Guest guest Posted May 22, 2007 Report Share Posted May 22, 2007 > > Sondra > So sorry to hear of all you have been going through. I haven't had much > time > to read or post. I want you to know that my mother was diagnosed with > lupus in > her forties. She had all the classic symptoms as well. She was on steroids > and something else for years. After about 8-10 years she was able to > gradually > go off her medicines and she is today at 79 symptom-free and she does not > take > medication. She does though watch her diet very closely, rest, and do > stress > relief activities like Yoga. So it is possible to have remission. Take > good > care of yourself, will be praying for you. > Melinda Melinda, interesting to hear that your mom was able to wean off steroids after being on it for so long. I've always thought that being on steroids was pretty drastic & the side effects would be bad. I was put on steroids for scleritis & I didn't feel well on it, even more brain foggy & just not feeling well, so am very leery of them. Sondra, I hope that you will at least find a cause for all your problems. At least with a diagnosis, it gives you a place to start with treatments & a game plan on how to feel better & improve your health. Sorry to say, but in a way it's comforting to hear that there are others with health issues so we can talk about that too & not just about our kids. We need to be healthy so we can take care of our kids, so if anyone has found anything that's helped, pls post, b/c I sure would like to know. I have to say this is the most " comforting " group I'm on. I feel like everyone here is very accepting of whatever is said & not take things personally & that we can talk about our life & not strictly about autism b/c autism affects our life, period. Some of the lists locally has become " prickly " & one list actually closed b/c one mom threatened to sue the moderator (of all things! Feels like a betrayal from the ranks). So, thank you all for being such a wonderful group of parents. Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2007 Report Share Posted May 22, 2007 > > Sondra > So sorry to hear of all you have been going through. I haven't had much > time > to read or post. I want you to know that my mother was diagnosed with > lupus in > her forties. She had all the classic symptoms as well. She was on steroids > and something else for years. After about 8-10 years she was able to > gradually > go off her medicines and she is today at 79 symptom-free and she does not > take > medication. She does though watch her diet very closely, rest, and do > stress > relief activities like Yoga. So it is possible to have remission. Take > good > care of yourself, will be praying for you. > Melinda Melinda, interesting to hear that your mom was able to wean off steroids after being on it for so long. I've always thought that being on steroids was pretty drastic & the side effects would be bad. I was put on steroids for scleritis & I didn't feel well on it, even more brain foggy & just not feeling well, so am very leery of them. Sondra, I hope that you will at least find a cause for all your problems. At least with a diagnosis, it gives you a place to start with treatments & a game plan on how to feel better & improve your health. Sorry to say, but in a way it's comforting to hear that there are others with health issues so we can talk about that too & not just about our kids. We need to be healthy so we can take care of our kids, so if anyone has found anything that's helped, pls post, b/c I sure would like to know. I have to say this is the most " comforting " group I'm on. I feel like everyone here is very accepting of whatever is said & not take things personally & that we can talk about our life & not strictly about autism b/c autism affects our life, period. Some of the lists locally has become " prickly " & one list actually closed b/c one mom threatened to sue the moderator (of all things! Feels like a betrayal from the ranks). So, thank you all for being such a wonderful group of parents. Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2007 Report Share Posted May 22, 2007 Marie I to feel the same of this list- it is of a very good list and for most part a good safelist to post of thinking and words. I to belong to 13 lists most I to read daily a few only skimming and once in a while read if feel have time to respond to them. some lists I to be on do not really have any back and forth words so it gets to be of not an interest to me in that. My brain is of seeing the nice warm weather outside and want to play in that garden of me and yet know cant because need to be to rest of the body, the sad is the brain of me still wants to play but when I to get up the body of me says " no good " , and makes of me feel sick so have to go back to the laying of down. I to went out to peek at the garden and see some place this fall where I to need to transplant as some of the plants really bloomed this year and growed of ever su full and are now too big for that space and overcrowding the rest of the garden. but my poppies came into bloom this mornign for teh first time, they have of large red flowers with a black bulb like cetner . This is making me so happy my body is of shaking inside of me because love of the colors and patterns the garden is creating for me over time. I to so much like of this new hobby things. sondra In Autism_in_Girls , " Marie " wrote: > > > > > > Sondra > > So sorry to hear of all you have been going through. I haven't had much > > time > > to read or post. I want you to know that my mother was diagnosed with > > lupus in > > her forties. She had all the classic symptoms as well. She was on steroids > > and something else for years. After about 8-10 years she was able to > > gradually > > go off her medicines and she is today at 79 symptom-free and she does not > > take > > medication. She does though watch her diet very closely, rest, and do > > stress > > relief activities like Yoga. So it is possible to have remission. Take > > good > > care of yourself, will be praying for you. > > Melinda > > > > Melinda, interesting to hear that your mom was able to wean off steroids > after being on it for so long. I've always thought that being on steroids > was pretty drastic & the side effects would be bad. I was put on steroids > for scleritis & I didn't feel well on it, even more brain foggy & just not > feeling well, so am very leery of them. > > Sondra, I hope that you will at least find a cause for all your problems. > At least with a diagnosis, it gives you a place to start with treatments & a > game plan on how to feel better & improve your health. > > Sorry to say, but in a way it's comforting to hear that there are others > with health issues so we can talk about that too & not just about our kids. > We need to be healthy so we can take care of our kids, so if anyone has > found anything that's helped, pls post, b/c I sure would like to know. > > I have to say this is the most " comforting " group I'm on. I feel like > everyone here is very accepting of whatever is said & not take things > personally & that we can talk about our life & not strictly about autism b/c > autism affects our life, period. Some of the lists locally has become > " prickly " & one list actually closed b/c one mom threatened to sue the > moderator (of all things! Feels like a betrayal from the ranks). So, thank > you all for being such a wonderful group of parents. > > > Marie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2007 Report Share Posted May 22, 2007 Marie I to feel the same of this list- it is of a very good list and for most part a good safelist to post of thinking and words. I to belong to 13 lists most I to read daily a few only skimming and once in a while read if feel have time to respond to them. some lists I to be on do not really have any back and forth words so it gets to be of not an interest to me in that. My brain is of seeing the nice warm weather outside and want to play in that garden of me and yet know cant because need to be to rest of the body, the sad is the brain of me still wants to play but when I to get up the body of me says " no good " , and makes of me feel sick so have to go back to the laying of down. I to went out to peek at the garden and see some place this fall where I to need to transplant as some of the plants really bloomed this year and growed of ever su full and are now too big for that space and overcrowding the rest of the garden. but my poppies came into bloom this mornign for teh first time, they have of large red flowers with a black bulb like cetner . This is making me so happy my body is of shaking inside of me because love of the colors and patterns the garden is creating for me over time. I to so much like of this new hobby things. sondra In Autism_in_Girls , " Marie " wrote: > > > > > > Sondra > > So sorry to hear of all you have been going through. I haven't had much > > time > > to read or post. I want you to know that my mother was diagnosed with > > lupus in > > her forties. She had all the classic symptoms as well. She was on steroids > > and something else for years. After about 8-10 years she was able to > > gradually > > go off her medicines and she is today at 79 symptom-free and she does not > > take > > medication. She does though watch her diet very closely, rest, and do > > stress > > relief activities like Yoga. So it is possible to have remission. Take > > good > > care of yourself, will be praying for you. > > Melinda > > > > Melinda, interesting to hear that your mom was able to wean off steroids > after being on it for so long. I've always thought that being on steroids > was pretty drastic & the side effects would be bad. I was put on steroids > for scleritis & I didn't feel well on it, even more brain foggy & just not > feeling well, so am very leery of them. > > Sondra, I hope that you will at least find a cause for all your problems. > At least with a diagnosis, it gives you a place to start with treatments & a > game plan on how to feel better & improve your health. > > Sorry to say, but in a way it's comforting to hear that there are others > with health issues so we can talk about that too & not just about our kids. > We need to be healthy so we can take care of our kids, so if anyone has > found anything that's helped, pls post, b/c I sure would like to know. > > I have to say this is the most " comforting " group I'm on. I feel like > everyone here is very accepting of whatever is said & not take things > personally & that we can talk about our life & not strictly about autism b/c > autism affects our life, period. Some of the lists locally has become > " prickly " & one list actually closed b/c one mom threatened to sue the > moderator (of all things! Feels like a betrayal from the ranks). So, thank > you all for being such a wonderful group of parents. > > > Marie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2007 Report Share Posted May 22, 2007 Sondra, I admire you for getting poppies to grow. I think they are beautiful but I can never get them to stick around, even reseeding. I have about 10 rose bushes that are beginning to bloom. My grandmother-in-law gave me a J & P blue girl when was born, I planted it under her window. At one point I put a Mr. Lincoln, J & P also, next to it, now they are both a Mr. Lincoln color -- that naughty Mr. Lincoln! <g> I thought & Perkins roses were guaranteed to never change colors! I also have a sheer bliss, tropicana, peace, taboo, JFK, lagerfeld (sp?), and a cheep $3 k-mart rose. Funny thing is, the K-mart rose bush has been the most hardy & least trouble. I also have in the back a climber I call " Uncle Hardin " because it came from my Uncle Hardin's farm. Then my grandmother planted it, then I dug it up, had it in a pot in my apartment, the moved it to 2 other places in my back yard. You can't kill this thing!!! I'm like you, I LOVE my flowers blooming. Here in TN the iris is the state flower. My neighbor had some planted adjoining our back yard. When I first moved in there were so many you could sit on our screened back porch on a breezy day and smell them. I also have a lilac my MIL gave me a cutting from, the girls loved us cutting a bunch & putting in vases in their rooms for the smell. We also planted some blueberry bushes and a raspberry bushes. The girls so love seeing where foods come from. We have a peach tree & apple tree, but the late frost this year killed the fruits from the trees. Since Allie's diagnosis I haven't tended to my love of gardening. I used to long to be outside all day digging, but when our lives got taken over by therapy appointments I watched weeds overtake the flowers. I think this summer, even if I struggle emotionally with the overwhelming look of it all, I'm going to set a personal goal to spend time caring for my flowers. There was a study on the ABMD that there is good bacteria in dirt that can have a calming effect on the body by increasing seratonin, if I remember it correctly. I wonder if this is why pulling weeds is so therapeutic? Debi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2007 Report Share Posted May 22, 2007 Sondra, I admire you for getting poppies to grow. I think they are beautiful but I can never get them to stick around, even reseeding. I have about 10 rose bushes that are beginning to bloom. My grandmother-in-law gave me a J & P blue girl when was born, I planted it under her window. At one point I put a Mr. Lincoln, J & P also, next to it, now they are both a Mr. Lincoln color -- that naughty Mr. Lincoln! <g> I thought & Perkins roses were guaranteed to never change colors! I also have a sheer bliss, tropicana, peace, taboo, JFK, lagerfeld (sp?), and a cheep $3 k-mart rose. Funny thing is, the K-mart rose bush has been the most hardy & least trouble. I also have in the back a climber I call " Uncle Hardin " because it came from my Uncle Hardin's farm. Then my grandmother planted it, then I dug it up, had it in a pot in my apartment, the moved it to 2 other places in my back yard. You can't kill this thing!!! I'm like you, I LOVE my flowers blooming. Here in TN the iris is the state flower. My neighbor had some planted adjoining our back yard. When I first moved in there were so many you could sit on our screened back porch on a breezy day and smell them. I also have a lilac my MIL gave me a cutting from, the girls loved us cutting a bunch & putting in vases in their rooms for the smell. We also planted some blueberry bushes and a raspberry bushes. The girls so love seeing where foods come from. We have a peach tree & apple tree, but the late frost this year killed the fruits from the trees. Since Allie's diagnosis I haven't tended to my love of gardening. I used to long to be outside all day digging, but when our lives got taken over by therapy appointments I watched weeds overtake the flowers. I think this summer, even if I struggle emotionally with the overwhelming look of it all, I'm going to set a personal goal to spend time caring for my flowers. There was a study on the ABMD that there is good bacteria in dirt that can have a calming effect on the body by increasing seratonin, if I remember it correctly. I wonder if this is why pulling weeds is so therapeutic? Debi Quote Link to comment Share on other sites More sharing options...
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