Re: Re: My rheumy visit today Ellen

[Guest guest]

Hi Ellen:

Thank you for posting. It helps so much to hear about

someone's personal experience on a medication. The

Ambien worked really well for me last night - I

actually slept from 10 to 7 this morning! Usually

it's from 10 to about 3-4 in the morning. I am

usually awakened by nerve pain starting from my hips

that radiates down my legs, and that also seemed to

have been helped by the Lyrica. No, I have never

taken Neurontin. I had a friend take that for

myofascial pain syndrome, and it made her very woozy,

so much so that she was using support from the wall to

walk. So, she quit that and began using another med

that I cannot recall at the moment, but she is doing

well with it.

I will definately take your advice and take the Ambien

immediately before sleep. Have you had any trouble

waking up in the mornings? I was still feeling the

effect for a few hours after waking up, nothing too

bad, but just kind of dozy. I sure won't drive until

it wears off in the morning! And I will keep in mind

your experience of fatigue, confusion, and suicidal

and crazy thoughts too - how scary. I'm nutty enough

without any med making me nuttier lol. Keep your

fingers crossed for me that I don't go through that.

I hope that the Ambien and Lyrica combo continues to

help me - a good night's rest is so important. Thanks

again for taking the time to post -

Kathe in CA

--- ellenljones74 <ellenjones@...> wrote:

> Hi Kathe,

>

> I've never posted or replied to a post before, but

> when I read you

> were starting to take Ambien, I felt like I had to

> write. I am a 31

> yr old with dx of undifferentiate connective tissue

> diseae and

> fibro, and related health problems. I have always

> had a hard time

> sleeping because I just can't get in a comfortable

> enough position

> for a long enough time. I started taking Ambien,

> and it was great-

> really amazing. I could fall asleep fast, and stay

> asleep all

> night. However, I had some side effects that I hope

> you never

> have. I just want to let you know of them so you

> can keep them in

> mind. First of all, if you take it and don't go to

> sleep right

> away, you can say and do things that you don't

> remember the next

> day, or maybe wouldn't ordinarily do. I started

> keeping it right

> next to my bed, and I wouldn't take it until I was

> IN BED and just

> about to go to sleep. After taking it for a few

> months (every

> night) I stared to have overwhelming fatigue and

> confusion, and I

> even started to fantasize about suicide. When I

> stopped the Ambien,

> those thoughts went away immediately, and when I

> started it again,

> they came back. I went online and found that others

> had had similar

> experiences. The thing that was so scary about this

> is that those

> symptoms didn't start for months after beginning the

> Ambien, so I

> didn't immediately make the connection between the

> symptoms and

> drug. I'm sure this doesn't happen to everyone, but

> just keep it in

> mind just in case! If it works for you w/out side

> effects, that's

> great And if you start having weird thoughts...

> then consider

> stopping! Hope that's helpful.

> Anyway, I had a doc who wanted to prescribe Lyrica,

> but I've never

> taken it. I'd be curious to hear about your

> experiences with it. I

> think it's similar to Neurontin- have you ever tried

> that?

>

> best wishes,

> Ellen

>

>

> >

> > Hi Guys:

> >

> > I called my rheumy this morning regarding my

> > neck/upper back pain, and wrist bump, and she had

> me

> > come in this afternoon (I am blessed with one of

> the

> > best rheumies). She felt that the neck/upper back

> > pain and stiffness was more likely due to my

> Fibro,

> > and the lack of my getting a good night's sleep,

> this

> > despite taking Trazodone, Zanaflex, and having a

> > memory foam topper and contour pillow, and using

> CPAP.

> > So, she has decided to try me on Ambien with the

> > Zanaflex, and also added Lyrica for nerve pain to

> the

> > mix. Has anyone had any experience with Ambien or

> > Lyrica? I would appreciate anyone's experience on

> > these. Also, she examined my wrist and told me

> that

> > it is a result of the RA, a deformity of my wrist

> > joint, and just to keep an eye on it. It does

> > restrict my wrist motion slightly, but is not

> painful.

> > So that is the result of my trip to the rheumy

> today,

> > and just thought I would let you guys know what is

> > going on.

> >

> > Kathe in CA

> >

> >

> > Kathe in CA

> >

> >

> >

> >

> > __________________________________________

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>

>

>

>

>

>

>

>

Kathe in CA

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