Guest guest Posted December 9, 2004 Report Share Posted December 9, 2004 Hi Velma, Here is my number, if you need anything while you are in Houston or just want to chat. Revell Home Cell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2004 Report Share Posted December 9, 2004 It's done. It'd be an honor, K. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2004 Report Share Posted December 9, 2004 I will keep Tori in my thoughts & prayers... Take care all... & my Angel, Crystal Aquielle... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2004 Report Share Posted December 9, 2004 Velma and little tori, your both in our prayers. Love mel and Louie xx(pmg, 9years) > >Reply-To: polymicrogyria >To: polymicrogyria >Subject: tori my angel >Date: Thu, 9 Dec 2004 09:37:34 -0800 (PST) > _________________________________________________________________ Want to block unwanted pop-ups? Download the free MSN Toolbar now! http://toolbar.msn.co.uk/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2005 Report Share Posted January 26, 2005 Velma, Blair Babsen Childrens Hospital in MS (University MS Medical Center) has surgeons for that. Dr. Veda is 's neurologist and I believe he is a Neuro Surgeon also. He's on the National Board of Neurology. I get some of matthew's treatments in Louisiana but am on MS medicaid and they pay for it.. MS medicaid knows DR. Veda and usually anything he sends through medicaid gets approved. His number is 601 984-5210. Not sure if this is what you need because I didn't see the post before this one. Never give in to Medicaid denials. To let you know how screwed up our Medicaid system is, I did this just for fun one day.. I was inquiring about the Mulholland Stander I had already received that they pd for that the person I was talking too didn't know about..... I called and asked them would they pay for a Mullholland Stander and they said NO. lol I can call MS medicaid hot line and ask a question about something to one person, call right back ask another person and get a completely different answer. I don't think most of them even know what Medicaid is allowed to pay for!!!! Charlotte velma crochet wrote: Hello everyone !!!! I am sitting up late crying and I know yall are the only ones that will understand. Tori doesnt get to have those test done as planned because medcaid denied, I have already started the appeals process. My angels doctor called tonight with a idea to get around the dumb rules but it comes with bad news. Tori is a candaite(spelling) for brain surgey and the kind of doctor needed for the surgey La. doesnt have. I am so scared the doctor thinks the seizures are damgeing on one side and feels we have to stop it quick. Tori is very weak on the right side of her body compared to her left and her right hand is curling up. I am probly not making any sense . I feel like I do everything they tell me and it is still getting worse all I can do is cry and feel helpless. I better go busy day tomorrow chasing records. I hope all of yalls sweet angels are doing good. LOVE, VELMA mother of tori 7 year old pmg,seizures ,nonverable, plus more --------------------------------- Do you Yahoo!? Yahoo! Search presents - Jib Jab's 'Second Term' Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2005 Report Share Posted January 27, 2005 Velma, It's me - .........I encourage you to call to Dr. Aguilar and visit with him. If he can help Tori, then I will try and help you raise the money to go see him. Also, if I can do something for you here in Houston, please let me know. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2005 Report Share Posted January 27, 2005 Don't be scared, God's with you.................. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2005 Report Share Posted January 27, 2005 hello mattews granny i read about everything you and that sweet boy have been thur all i have to know is where u find the strength to go on sometimes i just curl up and cry i want to help my daughter more then anything but i cant find the way please tell how do u keep going good luck and thanks velma " Charlotte, 's Ganny " wrote: Velma, Blair Babsen Childrens Hospital in MS (University MS Medical Center) has surgeons for that. Dr. Veda is 's neurologist and I believe he is a Neuro Surgeon also. He's on the National Board of Neurology. I get some of matthew's treatments in Louisiana but am on MS medicaid and they pay for it.. MS medicaid knows DR. Veda and usually anything he sends through medicaid gets approved. His number is 601 984-5210. Not sure if this is what you need because I didn't see the post before this one. Never give in to Medicaid denials. To let you know how screwed up our Medicaid system is, I did this just for fun one day.. I was inquiring about the Mulholland Stander I had already received that they pd for that the person I was talking too didn't know about..... I called and asked them would they pay for a Mullholland Stander and they said NO. lol I can call MS medicaid hot line and ask a question about something to one person, call right back ask another person and get a completely different answer. I don't think most of them even know what Medicaid is allowed to pay for!!!! Charlotte velma crochet wrote: Hello everyone !!!! I am sitting up late crying and I know yall are the only ones that will understand. Tori doesnt get to have those test done as planned because medcaid denied, I have already started the appeals process. My angels doctor called tonight with a idea to get around the dumb rules but it comes with bad news. Tori is a candaite(spelling) for brain surgey and the kind of doctor needed for the surgey La. doesnt have. I am so scared the doctor thinks the seizures are damgeing on one side and feels we have to stop it quick. Tori is very weak on the right side of her body compared to her left and her right hand is curling up. I am probly not making any sense . I feel like I do everything they tell me and it is still getting worse all I can do is cry and feel helpless. I better go busy day tomorrow chasing records. I hope all of yalls sweet angels are doing good. LOVE, VELMA mother of tori 7 year old pmg,seizures ,nonverable, plus more --------------------------------- Do you Yahoo!? Yahoo! Search presents - Jib Jab's 'Second Term' Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2005 Report Share Posted January 29, 2005 , what is Corey's diagnosis? Are you able to get him into a special school? The thought of him being teased breaks my heart,and i imagine yours too!. It is both the faliure on the schools behalf to let this sort of thing happen , and also of the parents of the children discriminating Corey. Our kids have enough to deal with, as it is !!! I hope you can get this sorted out, or get Corey the special school your special little boy deserves. Big hug, Mel and Louie(PMG,Epilepsy 9yrs) > >Reply-To: polymicrogyria >To: polymicrogyria >Subject: Re: tori my angel >Date: Sat, 29 Jan 2005 11:49:23 -0800 (PST) > _________________________________________________________________ Express yourself with cool new emoticons http://www.msn.co.uk/specials/myemo Quote Link to comment Share on other sites More sharing options...
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