Guest guest Posted December 22, 2004 Report Share Posted December 22, 2004 Hi I am a new member and have just seen the November mails (message 13343 etc)on UK sufferers My grandson has PMG (bilateral perisylvian PMG). We live in south-west London, and our daughter and son-in-law live nearby. Josua is three and half years old, cannot stand unaided or talk and suffers from poor motor skills. But on the positive side this year he has mastered crawling on all fours and feeding himmself. He attends a local special school in the mornings - they are excellent. He attends a clinic at a medical charity in Cheshire,Brain Injury Rehabilitation and Development who specialise in brain damage of various sorts. No, we are not talking miracle cures but they have a programme of exercises that can often help make improvements, but (and there is a " but " ) the cost is high in committment. The exercises take about 30 minutes every night, and can continue for 2 years plus. This is a heavy load. But we are pleased with the changes we have seen in his weakest hand, and a general straightening of his body. If anyone is interested see their website www.b-i-r- d.org.uk Best wishes to all sufferers and carers. I have seen some of teh difficulties you face Quote Link to comment Share on other sites More sharing options...
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