Guest guest Posted April 16, 2006 Report Share Posted April 16, 2006 > > Wishing you all a joyful Easter Day. > > Hugs > Jo > Tidbits: > > Divide your weight in half to find your " approximate " daily > requirement of Protein grams. > > Another Protein requirement formula: Your weight divided by 20. Take > that answer, mutilplied by 9 equals your approx. daily protein > requirement. >******** COOL!!!! Happy Easter!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2006 Report Share Posted April 17, 2006 Sharon, How have you been? its been awhile since Ive talked to you, how are Mike and the Boys doing??? We hope everyone had agreat Easter!!! Hope to see you at the next mtg!! Steve n B-Town Ds W/Dr K, 2-15-05 pre op 350 lbs Hernia Repair/ Panni 1/26/06 Dr K Currently 200 lbs > > > > Wishing you all a joyful Easter Day. > > > > Hugs > > Jo > > Tidbits: > > > > Divide your weight in half to find your " approximate " daily > > requirement of Protein grams. > > > > Another Protein requirement formula: Your weight divided by 20. > Take > > that answer, mutilplied by 9 equals your approx. daily protein > > requirement. > >******** > COOL!!!! > > Happy Easter!! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2006 Report Share Posted April 18, 2006 > Sharon, > How have you been?its been awhile since Ive talked to you, how are Mike and the Boys doing??? We hope everyone had agreat Easter!!! Hope to see you at the next mtg!! > Steve n B-Town > Ds W/Dr K, 2-15-05 pre op 350 lbs > Hernia Repair/ Panni 1/26/06 Dr K > Currently 200 lbs *************************************** Hi Steve The boys are fine. Living large in B-town. Just had dinner last nite with one of our new daughters for her birthday. But no grandbabies yet. sigh. As for me well, I have hit a bump in the road. My iron has bottomed out - 14. should be 60-75. I have been tired for some time but always had excuses. This is the first time in over 4 years that my labs werent perfect so who knew. A good reminder for everyone tho- Even if you take all your supplementd and all your protien, things happen. I think Dr Z found the problem and after a colonoscopy, I will be having surgery to rid myself of 2 fissures and multiple hemms. Then maybe my iron will have a chance to catch up and this exhaustion will be over. This too shall pass! Hey wonderful weightloss there Steve! You weigh less than me!!!! Huge congrats! Hooe all is well with you and Tammy and your family. Hugs to all. We were at the last meeting....tap,tap,tap,..... where were you? See you at the next one. Sharon in Onyx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2006 Report Share Posted April 18, 2006 200 pounds?! Look at that weight loss! Way to go Steve! Hugs! Tracey > > > > > > Wishing you all a joyful Easter Day. > > > > > > Hugs > > > Jo > > > Tidbits: > > > > > > Divide your weight in half to find your " approximate " daily > > > requirement of Protein grams. > > > > > > Another Protein requirement formula: Your weight divided by 20. > > Take > > > that answer, mutilplied by 9 equals your approx. daily protein > > > requirement. > > >******** > > COOL!!!! > > > > Happy Easter!! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2006 Report Share Posted April 18, 2006 Tracey, Thanks a bunch for the " atta boy " Man if My back was better, no one could slow me down, but being so much healthier means the world to Me !!! Tammy and I hope you and your Family had a great Easter, and We look forward to seeing you down the road! Steve n B-Town > > > > > > > > Wishing you all a joyful Easter Day. > > > > > > > > Hugs > > > > Jo > > > > Tidbits: > > > > > > > > Divide your weight in half to find your " approximate " daily > > > > requirement of Protein grams. > > > > > > > > Another Protein requirement formula: Your weight divided by > 20. > > > Take > > > > that answer, mutilplied by 9 equals your approx. daily protein > > > > requirement. > > > >******** > > > COOL!!!! > > > > > > Happy Easter!! > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2007 Report Share Posted April 7, 2007 I am asking for your help to understand that my choice may have to be some of your choices some day but neither you nor I may have this choice in the near future. Robin I to not feel you did of wrong choice nor do I to feel it makes you less of a mom to do what you felt was of good. Many want to have ot eh child live with them forever then what happens when you age or die.... the adult child isnow grieveing, not only do they lose of their parents, but home and routine and life as they knew it now they are forced into a rapid shift of state wise care who dictates what and where you will now live and to me families who need to place shoudl do so as soon as they are able to as young adults so the new life is done in ways that youc an over see, and the adult child has a some waht sense of self and growth and adulthood as their siblings would be to move out too as they get to adult years. I to feel this is of a much betetr way to go than to let states take over without you voice and care in her life decisions and this to me is of good that you can now be a part of this huge life transition for her. Sondra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2007 Report Share Posted April 7, 2007 I am asking for your help to understand that my choice may have to be some of your choices some day but neither you nor I may have this choice in the near future. Robin I to not feel you did of wrong choice nor do I to feel it makes you less of a mom to do what you felt was of good. Many want to have ot eh child live with them forever then what happens when you age or die.... the adult child isnow grieveing, not only do they lose of their parents, but home and routine and life as they knew it now they are forced into a rapid shift of state wise care who dictates what and where you will now live and to me families who need to place shoudl do so as soon as they are able to as young adults so the new life is done in ways that youc an over see, and the adult child has a some waht sense of self and growth and adulthood as their siblings would be to move out too as they get to adult years. I to feel this is of a much betetr way to go than to let states take over without you voice and care in her life decisions and this to me is of good that you can now be a part of this huge life transition for her. Sondra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2007 Report Share Posted April 7, 2007 Happy Easter and thank you I have a 2.5 yr old autistic daughter and we are just beginning to learn with her and through her and her helpful programs Love Sandria > > I have not posted on this group for a while. I have a 23 year old > daughter with severe autism. She was verbal and bright until her > regression began at age 2.5 and continued until her last word was > heard at age 5. As the old lady here I can tell you that in order to > move the ball ahead, we need to fight for all aspects of this > spectrum to be respected. There has been lots done in regard to > research, diagnosis etc but the enlargment of the " spectrum " is > making it more difficult to have all needs met. My daughter is > severely autistic and if there was a magic wand I would use it to > get her " back " . She can no longer live at home and as " beautiful " as > she is, there is no way to keep her safe in a home environment. I am > asking for your help to understand that my choice may have to be > some of your choices some day but neither you nor I may have this > choice in the near future. My daughter lives in a developmental > Center in NJ and the movement across the country is to close them. > As children get older and somethimes develop aggressive and self- > injurious behaviors that due to their adult strength and size cannot > be controlled in a typical home or group home environment, these > developmental centers provide the resources, staff, expertise and > support needed to keep our kids healthy,happy and as productive as > possible. Without this 'safety net " there will be no options for > families. The same argument that comes over inclusion for everyone > as opposed to having specialized schools and programs for those with > severe needs works here. A goal is for the " least restrictive " but > that also must include criteria for the person to " derive benefit " . > I belong to a National Organization called VOR that provides no > services and is only a grassroots advocacy organization to preserve > choice! I would love to have those on this list who may be feeling > that home placement is getting more difficult to reach out to me > separately. I am trying to find those who need the specialized and > intensive supports for their kids across the country to tell them > that they are not alone. > Happy Holidays to all. We all love our children and want them to > have full and happy lives. Robin Sims > > > -- www.youngliving.org/sldecker keeping family healthy the natural way with young living essential oils and natural suppliments!! http://health.groups.yahoo.com/group/lilpixierose a great new group for EOs. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2007 Report Share Posted April 7, 2007 Happy Easter and thank you I have a 2.5 yr old autistic daughter and we are just beginning to learn with her and through her and her helpful programs Love Sandria > > I have not posted on this group for a while. I have a 23 year old > daughter with severe autism. She was verbal and bright until her > regression began at age 2.5 and continued until her last word was > heard at age 5. As the old lady here I can tell you that in order to > move the ball ahead, we need to fight for all aspects of this > spectrum to be respected. There has been lots done in regard to > research, diagnosis etc but the enlargment of the " spectrum " is > making it more difficult to have all needs met. My daughter is > severely autistic and if there was a magic wand I would use it to > get her " back " . She can no longer live at home and as " beautiful " as > she is, there is no way to keep her safe in a home environment. I am > asking for your help to understand that my choice may have to be > some of your choices some day but neither you nor I may have this > choice in the near future. My daughter lives in a developmental > Center in NJ and the movement across the country is to close them. > As children get older and somethimes develop aggressive and self- > injurious behaviors that due to their adult strength and size cannot > be controlled in a typical home or group home environment, these > developmental centers provide the resources, staff, expertise and > support needed to keep our kids healthy,happy and as productive as > possible. Without this 'safety net " there will be no options for > families. The same argument that comes over inclusion for everyone > as opposed to having specialized schools and programs for those with > severe needs works here. A goal is for the " least restrictive " but > that also must include criteria for the person to " derive benefit " . > I belong to a National Organization called VOR that provides no > services and is only a grassroots advocacy organization to preserve > choice! I would love to have those on this list who may be feeling > that home placement is getting more difficult to reach out to me > separately. I am trying to find those who need the specialized and > intensive supports for their kids across the country to tell them > that they are not alone. > Happy Holidays to all. We all love our children and want them to > have full and happy lives. Robin Sims > > > -- www.youngliving.org/sldecker keeping family healthy the natural way with young living essential oils and natural suppliments!! http://health.groups.yahoo.com/group/lilpixierose a great new group for EOs. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2007 Report Share Posted April 8, 2007 Thank you. Now all I have to do is keep her " home " from being down sized to the point of extinction. Robin Re: Happy Easter I am asking for your help to understand that my choice may have to be some of your choices some day but neither you nor I may have this choice in the near future. Robin I to not feel you did of wrong choice nor do I to feel it makes you less of a mom to do what you felt was of good. Many want to have ot eh child live with them forever then what happens when you age or die.... the adult child isnow grieveing, not only do they lose of their parents, but home and routine and life as they knew it now they are forced into a rapid shift of state wise care who dictates what and where you will now live and to me families who need to place shoudl do so as soon as they are able to as young adults so the new life is done in ways that youc an over see, and the adult child has a some waht sense of self and growth and adulthood as their siblings would be to move out too as they get to adult years. I to feel this is of a much betetr way to go than to let states take over without you voice and care in her life decisions and this to me is of good that you can now be a part of this huge life transition for her. Sondra ________________________________________________________________________ AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2007 Report Share Posted April 8, 2007 Thank you. Now all I have to do is keep her " home " from being down sized to the point of extinction. Robin Re: Happy Easter I am asking for your help to understand that my choice may have to be some of your choices some day but neither you nor I may have this choice in the near future. Robin I to not feel you did of wrong choice nor do I to feel it makes you less of a mom to do what you felt was of good. Many want to have ot eh child live with them forever then what happens when you age or die.... the adult child isnow grieveing, not only do they lose of their parents, but home and routine and life as they knew it now they are forced into a rapid shift of state wise care who dictates what and where you will now live and to me families who need to place shoudl do so as soon as they are able to as young adults so the new life is done in ways that youc an over see, and the adult child has a some waht sense of self and growth and adulthood as their siblings would be to move out too as they get to adult years. I to feel this is of a much betetr way to go than to let states take over without you voice and care in her life decisions and this to me is of good that you can now be a part of this huge life transition for her. Sondra ________________________________________________________________________ AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2007 Report Share Posted April 8, 2007 Hope your Easter was glorious! Hugs, Rhonda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2007 Report Share Posted April 9, 2007 In a message dated 4/8/07 2:13:36 PM Eastern Daylight Time, rsims23@... writes: Now all I have to do is keep her " home " from being down sized to the point of extinction. Robin it must be a difficult fight. stay strong. i hope you daughter continues to get what she needs. eric abbys dad ************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2007 Report Share Posted April 9, 2007 In a message dated 4/8/07 2:13:36 PM Eastern Daylight Time, rsims23@... writes: Now all I have to do is keep her " home " from being down sized to the point of extinction. Robin it must be a difficult fight. stay strong. i hope you daughter continues to get what she needs. eric abbys dad ************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2007 Report Share Posted April 9, 2007 Robin, Please e-mail me off list. I have a 24 year old daughter and because of the things you are talking about my husband and I built a home for her and 5 other young women with autism. I can be reached directly at info@... Ruthie Robbins Happy Easter I have not posted on this group for a while. I have a 23 year old daughter with severe autism. She was verbal and bright until her regression began at age 2.5 and continued until her last word was heard at age 5. As the old lady here I can tell you that in order to move the ball ahead, we need to fight for all aspects of this spectrum to be respected. There has been lots done in regard to research, diagnosis etc but the enlargment of the " spectrum " is making it more difficult to have all needs met. My daughter is severely autistic and if there was a magic wand I would use it to get her " back " . She can no longer live at home and as " beautiful " as she is, there is no way to keep her safe in a home environment. I am asking for your help to understand that my choice may have to be some of your choices some day but neither you nor I may have this choice in the near future. My daughter lives in a developmental Center in NJ and the movement across the country is to close them. As children get older and somethimes develop aggressive and self- injurious behaviors that due to their adult strength and size cannot be controlled in a typical home or group home environment, these developmental centers provide the resources, staff, expertise and support needed to keep our kids healthy,happy and as productive as possible. Without this 'safety net " there will be no options for families. The same argument that comes over inclusion for everyone as opposed to having specialized schools and programs for those with severe needs works here. A goal is for the " least restrictive " but that also must include criteria for the person to " derive benefit " . I belong to a National Organization called VOR that provides no services and is only a grassroots advocacy organization to preserve choice! I would love to have those on this list who may be feeling that home placement is getting more difficult to reach out to me separately. I am trying to find those who need the specialized and intensive supports for their kids across the country to tell them that they are not alone. Happy Holidays to all. We all love our children and want them to have full and happy lives. Robin Sims Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2007 Report Share Posted April 9, 2007 Robin, Please e-mail me off list. I have a 24 year old daughter and because of the things you are talking about my husband and I built a home for her and 5 other young women with autism. I can be reached directly at info@... Ruthie Robbins Happy Easter I have not posted on this group for a while. I have a 23 year old daughter with severe autism. She was verbal and bright until her regression began at age 2.5 and continued until her last word was heard at age 5. As the old lady here I can tell you that in order to move the ball ahead, we need to fight for all aspects of this spectrum to be respected. There has been lots done in regard to research, diagnosis etc but the enlargment of the " spectrum " is making it more difficult to have all needs met. My daughter is severely autistic and if there was a magic wand I would use it to get her " back " . She can no longer live at home and as " beautiful " as she is, there is no way to keep her safe in a home environment. I am asking for your help to understand that my choice may have to be some of your choices some day but neither you nor I may have this choice in the near future. My daughter lives in a developmental Center in NJ and the movement across the country is to close them. As children get older and somethimes develop aggressive and self- injurious behaviors that due to their adult strength and size cannot be controlled in a typical home or group home environment, these developmental centers provide the resources, staff, expertise and support needed to keep our kids healthy,happy and as productive as possible. Without this 'safety net " there will be no options for families. The same argument that comes over inclusion for everyone as opposed to having specialized schools and programs for those with severe needs works here. A goal is for the " least restrictive " but that also must include criteria for the person to " derive benefit " . I belong to a National Organization called VOR that provides no services and is only a grassroots advocacy organization to preserve choice! I would love to have those on this list who may be feeling that home placement is getting more difficult to reach out to me separately. I am trying to find those who need the specialized and intensive supports for their kids across the country to tell them that they are not alone. Happy Holidays to all. We all love our children and want them to have full and happy lives. Robin Sims Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2008 Report Share Posted March 23, 2008 Okay, I'm feeling much better now, sorry for the whining. I went and talked with Allie and told her that I want so badly to help her, but I just don't know how & need her to show me some how, some way, and I talked to her about other thoughts. I think she listened. Then, while I was in here, she comes in and says with a smile, " My butt hurts! " The funny thing was, she was pointing at her belly. I said, " What? " She said, " My butt hurts! " with another big grin. She came over to me and kept pointing right above her belly button. I asked if that was where it hurt, she said yes with an eager voice. God-love that child! I think she was so excited that she could tell me what was wrong that she didn't care too much about the pain. I told her I could give her medi (our word for medicine) and she took an entire oxypowder cap!!!! Last time she tried she gagged on it, so this was a big deal. I've noticed her belly looked a little distended the last couple of days & tried mixing some in her lemonade yesterday but she didn't drink it. Hopefully this capsule will be a " moving " experience! Debi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2008 Report Share Posted March 23, 2008 Debi God did be to hear you were just in overload you self so could not listen then either. but with Ali cat she may not have had the words right away to say in words what was going on. she sensed something not right but could not understand exact source of it. For me if I to get too anxious over an event it too will cause of me to have tummy aches and nausea and pains that make of me feel as if will get so sick. It is like my tummy is my anxiety gauge and feels the overload first at times. Sometimes the building up of a holiday time will cause this in me for days too because I to get so excited over it but at the same this feeling becomes pervasive in me and does not calm in me and so when the event actually happens I to react as if in pains because sensory wise I to be of that and the routine of things I to wanted did not happen in the way my brain had it set to be and thus it goes to mass chaos for me inside. Today so far things are calm here it is because for one it is of just my own family no one invited and this is of good for me. I to like it best this way, although the kids and husband like it better with a house full of peoples. For me with just family it can be of more calm and when we get around to do things we do and there is of no real rush to do things as guest might be to expect. But also if Ali came with a manual she then would not be of you ali cat because you would not have to worry of to get to know of her or learn of her ways to try to communicate and not learn how to communicate to her back. About you to get os so overloaded it is of human nature to cope for so long but each of us is of born with a limit of how long and what things we can cope. YOu had of you limit this day too. so that makes of you human. God knows of that and you did not fail of him or you daughter at all you were of expressing humanness is of all. the good is of you went back to her when calm and explained and aoplogized to her which again expresses you love for her, and when she was in her room alone it might be to have gave of her the calm she needed to discover the core of her responses this day which was her tummy hurt. she may have associated tmmy hurting with bowel movments which might hurt of her too so she communicated my butt hurts. Sondra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2008 Report Share Posted March 23, 2008 I am sorry that your day started out so bad The moods can be so hard for the whole family sometimes....and it seems to be at really important times when the meltdowns happen. I know my children are starting to notice that we are different and that we can't always do the things other families can do. The other day we were in the post office and Audrey started having a tantrum and of course we didn't know why. I tried to just ignore the stares and try to get through the line and mail the package. She was screaming and throwing herself on the ground. An elderly gentleman just looked at us and shook his head and kind of laughed at us like, that woman can't even control her onry child! When we left, my oldest was very upset and asked WHY would that guy laugh at us? It is so hard when we don't know what they want and when we can't make it better...then to have onlookers that think we can't handle our kids....argh! Hang in there and know that you aren't alone in this journey....I am so thankful that we all have each other to vent to Have a wonderful rest of the day, and hopefully her " butt " will feel better LOL. Hugs, Gwen Re: Happy Easter > Well, sorry to be a Debbie Downer, but mine has been awful so far. We > went back to Limited Too & Allie picked out another little outfit. > Friday they did Easter Eggs, last night the Easter Bunny came and we > were all getting ready. Allie started FREAKING out and screaming and > hitting. We tried out usual asking her what's wrong, told her she > could sit with mommy or class, she said mommy. I brought in a backpack > for her to put all her art stuff in so she could do her art during > service. She was screaming at her sisters, screaming and me & Craig. I > finally popped my top, ripped of my Easter suit jacket and told her to > get in her room. Of course that was after screaming at her to shut up. > I feel so bad. > > I'm so angry at God right now. I've tried to be so obedient, not > always doing such a good job, but I've tried. I'm doing every single > thing I know to do to help Allie and help our family, I've trusted in > Him, I've told others to trust in Him. And here I sit on Easter > morning, a day I love more than others to go with my family and have > church. I've prayed and asked for direction, nothing. > > If I had known Allie didn't want to go to church from the get-go, we > could have dealt with it. But she's been all excited about going here > lately & she's been going. If it was the outfit she never acted like > it. In other words, it's the communication, once again, that's the > problem. I've sat her down in front of the keyboard, she doesn't type. > I understand she may not comprehend what it is or how to express it, > but I'm only human. I don't know what more I can do. The only script > she kept screaming is, " You're gonna pay for that. " Obviously she's > mad, but I can't figure out what. It seems like with Allie it's so hit > & miss. > > There are days that she is so typical and enjoys adventures as much as > anyone, and then like a switch she doesn't want to do anything and > will make life miserable for all of us if we try. We're all eager to > shape things so that Allie's not overloaded or stressed, but at the > same time it's not fair to my other kids that everything in their life > is all about what Allie's current behavior is. > > I know these problems are nothing none of you have, again, sorry for > being such a downer on Easter morning. I know God has given me a > wonderful gift in Allie Kat, I just wish she had come with a better > instruction manual!!!!! > > Debi > > > > > ------------------------------------ > > Autism_in_Girls-subscribe > ------------------------ > Autism_in_Girls-unsubscribe@...! Groups Links > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2008 Report Share Posted March 23, 2008 I remember a several years ago at a Good Friday service when had a major meltdown (this was pre-dx). I remember it very clearly, she couldn't tell me what was wrong and she was screaming and crying. We, of course, left the very quiet service solemn service. It was a warm spring day and the windows of the santuary were open so everyone could hear her tantrum all the way to the car. Through the open windows I could hear the priest commenting, " and that is how it must have sounded on that day. " Looking back, it's a funny story but at the time it was very embarassing. It turned out she had an ear infection. has always LOVED going to church. We go to an Episcopal church and it is very rigid in structure. Perfect for my dd, you always know what's going to happen when and what to your role is in the service and they even give you a book to follow along, lol. I wish I could count on one hand how many times I've gone on overload and lost it screaming but it's been many more times than that in 's almost 15 years. I know I always come out of it feeling defeated and remorseful. But I am only human as Sondra said. I am sure am forgiven that's what this day is all about. Jesus died on the cross to forgive the world and He rose again showing us that we too will have eternal life in Him. Happy Easter. Debi wrote: Well, sorry to be a Debbie Downer, but mine has been awful so far. We went back to Limited Too & Allie picked out another little outfit. Friday they did Easter Eggs, last night the Easter Bunny came and we were all getting ready. Allie started FREAKING out and screaming and hitting. We tried out usual asking her what's wrong, told her she could sit with mommy or class, she said mommy. I brought in a backpack for her to put all her art stuff in so she could do her art during service. She was screaming at her sisters, screaming and me & Craig. I finally popped my top, ripped of my Easter suit jacket and told her to get in her room. Of course that was after screaming at her to shut up. I feel so bad. I'm so angry at God right now. I've tried to be so obedient, not always doing such a good job, but I've tried. I'm doing every single thing I know to do to help Allie and help our family, I've trusted in Him, I've told others to trust in Him. And here I sit on Easter morning, a day I love more than others to go with my family and have church. I've prayed and asked for direction, nothing. If I had known Allie didn't want to go to church from the get-go, we could have dealt with it. But she's been all excited about going here lately & she's been going. If it was the outfit she never acted like it. In other words, it's the communication, once again, that's the problem. I've sat her down in front of the keyboard, she doesn't type. I understand she may not comprehend what it is or how to express it, but I'm only human. I don't know what more I can do. The only script she kept screaming is, " You're gonna pay for that. " Obviously she's mad, but I can't figure out what. It seems like with Allie it's so hit & miss. There are days that she is so typical and enjoys adventures as much as anyone, and then like a switch she doesn't want to do anything and will make life miserable for all of us if we try. We're all eager to shape things so that Allie's not overloaded or stressed, but at the same time it's not fair to my other kids that everything in their life is all about what Allie's current behavior is. I know these problems are nothing none of you have, again, sorry for being such a downer on Easter morning. I know God has given me a wonderful gift in Allie Kat, I just wish she had come with a better instruction manual!!!!! Debi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2008 Report Share Posted March 23, 2008 Debi, Unfortunately, we went through the same stuff so many times that we finally gave up. had so many meltdowns in group settings that were structured. We tried all kinds of church settings and most of the time people were not very helpful. One time she had a terrible tantrum being watched in a childrens room and they came and got us. We were leaving with her screaming (missing sunday school) and the Pastor chases us out in the parking lot begging us to come back. And we said that there is not anyone to help us with our daughter. He goes and gets his son to work in that childrens room with her(I did not feel comfortable with this..him being a male). He even plead with the whole church during 2 services (we knew there were 3 special education teachers in the audience). No one came forth to help. Over the years, we tried and tried and never found our nitch. My hubby finally said, " If homeschool is so good, then HOMECHURCH should be just as good " . I hate that you went through all that. I feel for you but in God's eyes, no day is more important than another. Alli's tummy hurting could have happened anyday. It just so happened it was on this day. God Bless you. Shanna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2008 Report Share Posted March 23, 2008 Debi, Alyssa had a rough time at church this morning, too, Debi, and because we were in two cars (I had to be there early to rehearse w/ bell choir), DH finally took her home. An aside: She got to meet Miss America this morning while we were waiting to enter the sanctuary for the second service. My dh and I watched her grow up in our church--don't know her, though, because our paths didn't cross while she was a high schooler--my kids are much younger. I have trouble understanding why my daughter could entertain herself quietly for a DAY AND A HALF of conferences sitting with us in October and could not sit quietly through a church service that was a little over an hour long. (At the conference, which was a weekend long SibShops for the siblings, she flat out refused to go into child care because something scared her there, and she stayed with us and played with sticker books and coloring books and markers and notebooks etc the whole time.) We seem to be going through a difficult time with her right now. P. > > Well, sorry to be a Debbie Downer, but mine has been awful so far. > > Debi > Quote Link to comment Share on other sites More sharing options...
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