatic disorder (SPD)and that seems to fit my daughter perfectly, but it evidently isn't a diagnosis used in the United States. So, right now I'm very confused and worried. I asked to join the group because I can find so little on girls with autism, and my daughter seems to fit so much more with the few things I can find specifically related to how girls with this behave. Thank you very much for letting me join. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2007 Report Share Posted September 24, 2007 Thanks for the information. Right now I am just really confused about a lot of things regarding my daughter's diagnosis. I'm strongly looking at the possibility of taking her somewhere for another opinion. My problem is probably somewhat unique as the only physicians in my area that can make the diagnosis, work for me. So, it really makes it difficult to have them see my child. I also don't want to ask them a ton of questions, again because of the professional relationship. I really appreciate you taking the time to explain your experience. Thanks, Pat > > Our oldest dd has Aspergers Syndrome. She had a language delay. She didn't speak until she was 2. Then she began speaking in full sentences. Since then she's always spoken as if she's older than she really is. She was originally diagnosed with Aspergers syndrome probably due to how high functioning she is. But when we took our youngest dd to UCLA for her evaluations we took the oldest one in just to see what they said. They changed her official dx to Autism primarily because of her history of a language delay. They did express to us that they want Aspergers Syndrome to always be a sub- classification of autism not a dx of it's own. That's because they believe it's the same condition just at a higher place on the spectrum. > > So, I guess my point is.... speech delays or not, if the rest of the symptoms point to a functioning level associated with Aspergers, it's a fine dx. But in the end it's all autism. > > > > Hello from new member > > > Hello, > My name is Pat and I am the mother of 4 children, ages 18, 15, 12, > and 5. We leave near Toledo, Ohio. My 5 year old has recently been > diagnosed with Autism. We are still working with a developmental > pediatrician to get a bit more of a refined diagnosis. We originally > thought, although she is verbal and independent in self care that she > could not have Aspergers because she does have a language delay. That > is, she has no problem pronouncing words and has a large vocabulary, > but she can't sustain a conversation and just doesn't get some things > as far as what you are asking. But she knows colors, letters, numbers, > shapes, etc. Now I am reading that kids with Aspergers can have such > language delays. I read some articles on somantic pragmatic disorder > (SPD)and that seems to fit my daughter perfectly, but it evidently > isn't a diagnosis used in the United States. So, right now I'm very > confused and worried. I asked to join the group because I can find so > little on girls with autism, and my daughter seems to fit so much more > with the few things I can find specifically related to how girls with > this behave. Thank you very much for letting me join. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2007 Report Share Posted September 24, 2007 Thanks for the information. Right now I am just really confused about a lot of things regarding my daughter's diagnosis. I'm strongly looking at the possibility of taking her somewhere for another opinion. My problem is probably somewhat unique as the only physicians in my area that can make the diagnosis, work for me. So, it really makes it difficult to have them see my child. I also don't want to ask them a ton of questions, again because of the professional relationship. I really appreciate you taking the time to explain your experience. Thanks, Pat > > Our oldest dd has Aspergers Syndrome. She had a language delay. She didn't speak until she was 2. Then she began speaking in full sentences. Since then she's always spoken as if she's older than she really is. She was originally diagnosed with Aspergers syndrome probably due to how high functioning she is. But when we took our youngest dd to UCLA for her evaluations we took the oldest one in just to see what they said. They changed her official dx to Autism primarily because of her history of a language delay. They did express to us that they want Aspergers Syndrome to always be a sub- classification of autism not a dx of it's own. That's because they believe it's the same condition just at a higher place on the spectrum. > > So, I guess my point is.... speech delays or not, if the rest of the symptoms point to a functioning level associated with Aspergers, it's a fine dx. But in the end it's all autism. > > > > Hello from new member > > > Hello, > My name is Pat and I am the mother of 4 children, ages 18, 15, 12, > and 5. We leave near Toledo, Ohio. My 5 year old has recently been > diagnosed with Autism. We are still working with a developmental > pediatrician to get a bit more of a refined diagnosis. We originally > thought, although she is verbal and independent in self care that she > could not have Aspergers because she does have a language delay. That > is, she has no problem pronouncing words and has a large vocabulary, > but she can't sustain a conversation and just doesn't get some things > as far as what you are asking. But she knows colors, letters, numbers, > shapes, etc. Now I am reading that kids with Aspergers can have such > language delays. I read some articles on somantic pragmatic disorder > (SPD)and that seems to fit my daughter perfectly, but it evidently > isn't a diagnosis used in the United States. So, right now I'm very > confused and worried. I asked to join the group because I can find so > little on girls with autism, and my daughter seems to fit so much more > with the few things I can find specifically related to how girls with > this behave. Thank you very much for letting me join. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2007 Report Share Posted September 24, 2007 One thing you might want to consider is contacting the NIH. They are doing various studies on autism. As part of the protocol, they do a full assessment. For the particular study that our 4yo daughter is in, she had to have full-blown autism, which she does and they confirmed. Classically, speech delays or lack thereof, was one of the differences between HFA and Asperger's. However, the line has become blurred. I've asked that question point-black to several psychologists, can a person with Asperger's have had a speech delay, and I've gotten several different answers. However, most believe that with Asperger's there is no speech delay, but problems with pragmatic language. Our son is 10yo and is dx'd Asperger's and really fits it to a T. Marie MPGebers wrote: Thanks for the information. Right now I am just really confused about a lot of things regarding my daughter's diagnosis. I'm strongly looking at the possibility of taking her somewhere for another opinion. My problem is probably somewhat unique as the only physicians in my area that can make the diagnosis, work for me. So, it really makes it difficult to have them see my child. I also don't want to ask them a ton of questions, again because of the professional relationship. I really appreciate you taking the time to explain your experience. Thanks, Pat > > Our oldest dd has Aspergers Syndrome. She had a language delay. She didn't speak until she was 2. Then she began speaking in full sentences. Since then she's always spoken as if she's older than she really is. She was originally diagnosed with Aspergers syndrome probably due to how high functioning she is. But when we took our youngest dd to UCLA for her evaluations we took the oldest one in just to see what they said. They changed her official dx to Autism primarily because of her history of a language delay. They did express to us that they want Aspergers Syndrome to always be a sub- classification of autism not a dx of it's own. That's because they believe it's the same condition just at a higher place on the spectrum. > > So, I guess my point is.... speech delays or not, if the rest of the symptoms point to a functioning level associated with Aspergers, it's a fine dx. But in the end it's all autism. > > > > Hello from new member > > > Hello, > My name is Pat and I am the mother of 4 children, ages 18, 15, 12, > and 5. We leave near Toledo, Ohio. My 5 year old has recently been > diagnosed with Autism. We are still working with a developmental > pediatrician to get a bit more of a refined diagnosis. We originally > thought, although she is verbal and independent in self care that she > could not have Aspergers because she does have a language delay. That > is, she has no problem pronouncing words and has a large vocabulary, > but she can't sustain a conversation and just doesn't get some things > as far as what you are asking. But she knows colors, letters, numbers, > shapes, etc. Now I am reading that kids with Aspergers can have such > language delays. I read some articles on somantic pragmatic disorder > (SPD)and that seems to fit my daughter perfectly, but it evidently > isn't a diagnosis used in the United States. So, right now I'm very > confused and worried. I asked to join the group because I can find so > little on girls with autism, and my daughter seems to fit so much more > with the few things I can find specifically related to how girls with > this behave. Thank you very much for letting me join. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2007 Report Share Posted September 24, 2007 One thing you might want to consider is contacting the NIH. They are doing various studies on autism. As part of the protocol, they do a full assessment. For the particular study that our 4yo daughter is in, she had to have full-blown autism, which she does and they confirmed. Classically, speech delays or lack thereof, was one of the differences between HFA and Asperger's. However, the line has become blurred. I've asked that question point-black to several psychologists, can a person with Asperger's have had a speech delay, and I've gotten several different answers. However, most believe that with Asperger's there is no speech delay, but problems with pragmatic language. Our son is 10yo and is dx'd Asperger's and really fits it to a T. Marie MPGebers wrote: Thanks for the information. Right now I am just really confused about a lot of things regarding my daughter's diagnosis. I'm strongly looking at the possibility of taking her somewhere for another opinion. My problem is probably somewhat unique as the only physicians in my area that can make the diagnosis, work for me. So, it really makes it difficult to have them see my child. I also don't want to ask them a ton of questions, again because of the professional relationship. I really appreciate you taking the time to explain your experience. Thanks, Pat > > Our oldest dd has Aspergers Syndrome. She had a language delay. She didn't speak until she was 2. Then she began speaking in full sentences. Since then she's always spoken as if she's older than she really is. She was originally diagnosed with Aspergers syndrome probably due to how high functioning she is. But when we took our youngest dd to UCLA for her evaluations we took the oldest one in just to see what they said. They changed her official dx to Autism primarily because of her history of a language delay. They did express to us that they want Aspergers Syndrome to always be a sub- classification of autism not a dx of it's own. That's because they believe it's the same condition just at a higher place on the spectrum. > > So, I guess my point is.... speech delays or not, if the rest of the symptoms point to a functioning level associated with Aspergers, it's a fine dx. But in the end it's all autism. > > > > Hello from new member > > > Hello, > My name is Pat and I am the mother of 4 children, ages 18, 15, 12, > and 5. We leave near Toledo, Ohio. My 5 year old has recently been > diagnosed with Autism. We are still working with a developmental > pediatrician to get a bit more of a refined diagnosis. We originally > thought, although she is verbal and independent in self care that she > could not have Aspergers because she does have a language delay. That > is, she has no problem pronouncing words and has a large vocabulary, > but she can't sustain a conversation and just doesn't get some things > as far as what you are asking. But she knows colors, letters, numbers, > shapes, etc. Now I am reading that kids with Aspergers can have such > language delays. I read some articles on somantic pragmatic disorder > (SPD)and that seems to fit my daughter perfectly, but it evidently > isn't a diagnosis used in the United States. So, right now I'm very > confused and worried. I asked to join the group because I can find so > little on girls with autism, and my daughter seems to fit so much more > with the few things I can find specifically related to how girls with > this behave. Thank you very much for letting me join. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2007 Report Share Posted September 25, 2007 Thanks for the idea Marie. I will check that out for studies in my area. I'm waiting right now for a response from Cincinnati Children's DD center, which supposedly has a large department on autism spectrum. It's 3+ hours away, but it may be worth it. It's good to know I'm not the only one hearing some confusing things. Thanks again, Pat > > > > Our oldest dd has Aspergers Syndrome. She had a language delay. > She didn't speak until she was 2. Then she began speaking in full > sentences. Since then she's always spoken as if she's older than she > really is. She was originally diagnosed with Aspergers syndrome > probably due to how high functioning she is. But when we took our > youngest dd to UCLA for her evaluations we took the oldest one in > just to see what they said. They changed her official dx to Autism > primarily because of her history of a language delay. They did > express to us that they want Aspergers Syndrome to always be a sub- > classification of autism not a dx of it's own. That's because they > believe it's the same condition just at a higher place on the > spectrum. > > > > So, I guess my point is.... speech delays or not, if the rest of > the symptoms point to a functioning level associated with Aspergers, > it's a fine dx. But in the end it's all autism. > > > > > > > > Hello from new member > > > > > > Hello, > > My name is Pat and I am the mother of 4 children, ages 18, > 15, 12, > > and 5. We leave near Toledo, Ohio. My 5 year old has recently > been > > diagnosed with Autism. We are still working with a developmental > > pediatrician to get a bit more of a refined diagnosis. We > originally > > thought, although she is verbal and independent in self care that > she > > could not have Aspergers because she does have a language delay. > That > > is, she has no problem pronouncing words and has a large > vocabulary, > > but she can't sustain a conversation and just doesn't get some > things > > as far as what you are asking. But she knows colors, letters, > numbers, > > shapes, etc. Now I am reading that kids with Aspergers can have > such > > language delays. I read some articles on somantic pragmatic > disorder > > (SPD)and that seems to fit my daughter perfectly, but it > evidently > > isn't a diagnosis used in the United States. So, right now I'm > very > > confused and worried. I asked to join the group because I can > find so > > little on girls with autism, and my daughter seems to fit so much > more > > with the few things I can find specifically related to how girls > with > > this behave. Thank you very much for letting me join. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2007 Report Share Posted September 25, 2007 Thanks for the idea Marie. I will check that out for studies in my area. I'm waiting right now for a response from Cincinnati Children's DD center, which supposedly has a large department on autism spectrum. It's 3+ hours away, but it may be worth it. It's good to know I'm not the only one hearing some confusing things. Thanks again, Pat > > > > Our oldest dd has Aspergers Syndrome. She had a language delay. > She didn't speak until she was 2. Then she began speaking in full > sentences. Since then she's always spoken as if she's older than she > really is. She was originally diagnosed with Aspergers syndrome > probably due to how high functioning she is. But when we took our > youngest dd to UCLA for her evaluations we took the oldest one in > just to see what they said. They changed her official dx to Autism > primarily because of her history of a language delay. They did > express to us that they want Aspergers Syndrome to always be a sub- > classification of autism not a dx of it's own. That's because they > believe it's the same condition just at a higher place on the > spectrum. > > > > So, I guess my point is.... speech delays or not, if the rest of > the symptoms point to a functioning level associated with Aspergers, > it's a fine dx. But in the end it's all autism. > > > > > > > > Hello from new member > > > > > > Hello, > > My name is Pat and I am the mother of 4 children, ages 18, > 15, 12, > > and 5. We leave near Toledo, Ohio. My 5 year old has recently > been > > diagnosed with Autism. We are still working with a developmental > > pediatrician to get a bit more of a refined diagnosis. We > originally > > thought, although she is verbal and independent in self care that > she > > could not have Aspergers because she does have a language delay. > That > > is, she has no problem pronouncing words and has a large > vocabulary, > > but she can't sustain a conversation and just doesn't get some > things > > as far as what you are asking. But she knows colors, letters, > numbers, > > shapes, etc. Now I am reading that kids with Aspergers can have > such > > language delays. I read some articles on somantic pragmatic > disorder > > (SPD)and that seems to fit my daughter perfectly, but it > evidently > > isn't a diagnosis used in the United States. So, right now I'm > very > > confused and worried. I asked to join the group because I can > find so > > little on girls with autism, and my daughter seems to fit so much > more > > with the few things I can find specifically related to how girls > with > > this behave. Thank you very much for letting me join. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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