Guest guest Posted February 3, 2004 Report Share Posted February 3, 2004 My son has panhypopititurism along with PMG. Panhypo means he does not produce growth hormones, cortisol or thyroid. The signs I saw with Trevor was that he stopped growing between 6-9 months old.(It took until he was 3 yrs old and -25% on the growth chart to get anyone to listen to me) and he also never seemed to lose that baby look............hair didn't really grow much at all in that time period either. A endocrinologist would be the doctor to see about this. Donna(mom to Trevor,8 yrs old PMG and much more) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2004 Report Share Posted February 3, 2004 Interesting, thanks for the info. Yeah, I think that is our next stop. The endocrinologist. Dianna Re: Growth Problems My son has panhypopititurism along with PMG. Panhypo means he does not produce growth hormones, cortisol or thyroid. The signs I saw with Trevor was that he stopped growing between 6-9 months old.(It took until he was 3 yrs old and -25% on the growth chart to get anyone to listen to me) and he also never seemed to lose that baby look............hair didn't really grow much at all in that time period either. A endocrinologist would be the doctor to see about this. Donna(mom to Trevor,8 yrs old PMG and much more) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2004 Report Share Posted February 3, 2004 Dianna, had a g-tube from age 2-6 and then went onto growth hormones. We really disliked the endocrinologist at Children's (OK, so they aren't batting 100%). We see Debra Counts at University of land in downtown Baltimore. She's terrific. Yes, it's a schlep, but it is only 3 times a year. Since getting on the growth hormones, 's growth has taken off. Where we used to count every french fry she'd eat, not She'll often eat more than me at a meal. She has made great gains, and at age 8 she hit the growth chart for the first time. Now she's solidly on the growth charts. And she's also taken off physically. The shots are really nothing (after the first week). And, perhaps most important, it is the one problem that we can really solve. Eating and growth and her future height are simply no longer an issue. One thing we can check off the list. Hope this helps. Larry > Interesting, thanks for the info. Yeah, I think that is our next stop. > The endocrinologist. > > Dianna > Re: Growth Problems > > My son has panhypopititurism along with PMG. Panhypo means he does not > produce growth hormones, cortisol or thyroid. The signs I saw with > Trevor was that he stopped growing between 6-9 months old.(It took > until > he was 3 yrs old and -25% on the growth chart to get anyone to listen > to > me) and he also never seemed to lose that baby look............hair > didn't really grow much at all in that time period either. > > A endocrinologist would be the doctor to see about this. > > Donna(mom to Trevor,8 yrs old PMG and much more) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2004 Report Share Posted February 4, 2004 Larry, I too am not thrilled with the GI Doctor that Grant sees at Children's. Maybe, I should make the trip to Balt. Dianna Re: Growth Problems > > My son has panhypopititurism along with PMG. Panhypo means he does not > produce growth hormones, cortisol or thyroid. The signs I saw with > Trevor was that he stopped growing between 6-9 months old.(It took > until > he was 3 yrs old and -25% on the growth chart to get anyone to listen > to > me) and he also never seemed to lose that baby look............hair > didn't really grow much at all in that time period either. > > A endocrinologist would be the doctor to see about this. > > Donna(mom to Trevor,8 yrs old PMG and much more) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2004 Report Share Posted February 16, 2004 , I recently changed Grant's milk. He was on Soy milk for a while, and didn't seem to get the caloric intake he needed, so I put him back on Baby formula. He has gained almost two pounds in 3 weeks. I also put him on Prevacid for the Acid Reflux, " that helped as well " . So hopefully when I take him back to the doctors this month he will see the change in height and weight! I am so glad. We had Grant's Growth Hormone levels checked and he does not have a problem there either. Dianna Re: Growth Problems Dianna- my son has had growth problems, but I am not sure they are all related to PMG. Ethan is now 9.5 months old, and around 3 or 4 months stopped gaining weight, basically due to the fact his reflux was so bad and he didn't know how to eat properly from a bottle. It took until we got his nissem and g-tube for him to start to consistently gain weight again. However, he is still not on the growth curve (below the 3rd percentile) in height and weight. He is, however, staying on his own growth curve, so the doctors aren't too worried. One interesting thing is that even if the body stops growing due to malnutrition, the head continues to grow. So, due to that Ethan's head is in the 45th percentile for size, and is a contributing factor to his head and neck control issues. Now our geneticist did say he thinks the feeding problems are directly related to his chromosome deletion. However, he is not sure that the PMG is due to the chromosome deletion as they don't normally see the PMG with his type of deletion. So... my long winded answer to you is yes, we have growth delays, but am not sure they are related to PMG. > Has anyone experienced any slow growth problems with their PMG child? > > Dianna Quote Link to comment Share on other sites More sharing options...
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