~~~Eye appt today

[Guest guest]

Hi all,

We just got back from Jenna's eye appt today and she needs

glasses and they are patching her right eye. They said she is far-sighted and

that they fear she will lose sight in her l;eft eye if she doesn't start using

it more. How many of our kids have sight problems? I noticed in the yahoo photo

album that a lot of them wear glasses already. How young were your kids when

glasses were prescribed? How well do infants keep glasses on? I will be curious

to find out how Jenna does with a patch on her eye AND glasses on. Poor little

baby girl. Also, I got chromosome testing results back and they said it came

back normal. I talked with her neurologist yesterday and asked him about the

infantile spasms and he told me that usually if a child has IS, the EEG shows

different results than what Jenna's showed. Hers showed " sharp waves " and I

can't remember what he said the IS showed. Does that make sense to you Chris??

He also told me to record (write down) all " episodes " that she has and I think

and I are going to get a camcorder to try to record her in action. I'll

tell you all something....I am a nervous wreck with her right now. don't know

if I should leave her alone for even a second or keep doing what we always have

with her. I am a freak with this but I just don't know how to " be " right now.

How did you all handle it? Oh yeah, and in regards to meds....when you go out,

do you just take their meds in the bottles or do you have a special thing to put

meds in?? Does that even make sense??? I have no clue. Sorry for so many

questions....any help would be helpful!

~ & Jenna Leigh~10 months with PMG

Enjoy life...live rule #62!!