Guest guest Posted May 12, 2010 Report Share Posted May 12, 2010 I am currently giving my 60 lb. daughter 1/2 tsp. twice a day of Jarrow Brand powder (available at Whole Foods). My understanding is that you can give up to 3x that. Start slow and gradually increase because it can cause gas, etc. Have you seen the articles and research papers on Inositol in the files section on this site? I downloaded them and can email them if you'd like, just let me know. Kara > > Has anyone ever used inositol and how much would you give a 75 lb. child? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2010 Report Share Posted May 12, 2010 i will look for files. thanks. what does 1/2 tsp equal. i have 500mg capsules that i can open up. do you find it helps? wilma > I am currently giving my 60 lb. daughter 1/2 tsp. twice a day of Jarrow Brand powder (available at Whole Foods). My understanding is that you can give up to 3x that. Start slow and gradually increase because it can cause gas, etc. > > Have you seen the articles and research papers on Inositol in the files section on this site? I downloaded them and can email them if you'd like, just let me know. > > Kara > > > > > > Has anyone ever used inositol and how much would you give a 75 lb. child? > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2010 Report Share Posted May 12, 2010 Hi Wilma, you need to use inositol *powder*. Reason for this is that dosage is in " grams " and it takes too many tablets/capsules to swallow. The actual dosage varies per person, basically trial & error. Some kids have done well on 5-7 grams/day (not on any other medication) and my son took 13-14 grams a day; sometimes more on really bad days. So you sort of start with the least amount and then decide if you need to go up to higher dose. Brands will vary with how many grams in a teaspoon. I think most brands we tried gave the " serving " as 1/4 tsp, so multiply that by 4 to get your teaspoon dose. Cheapest to buy inositol powder online, can be real expensive in local stores and in small bottles at that! People have had success with different brands, so no particular kind. We used Source Naturals brand when took it. Believe it was 845mg per 1/4 tsp. I personally thought that brand mixed & dissolved better than others we tried. You can still not waste the capsules and start her on some, see how she adjusts to it. Quick thoughts, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2010 Report Share Posted May 12, 2010 My daughter is 84 lbs. The dr. had her start with 2000mg 2 times a day. Then after about a week... maybe 2 she increased it to 4000mg 2 times a day. My daughter prefers the capsules, but that is a lot of pills. I recommend the powder. She has pandas and I really don't think it is helping. I was told it only helps with true OCD. However, none of her doctors want to take her off of it for the time being. > > Has anyone ever used inositol and how much would you give a 75 lb. child? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2010 Report Share Posted May 12, 2010 Did you do blood work to check for PANDAS? It is caused by a virus, right? Are you not sure if you child has OCD? > My daughter is 84 lbs. The dr. had her start with 2000mg 2 times a day. Then after about a week... maybe 2 she increased it to 4000mg 2 times a day. My daughter prefers the capsules, but that is a lot of pills. I recommend the powder. She has pandas and I really don't think it is helping. I was told it only helps with true OCD. However, none of her doctors want to take her off of it for the time being. > > > > > > Has anyone ever used inositol and how much would you give a 75 lb. child? > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2010 Report Share Posted May 12, 2010 how come your child is not taking it anymore. sorry if you mentioned this already > Hi Wilma, you need to use inositol *powder*. Reason for this is that dosage is in " grams " and it takes too many tablets/capsules to swallow. > > The actual dosage varies per person, basically trial & error. Some kids have done well on 5-7 grams/day (not on any other medication) and my son took 13-14 grams a day; sometimes more on really bad days. So you sort of start with the least amount and then decide if you need to go up to higher dose. > > Brands will vary with how many grams in a teaspoon. I think most brands we tried gave the " serving " as 1/4 tsp, so multiply that by 4 to get your teaspoon dose. > > Cheapest to buy inositol powder online, can be real expensive in local stores and in small bottles at that! People have had success with different brands, so no particular kind. > > We used Source Naturals brand when took it. Believe it was 845mg per 1/4 tsp. I personally thought that brand mixed & dissolved better than others we tried. > > You can still not waste the capsules and start her on some, see how she adjusts to it. > > Quick thoughts, > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2010 Report Share Posted May 12, 2010 Wilma, he took it from 6-8th grades. It worked well. We'd gone down on dosage too, to around 1x a day. But OCD seemed to start acting up a bit, we increased back up, I dunno - lots of little things; money was tight at the time, he had insurance that would cover prescription medication, I'd always been curious as to how much would prescription medication help (inositol did soooo well, wondered what actual med would do) and he was finally willing to try prescription --- so he began on Celexa in 9th. We did try inositol again since then, even at higher dosage, but it hasn't touched his OCD this time. > > > Hi Wilma, you need to use inositol *powder*. Reason for this is that dosage is in " grams " and it takes too many tablets/capsules to swallow. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2010 Report Share Posted May 12, 2010 I wonder why it would touch it one time and not another? > Wilma, he took it from 6-8th grades. It worked well. We'd gone down on dosage too, to around 1x a day. But OCD seemed to start acting up a bit, we increased back up, I dunno - lots of little things; money was tight at the time, he had insurance that would cover prescription medication, I'd always been curious as to how much would prescription medication help (inositol did soooo well, wondered what actual med would do) and he was finally willing to try prescription --- so he began on Celexa in 9th. > > We did try inositol again since then, even at higher dosage, but it hasn't touched his OCD this time. > > > > > > > > > Hi Wilma, you need to use inositol *powder*. Reason for this is that dosage is in " grams " and it takes too many tablets/capsules to swallow. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2010 Report Share Posted May 12, 2010 > I wonder why it would touch it one time and not another? Wilma, I dunno, I have thought a lot of different things about that, but no answers. Sort of like my question of why one SSRI will work for a person and another won't help. One of my thoughts is that serotonin isn't the only " brain chemical " involved with OCD. And his OCD was different this time around. First time it was more compulsions, touching, rituals. Now it's bad thoughts, scrupulosity type. So maybe different neurotransmitters (brain chemical) involved more with it, and inositol works on serotonin. Though others with " bad thoughts " have had inositol help. SIGH! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2010 Report Share Posted May 13, 2010 It is hard for me to tell how much it's helping. We started it shortly before starting porphylactic antibiotics (we believe she has PANDAS, too). She has improved significantly, but I can't be sure whether it's the inositol, abx or both. But it makes me feel better knowing I'm covering my bases. At some point, I will stop one or the other, then I guess I'll have a better idea. For what it's worth, it seemed like her days were getting slightly better for a few days when she was only on the inositol. The 1 tsp a day in the powder we use is the equivalent of 2400mg. Kara > > i will look for files. thanks. > what does 1/2 tsp equal. i have 500mg capsules that i can open up. do you find it helps? > wilma >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2010 Report Share Posted May 13, 2010 I try to give just a little bit and this inositol makes her insomnia even worse, but it seems to help the OCD a little. Right now she takes melatonin and Magnesium for sleep, but it is not the best thing. She tosses and turns and never really seems to sleep. > It is hard for me to tell how much it's helping. We started it shortly before starting porphylactic antibiotics (we believe she has PANDAS, too). She has improved significantly, but I can't be sure whether it's the inositol, abx or both. But it makes me feel better knowing I'm covering my bases. At some point, I will stop one or the other, then I guess I'll have a better idea. For what it's worth, it seemed like her days were getting slightly better for a few days when she was only on the inositol. > > The 1 tsp a day in the powder we use is the equivalent of 2400mg. > > Kara > > > > > > i will look for files. thanks. > > what does 1/2 tsp equal. i have 500mg capsules that i can open up. do you find it helps? > > wilma > >> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2010 Report Share Posted May 13, 2010 Hi, this is the first time I've heard about inositol. A quick web search looks really promising but there seem to be no benefits to adding Inositol to an ongoing SSRI treatment. What is your experience? Best, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2010 Report Share Posted May 13, 2010 Some have shown improvement with adding inositol with taking an SSRI. Did you come across this article? http://westsuffolkpsych.homestead.com/Inositol_and_OCD.html Paragraph from it: " ..... We had a number of OCD patients, who were only getting partial relief from prescription antidepressants, so we decided to suggest the possibility of their trying inositol as an augmenting agent, in addition to what they were already taking. I should mention here that our clinic is a rather busy treatment center, and unfortunately, not really geared toward conducting research, so we really didn't collect any data on this. I know my learned colleagues will shake their heads at this, and they would be right. In any case, we started to see some positive results among some of those who tried it. In most cases, these results ranged from at least mild to moderate relief of symptoms. A few reported even more improvement. We have generally built up our patients over a six-week period, starting with 1 teaspoon (2gms) twice per day, and going as high as 3 teaspoons, three times per day. It turned out that not everyone required the full 18 grams used in the Fux study. One person was seen to improve on just 2 grams daily. " However, if your daughter recently began an SSRI, I would wait and see how that progresses, need to give it maybe 12 weeks. Also an article on medication: http://westsuffolkpsych.homestead.com/OCDmeds.html Just some thoughts, > > Hi, this is the first time I've heard about inositol. A quick web search looks really promising but there seem to be no benefits to adding Inositol to an ongoing SSRI treatment. > > What is your experience? > > Best, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2010 Report Share Posted May 18, 2010 So the inositol would work for the OCD and what is the SSRI for? Sorry, I am trying to understand all the different kinds of medications. I hope I did not ask this already. > Some have shown improvement with adding inositol with taking an SSRI. Did you come across this article? > http://westsuffolkpsych.homestead.com/Inositol_and_OCD.html > Paragraph from it: > > " ..... We had a number of OCD patients, who were only getting partial relief from prescription antidepressants, so we decided to suggest the possibility of their trying inositol as an augmenting agent, in addition to what they were already taking. I should mention here that our clinic is a rather busy treatment center, and unfortunately, not really geared toward conducting research, so we really didn't collect any data on this. I know my learned colleagues will shake their heads at this, and they would be right. In any case, we started to see some positive results among some of those who tried it. In most cases, these results ranged from at least mild to moderate relief of symptoms. A few reported even more improvement. We have generally built up our patients over a six-week period, starting with 1 teaspoon (2gms) twice per day, and going as high as 3 teaspoons, three times per day. It turned out that not everyone required the full 18 grams used in the Fux study. One person was seen to improve on just 2 grams daily. " > > However, if your daughter recently began an SSRI, I would wait and see how that progresses, need to give it maybe 12 weeks. Also an article on medication: > http://westsuffolkpsych.homestead.com/OCDmeds.html > > Just some thoughts, > > > > > > > > Hi, this is the first time I've heard about inositol. A quick web search looks really promising but there seem to be no benefits to adding Inositol to an ongoing SSRI treatment. > > > > What is your experience? > > > > Best, > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2010 Report Share Posted May 19, 2010 Wilma, the SSRI is for OCD (type prescription medication) and the inositol has worked for some people too. If a person on an SSRI adds inositol, the inositol just sort of boosts the SSRI, adds extra help, the combination has worked well for some. Although sometimes a doctor will add a 2nd medication to take with the SSRI that will boost/augment it, helps SSRI to work better if not providing enough help alone. Hope this answers your question! > > > Some have shown improvement with adding inositol with taking an SSRI. Did you come across this article? > > http://westsuffolkpsych.homestead.com/Inositol_and_OCD.html > > Paragraph from it: > > > > " ..... We had a number of OCD patients, who were only getting partial relief from prescription antidepressants, so we decided to suggest the possibility of their trying inositol as an augmenting agent, in addition to what they were already taking. I should mention here that our clinic is a rather busy treatment center, and unfortunately, not really geared toward conducting research, so we Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2010 Report Share Posted May 26, 2010 BJ. I am trying inositol and getting pretty good results during the day, but it seems to make insomnia worse. Also, where do you order the inositol from. Someone mentioned it in antoher post. Sorry I did not write it down. > ((((Heidi)))) > > It's a couple of minutes before midnight here, and I have to get a car to the shop early, so just a quick response. > > I just wanted to give you a hug. (((You))) OCD is so hard to deal with sometimes. I've been in that world where you don't know which way is up, more than once. I've cried from fear of medication too. <sigh> > > Just a few questions, then I will try to share some of our experiences tomorrow, when I get home from the repair center. . . . > > How old is your daughter? > > Have you tried anything natural first? Inositol? Native Remedies? > > How is she doing with her CBT/ERP therapy? Is she making any progress, or is her anxiety too high? > > Does the therapist think the aggressive, disrespectful behavior is OCD related? Like rigidness? > > And finally, a hard question for you to ask yourself. . But, what if the medication helped? (From one who hates using medication, but has seen it give our son his life back). > > I know it is scary. <sigh> I do understand your fears. Oh the tears I cried, in secret, when our son went on meds the first time. > > BJ > > > > > > As I am getting the kids put to bed I am totally exhausted and confused. We have had 7 sessions with my daughters psychologist now. Today he dropped a bombshell on us, that we really didn't think we would have to take seriously for a long while, if ever. Now, to be completely honest, when I log in and have over 500 emails, as wonderful as I think that is, I have to be picky about which ones I read, so I usually delete the ones I don't think I need to read about. I really hope that doesn't offend anyone. Usually the first ones I delete are the ones about medication, because we have never had her on anything and didn't plan to have her on anything, partially due to the fact that we really didn't think what was going on with her was out of control or something that we couldn't work on and deal with outside of medicine. Well, today he tells us he wants to put her on Prozac. > > > > I have to take a break for a sec. I'm gonna cry and I don't want to do that until I get her to bed....... > > > > Ok. So, he says the word Prozac and I feel my whole world drop out from under me. See, he had asked how this past week was and quite frankly, it wasn't good. The excessive bickering with her 4 year old brother was increased. Her agressive behavior (throwing things, stomping, rolling eyes, glaring at us from behind her hair, wailing and carrying on for long periods of time over a punishment, mouthing off and being really disrespectful)when she is told no to something or asked to do something she doesn't want to do was increased. The worry monster was back and the not committing to giving us a yes or no answer made it super evident. For the first time that I am aware of she was having trouble getting to sleep. Now it is possible that has been the case in the past and she is just more comfortable to come out and tell me because she knows I am so much more understanding now than I used to be, I don't know. One night I walked past her room and heard her telling her thoughts outloud to stop, so I had her take a few stuffed animals and make up a story with them until she fell asleep which seemed to work. But it was a very rough week. Now at the same time, I hear some of your stories and what we have going on is nothing by comparison. I feel like I'm in a fog right now and I really just don't know if I am fooling myself and in denial. Maybe it IS that bad and I just don't want to see it. The thing is a lot of the behavior is somewhat normal, just excesive for her. But am I minimizing it because I am trying not to blow it out of proportion? God, I just don't know! > > When he mentioned the meds he said he felt it was a compassionate thing to do, because she is not happy. That is so hard to hear when your whole mission in life is to give your children a happy, healthy childhood! I know now, though I didn't for a long time, that her unhappiness is not my fault, but it still breaks my heart. He explained to me how it worked and said we would of course start her on a very low dose. (10mg, I believe) A lot of you might not think this is a big deal, but to us this is huge. So I call my husband who is at work and right away his response is " hell no " without hearing anything that I had to say. I am frustrated because I feel like it all falls on me due to the fact that he can't come to most of the appointments and I am the forerunner in all of this. So here I am trying to explain to my husband what the Doc had told me about it and he is so worked up that it makes me feel all I am doing is defending myself and the Doc, when I am not completely on board with it yet myself! My husband is fantastic and just wants the best for our daughter, so I totally get where he is coming from. I'm just not sure what to do anymore. Then I start thinking that if she does have to go on Prozac we better not tell anyone in the family because we would be begging to be torn apart by everyone and their " opinions " . > > My next thought is that maybe we should exhaust all other avenues first. Maybe we should push to go see that autism specialist in case there is Aspergers going on. Maybe we should have her tested for food allergies or nutritional deficiencies. Have we really done enough to figure this out before medicating her? I'm just scared and want to do what is best for her and right now I don't even feel like I know which way is up. > > Thanks for " listening " ! > > > > Heidi - WA > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2010 Report Share Posted May 26, 2010 We don't use Inositol. We tried it, but unfortunately, it didn't have any effect, other than an upset, gassy tummy, and some diarrhea. So our son is on Celexa. It is always worth trying it first though. Glad it is working for you. Are you doing anything for the insomnia? Did it start just since starting the inositol? Have you tried Benadryl or Melatonin? Start a new post and ask others where they get it online, putting that in subject line. I'm sure you will get some helpful information from those who use it. ) BJ > > BJ. I am trying inositol and getting pretty good results during the day, but it seems to make insomnia worse. Also, where do you order the inositol from. Someone mentioned it in antoher post. Sorry I did not write it down. Quote Link to comment Share on other sites More sharing options...
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