~~~Racking my brain

[Guest guest]

Hi everyone,

Okay, I have been racking my brain trying to remember if jenna has

had any seizures besides the weird eye episodes that she has had for awhile. I

read an article about Infantile Spasms after what I read from Chris's post about

Crystal. As it was describing certain seizures...I started remembering that

Jenna has done some of that. Jerking back for no reason and it was like 1

second. Her face and upper body seemingly " in pain " looking for about 3 seconds.

That happened two times in a row. Other little things that I thought were kinda

strange but did n't look to me as if they were seizures...I guess because I

thought seizures was your whole body flopping and such. So, what I am trying to

say is that I think Jenna has been having seizures since she was about 2 months

old and I wanted to ask you all if you think I should contact Jenna's

neurologist and tell him even though we just started the Tegretol?? When I

called him the other night.....he was being a severe JERK to me and I had to

tell him.....DO NOT speak to me in that way, so I am kind of afraid to call him

again because of how rude he was to me. (I am thinking about requesting a new

neurologist for Jenna.) I don't know. I am so confused. Can someone please give

me some insight. What would you guys do?? I think I should call him but I wanted

to get some more feedback about it. Thanks in advance.

~ & Jenna Leigh~10 months with PMG

Enjoy life...live rule #62!!