What Kind of seizure is this? 's doing something different

[Guest guest]

has always had myoclonic jerks. SHort and breif only a sudden jerk.

That changed a week ago into jerks, cries then jerks.

Today he had a jerk but he held it. His whole body was stiff for about five

seconds then he let go and he was very limp (scary he was so limp) after that

he had what looked like split second shocks , two of them.

We called the neuro and have upped his Keppra. He hasn't had another one since

this one around lunch today.

He's also been having " shivers " after the usual myoclonic with teeth chattering

afterwards with is also new.

every time we called the neuro our instructions are to increase meds.

He didnt turn red or blue when he was holding the jerk but it didn't look like

he was breathing and when he finally went limp he was almost asleep but was

crying.

We are definatly going to see the Neuro on Monday if it happens again. We have

handled the jerks very good but I don't think we will be very good at handling

it when he has " the big one " and loses consciousness like what almost happened

today.

We are going to see the neuro but I would like some of your input on this.

Charlottes

http://littleoddyssey.blogspot.com/ Age 2 years to present:

http://babiesonline.com/babies/m/matthewsothercribb/ Age 4 mos. to 2 years

http://www.babiesonline.com/babies/m/matthewscrib/

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[Guest guest]

It sounds like a tonic seizure. They are NASTY. Crystal experiences at least

one of those a day. She'll stiffen up then she'll jerk. It's not pretty &

she cries while it's happening. It scares the bejesus out of her. We tried

Keppra briefly, but it didn't do much to help her. She has been through

pretty much every seizure med there is < sigh >...

Take care all...

Give great big {{{ HUGS & KISSES }}} for us.

& My Angelboo, Crystal Aquielle

[Guest guest]

Have to agree with here. also has these (about 1 a day at the

moment) and we have been told they are tonic seizures. Sometimes

screams through them, other times we lose him altogether. They whack him

out completely and as they can last over 10 mins we sometimes have to

administer rectal diazepam. We have just added Tegretol to 's topomax

and for a week (a whole week!) did not see one - but he has now had them for

the past three days. Everytime we think we're getting somewhere they

return - I know that's not a terribly original thing to be saying on this

site, but oh lordy it's hard to stay positive when he keeps being knocked

back like this.

Take care

, and all the Ridley Boys

RE: What Kind of seizure is this? 's

doing something different

It sounds like a tonic seizure. They are NASTY. Crystal experiences at least

one of those a day. She'll stiffen up then she'll jerk. It's not pretty &

she cries while it's happening. It scares the bejesus out of her. We tried

Keppra briefly, but it didn't do much to help her. She has been through

pretty much every seizure med there is < sigh >...

Take care all...

Give great big {{{ HUGS & KISSES }}} for us.

& My Angelboo, Crystal Aquielle

[Guest guest]

,

I feel the same as you. Just when you think things are going well with the

seizure control along comes some more.

We've been battling seizures for quite some time now.

My son is going to the neurologist tomorrow for a check up once again. I

will have to report that nope, there still there.

I do have a questions for all the parents that deal with seizures.

Trevor had some break through seizures when we were trying to wean

him off the Trileptal leaving him soley on Lamictal. The seizures he had

caused him to bring his left arm up to his side with his hand closed. He is

still doing this and its been close to 2 months since all of those seizures

back around Thanksgiving. He still has about a seizure a week(that I know

of). He did not do this before this bout of seizures. I wonder if he had

some

kind of damage to his motor planning. He did start having tremors in his

hands about 5 yrs ago when he went status for 4 hours.

Has anyone else had something like this happen to their child?

Just trying to find out others that might have had this happen to them.

Thanks,

Donna(mom to Trevor, 9 years old PMG and BPNH, Agenesis of the corpus

callosum, hydrocheylus and cyst on brain stem(new shunt placed 5/13/04),

panhypopititurism, seizure disorder, Optic Nerve Hypoplasia, Cortical visual

Impairment

St. 's, Georgia