I am new, exhausted, and sore!

December 10, 2006

Hi,

My name is Anita. I am 40 and was diagnosed with RA and fibromyalgia

two years ago. However since the diagnosis, any medication we have

tried for the RA seems to be only minorly effective or not effective

at all. Even Enbrel and MTX have not really helped. And all the while

my immune system has become weaker and weaker. I was constantly sick.

In July, I made a big move across the state of Florida to pursue my

masters degree. I lost my helath insurance for a 4 month period and

during that time I had no MTX or Enbrel. Guess what, i did not feel

any different, except I was sick less often. This led me to try and

research ways to improve my immune system and see if that helped.

In my research, I came across sympots lists for RA and lupus, it

appears to me that I exhibit more Lupus symptoms than RA. I now have

health insurance and have an appointment with a new Rheumy in January

(that is the first available appointment...omg!) I just hope he is

good. I got recommendations from lupus and ra patients for him so I

am hoping.

I have a couple questions for the group that I don't know if they can

be answered or not but it is worth a shot.

So here goes:

1. Has anyone heard and/or tried the grain free diet for

inflammation? I just started it and am hoping it helps.

2. Did anyone else think they might have lupus and it was just RA,

or vice versa?

3. How do you explain to a doctor that the pain is so tiring and the

lack of sleep isso bad that you need something to help with both

without sounding like a drug addict. That seems to be a huge concern

here in FLorida. I currently am on nothing for pain and never have

been, it is like they are afraid to give me something.

Thank you!

Trying to stay normal (LOL)

Anita

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