Guest guest Posted May 8, 2010 Report Share Posted May 8, 2010 Hi Felicia, welcome! Here are a few books for parents: Freeing your Child from Obsessive-Compulsive Disorder by Tamar E. Chansky, Ph.D. Helping Your Child With OCD by Lee Fitzgibbons, Ph.D., and Cherry Pedrick, R.N. Talking Back to OCD: The Program That Helps Kids and Teens Say " No Way " - and Parents Say " Way to Go " by S. March, M.D. What to do When Your Child Has Obsessive-Compulsive Disorder: Strategies and Solutions by Aureen Pinto Wagner, Ph.D. Obsessive-Compulsive Disorder: Help for Children and Adolescents by Mitzi Waltz There are books for children/teens out there too, she may like to read some. Also, this page has a lot of short articles with good information, there's probably some she can relate to: http://westsuffolkpsych.homestead.com/articles.html I have a son, now 21, whose OCD began in 6th grade. He suffers from " bad thoughts " although his OCD is the scrupulosity type, relating to God/religion, etc. When it first began years ago, it was more the ritual/compulsion type. We've had our ups/downs with OCD over the years. He would be doing better now, I think, if he would go on medication again (he refuses, wants to deal with it himself) but he has managed well overall. Feel free to ask any questions here, this is also a great place to vent about OCD! > > Hello, > I'm new to the group and was just wondering if anyone could recommend any good reading material on the subject. I have a 14 year old step daughter recently diagnosed. She's been treated for anxiety since she was 8 but the last few months she started worrying about hurting herself, she gets thoughts stuck in her head that keep her awake at night, her obsessive cough and throat clearing have escalated as well as a host of other symptoms. My husband is really taking this hard and I figure the more we can educate ourselves the better we'll be able to help her. > Thanks so much. > Felicia > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2010 Report Share Posted May 8, 2010 The throat-clearing and coughing might be considered a vocal tic.. Throat-clearing is the most common vocal tic.. so she could also have a tic disorder along with the OCD, which is very common (my daughter has both). You will want to read up on PANDAS and also Gut & Psychology Syndrome to see if any of it applies to your daughter. Misty ________________________________ To: Sent: Sat, May 8, 2010 6:29:37 AM Subject: Advice for a newbie  Hello, I'm new to the group and was just wondering if anyone could recommend any good reading material on the subject. I have a 14 year old step daughter recently diagnosed. She's been treated for anxiety since she was 8 but the last few months she started worrying about hurting herself, she gets thoughts stuck in her head that keep her awake at night, her obsessive cough and throat clearing have escalated as well as a host of other symptoms. My husband is really taking this hard and I figure the more we can educate ourselves the better we'll be able to help her. Thanks so much. Felicia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2010 Report Share Posted May 8, 2010 Welcome to the group, Felicia. Glad you found us. BJ > > Hello, > I'm new to the group and was just wondering if anyone could recommend any good reading material on the subject. I have a 14 year old step daughter recently diagnosed. She's been treated for anxiety since she was 8 but the last few months she started worrying about hurting herself, she gets thoughts stuck in her head that keep her awake at night, her obsessive cough and throat clearing have escalated as well as a host of other symptoms. My husband is really taking this hard and I figure the more we can educate ourselves the better we'll be able to help her. > Thanks so much. > Felicia > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2010 Report Share Posted May 10, 2010 Thanks for the great list of books. Will definitely be hitting up Amazon this week. It's a frustrating situtation because we only have step daughter on the weekends. Found out recently her mother is helping her with some of her compulsions to ease her embarrasment. For example she pumps the soap dispenser exactly eight times, found out Mom is pumping and counting for her. Might have to pass along some of this reading material to her mother to make her see how she is not really helping. > > > > Hello, > > I'm new to the group and was just wondering if anyone could recommend any good reading material on the subject. I have a 14 year old step daughter recently diagnosed. She's been treated for anxiety since she was 8 but the last few months she started worrying about hurting herself, she gets thoughts stuck in her head that keep her awake at night, her obsessive cough and throat clearing have escalated as well as a host of other symptoms. My husband is really taking this hard and I figure the more we can educate ourselves the better we'll be able to help her. > > Thanks so much. > > Felicia > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2010 Report Share Posted May 10, 2010 Misty, Thanks for the good advice. Did read up on PANDAS and I don't think it applies. She hasn't been sick and she has had the throat clearing thing for a long time. We just thought it was allergies. It wasn't until she started with the thoughts of hurting herself and reading about OCD that we came across the vocal tic information. Wow, this is all a lot to take in. Trying to figure out the best way to help her. I am in the school of thought that says " treat her as normal as possible still and do not lower expectations " and the husband is in the camp of " don't bug her about school,chores, manners, etc. because she has so much to deal with right now. " Not sure which one of us is right. > > The throat-clearing and coughing might be considered a vocal tic.. Throat-clearing is the most common vocal tic.. so she could also have a tic disorder along with the OCD, which is very common (my daughter has both). > > You will want to read up on PANDAS and also Gut & Psychology Syndrome to see if any of it applies to your daughter. > > Misty > > > > > ________________________________ > > To: > Sent: Sat, May 8, 2010 6:29:37 AM > Subject: Advice for a newbie > >  > Hello, > I'm new to the group and was just wondering if anyone could recommend any good reading material on the subject. I have a 14 year old step daughter recently diagnosed. She's been treated for anxiety since she was 8 but the last few months she started worrying about hurting herself, she gets thoughts stuck in her head that keep her awake at night, her obsessive cough and throat clearing have escalated as well as a host of other symptoms. My husband is really taking this hard and I figure the more we can educate ourselves the better we'll be able to help her. > Thanks so much. > Felicia > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2010 Report Share Posted May 10, 2010 Thanks BJ, this is all so overwhelming...it's nice to know there are other folks who have been where we are. > > > > Hello, > > I'm new to the group and was just wondering if anyone could recommend any good reading material on the subject. I have a 14 year old step daughter recently diagnosed. She's been treated for anxiety since she was 8 but the last few months she started worrying about hurting herself, she gets thoughts stuck in her head that keep her awake at night, her obsessive cough and throat clearing have escalated as well as a host of other symptoms. My husband is really taking this hard and I figure the more we can educate ourselves the better we'll be able to help her. > > Thanks so much. > > Felicia > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2010 Report Share Posted May 10, 2010 Definitely treat her as normal as possible.. However, tread carefullly around OCD issues.. For example.. My daughter has a major germ phobia and she cannot take out the trash (or even look at it or touch it).. So I have been having her touch the side of the trash can before she is allowed to get on the computer. Just to keep that exposure to the trash going without making her take out the trash just yet. She takes Zoloft, but she really needs therapy as well.. She is doing behavior therapy twice a week right now along with her two sisters (they all have Asperger's) so we do not have time for another therapy, plus we have yet to find a therapist who does CBT/ERP with children. But even with Asperger's, Tourette's, OCD, etc. etc.. All my girls are required to do chores, regular school work (we homeschool), etc. etc. My 7yr old daughter has severe Asperger's, severe ADHD, and severe OCD.. She is not exempt from anything! (though she is not required to do as much " seatwork " -type school as a neurotypical 7yr old child would in a public school.. I have to get creative and work with her in different ways). Definitely look into Gut & Psychology Syndrome as well.. I had my girls tested for food intolerances/sensitivities, and they all came back highly sensitive to gluten, casein, & soy. Since removing these foods, we no longer have any tics and behavior has improved dramatically. Misty http://www.livingmynormal.blogspot.com ________________________________ To: Sent: Mon, May 10, 2010 8:41:09 AM Subject: Re: Advice for a newbie  Misty, Thanks for the good advice. Did read up on PANDAS and I don't think it applies. She hasn't been sick and she has had the throat clearing thing for a long time. We just thought it was allergies. It wasn't until she started with the thoughts of hurting herself and reading about OCD that we came across the vocal tic information. Wow, this is all a lot to take in. Trying to figure out the best way to help her. I am in the school of thought that says " treat her as normal as possible still and do not lower expectations " and the husband is in the camp of " don't bug her about school,chores, manners, etc. because she has so much to deal with right now. " Not sure which one of us is right. > > The throat-clearing and coughing might be considered a vocal tic.. Throat-clearing is the most common vocal tic.. so she could also have a tic disorder along with the OCD, which is very common (my daughter has both). > > You will want to read up on PANDAS and also Gut & Psychology Syndrome to see if any of it applies to your daughter. > > Misty > > > > > ____________ _________ _________ __ > From: crazyflea <feliciaagnew@ ...> > To: @ yahoogroups. com > Sent: Sat, May 8, 2010 6:29:37 AM > Subject: Advice for a newbie > >  > Hello, > I'm new to the group and was just wondering if anyone could recommend any good reading material on the subject. I have a 14 year old step daughter recently diagnosed. She's been treated for anxiety since she was 8 but the last few months she started worrying about hurting herself, she gets thoughts stuck in her head that keep her awake at night, her obsessive cough and throat clearing have escalated as well as a host of other symptoms. My husband is really taking this hard and I figure the more we can educate ourselves the better we'll be able to help her. > Thanks so much. > Felicia > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2010 Report Share Posted May 15, 2010 I want to second the suggestion for reading up on PANDAS. Go to Latitudes.org and click on FORUM and read the faq sheets there. Also another good website is www.pandasresourcenetwork.org OCD and tics can be caused by strep. It's important to seek treatment with a physician who is knowledgable in treating PANDAS. Wishing I had pursued this more adamantly 4 years ago as we are only now getting the proper treatment and it has been going on (and getting worse) for almost 4 years. Don't rule it out based on one or two things not fitting the criteria. Read and exhaust the possibility. Quote Link to comment Share on other sites More sharing options...
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