Re: Hello to Everyone...I'm a Newbie

[Guest guest]

Sharon Fielding ribbon54sews@...

Hello {{{{{{{Lyn}}}}}}}}} smile

Every one here will help you when you're hurting...and when you smile

Remember we each have a stronger will, and I know you do!

Sharon

Lyn <skybluetn@...> wrote:

Hello,

My name is Lyn and I live in the Nashville, TN area. I was

diagnosed 3 yrs ago with Palidromic Rheumatism. I was on Plaquenil

for a few months and my Rheumatologist retired. When I was then

transferred to a different Rheumy he decided I didn't have PR and

that I have only Fibromyaligia and took me off Plaquenil. I lost my

insurance so for 3 yrs I just suffered. Even though I'm on some

powerful pain meds (I've also had 2 spine surgeries including a

L4/L5 fusion with hardware) so I suffer with Osteoarthritis and

damaged nerves etc - all this causes chronic pain. I still continued

to have problems with redness swelling and feeling like I had the

flu. My current Primary Care Physcian continued to run my blood

test to keep an eye on everything. I also have Hypothyroidism,

GERD, Hypertension, Degenerative Disc Disease in both my lumber

spine & neck, just to name a few. I'm only 49 yrs old but

sometimes have the energy and physcial stamina of an 80 yr old.

Three years ago my RA factor was negative and my ANA was positive.

Thus the Diagnosis of PR. In Jan of this year my blood work came

back with a SED rate of 57, RA factor positive (48) and ANA

negative. With my hands swelling and my knuckles on both hands

being very red and swollen and stiff....and of course the morning

stiffness problem, my NEW Rheumy diagnosed me with full blown

Rheumatoid Arthritis. My mother also has RA, she found out when she

was 60....she will be 70 in November so she's been suffering with it

for 10 yrs. Unfortunately, I have found out at 49.....it's not good

news for sure.

I have a lot of the nodules....mainly in my right arm, my left leg

above my knee and several in my feet! My Rheumy says that the xrays

show some damage to my hands that is irreversable but that we should

be able to slow down it's progress with Methotrexate. I currently

take 6 pills on Friday night before bed. The first couple of weeks

I was so nauseous on Saturday that I could barely hold my head up

off the pillow.....now it's not that bad and I just take Phenergan

along with MTX and it works fine.

Ok...that's my story in as much of a nutshell as I can get it for

now. I was glad to find this group and hope that I can not only

share some stories, but also learn from everyone on here.

Thanks!

Lyn

[Guest guest]

---well hello

what a story

just a thought have you ever looked at spiritual/reiki healing if

not you would do well tyo have a look at those therpaies

p

In , " Lyn " <skybluetn@...> wrote:

>

> Hello,

>

> My name is Lyn and I live in the Nashville, TN area. I was

> diagnosed 3 yrs ago with Palidromic Rheumatism. I was on

Plaquenil

> for a few months and my Rheumatologist retired. When I was then

> transferred to a different Rheumy he decided I didn't have PR and

> that I have only Fibromyaligia and took me off Plaquenil. I lost

my

> insurance so for 3 yrs I just suffered. Even though I'm on some

> powerful pain meds (I've also had 2 spine surgeries including a

> L4/L5 fusion with hardware) so I suffer with Osteoarthritis and

> damaged nerves etc - all this causes chronic pain. I still

continued

> to have problems with redness swelling and feeling like I had the

> flu. My current Primary Care Physcian continued to run my blood

> test to keep an eye on everything. I also have Hypothyroidism,

> GERD, Hypertension, Degenerative Disc Disease in both my lumber

> spine & neck, just to name a few. I'm only 49 yrs old but

> sometimes have the energy and physcial stamina of an 80 yr old.

>

> Three years ago my RA factor was negative and my ANA was

positive.

> Thus the Diagnosis of PR. In Jan of this year my blood work came

> back with a SED rate of 57, RA factor positive (48) and ANA

> negative. With my hands swelling and my knuckles on both hands

> being very red and swollen and stiff....and of course the morning

> stiffness problem, my NEW Rheumy diagnosed me with full blown

> Rheumatoid Arthritis. My mother also has RA, she found out when

she

> was 60....she will be 70 in November so she's been suffering with

it

> for 10 yrs. Unfortunately, I have found out at 49.....it's not

good

> news for sure.

>

> I have a lot of the nodules....mainly in my right arm, my left leg

> above my knee and several in my feet! My Rheumy says that the

xrays

> show some damage to my hands that is irreversable but that we

should

> be able to slow down it's progress with Methotrexate. I currently

> take 6 pills on Friday night before bed. The first couple of

weeks

> I was so nauseous on Saturday that I could barely hold my head up

> off the pillow.....now it's not that bad and I just take Phenergan

> along with MTX and it works fine.

>

> Ok...that's my story in as much of a nutshell as I can get it for

> now. I was glad to find this group and hope that I can not only

> share some stories, but also learn from everyone on here.

>

> Thanks!

> Lyn

>