Guest guest Posted December 22, 2004 Report Share Posted December 22, 2004 Hi there Welcome to the group. Our daughter Arianne is at a very similar age and stage developmentally. We used to live in South West London, and although we live abroad at the moment, we intend to return to the UK for our twin 8 year olds' secondary education. The Cheshire institute sounds very interesting, and I will check out the website. It sounds similar to one we are using around twice a year, called BIBIC (British Institute for Brain Injured Children), based outside Bridgewater in Somerset. Their website is www.bibic.org.uk. They also develop a series of exercises to do with your child that you then repeat every day at home. What is the name of the special school that goes to? Best wishes for Christmas and the New Year Neil & Fiona Blackley neil.blackley@... PMG in UK Hi I am a new member and have just seen the November mails (message 13343 etc)on UK sufferers My grandson has PMG (bilateral perisylvian PMG). We live in south-west London, and our daughter and son-in-law live nearby. Josua is three and half years old, cannot stand unaided or talk and suffers from poor motor skills. But on the positive side this year he has mastered crawling on all fours and feeding himmself. He attends a local special school in the mornings - they are excellent. He attends a clinic at a medical charity in Cheshire,Brain Injury Rehabilitation and Development who specialise in brain damage of various sorts. No, we are not talking miracle cures but they have a programme of exercises that can often help make improvements, but (and there is a " but " ) the cost is high in committment. The exercises take about 30 minutes every night, and can continue for 2 years plus. This is a heavy load. But we are pleased with the changes we have seen in his weakest hand, and a general straightening of his body. If anyone is interested see their website www.b-i-r- d.org.uk Best wishes to all sufferers and carers. I have seen some of teh difficulties you face Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2004 Report Share Posted December 22, 2004 Hello Neil & Fiona Thanks for the swift response. goes to Bedelsford School in Kingston upon Thames, and seems very happy there. It is a small school with a good reputation (and a very good Ofsted report). BIBIC sounds interesting, I will look at their site, thanks. I hope you find the support you need where you are at present Wishing you all a grat Christmas and New Year, Pretlove Quote Link to comment Share on other sites More sharing options...
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