Would you say your child has a Life Threatening Illness? For everyone

[Guest guest]

I had someone call me practically begging for help for her daughter. Her

daughter's husband just left and she has 4 kids and one on the way. One of the

kids, a three year old girl, has some kind of chromosome deletion. She has

seizures, she can't walk talk or craw and is three years old. she has no head

control. Has other problems requiring daily medications and treatments. High

risk for pneumonia and other respiratory illnesses....

The grandmother wanted me to help her find a van because the daughter was

going to be repossessed. I did some research and found an organization, called

them and told them her situation. Guess what, they wanted to get her information

and put it before they board and try to help her so I told her daughter to call

them.

I called the daughter to make sure she called them and here's what she said.

Well, they asked me if my daughter (the three year old) had a life threatening

or chronic illness and I told them NO and then they said I didn't qualify. I

didn't know what to say because I thought that's why they called me in the first

place.

may not be sick all the time and he does not have a brain malformation

that gets worse but I know he has a life threatening illness. His brain. You

never know what will come up or what will happen and from what I can tell her

child has a lot more problems than matthew'

How does everyone feel about this? Maybe it's something she has not or will not

accept as far as her daughter having a life threatening illness? If a child has

uncontrolled siezures, I would think that would be considered life threatening?

charlotte

To read more about please visit:

http://littleoddyssey.blogspot.com/

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[Guest guest]

Yes uncontrolled seizures are life threatening or at least potentially life

threatening. I know because my baby's seizures are uncontrolled and have been

since November 2004. Her seizures last anywhere from 5 min to 40+ min!! Her

baseline is 0-2 per day. She is currently on the Ketogenic Diet and on many

antiseizure meds still. I have to administer Diastat as soon as she starts

seizing. Her neurologist informed me that if we do not get her seizures under

control soon, my baby will die!

Elena mom to my beautiful Leah 2yrs with severe PMG, spastic quadraplegia,

cerebral palsy, G-tube dependent, and on the Ketogenic Diet and many meds,

17 yrs and Emilio 11 yrs.

Would you say your child has a Life

Threatening Illness? For everyone

I had someone call me practically begging for help for her daughter. Her

daughter's husband just left and she has 4 kids and one on the way. One of the

kids, a three year old girl, has some kind of chromosome deletion. She has

seizures, she can't walk talk or craw and is three years old. she has no head

control. Has other problems requiring daily medications and treatments. High

risk for pneumonia and other respiratory illnesses....

The grandmother wanted me to help her find a van because the daughter was

going to be repossessed. I did some research and found an organization, called

them and told them her situation. Guess what, they wanted to get her information

and put it before they board and try to help her so I told her daughter to call

them.

I called the daughter to make sure she called them and here's what she said.

Well, they asked me if my daughter (the three year old) had a life threatening

or chronic illness and I told them NO and then they said I didn't qualify. I

didn't know what to say because I thought that's why they called me in the first

place.

may not be sick all the time and he does not have a brain malformation

that gets worse but I know he has a life threatening illness. His brain. You

never know what will come up or what will happen and from what I can tell her

child has a lot more problems than matthew'

How does everyone feel about this? Maybe it's something she has not or will not

accept as far as her daughter having a life threatening illness? If a child has

uncontrolled siezures, I would think that would be considered life threatening?

charlotte

To read more about please visit:

http://littleoddyssey.blogspot.com/

Don't forget to visit the Google ads when you visit our site!!

---------------------------------

Start your day with Yahoo! - make it your home page

[Guest guest]

Hi-my name is , mother of Katelyn who is diagnosed with neuronal

migration disorder-a genetic disorder which affected the formation of the brain.

Katelyn is also on the Ketogenic diet, and has helped tremendously(she used to

have 100's of seizures a day) but we also administer meds as well to keep them

at bay somewhat! Her neurologist did explain that Katelyn will live a happy life

as long as we keep her heart, and lungs healthy. What a chore this has been-but

we keep on top of her asthma and monitor her every move. I also wanted to tell

you all about a program called M.A.P.S.-which integrates motor-and sensory

stimulation-and is absolutely natural and without use of more drugs. Please try

this seizure protocol-it works for Katelyn most of the time. When your child

starts the seizure grab an ice pack(medium size) and strawberry essence oil(it

is very hard to find natural strawberry oil-so use another fruit oil as long as

it is natural). Place the ice pack directly onto the

back of the neck(while they are smelling the oil on a cottonball) for one

minute. Then move the ice pack to one of the underarms(while they are still

smelling the fruit oil), then to the other underarm, then to the groin area

right under the stomach. Keep rotating to the different body areas until the

seizure subsides. Katelyn usually comes out of the siezure before our third

movement. Katelyn also used to have seizures that would last 10 minutes or

more-but with this protocol-she hardly even has to take her Ativan anymore. If

this works for your child-and you want more information about the M.A.P.S.

program-let me know by writing mccartyforchrist@.... Please do not cover

the ice pack with a cloth-the brain needs to react to the cold-and always use

the ice with the fruit oil for best effect.Please write and let me know-God be

with your beautiful children-we all have a special work to do with them-

" Esquivel, Elena " wrote:Yes uncontrolled

seizures are life threatening or at least potentially life threatening. I know

because my baby's seizures are uncontrolled and have been since November 2004.

Her seizures last anywhere from 5 min to 40+ min!! Her baseline is 0-2 per day.

She is currently on the Ketogenic Diet and on many antiseizure meds still. I

have to administer Diastat as soon as she starts seizing. Her neurologist

informed me that if we do not get her seizures under control soon, my baby will

die!

Elena mom to my beautiful Leah 2yrs with severe PMG, spastic quadraplegia,

cerebral palsy, G-tube dependent, and on the Ketogenic Diet and many meds,

17 yrs and Emilio 11 yrs.

Would you say your child has a Life

Threatening Illness? For everyone

I had someone call me practically begging for help for her daughter. Her

daughter's husband just left and she has 4 kids and one on the way. One of the

kids, a three year old girl, has some kind of chromosome deletion. She has

seizures, she can't walk talk or craw and is three years old. she has no head

control. Has other problems requiring daily medications and treatments. High

risk for pneumonia and other respiratory illnesses....

The grandmother wanted me to help her find a van because the daughter was

going to be repossessed. I did some research and found an organization, called

them and told them her situation. Guess what, they wanted to get her information

and put it before they board and try to help her so I told her daughter to call

them.

I called the daughter to make sure she called them and here's what she said.

Well, they asked me if my daughter (the three year old) had a life threatening

or chronic illness and I told them NO and then they said I didn't qualify. I

didn't know what to say because I thought that's why they called me in the first

place.

may not be sick all the time and he does not have a brain malformation

that gets worse but I know he has a life threatening illness. His brain. You

never know what will come up or what will happen and from what I can tell her

child has a lot more problems than matthew'

How does everyone feel about this? Maybe it's something she has not or will not

accept as far as her daughter having a life threatening illness? If a child has

uncontrolled siezures, I would think that would be considered life threatening?

charlotte

To read more about please visit:

http://littleoddyssey.blogspot.com/

Don't forget to visit the Google ads when you visit our site!!

---------------------------------

Start your day with Yahoo! - make it your home page