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May 12 ME Awareness Day

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Hi

May 12 ME Awareness Day

I’ve done my annual interview for Ridings FM local radio for Wakefield (City

of my birth) and the Five Towns, of which Castleford (town of my current

residence) is one.

Among the issues I covered in addition to explaining the causes and symptoms

and severity were:

The need for it still to be taken seriously and as a definite illness

Time to separate the wheat from the chaff, separate ME from other fatigable

illnesses, then we know what we are dealing with, and that those who say

such treatments have cured their ME eg aloe vera, CBT may well have cured a

similar fatigable illness.

It is time ME was taken from the umbrella of CFS and given its

individuality, particularly as we have one prominent Dr who suffers who says

that post exertional malaise, (which I explained about) is prominent in ME

but not other fatigable illnesses.

The need for greater funding for research and the current state of play with

the CFSRF, the fact that they have been promised in imunomodulatory drug all

they need is the funding, preferably from Government or the MRC and how

local people could donate to a local appeal I am running in the local paper.

Extracts from my interview will be broadcast in 25 second segments after the

hourly news bulletins. Ridings FM broadcasts on 106.8, my thanks to them for

once again helping promote ME in Wakefield and the Five Towns

Trev

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