Guest guest Posted October 14, 2007 Report Share Posted October 14, 2007 I dont have much in the ways of Helpful info but I too am Frustrated with the lack of info on girls on the spectrum. I dont post here often but I do lurk and read the messages for more knowlege. I have a 3 yr old she is mod - Severe. We currently have her in the AI Pre-school. I hope you can find what you need here To Love is not enough, you have to give of your self as well. _________________________________________________________________ Peek-a-boo FREE Tricks & Treats for You! http://www.reallivemoms.com?ocid=TXT_TAGHM & loc=us Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2007 Report Share Posted October 15, 2007 My 5 year old is also very affectionate to those she knows closely, which had me convinced she couldn't have autism when she was younger. Someone else wrote about the extended family's comments re:she doesn't seem autistic. We have also had that challenge. I kind of understand it given my own self doubt earlier about the possibility. But....it's just seems hard enough trying to accept such a diagnosis to begin with, and comments like those from family can be really, really hard to take. Pat > > Hi Gwen, > > The answer is no. We really didn't think she was autistic at all because she was very friendly and sweet. We thought she had a language delay. > > We were still living in Tokyo when I noticed Sophie's rather odd play at age 9 months old. She was lining up her toys in a straight line and when I switched some objects when she wasn't looking, she would know right away and correct them. I thought to myself we have got a genius here or an alien. By the time she was 11 months old, I was getting anxious because she wasn't pointing. We moved to the States when she was 13 months old. She wasn't talking and walking and getting overly sensitive to lights (esp. florescent lights), noise (even people talking and laughing), rain drops (we are in Seattle, the Rain City!!), clothing, etc. I changed pediatricians 11 times in order to get the necessary referral to the specialists. No doctors wanted to say something was up with her. > Even then, the neurologists were focusing on her dyspraxia and developmental delays. > > So it was not a clear-cut case with Sophie and was a frustrating journey for us because we felt we were losing precious intervention time that could have been specifically designed to her autistic challenges. > I think the medical field is getting better understanding that some girls manifests autism differently, but still there is a long way to go. > > Thanks, > Kai > > New here > > Hello,I am really excited to visit with other families who have girls with Autism. Our daughter was diagnosed in July of this year, although we have expected it for quite some time. She had a difficult time receiving this diagnosis because she can be affectionate and she sometimes wants to be around other children. My question is do you all find that girls are more affectionate than boys with Autism? I know quite a few parents with children with Autism, but all of them are boys. Can you tell me the major differences you find in boys and girls with this disorder? Thank you so much, Gwen [Non-text portions of this message have been removed] > > __________________________________________________________ > Help yourself to FREE treats served up daily at the Messenger Café. Stop by today. > http://www.cafemessenger.com/info/info_sweetstuff2.html? ocid=TXT_TAGLM_OctWLtagline > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2010 Report Share Posted June 29, 2010 Hello, I am still in a state of shock. We just received a diagnosis today that my 7 y.o. has OCD. For years she has had various ³tics² that would come and go and change over time, but they didn¹t¹ bother her so I didn¹t let them bother me. I always thought they were a coping mechanism for her, but had convinced myself that they were not a problem. A few months ago my daughter began to complain about them saying she wanted to stop doing them (she didn¹t actually say it she cried that she wanted it to stop). We finally got into a counselor today and she said within a few minutes she knew she had OCD and is referring her to a psychiatrists she works with. She said he will put her on meds, and more than likely she will be on meds for the rest of her life. If meds is what she needs, I will do it (as much as I hate the idea). But, this was the opinion of the first person we saw. I am thinking before I see the psychiatrist I would like to maybe see a psychologists and investigate the possibility of some behavior therapy. On the other hand...I can¹t pursue too many options because my daughter wouldn¹t be able to handle going from doctor/therapist to doctor/therapist. Where do I begin??????? Thanks in advance, in Katy, TX Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2010 Report Share Posted June 29, 2010 my daughter has ocd she is 11years old..dx last year. She currently see a psychologist doing CBT..no medications; she has been doing a lot better..I know a lot of people have their children on medication I guess it depends on each individual case. For me medication would be last resort...  Subject: New here To: " " < > Date: Wednesday, June 30, 2010, 2:04 AM  Hello, I am still in a state of shock. We just received a diagnosis today that my 7 y.o. has OCD. For years she has had various ³tics² that would come and go and change over time, but they didn¹t¹ bother her so I didn¹t let them bother me. I always thought they were a coping mechanism for her, but had convinced myself that they were not a problem. A few months ago my daughter began to complain about them  saying she wanted to stop doing them (she didn¹t actually say it  she cried that she wanted it to stop). We finally got into a counselor today and she said within a few minutes she knew she had OCD and is referring her to a psychiatrists she works with. She said he will put her on meds, and more than likely she will be on meds for the rest of her life. If meds is what she needs, I will do it (as much as I hate the idea). But, this was the opinion of the first person we saw. I am thinking before I see the psychiatrist I would like to maybe see a psychologists and investigate the possibility of some behavior therapy. On the other hand...I can¹t pursue too many options because my daughter wouldn¹t be able to handle going from doctor/therapist to doctor/therapist. Where do I begin??????? Thanks in advance, in Katy, TX Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2010 Report Share Posted June 30, 2010 , Are you aware of PANDAS and have you ruled that out in your daughter? The combination of OCD and tics in a child can often be caused by PANDAS (an autoimmune disorder triggered by strep). Just wanted to make sure you were aware of that possibility. Colleen > > > > Subject: New here > To: " " < > > Date: Wednesday, June 30, 2010, 2:04 AM > > >  > > > > Hello, > > I am still in a state of shock. We just received a diagnosis today that my > 7 y.o. has OCD. For years she has had various ³tics² that would come and go > and change over time, but they didn¹t¹ bother her so I didn¹t let them > bother me. I always thought they were a coping mechanism for her, but had > convinced myself that they were not a problem. A few months ago my daughter > began to complain about them  saying she wanted to stop doing them (she > didn¹t actually say it  she cried that she wanted it to stop). We finally > got into a counselor today and she said within a few minutes she knew she > had OCD and is referring her to a psychiatrists she works with. She said > he will put her on meds, and more than likely she will be on meds for the > rest of her life. > > If meds is what she needs, I will do it (as much as I hate the idea). But, > this was the opinion of the first person we saw. I am thinking before I see > the psychiatrist I would like to maybe see a psychologists and investigate > the possibility of some behavior therapy. On the other hand...I can¹t > pursue too many options because my daughter wouldn¹t be able to handle going > from doctor/therapist to doctor/therapist. > > Where do I begin??????? > > Thanks in advance, > in Katy, TX > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2010 Report Share Posted June 30, 2010 Can Pandas be cured? I think my daughter might have it.  I read a doctor needs to check her blood.  Do I go to her physician?  Sorry brand new here. Buffie Subject: Re: New here To: Date: Wednesday, June 30, 2010, 8:28 AM  , Are you aware of PANDAS and have you ruled that out in your daughter? The combination of OCD and tics in a child can often be caused by PANDAS (an autoimmune disorder triggered by strep). Just wanted to make sure you were aware of that possibility. Colleen > > > > Subject: New here > To: " " < > > Date: Wednesday, June 30, 2010, 2:04 AM > > >  > > > > Hello, > > I am still in a state of shock. We just received a diagnosis today that my > 7 y.o. has OCD. For years she has had various ³tics² that would come and go > and change over time, but they didn¹t¹ bother her so I didn¹t let them > bother me. I always thought they were a coping mechanism for her, but had > convinced myself that they were not a problem. A few months ago my daughter > began to complain about them  saying she wanted to stop doing them (she > didn¹t actually say it  she cried that she wanted it to stop). We finally > got into a counselor today and she said within a few minutes she knew she > had OCD and is referring her to a psychiatrists she works with. She said > he will put her on meds, and more than likely she will be on meds for the > rest of her life. > > If meds is what she needs, I will do it (as much as I hate the idea). But, > this was the opinion of the first person we saw. I am thinking before I see > the psychiatrist I would like to maybe see a psychologists and investigate > the possibility of some behavior therapy. On the other hand...I can¹t > pursue too many options because my daughter wouldn¹t be able to handle going > from doctor/therapist to doctor/therapist. > > Where do I begin??????? > > Thanks in advance, > in Katy, TX > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2010 Report Share Posted June 30, 2010 Hi , welcome! It's fine to go ahead and pursue therapy before beginning medication. That works for some. Then from there, you will decide if she needs medication. Often medication will help the therapy go better, so they can participate in it. And sometimes you just have to look at how much they're suffering, the severity, quality of life, etc., if it seems therapy alone won't work (or can't really begin therapy until OCD is calmed down a bit with med). Medication isn't always " a lifetime " ; it can be for many, but there are some who have functioned fine without it but they use the " tools " learned in therapy and manage to do okay without the medication. ((hugs)) we know it's hard!! Glad you found our group! single mom, 3 sons , 21, with OCD, dysgraphia, Aspergers > > Hello, > > I am still in a state of shock. We just received a diagnosis today that my > 7 y.o. has OCD. For years she has had various ³tics² that would come and go > and change over time, but they didn¹t¹ bother her so I didn¹t let them > bother me. I always thought they were a coping mechanism for her, but had > convinced myself that they were not a problem. A few months ago my daughter > began to complain about them saying she wanted to stop doing them (she > didn¹t actually say it she cried that she wanted it to stop). We finally > got into a counselor today and she said within a few minutes she knew she > had OCD and is referring her to a psychiatrists she works with. She said > he will put her on meds, and more than likely she will be on meds for the > rest of her life. > > If meds is what she needs, I will do it (as much as I hate the idea). But, > this was the opinion of the first person we saw. I am thinking before I see > the psychiatrist I would like to maybe see a psychologists and investigate > the possibility of some behavior therapy. On the other hand...I can¹t > pursue too many options because my daughter wouldn¹t be able to handle going > from doctor/therapist to doctor/therapist. > > Where do I begin??????? > > Thanks in advance, > in Katy, TX > > > Quote Link to comment Share on other sites More sharing options...
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