Re: Intro

[Guest guest]

Welcome, Eileen,

I read your post with much interest, as my son is also 21 and

was just diagnosed with PMG 3 years ago. At that time he had his

first brain MRI and we sent the x-rays to Dr. Dobyns, who confirmed

the PMG. sounds a lot like your , he is severely

involved, and had CP as his original dx. I would love to compare

notes sometime. . .

Carlene, mom to , 21, PMG, , 18, and 15.

> Good Morning,

> I haven't introduced myself, although I've read posts for the past

while.

>

> I'm Eileen, and have a son . He just turned 21 in March,

and I

> just found out that he has polymicrogyria.

> How's that possible you ask?? Well, from birth, was

said to have

> microcephaly, with cerebral palsy being the main 'symptom'. We live

in

> Alberta, Canada. A small rural community, and about 2hrs from a

city

> hospital. WAY back then, we didn't have the support groups that are

on the

> internet now, so all the info that flows now, just wasn't around

then.

> only started having fullblown seizures when he was

about 16,

> although looking at videos of him in early years of school, you can

see when

> he's having absent seizures, although at the time, we had NO clue

they were

> seizures.

> I don't want this to be a book......we found out that

has

> schizencephaly when he was 18, and then I had his records sent to

Harvard

> University, where they are doing a study of schiz, and I got the

report back

> from them about his brain. Not that I understand the big words, but

one of

> them was polymicrogryria, which is why I'm here.

> So that's it in a nutshell, I guess. does not walk,

talk and is

> quite severly handicapped. He is my joy, though.....he has smiles

like you

> wouldn't believe. He goes to bed with a smile and wakes up with one.

>

> So I look forward getting to know you folks. If I can help with

anything,

> ask away! it may be a few days before I get back to you, but I will.

>

> have a super saturday!

>

> eileen

>

> -- File - roll call.txt

>

>

> Hi Everyone - old and new!

>

> It's ROLL CALL time again. We have a wonderfully friendly,

supportive,

> informative and helpful group of folks here. So let's take a roll

call once

> a month to get know each other better. It's completely optional but

it is

> strongly encouraged that everyone participate. Knowing each other

is what

> makes this support group work! It can be a long or short

> introduction/re-introduction with a little about what's going on

with you -

> really anything goes, just speak up!

>

> This email is set up to go out automatically around the first of

each month,

> so be ready and beware.

>

> Remember, there is a PMG Members Roster located at the website in

the

> database area http://groups.yahoo.com/group/polymicrogyria/database

and a

> calendar to add your child's birthday. Feel free to add or update

your

> information.

>

>

>

[Guest guest]

Hello Eileen and welcome to the group,

I am glad that you found the group as I am sure you have much to offer in terms

of experience. It is nice to hear from parents of older children, it is very

encouraging. Hope to hear more from you and your son soon.

Harriet

[Guest guest]

Hi, Janet, I'm over by Sacramento in the

foothills.

~*~*~*~*~*~*~*~*~*~

Canfield

Well done is better than well said.

Look unto me, and be ye saved, all the ends of the earth: for I am God,

and there is none else. ~Isaiah 45:22

[Guest guest]

-Amber,

I don't really know where Moose Creek is, but I have a friend in

Alaska who just bought a cow share in the Wasilla area. Is that

anywhere close to you? She also found a couple of places that do

goat shares.

-- In RawDairy , Amber Seaman wrote:

>

> my name is amber, married 10yrs to michael with 3 dc S5, T2 and

> R5months. we reside in alaska and are currently fixing our " fixer

> upper " and intend to purchase goats in the (hopefully) near

future.

> until then wed like to find a raw milk source in the north pole

moose

> creek area.

>

> God bless,

> amber

>

> Nothing screams poor workmanship more than wrinkles in the duct

tape

>

[Guest guest]

Hi Kim,

You can buy ph Glenmullen's book, The Antidepressant Solution, which is a guide for tapering off meds safely and effectively for a $1 on Amazon.com. It might not say anything more than you already know but if you are interested here's a link:

http://www.amazon.com/Antidepressant-Solution-M-D-ph-Glenmullen/dp/0739455362/ref=sr_1_5?ie=UTF8 & s=books & qid=1235932203 & sr=1-5

Kavy

>> > > Have been on SSRI's for almost 10 years now. I hate it and have tried to get off a bunch of times unsuccessfully. There is my life before SSRI and after SSRI. Weight gain has been horrible. I used to be 105 and put on 40 pounds the first 6 months on meds, also the ability to have an orgasm was none, not even a little bit. After switching from Paxil to Prozac, I put on more weight but and able to have an orgasm now but delayed and takes a while. Also feel like I have had a frontal lobotomy, my feelings are so different than what they used to be in all aspects.> > I joined a class action Paxil lawsuit and won enough money to quit my job for about 6 months and go off the meds since it make me so very sick. The result of the lawsuit was that they put on the labels about discontinuing the meds. > > I was thinking of trying a switch in meds to a lower dose of something else or can I wean myself off and start something like st johns wort?> Even tapering in the smallest amounts makes me ill and I have trouble working. I do not want to quit my job to go off the meds because work is difficult to come by. There is an enzyme I believe called cyp450 that cause some to have more difficulties than others coming off of antidepressants. I have only read a little about this, need to learn if there is any truth to this....Kim>

[Guest guest]

Perhaps this might be of help.

"The Right Way to Wean Off an (SSRI/SNRI/SSNRI) antidepressant How should I taper off and how long should I take to taper off?Work closely with a doctor. Don't go off medication without medical supervision. The best way to minimize withdrawal side effects is to wean off the medication. By reducing the dosage in small increments, your serotonergic system can gradually take over it's own natural serotonin producing activity and slowly adapt to living without the drug. This process may take up to a year or longer. Some doctors are halving the dose every week or two. We do not recommend to taper off that fast. Nor do we recommend to skip daily doses. Taper gradually with an absolute maximum of 5% per week. When it gets down to the smallest dose, (10mg capsule), you can try "The Orange Juice Bit", "Cutting Tablets" or "Oral Suspensions-Liquid Preparations":

"Orange Juice Bit" pour a glass of orange juice pull apart the capsule and stir into the orange juice drink 9/10 of it and repeat this every day until the 7th day the next week drink 8/10 of it until the 14th day, then 7/10 until the 21th day, 6/10 until the 28th day, and so on... repeat the "orange juice bit" several weeks until you've totally come off your (SSRI) antidepressant...

Never ever use Grapefruit Juice. Grapefruit juice is an inhibitor of the cytochrome P-450 enzymes. These enzymes are known to metabolize (break down) (SSRI) antidepressants in the liver. Drinking grapefruit juice whilst you are taking an (SSRI) antidepressant can create a serious toxic reaction, because the chemical ingredient will build to toxic levels in the bloodstream! For more information click here.

"Cutting Tablets"If you don't take capsules but tablets, you can try to chip smaller doses off the tablets. Unfortunately this is a very uneasy task. You could order a pill cutter or pill splitter at your local pharmacist to facilitate this procedure. Pill-cutters aren't that expensive.

"Oral Suspensions-Liquid Preparations"A much better way to wean off when it gets down to the smallest dose is simply to turn to your doctor who can provide you a liquid preparation (oral suspension-10 mg./5 ml.) of Paxil, Prozac or Zoloft and possibly more liquid versions of other SSRI's. Most people don't know about it, or don't consider it because it's supposedly for kids. It's very easy to use and more reliable then chopping up tablets. Ask your doctor for it !

Take notice that even this process of slowly tapering off could be too fast for you to avoid withdrawal reactions or other serotonin related side-effects. This will be different for every individual."

>> Hi,> I cant believe I found this group!> I was on prozac for about six years and went off cause of the side effects> > i requested wellbutrin which made no difference except i lost weight (which > was great), and my hair started falling out (not so great)> > now i am on nothing and i'm wondering if there is any way (preferably > natural) that allows us to correct the permenent damage done in our brains?> > i'm stinking mad about the entire thing... has any group ever sued the > makers?> > anywho, nice to meet you all> Joy> > _________________________________________________________________> Powerful Parental Controls Let your child discover the best the Internet has > to offer. > http://join.msn.com/?pgmarket=en-ca & page=byoa/prem & xAPID=1994 & DI=1034 & SU=http://hotmail.com/enca & HL=Market_MSNIS_Taglines > Start enjoying all the benefits of MSN® Premium right now and get the > first two months FREE*.>

[Guest guest]

Hello, .

Besides malpractice insurance, you also need general business insurance. This protects your assets if you put your bag down in someone's home and their older child comes running through the room, catches his foot in the strap of your bag, falls and breaks an arm. Or, if you have a home office like I do, if someone trips coming up the step into the house, homeowner's won't cover their medical care because they were there on business, not a guest in your home. And your malpractice insurance doesn't cover this type of situation.

If you incorporate as either a C-Corp or an S-Corp, you protect your family's assets. In other words, if someone decides to sue you for battery or giving advice that was harmful, or whatever, if you are incorporated, they can only win the assets of the company. If you are not incorporated, they can win your retirement account, force you to sell your home and turn over the proceeds to them, etc., etc. For myself, I wasn't willing to risk not having a roof over my kids' heads in order to do the work I love, so I incorporated.

Dee Kassing

Subject: IntroTo: Date: Wednesday, November 2, 2011, 10:58 AM

Hi, I am a new IBCLC, just found out I passed on Friday. I have been an LLLL for 10 years and worked as a WIC BFPC for 2.5 years (became a CLC with them). I am planning on starting a pp, and am gathering information on how to do that. I have 4 kids ages 13, 10, 7, and 3. I have been reading about malpractice insurance and what type of business to become. I was wondering how common it is for a pplc to be sued? I plan on getting insurance anyway, even if it is uncommon. Also it seems a lot of lc's become corporations. My husband and I had a business that was a corporation years ago, and I would prefer to keep this more simple. However I want to make the best choice. I do not plan on borrowing money, so I don't need the protection that way. What has worked for others and why? HessellQuad Cities-Illinois

[Guest guest]

Dee, did you do the incorporation process by yourself, or did you need the help of a lawyer?Lynn in MO

 

Hello, .

    Besides malpractice insurance, you also need general business insurance.  This protects your assets if you put your bag down in someone's home and their older child comes running through the room, catches his foot in the strap of your bag, falls and breaks  an arm.  Or, if you have a home office like I do, if someone trips coming up the step into the house, homeowner's won't cover their medical care because they were there on business, not a guest in your home.  And your malpractice insurance doesn't cover this type of situation.

    If you incorporate as either a C-Corp or an S-Corp, you protect your family's assets.  In other words, if someone decides to sue you for battery or giving advice that was harmful, or whatever, if you are incorporated, they can only win the assets of the company.  If you are not incorporated, they can win your retirement account, force you to sell your home and turn over the proceeds to them, etc., etc.  For myself, I wasn't willing to risk not having a roof over my kids' heads in order to do the work I love, so I incorporated.

    Dee Kassing

Subject: IntroTo:

Date: Wednesday, November 2, 2011, 10:58 AM

 

Hi, I am a new IBCLC, just found out I passed on Friday. I have been an LLLL for 10 years and worked as a WIC BFPC for 2.5 years (became a CLC with them). I am planning on starting a pp, and am gathering information on how to do that. I have 4 kids ages 13, 10, 7, and 3.

I have been reading about malpractice insurance and what type of business to become. I was wondering how common it is for a pplc to be sued? I plan on getting insurance anyway, even if it is uncommon. Also it seems a lot of lc's become corporations. My husband and I had a business that was a corporation years ago, and I would prefer to keep this more simple. However I want to make the best choice. I do not plan on borrowing money, so I don't need the protection that way. What has worked for others and why?

HessellQuad Cities-Illinois

[Guest guest]

Not a lawyer. Used a CPA. That was cheaper than a lawyer, though that might have been because I was referred to him by an office of the Small Business Association that is on a local college campus. See if there is an SBA office near you who might have local people they work with who offer a discount to start-ups.

Dee Kassing

Subject: IntroTo: Date: Wednesday, November 2, 2011, 10:58 AM

Hi, I am a new IBCLC, just found out I passed on Friday. I have been an LLLL for 10 years and worked as a WIC BFPC for 2.5 years (became a CLC with them). I am planning on starting a pp, and am gathering information on how to do that. I have 4 kids ages 13, 10, 7, and 3. I have been reading about malpractice insurance and what type of business to become. I was wondering how common it is for a pplc to be sued? I plan on getting insurance anyway, even if it is uncommon. Also it seems a lot of lc's become corporations. My husband and I had a business that was a corporation years ago, and I would prefer to keep this more simple. However I want to make the best choice. I do not plan on borrowing money, so I don't need the protection that way. What has worked for others and why? HessellQuad Cities-Illinois

[Guest guest]

Hi I am also a new member of the group, in same position as only in UK,

been a Leader ten years, I also have four children; 8, 12, 16, 18 (in a few

days). And I am also at early stages gathering info for PP. Also interested in

insurance!! I was interested to read your post Dee. From what I understand there

is only one insurance company everyone uses in UK called Towergate Professional

Risks. Could the UK members share the situation over here regards the extra

business insurance, is it the same as Dee mentions over here? An accountant has

told me that I probably wouldn't be ready to incorporate to form a Limited

Company as 'there are an awful lot of statutory accounting returns to make which

incur some expensive accountancy fees'. She said probably start as a sole

trader? Again what do others do in UK?

Thanks so much

Philippa

England

>

> Hessell

> Quad Cities-Illinois

>

[Guest guest]

Philippa, it's the same in Greece, the Limited companies need too much

paperwork thus lawyers and accountants, quite expensive to set up,

plus the percentage of taxation is awful (35%). So for us here PP

means sole trader is the only way to go - unless someone has some kind

of business set up anyway on their name. xxx Ada