Guest guest Posted February 10, 2002 Report Share Posted February 10, 2002 I find that Neurontin cured my sinus-migraine headaches. I was already taking it for mood, and my dose was increased with a morning capsule when I was diagnosed with it. I was given the same medicine you were taking, originally, but it only made me sleep all day, and wake up with a headache. headaches has anyone tried a med that works for tension headaches? i'd been taking butalbital compound (brand name fiorinol, i think). i'm now finding that's no longer working. i find myself bedridden on the days the headaches happen, and they're happening w/ greater frequency. suggestions? joni Reality is a nice place, but I wouldn't want to live there. _________________________________________________________________ Send and receive Hotmail on your mobile device: http://mobile.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2002 Report Share Posted February 10, 2002 Joni, Please contact me off the list if you want to discuss this; I have taken fiorinal for 15 yrs and have been given a system by a headache clinic that may help you... I have several questions, though, and your situation may not make this system workable for you.. - ===== The elevator to success is out of order. You'll have to use the stairs... one step at a time. - Joe Girard __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2002 Report Share Posted February 11, 2002 Joni, As a matter of fact that's one of the meds I take for headaches. It's not working very well for me either any more. I was flat out yesterday between my back and what turned into a migraine. Finally used the Imitrex but still have the headache today. I'm going into my doc soon to see about something else to use. Maybe I've built up a tolerance to that medication because I've used it for so long? Kathleen in Calif. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2002 Report Share Posted February 11, 2002 Would it be possible to share this information on list? I know that I would be interested. Aubergine, who formerly [pre serious internal bleeding] took Fiorinal for headaches... AOL IM: ShadoCrone MSN MS: Shadow_Crone YM: shadowcrone ICQ#: 11443880 Wildly Insightful & Talented Crone with a Harley -----Original Message----- Joni, Please contact me off the list if you want to discuss this; I have taken fiorinal for 15 yrs and have been given a system by a headache clinic that may help you... I have several questions, though, and your situation may not make this system workable for you.. --- Outgoing mail is certified Virus Free. Checked by AVG anti-virus system (http://www.grisoft.com). Version: 6.0.317 / Virus Database: 176 - Release Date: 21/Jan/02 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2006 Report Share Posted January 2, 2006 I have found that even though your blood work looks ok does not mean that you feel OK......this has happened to me quite frequently. Have you started any new meds recently that might be giving you the headaches? You should really consult with your Doc about them. Hugs, Carey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2006 Report Share Posted January 2, 2006 Is it a headache or a migraine, that would be a good place to start. I get migraines, a lot. I take 5-HTP, which I get at Vitamin world, or another place similar. It is a vitamin supplemental thing, but not in a bad way. It has said to help with migraines and depression, for me it definitely does. It is also supposed to help you try to reach the REM cycle during sleep. I also was prescribed Midrin to take once I feel the migraine coming on. I was also put on Inderal LA, which is a BP med, decreasing BP and HR, " thinning " blood so it doesn't pound in my head as often, decreasing the migraines. It too has worked. There are a lot of reasons for headaches and migraines. Try to find the root of the problem. Good luck, and keep pushing them to help you! Love Always, ________________________________ From: Stillsdisease on behalf of Brett Sent: Mon 1/2/2006 6:30 PM To: stillsdisease Subject: Headaches The last several days my headaches have becoming more frequent & severe. The pain meds. don't seem to help much so I was wondering if anybody had a home remedy or witches brew - anything I'm desperate! Also the last time I talk to my RD she told my blood work looked perfect. Does that mean I should not be experiencing pain. At the time of the blood work I was on 50mg of pred. and now I am on 45mg. I would appreciate all advise. thanks, Brett Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2006 Report Share Posted January 2, 2006 He Brett.......I can relate to many of the problems that this disease bestows us, but headaches are the most devastating part of it for me. While I have yet to have a Doctor fully agree that the headaches are a part of Stills, I never had them until this all started and it was one of my most prominent symptoms. I woke up @ 3:30 AM one morning with a 105 fever, severe, uncontrollable shaking/chills, unable to speak due to my throat and a headache that felt like it was pushing my eyes straight out of their sockets and making me wish I would just die. I have had these headaches ever since, and I rarely go more than a few days without one. They will last for weeks, with my longest lasting 29 days. The headaches are simple to describe, as they 1) feel like my eyes are being physically pushed out 2) are always consistent, meaning they don't " pulse " , " throb " or any other " catch phrase " for typical migraines 3) do not make me sensitive to sound or light or cause me to lose my appetite 4) start without warning and are always in the exact,same space. I have seen 4 or 5 Neurologists, have had around a dozen MRI's (at four different facilities) and numerous CT scans. I have also had an EEG. Everything comes back " normal " , whatever that means. I did have a severe sinus infection last winter/spring, but all that did was add to the " areas " of my head that were emitting brutal pain. I also have a " spot " that showed up on an MRI (12/04) that wasn't present on the MRI(s) I had prior to that. For a while they gave me an MS scare but that seems to have been resolved and they say I don't have MS. That is the only positive news I have ever received regarding my headaches. I have been hospitalized countless times since this started for me and in each & every case a BRUTAL headache was always one of my most debilitating symptoms. When I have the headaches that severe, the only thing that helps is Dilaudid, and they wind up having to give me a shot every 3-4 hours............ and that only takes the level down from a " 10 " to maybe a " 6 or 7 " . The only thing that truly eliminates these ******* is time, but they always come back. Lately (last 3 weeks) I have had a moderate headache that thankfully hasn't worsened, but it won't tone down either. I always seem to do worse with these in the winter, as they amazingly don't occur anywhere near as often in the summer. Well, hope your headache goes away and doesn't return. Kirk Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2006 Report Share Posted January 3, 2006 Brett, Have you made any drug changes or changed doses recently? Do you always have headaches? Drugs can make me have headaches, so can my blood sugar levels, my fever elevations and chlorine. When I stopped drinking clorinated water, sitting in hot tubs of water and taking long showers, I felt a lot better. I still stay away from the chlorine and despite it being a pain in the neck, I don't have many headaches any more. Who knew? MTX gave me massive headaches, so bad my own breathing was too loud and made me nauseous. Too much light will also give me headaches, my sinuses, clenching my teeth, you name it. Everything goes " to my head " so to speak. It's the first place I feel a reaction. Make sure you speak to your doctors and let them know. It could be a sign of something serious. Ice on my head, hot water bottle on my feet usuall helps, along with a towel rolled up behing my neck. Small one, not huge. Don't want to interfer with the natural curvature of the cervical spine, just support it a bit. So, while you are towelled, iced and hot packed, some dark and quiet also seems beneficial for me and if I go to sleep, great. Smiles, Caroline > The last several days my headaches have becoming more frequent & > severe. (Beautiful Southern Oregon, USA) We may not be able to change the direction of the wind, but we can adjust our sails. May you have enough happiness to make you kind, enough trials to make you strong, enough sorrow to keep you human, enough hope to make you happy. --------------------------------- Yahoo! Shopping Find Great Deals on Holiday Gifts at Yahoo! Shopping Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2006 Report Share Posted May 3, 2006 last week I went about 4 days without drinking any raw goat milk and my headaches started to come back. Guess I'll keep drinking raw milk for now. Quote Link to comment Share on other sites More sharing options...
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