Guest guest Posted August 27, 1999 Report Share Posted August 27, 1999 In article <990827035527B8.19583@...>, oceana@... writes >I was sure I had fibromyalgia until I started to get a little swelling in my >left knee and ankle. As far as I know, fibromyalgia doesn't cause inflammation >or swelling. So now I am thinking I must have arthritis. The affected joints are >left knee and ankle, right wrist, lower back, hips, left shoulder and sternum. >Occasionally I get sore, stiff hands. Do you have a family history of psoriasis? ------- Regards, Dr Graham Chiu Prospective Internet Observational Study in Arthritis Home Page http://www.compkarori.com/arthritis/ Contribute at http://www.compkarori.com/arthritis/contrib.htm Data Entry at http://www.compkarori.com/cgi-local/piosa.cgi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2000 Report Share Posted January 1, 2000 Babs56p@... wrote: > > Hi: Welcome! > > ......what's Pau D'Arco? (supplement) > > Thanks. > Babs Hi Babs, This info is from http://www.vitaminbuzz.com/ Pau d’arco (Tabebuia impestiginosa) Common names: Lapacho, taheebo Parts used and where grown: Various related species of pau d’arco trees grow in rain forests throughout Latin America. The bark is used for medical purposes. In what conditions might pau d’arco be supportive? • infection • yeast infection Historical or traditional use: Native peoples in Central and South America reportedly use pau d’arco bark to treat cancer, lupus, infectious diseases, wounds, and many other health conditions.1 Caribbean folk healers use the leaf of this tree in addition to the bark for the treatment of backache, toothache, sexually transmitted diseases, and as an aphrodisiac. Active constituents: Lapachol and beta-lapachone (known collectively as naphthaquinones) are two primary active compounds in pau d’arco. According to laboratory tests, both have antifungal properties as potent or more so than ketaconazole, a common antifungal drug.2 Although these compounds also have anticancer properties, the effective dosage for this effect is toxic.3 4 Therefore, pau d’arco cannot currently be recommended as a treatment for cancer. How much should I take? Because the naphthaquinone active constituents are not water soluble, a tea from pau d’arco bark is ineffective. Capsules or tablets providing 300 mg of powdered bark can be taken; usually three capsules are ingested three times per day. A tincture can be used in the amount of 0.5-1 ml, three times per day. Are there any side effects or interactions? High doses of lapachol can cause uncontrolled bleeding, nausea, and vomiting.5 Use of the whole bark is much safer than isolated lapachol—the whole bark has no known serious side effects.6 Pregnant or lactating women should avoid use of pau d’arco. References: 1. Duke JA. CRC Handbook of Medicinal Herbs. Boca Raton, FL: CRC Press, 1985, 470-1. 2. Guiraud P, Steiman R, Campos-Takaki GM, et al. Comparison of antibacterial and antifungal activities of lapachol and beta-lapachone. Planta Med 1994;60:373-4. 3. Tyler VE. Herbs of Choice: The Therapeutic Use of Phytomedicinals. Binghamton, NY: Pharmaceutical Products Press, 1994, 180 4. Oswald EH. Lapacho. Brit J Phytother 1993/4;3:112-7. 5. Duke JA. CRC Handbook of Medicinal Herbs. Boca Raton, FL: CRC Press, 1985, 470-1. 6. Oswald EH. Lapacho. Brit J Phytother 1993/4;3:112-7. Copyright © 1998 Virtual Health, LLC -- Kiana Rossi bornfree@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2000 Report Share Posted January 1, 2000 Dear Mr. Rossi, I have several friends with chronic Lyme. It seems Lyme at that stage is tough to diagnose. My hunch is that if you had a likely diagnosis of Lyme you still have Lyme. One thing that is coming up is that Lyme patients end up with several infections at once, or maybe they start out that way and we just didn't know. Therefore, you might benefit from the antibiotic protocol used by the people on this list. I have never been diagnosed with Lyme. My diagnosis was mycoplasma incognitus. When I asked a specialist if I should be tested for Lyme she said that my antibiotic treatment of several years was wroking and that Lyme responded to many of the same antibiotics. So....if you can find an antibiotic that works for you, you may want to just stick with it for a LONG time and see what happens. Of course, all the other things you are taking are probably very helpful as well. I take several such and they do seem to improve my health and resistance to the mycoplasma. Best wishes, a Carnes > From: RK Rossi <bornfree@...> > > Hello everyone! > > I joined the list a couple of days ago and decided to stop lurking today. > > I was erroneouly diagnosed with Lyme Disease on May 25, 1999. As a > result I was given a 6 week course of IV Rocephin, 2000mg. However > all but a few symptoms disappeared. I believe at one point that I did > have Lyme Disease and it triggered off my predisposed > syndromes/diseases. I have read enough literature/information on this > to understand this is a possibly. > > Both my father and mother have autoimmune diseases; ulcerative colitis > and 's Disease with resultant Type 2 Diabetes [respectively]. > My 2nd brother as a positive HLA-B27 and is diagnosed with Ankylosing > Spondylitis. My other 2 brothers have symptoms of AS without > confirmed diagnoses as of yet. In addition my father some symptoms of AS. > > I just saw a rheumatologist [for first time] on Monday the 27 of > December [after seeing 5 different doctors]. He took the necessary > blood tests, urine tests and x-rays of my entire spine. I wont have a > diagnosis until 2 weeks from now. [Got ants in my pants over that.] > He gave me the pamphlet on AS before I left the office. > > Early Tuesday morning I realized that I have had AS symptoms dating > back to 1967. I was in junior high and couldn't participate in > regular gym classes because of a " bad " knee. At the same time I > suffered from numbness of my legs and buttocks if I sat in one place > for over an hour. Both symptoms continued until I was in my early > 20s. The only reason they stopped is because I started Tap and Modern > Jazz Dance lessons. Up until that time I swam daily, bicycled every > other day, walked everyday and still my symptoms persisted. > > And guess what my New Year's Resolution was [before I even knew about > AS]? I want to take up Tap again. I am enrolled already! I begin > January 3. > > Supplements I currently take: > Ultra Oils, Two Daily Multi-Vitamins [i take one], 1000 mg Vitamin C, > 600 mg Calcium, 300 mg Magnesium, 500 mg Red Clover, 1 to 2 Ultimate > 10 Acidophilus/FOS, Gingko Biloba. Occasionally I take 2000 mg > Vitamin C and 1000 mg Echinacea when symptoms flare. And sometimes > Pau D' Arco. > > Sorry if this was long. I am usually verbose. > > -- > RK Rossi > bornfree@... > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2000 Report Share Posted January 1, 2000 Hi: Welcome! .......what's Pau D'Arco? (supplement) Thanks. Babs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2001 Report Share Posted June 5, 2001 Hi , I have a daughter who was diagnosed with RA earlier in the year. I have had her on fairly high doses of fish oil since then and just received some Salmon oil with assoc data to try. Apparently the Salmon oil is superior to other fish oils for it's antiinflammatory effect. has been on AP for only 4 weeks but is flaring badly right now but we're sticking with it, believe me. The options are not viable ones for us at this stage! Caroline Stronge. rheumatic New to List > Hi everyone, > > I am new to the list. I am considering antibiotics to treat a rather > sudden worsening of arthritis symptoms in my hips. I'm wondering, has > anyone else had gradual symptoms that suddenly became disabling? I am > 32 years old and thought I had chronic tendinitis. I have considered > everything from Lyme disease and chronic fatigue to muscle disorders. > I am a bicylist, but haven't been on a bike since last summer. There > seems to be no explanation for my symptoms. I am seeing a > rheumatologist for a follow up next week. > > Also, I have found fish oil in large doses to be very helpful. Has > anyone else tried that? > > > > > To unsubscribe, email: rheumatic-unsubscribeegroups > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2001 Report Share Posted June 6, 2001 Hi : Dean here. You could probably find any variation of symptoms among us. The onset of RA can be very slow, or very sudden. Mine came on over a period of 3 or 4 months - a moving pain that visited various joints in my body and then hit all of them at once. It was excruciating. Your best option at this point is to try to pin down exactly what you have. You should see some abnormal blood tests if you have an autoimmune disease. Especially SED rate and/or CRP above the norm. If it is RA, you may have a positive RA factor but, not necessarily. A significant portion of folks have sero negative RA meaning the blood antibodies do not show up. Have your RD order all of the tests - including thyroid function, x-rays, etc. You can't have enough info when in the diagnostic faze. Good luck, and keep us informed. rheumatic New to List > Hi everyone, > > I am new to the list. I am considering antibiotics to treat a rather > sudden worsening of arthritis symptoms in my hips. I'm wondering, has > anyone else had gradual symptoms that suddenly became disabling? I am > 32 years old and thought I had chronic tendinitis. I have considered > everything from Lyme disease and chronic fatigue to muscle disorders. > I am a bicylist, but haven't been on a bike since last summer. There > seems to be no explanation for my symptoms. I am seeing a > rheumatologist for a follow up next week. > > Also, I have found fish oil in large doses to be very helpful. Has > anyone else tried that? > > > > > To unsubscribe, email: rheumatic-unsubscribeegroups > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2001 Report Share Posted June 11, 2001 Thanks to everyone for your advice and support. Honestly, I have no idea what I have. All blood tests come back normal except for one fluke elevated cpk which now comes back normal. The doc really doesn't know anything and has sent me for xrays of my hips (the worst part). I'm still convinced that all of this is the result of some kind of infection, be it Lyme or some heretofore unheard of thing, but I'm beginning to despair that a diagnosis is unlikely. Anyone out there on the list had problems being diagnosed? Normal blood tests etc? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2001 Report Share Posted June 11, 2001 Hi , Having normal blood tests is not that unusual -- it's referred to as being " sero-negative " , which 20% of RA patients are. I've always been sero-negative myself, with the exception of one elevated ANA level that has since returned to normal. That's why it's important for your doctor not to just look at your bloodwork but to look at you and assess all your symptoms in total. If you have most of the symptoms of a rheumatic illness, then you likely have a rheumatic illness, negative bloodwork or not. And to my way of thinking, it's not particularly important which rheumatic illness it may be as they all respond to the AP. So, educate yourself about the symptoms of rheumatic illnesses, then you'll be armed to point out the symptoms you have to your doctor. Best of luck. Hugs a wrote: > > Thanks to everyone for your advice and support. Honestly, I have no > idea what I have. All blood tests come back normal except for one > fluke elevated cpk which now comes back normal. The doc really > doesn't know anything and has sent me for xrays of my hips (the worst > part). I'm still convinced that all of this is the result of some > kind of infection, be it Lyme or some heretofore unheard of thing, > but I'm beginning to despair that a diagnosis is unlikely. > > Anyone out there on the list had problems being diagnosed? Normal > blood tests etc? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2001 Report Share Posted June 11, 2001 The only thing that I have had come back positive was the gene HLA-B27 which is found in some form of arthritis. Ankyloosing and Rieters which I was told that I have by a couple of doctors but now this one is not sure... all my blood work comes back normal. They did find some problem in my lower back but the neuro-surgeon said it was an old injury only thing is I never had an injury to my back he insisted that it had to have happened in my early childhood but no in my family remembers anything like that and he said that it was so bad that there would have been a lot of pain... This is why I am now going to a neurologist, though I believe the newer things going on now are not connected to what I started out with. My official diagnoses over 8 years ago was Fibromyalgia though my Rheumy told me that she believed the gene was already active. All I know is that the pain and the numbness is real and I guess until they run out of test then I will keep going. I really would like to have a name for whatever this is, that I can deal with though having a couple of doctors tell me it was in "my head" and I should go on anti-depressants.. duh!! I am in pain how am I suppose to act? I did spell out P-A-I-N to one doctor and got pretty assertive with him and my husband was there to back me up and told the doctor that he could not live through what I have been through and have such a positive outlook on things. Anyway this doc was going to run some test and then found out we did not have insurance... we had saved money to pay for the test. This doc did not want to hear that and so said I should get therapy.... whatever I never went back to either of the two doctors with that kind of attitude. Just know you are not alone and keep on going if one doc doesn't believe you find another one. I have been blessed to have had some really good ones. Peace, Sherry Thanks to everyone for your advice and support. Honestly, I have no idea what I have. All blood tests come back normal except for one fluke elevated cpk which now comes back normal. The doc really doesn't know anything and has sent me for xrays of my hips (the worst part). I'm still convinced that all of this is the result of some kind of infection, be it Lyme or some heretofore unheard of thing, but I'm beginning to despair that a diagnosis is unlikely. Anyone out there on the list had problems being diagnosed? Normal blood tests etc?To unsubscribe, email: rheumatic-unsubscribeegroups Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2001 Report Share Posted June 12, 2001 Hi :-) It's past my bedtime, but I just thought I'd check the messages (a couple of days worth) and found yours.....I too had many normal labs and finally, my cpk was elevated....but only a little. That was enough for Dr. Franco to diagnose dermatomyositis in me. I didn't have a lot of skin involvement, either, but just a little purple tinge to my eyelids...another give away. My local internist agreed with Dr. Franco's diagnosis, and the three of us proceeded with the antibiotic protocol (AP) and now, three years later, I'm doing very well. I'd love to talk more with you....tomorrow? In the meantime, please take care, Connie > Thanks to everyone for your advice and support. Honestly, I have no > idea what I have. All blood tests come back normal except for one > fluke elevated cpk which now comes back normal. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2001 Report Share Posted June 12, 2001 Hi Debb :-) It was good to hear from you. I hope it's OK with you if I send this reply to the whole group? You've asked some questions that others have undoubtedly asked. Two very important things that I've learned (mostly from the experiences shared within this group) is first, that it really doesn't matter so much which rheumatic disease(s) you have........they all share so many overlapping symptoms, and second, sticking with the antibiotic protocol (AP) is the key to regaining your health. Sure, the various diseases......RA, scleroderma, dermatomyositis, psoriatic arthritis, etc. each has unique areas which require our attention.......but the way the AP works is to seek out the mycoplasma or other infections, where ever they are hiding, whether in our joints, muscles or other tissues. Once the infection is quelled, the body can get back to repairing itself. I used to have tiny round dots, too....mostly on the tops of my thighs and it looked like someone had taken a red pen and put dots all over them. None of my rheumys said that they were telengectasias, and the one's I've seen on other people with scleroderma are not so much a perfect round dot, but a more mishapen mark. In any case.......they've pretty much dissappeared. As far as finding an AP friendly doctor.......have you tried your PCP or internist? They are often more agreeable to using the much less toxic antibiotics verses the toxic immune suppressing drugs for these diseases. Many people here in the group have been able to work with their family doctor and in doing so, have helped other people because the family doctor then uses the AP for his/her next rheumatic patient. I know it seems like we need the highly specialized care of the most qualified rheumatologist, especially with a serious disease like scleroderma.....but, in the case of the AP, our PCP or interinists can follow our progress with exams and bloodwork. The main reason that people on the toxic meds need the services of a rheumatologist is because of the serious side effects of the immune suppressing drugs. if you can't find someone locally, you might have to go to one of the more experienced doctors like Franco/Lallande, Mercola, Sinnott, and others...maybe on a limited basis and then have your PCP monitor you the rest of the time. I think that Moducare sounds promising. I probably would have used it in the early months of the AP. At that time, I used various NSAIDs to keep the pain down to a functioning level. The problem is that NSAIDs have their own risks and problems and it sounds like the Moducare is a better choice. Good luck and take care, too. You're on the right track, Debb. There's lots of help and experience right here in this group. Connie Re: rheumatic Re: New to List Connie, Hi, saw yr post to I think it was, wanted to ask you re all your labs, mine have all been ok, with the exception of the ANA and I have a positive Anti centromere antibody which a Dr told me only occurs in Sd so therefore, I have SD..however, my Rheumy here says not enough, I have all these little red dots appearing on my arms and legs now, one on my nose for the last 3 months..I think they are telengectasias, anyways, the Dr at Yale, Dr Tigolaar told me to check in Dermamyosistis, as I am so weak in the upper arms, and my eyelids have been purple red for years now...the rheumy here says no...i have yet to find a DR here to work with me or that is up on treatments for SD, I called the SD F and they were no help, any ideas? also, what do you think about the moducare everyone is talking about? thanksDEBB Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2002 Report Share Posted March 3, 2002 Dear Carmen, Welcome to this corner of the world, and I hope you will stay around for a while and read here. I do not know when the MMR began use in NZ (but I'll bet someone will know.) You are correct that the MMR in particular is thought by many to have a particular connection to autism. HOWEVER, there is another viewpoint, greatly in evidence on this list, that the toxic metal mercury has a particular connection to autism. These views are not exclusive-- both the MMR in particular and mercury poisoning in particular may have a connection. Mercury is used in SOME (not all) children's vaccines. It is used in the preservative " thimerosal " . Now, why someone would not find a safer form of preservative to put into an injected product is another matter. For the moment here, my point is just that it IS in some vaccines, not whether this makes any sense! Mercury is also present in large quantity in silver dental fillings (they are over 50% mercury). This may potentially be a factor for some kids in exposure to mercury, since mercury can be passed from moms to babies in gestation and breastmilk. While this list is about LOTS of aspects of autism and heavy metal poisoning, it is largely about RECOVERY from metal poisoning. best wishes, Moria <-- adult with no kids, in the process of recovering from mercury poisoning. At 11:48 PM 3/3/2002 +1300, you wrote: >Hello > >I am new to this email list. > >I am in New Zealand, I have a daughter who is 18 and I am having her assessed for Asperger's in the next few weeks. >Unfortunately she has fallen through the cracks in our system. > >While she was growing up we had many terrible problems, which at the time were seemingly unrelated, she was late to develop >in walking, talking etc. and had a terrible time at school, she was constantly bullied and picked on, because she did not know how to deal with other children and her speech development was, well...... you know. > >I confronted the school about this but the Principle blamed my daughter, because it seemed to me it was easier for him to blame than to give her adequate support and deal with the class bullies. > >There were times when I have felt like we were living in a nightmare because she has had no support, other than from us her family and her very few close friends. > >When she was about 7 years old I saw a British programme about Autism and recognised immediately some of the aspects that were noticable in my daughter. > >While seeing the child development unit at the hospital about problems she was having with toileting, I asked if she could possibly be autistic. > >The 'specialist' at the hospital told me she couldn't possibly be autistic, if she was she would be a lot more disabled than she appeared to be at the time. > >My daughter also had a lot of problem with a sickness she would get frequently which involved really sever stomach ache, high fever and vomitting. > >When she would get sick like that, she suffered incredible tummy pain, chronic vomitting and excrutiating headaches and fever. She started getting that when she was very young, in her first year. > >Each time she would get this the doctor told me she had a virus or a flu but to me that seemed ridiculous because each time the attacks were exactly the same, normally virus and flu manifest different symptoms. > >It is a long story, I have typed up our 18 years of very bad problems and I have them on a microsoft file, for her assessment. > >I have just heard about the MMR issue and it is of great interest to me, in light of what we have had to deal with in the past 18 years. >At this point I am unable to locate my daughter's immunisation record, so I will contact the doctor tomorrow to see if her records are still on file. > >I have been searching the internet to find out when the MMR vaccination was introduced to NZ, I have been unable to find that information but found that it was introduced to the US in 1975. > >Does anyone know where I could find the year of introduction of MMR to NZ. > >For my daughter there have been many times in her life when life has been utterly miserable, and I have been very sad that her life is not like others in her age group. >I am just fortunate she is so resilient. > >Thanks in advance for any assistance > >Carmen >maarie@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2002 Report Share Posted March 3, 2002 I would like to add that there is a third issue relating to vaccines and that is immune overload. Pediatricians do not test for immune dysfunction proir to immunizing, and they should. When a child with immune dysfunction receives multiple vaccines in one visit, it overloads and injures the immune system. Kim " Bradley's Mom " http://help-bradley.tripod.com Re: [ ] new to list Dear Carmen, Welcome to this corner of the world, and I hope you will stay around for a while and read here. I do not know when the MMR began use in NZ (but I'll bet someone will know.) You are correct that the MMR in particular is thought by many to have a particular connection to autism. HOWEVER, there is another viewpoint, greatly in evidence on this list, that the toxic metal mercury has a particular connection to autism. These views are not exclusive-- both the MMR in particular and mercury poisoning in particular may have a connection. Mercury is used in SOME (not all) children's vaccines. It is used in the preservative " thimerosal " . Now, why someone would not find a safer form of preservative to put into an injected product is another matter. For the moment here, my point is just that it IS in some vaccines, not whether this makes any sense! Mercury is also present in large quantity in silver dental fillings (they are over 50% mercury). This may potentially be a factor for some kids in exposure to mercury, since mercury can be passed from moms to babies in gestation and breastmilk. While this list is about LOTS of aspects of autism and heavy metal poisoning, it is largely about RECOVERY from metal poisoning. best wishes, Moria <-- adult with no kids, in the process of recovering from mercury poisoning. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2002 Report Share Posted March 4, 2002 Welcome to the list Carmen! I do not know the answer to your question about the MMR. As I read your e-mail, I kept thinking " she needs enzymes " . I am part of another list, the list, which is another group. Please join us and read about what enzymes can do for your daughter. I love this group and the enzymes group! Both have given me valuable information. Carolyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2002 Report Share Posted March 5, 2002 Kia ora koutou Thank you all for your advice, assistance and information. I found out that MMR arrived in NZ 1990, so my daughter hasn't had that one. Phew !! Here is the Brief Measles Vaccination History in New Zealand http://www.imac.auckland.ac.nz/resources/mmr/ and the Aotearoa / New Zealand Immunisation resources for Health Professionals site http://www.imac.auckland.ac.nz/resources/mmr/ I'm going to take some time to read your e-list references and website links. Kia ora !! Thanks again Carmen [ ] Re: new to list Welcome to the list Carmen! I do not know the answer to your question about the MMR. As I read your e-mail, I kept thinking " she needs enzymes " . I am part of another list, the list, which is another group. Please join us and read about what enzymes can do for your daughter. I love this group and the enzymes group! Both have given me valuable information. Carolyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2002 Report Share Posted November 5, 2002 Hi Jeff Welcome aboard. You can get hair testing done in many places, but if you use www.doctorsdata.com and get hair elements test (NOT TOXIC) you can apply the 'Counting Rules'. You can find explanations about this in group files / Look for the file about half way down called how to test hair, and be sure to check out some of the other great files when you can HTH Mandi in UK > Good Morning, > > I am brand new to the list, and would like to know where i might be > able to go to have my son (apraxia, CAPD, SID age 7) tested for heavy > metals. we live in the easton pennsylvania area, and can drive to > either philly or northern nj if needed. also is their something > specific i should have checked (or ask for) when having the tests > done? > thanks in advance! > > jeff Lawson > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2002 Report Share Posted November 5, 2002 > Good Morning, > > I am brand new to the list, and would like to know where i might be > able to go to have my son (apraxia, CAPD, SID age 7) tested for heavy > metals. we live in the easton pennsylvania area, and can drive to > either philly or northern nj if needed. also is their something > specific i should have checked (or ask for) when having the tests > done? > thanks in advance! > > jeff Lawson Hello Jeff, and welcome. Please read: /files/HOW_TO_hair_test best wishes, Moria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2002 Report Share Posted November 6, 2002 > Good Morning, > > I am brand new to the list, and would like to know where i might be > able to go to have my son (apraxia, CAPD, SID age 7) tested for heavy > metals. we live in the easton pennsylvania area, and can drive to > either philly or northern nj if needed. also is their something > specific i should have checked (or ask for) when having the tests > done? > thanks in advance! Go see Larry , DO, (215) 412-4910. . .. . . . . . .. . . > > jeff Lawson Andy . . . .. . . . . . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2002 Report Share Posted December 6, 2002 In a message dated 06/12/2002 14:41:06 GMT Standard Time, waltf4gret@... writes: > Please advise if this is just a time to > vent which will pass soon. > > For sure its passing, we don't forget but we get focused back on the kids, hang about! Mandi in UK Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2002 Report Share Posted December 6, 2002 hello " waltf4gret " , > HI, am new to the list; while some posts are fascinating and helping me in > my journey to heal my daughter, it is very politically slanted with a lot of > mud slinging and opinions about politics; is this the general jist of this > list, or did I just join at a bad time? well, the biggest news event EVER regarding the connection between autism and vaccines/mercury has just taken place and/or is in progress. We have had a GIGANTIC jump in the amount of " news " reporting that is related to autism/mercury. Very exciting. So there has been a VERY high level of posts about news and politics and such recently. Right now the level of this has " slowed down " some. It is hard to say what level will be on-going. It seems like this will be an " on-going news story " somewhat more than it was in the past.....although I don't know at what " level " . > Would love to get into political > pros and cons like some seem to do daily on this list, but my child is > first. Of course. As it should be! If you can manage to take what you like and ignore the rest, that might work. Try getting digest or reading on the web? /files/HOW_TO_groups The volume of posts about kids/supplements/chelation may be down (I'm not sure, but it seems less to me), but it won't go away. Very established. > Perhaps another list with a focus on appropriate medical > interventions might serve me better. There are several others, all with their own slants, of course. They may or may not be more appropriate for you. I personally feel this list is among the most helpful. --GFCFKids [very large list, requests posts be about GFCF although there is occassional off topic stuff] -- [about digestive enzymes, mostly Houston brand, chatty] --abmd " autism bio medical discussion " [wide range of topics; often pretty abstract/technical. not very chatty] --recoveredkids [content varies a great deal] --chelatingkids2 [requires that you be chelating a child under a doctor's supervision in order to join. Please write them for details of the requirements, I may have it wrong. I don't know what the content is, as I don't qualify] --phoenixkids [requires that you be a parent or professional to join. Again, I don't know what the content is. I think it is somewhat chelation-focused, and also somewhat regional memebership (Pacific Northwest region of the US)] That is some of them anyhow. Those (above) are all on groups. >Please advise if this is just a time to > vent which will pass soon. It is a bit more than in past times, but I don't know if it will pass or not. hope this is some help. best wishes, Moria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2002 Report Share Posted December 6, 2002 <PRE>good for you as i am new and i find myself doing a lot of deleting of my mail, i don't have time to get in to this politics, as i have no time to waist as Matt my son is going on three and i just found out this September that he has autism everyone told me i have to work quick and harde as i have no time to waist. thanks for your openness .how old is your daughter?my name is Lorraine, my son is . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2002 Report Share Posted December 6, 2002 > HI, am new to the list; while some posts are fascinating and helping me in > my journey to heal my daughter, it is very politically slanted with a lot of > mud slinging and opinions about politics; is this the general jist of this > list, or did I just join at a bad time? You just joined at a bad time. Hopefully people on list will start behaving more like this is a list for how to help the kids biomedically rather than how to do politics. >Would love to get into political > pros and cons like some seem to do daily on this list, but my child is > first. Hopefully more people will start to view their own situation this way and we can get back to most of the posts being relevant to helping individual children who have health problems. >Perhaps another list with a focus on appropriate medical > interventions might serve me better. Please advise if this is just a time to > vent which will pass soon. I sure hope it will pass soon. This USED to be a great list for focussing on appropriate medical interventions. Maybe it will turn back into that before all the parents who want to find out how to help their kids give up and go somewhere else. Andy . . . .. . . . . . . . .. . . . . . . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2002 Report Share Posted December 6, 2002 > My son is 8 years old - I'm not > even sure what the symptoms are for mercury poisioning other than > autistic > characteristics. If there is any guidance anyone could give me, I would > > be > grateful. > By the way, who is Andy? Me. ;-) Also see www.noamalgam.com and /files/ANDY_INDEX > Yours, Mickey Ellis > ******* > I would go ahead and get a hair elements test done to find > > out more about what you are dealing with asap. It gives an idea of > toxic exposures plus essential mineral imbalances. Its easy and > inexpensive. If you have a doctor who will order the test get it > from www.doctorsdata.com or www.gsdl.com Get the doctors data test if at all possible. It is MUCH more useful than the gsdl test. Make sure to get the " hair element profile, " not the test with " toxic " in the name. There are 2 hair tests that DDI offers. See /files/HOW_TO_hair_test for how to interpret the test and how to get it if your doctor is too silly to want to order tests that might come back with helpful results. > > If not you can order it direct from www.bodybalance.com or > www.vrp.com > but I think you don't get as many things tested that way. And the tests you get here are of zero diagnostic utilty. If you have to do it yourself, use the info in the how to hair test file to get one done. Many chiropractors will order one for you, too. . . . .. . . > > Once you find out more about what the problems are, they can be dealt > with by nutrition and supplements for the most part, dealing with > electrolyte imbalances, mineral imbalances, essential fatty acid > imbalances, perhaps hormonal imbalances, etc. and > oral supplement antagonists or chelators to deal with high toxic > metals. How long it takes depends on the individuals exposure and age > and other factors. There may also be viral or candida connectio Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2002 Report Share Posted December 9, 2002 Perhaps someone who has a real passion for advocacy and polital reform regarding autism/vaccines/mercury can start a list, and a lot of the nonmedical chit chat can be transferred to that list. When I was on a list before and there were a lot of parents who wanted to discuss something along different lines, they started a new list. This was great, because you could be on both lists to get the info you needed, but you could focus your attention on the parts which you found most important. Randee [ ] Re: new to list > > > HI, am new to the list; while some posts are fascinating and helping > me in > > my journey to heal my daughter, it is very politically slanted with > a lot of > > mud slinging and opinions about politics; is this the general jist > of this > > list, or did I just join at a bad time? > > You just joined at a bad time. Hopefully people on list will start > behaving more like this is a list for how to help the kids > biomedically rather than how to do politics. > > >Would love to get into political > > pros and cons like some seem to do daily on this list, but my child > is > > first. > > Hopefully more people will start to view their own situation this way > and we can get back to most of the posts being relevant to helping > individual children who have health problems. > > >Perhaps another list with a focus on appropriate medical > > interventions might serve me better. Please advise if this is just a > time to > > vent which will pass soon. > > I sure hope it will pass soon. This USED to be a great list for > focussing on appropriate medical interventions. Maybe it will turn > back into that before all the parents who want to find out how to help > their kids give up and go somewhere else. > > Andy . . . .. . . . . . . . .. . . . . . . > > > ======================================================= > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2003 Report Share Posted December 14, 2003 Sophia, I would have to disagree with your statement about autistic children not babbling. My daughter was diagnosised as being autistic @ 22mos & she babbled. My son is 2.5yr & in the process of getting evulated (probably PDD-NOS) for being on the spectrum & he babbles alot. A child is like a butterfly in the wind, some fly faster, some fly harder but they all fly the best they can. Each one is different, each one is beautiful and each one is special. [ ] new to list Hi I have been lurking more than a month, and I hope I am posting correctly. I am a grandma to a 21 month old, whom I also nanny 40-50 hours per week, I feel his parents (my son and new wife) are in denial, (and spend very little time with him anyway), as they just think he is a late talker, but I am trying to discern what it is that is wrong with him....I am also lurking on a couple other lists, I dont think he is autistic, he is very affectionate with me and smiles, etc....He is aware of my presence, follows me out of a room, and clings to me in a crowd. But he does not talk, imitate ( " Here are my eyes, where are your eyes? Lets touch our toes " etc), pretend play, or point. I know these are PDD markers, but I am most interested in feedback about the nature of speaking for a toddler. He does " babble " , ie. baby talk to himself, and autistic children dont do this, I dont think... What is your experience with late talkers? Do they babble as normal? sophia Quote Link to comment Share on other sites More sharing options...
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