Guest guest Posted June 19, 2003 Report Share Posted June 19, 2003 and Dianne, welcome to our group. More Aussies to add to our number. I live in Ringwood and used to see our daughter's neuro at MMC also. Her name is Ingrid Scheffer, paed epileptologist, and she worked very well with our family. Our third child, Hannah, was dx'd with PMG at 4 months of age. She had numerous disabilities, including uncontrolled seizures, dev delays, etc. Her paed was Doug Bristow in Box Hill. Unfortunately Hannah died with pneumonia last October, while in RCH for a broken leg, but I have remained in this email group because of the wonderful friendship and support that it offers, and because I feel that my experience with Hannah has given me so much to share with others who walk a similar road. Please feel free to contact me privately at gkrbh@... or via this group, if you have any questions or if you just feel like having a chat. kind regards Canavan - Melbourne, Australia; mum to angel Hannah (wings 30/10/02, 5y 9m), Ben 11yrs, & 14 yrs Quote Link to comment Share on other sites More sharing options...
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