CFS & Type A Personalities

[Guest guest]

I read that in his book too! But I'm not an

overachiever so I'm in the minority but I could be a

Type A because I'm antsy and don't know how to rest.

I'm also not a control freak which he said in his

book. In fact, I'm just the opposite. Oh Well! God

Bless, Lynn

--- cfpenpal wrote:

> People who develop severe chronic fatigue are often

> Type A individuals

> who were overachievers before they got ill. As they

> start to get

> better, they have a tendency to try and make up for

> lost time and to

> try to get everything done that they couldn't for

> the last three to

> ten years. DON'T. Initially, use the energy that you

> get back to start

> doing things that feel good. Most of the things that

> have been built

> up over time can go without ever being done. LET

> THEM.

[Guest guest]

Hi Jeanette! I have 'pushing myself' in me but not at

work! However, I used to always be on the go. Then I

crashed. Go figure it! Lynn

--- Jeanette French wrote:

> Hi all:

> Yes, I used to be Type A. Always on the go, working

> 2-3 jobs, and doing many

> activates. It is so hard not to be able to do this

> anymore.

> Jeanette

[Guest guest]

Good Morning Lynn,

I read his book a few years ago, when I was just learning everything I could.

It was a good book, I may have to buy it so I can keep referencing the info!

It's funny, I never considered myself a workaholic, or control freak per se.

Definitely a perfectionist and that is hard enough!

Jane

lynn paulino wrote: Hi Jane! I believe it but

I am definitely not one of

them in the sense that I'm a workaholic. But yes I do

push myself sometimes. I loved his book! It was very

well written and easy to read! God bless, Lynn

[Guest guest]

Morning Kate,

That's priceless! I think we probably all agree that term is the worst for

what we are all going thru, but in a way, look at who this disease effects the

most - young, very active women. We've all been pushing our systems so hard,

for so long, raising kids,going to school, working in and out of the home,

trying to be Martha and keeping our very busy lives together and haning

on by a thread, Holy Cow! Why wouldn't our systems shut us down?

I just keep praying and working for an answer

Jane

ShyCat2@... wrote:

All this goes way, way back to the original Yuppie Flu thought.

My favorite cartoon was a scruffy looking, long haired, bearded guy

sitting at a scruffy looking bar with another scruffy looking fellow.

As he drinks his beer he says to his buddy, " They say I have the Yuppie

Flu. "

Kate

[Guest guest]

It's like a little death of yourself - I believe it's the most difficult thing

about this disease, I'm just not really myself anymore.

Jane

Jeanette French wrote: Hi all:

Yes, I used to be Type A. Always on the go, working 2-3 jobs, and doing many

activates. It is so hard not to be able to do this anymore.

Jeanette

[Guest guest]

God Bless you ladies that have spouses that don't understand what

your going through. I am fortunate enough to have a wonderfully

supportive husband that not only has watched the changes to me but

attempts to do all the things I used to. I'm concerned for him

because he works fulltime plus and still comes home to making

dinner, laundry and attempts to keep the house up. He's watched my

attempt to do something and the fatigue hits so suddenly, I'm forced

back to bed and end up sleeping 6 plus hours. I wish he could talk

to your husbands to explain exactly what your going through (as if

that would ever happen) I will pray that they will open their eyes

and see what it must be like to be you. I wish I could work again

but if my husband did not understand what I was going through, the

first notion is to wish he could stay home all day to see but Im

sure you (as myself) would not wish this illness on my worst enemy!

I do wonder if either of you have found any support groups or even a

site that would cater to families of afflicted persons? I know it's

hard on everyone and especially spouses that love you and are in

denial or just don't fully understand but want their wives back.

My problem (or I feel it is because my husband says he thinks they

understand) is family members outside the home that have not seen me

daily or live with me to see what this is all about. I am especially

hurt when those you have known since birth would say things

like " don't you think, the more you read on this subject, it's like

wallering in it longer? " Wallering? Omg, as all you know..it's

anything but wallering in it! We attempt to do all we can to find

some little piece of the puzzle that would open the door to give us

part of our lives back! Without that, I have no hope!

I thank god we have each other to turn to.

Dutchie/

[Guest guest]

I am so sorry-I must have missed the original post. What book is

everyone referring to that has been helpful?

Sheryl

>

> Hi all:

> Yes, I used to be Type A. Always on the go, working 2-3 jobs, and

doing many

> activates. It is so hard not to be able to do this anymore.

> Jeanette

>

> Re: Re: CFS & Type A Personalities

>

>

> > Hi Jane! I believe it but I am definitely not one of

> > them in the sense that I'm a workaholic. But yes I do

> > push myself sometimes. I loved his book! It was very

> > well written and easy to read! God bless, Lynn

>

[Guest guest]

Hi Jane! I don't think people with CFS have the

strength to be control freaks! I'm definitely not a

control freak or workaholic. But I am a little of a

perfectionist at times. But I'm working on getting

rid of that. I'm resting more when I should so that's

really good. Lynn

--- Jane Luft wrote:

> Good Morning Lynn,

> I read his book a few years ago, when I was just

> learning everything I could. It was a good book, I

> may have to buy it so I can keep referencing the

> info! It's funny, I never considered myself a

> workaholic, or control freak per se. Definitely a

> perfectionist and that is hard enough!

> Jane

[Guest guest]

From Fatigued to Fantastic by Dr. Teitelbaum. Lynn

--- rshuck23 wrote:

> I am so sorry-I must have missed the original post.

> What book is

> everyone referring to that has been helpful?

>

> Sheryl

[Guest guest]

I agree Lynn - I hardly have the energy or brainpower to control my thoughts!

LOL

Listening to our bodies and resting when we need is SO important - it's great

to do that.

Jane

lynn paulino wrote:

Hi Jane! I don't think people with CFS have the

strength to be control freaks! I'm definitely not a

control freak or workaholic. But I am a little of a

perfectionist at times. But I'm working on getting

rid of that. I'm resting more when I should so that's

really good. Lynn

[Guest guest]

Hi Ginny! I'm working tomorrow! (Friday) I may be

off on Sunday. I'll let you know on either Friday or

Saturday depending on when I get my work schedule for

next week. Luv Ya - Lynn

--- Virginia Dempsey wrote:

> Hi Lynn,

>

> Sorry I didn't get a chance to call... have been

> very out of it... Had to go up to Albany for a Aunts

> Funeral and it has wipped it out...

[Guest guest]

perhaps WE JUST FEEL IT THE HARDEST...

Jeanette

Re: CFS & Type A Personalities

Hi Jane,

I just found the whole type A personality thing infuriating. I don't

know what kind of book you all are reading but the Yuppie Flu idea went out

long ago, about 15 years ago. I don't think blaming your personality for

this

disease is productive.

[Guest guest]

Please add me to the list as well!!!!!!!!!!!!!!! I never stopped. Of course,

today I started pulling old clothes out of cupboards to get rid of and the floor

in the lounge room was covered and all these people turned up!!!!!!!!!!!!!!!!!!!

sigh I just never seem to get around the house cleaning but then I am back to

sewing again. Insanity I know. I do enjoy sewing but not the folding up the

pattern or picking up the pins hehehe I need a slave.

Went to see the Rheumatologist and he says that my lupus is flaring up and it

looks like I have Raynauds now. He wants me to take Plaquenil

(hydroxychloroquine) does anyone else take that???? The possible side effects

sound nearly as bad as the condition. Has it helped anyone??? Thanks for your

help

Nerida

Diane Kauffman wrote:

I guess I am also a type A has-been. I barely stopped to sleep, couldn't

anyway. I am 64 with fibro CFS and osteoarthritis. I am so lazy!!!!!!!! I can't

stand myself. Fortunately my good husband never did want me to work so now he is

very understanding. I also lack mental motivation.

Diane in Ks.

[Guest guest]

Kate,

I'm sorry to have upset you so much. As I mentioned, I hate that term also

and am glad it is generally out of use. It is degrading and seriously downplays

the truth as we, the PWC's, know it. I don't necessarily BLAME my " personality

type " , but I can see the logic in that it could be a precursor to why I and many

women like me are more apt to have this disease. I personally don't know how or

why anyone gets this. There are so many theories, I believe if we took a little

piece of many of the theories, we will find the true cause.

Until someone finds that true cause, I try to keep my mind open to all

possibilities. I certainly didn't mean to offend anyone here, forgive me if I

did.

ShyCat2@... wrote:

Hi Jane,

I just found the whole type A personality thing infuriating. I don't

know what kind of book you all are reading but the Yuppie Flu idea went out

long ago, about 15 years ago. I don't think blaming your personality for this

disease is productive.

[Guest guest]

Diane,

You are definitely NOT lazy! Exhausted is more like it, I'm sure. We just

have to accept who we've become - I'm 43 and sometimes the thought of being this

way for the rest of my life is overwhelming, but I just have to keep positive

and pray there will be an answer soon, and enjoy my life the best I can. Be

thankful for that caring husband

Jane

Diane Kauffman wrote:

I guess I am also a type A has-been. I barely stopped to sleep, couldn't

anyway. I am 64 with fibro CFS and osteoarthritis. I am so lazy!!!!!!!! I can't

stand myself. Fortunately my good husband never did want me to work so now he is

very understanding. I also lack mental motivation.

Diane in Ks.

[Guest guest]

Amen!

[Guest guest]

Hi PJ,

I don't consider myself the " general uneducated/unaware public " . I have

suffered along with the rest of you and read everything I can about this mystery

disease I have, that no one REALLY knows anything about, cannot tell me why or

how I got it, cannot give me any real relief and the " general public " & medical

professionals looks down their noses at me..

If you have some definite answers, Please share them.

Jane

poodiejoe wrote:

Hi,Kate!

I understand your frustration with this subject but unfortunately

the general (uneducated/unaware) public continues it with help from

doctors like Dr. Teitelbaum (who I respect very much) but who

continues the misconceptions by addressing them.

Thanks for sharing, P.J.

[Guest guest]

Nerida,

I was on plaquenil for about a year and a half ending when I

had surgery in 2003 but went back on it about two months

ago. It does seem to help me with the pain, but, has not, at

this point helped with the fatigue at all. My rheumatologist is

unsure whether I actually have lupus or not, but, used

plaquenil, feldene and cytotec to treat me rather successfully.

Unfortunately, after having gastric bypass surgery I can not

longer take the feldene.

As far as the plaquenil side effects, from what I've learned,

they're pretty rare. Just if you decide to go on this medication,

make sure you see an eye doctor every six months. According

to my rheumatologist and also my opthalmologist, it's a very

rare occurence, but, plaquenil can damage your eyes.

Theresa

[Guest guest]

I am trying to restrain myself and be polite but it is not easy. How can

you weigh ones worth as more then another??

People sitting a their desk in the World Trade Center, one is a type A and

the other type B and the other type C and so on. You mean to say the type

A's life is worth more the others? The Type A has more to lose then a type C ??

I will not respond to any more of your comments, I think they speak for

themselves.

All humans are valuable

In a message dated 5/21/2006 6:33:10 AM Pacific Standard Time,

yonder@... writes:

Hi Kate,

No, no, I believe it effects each person it effects equally. But if you were

a person who was contended watching TV in the evening, and that was about

it, as compared to another who danced, and ice skated etc..in their evening,

it would seem a harder blow to the more active one,. That is all I was

saying.After all the TV watcher won;to do much altering if their life style,

and they are comfortable with it,.

However anyone who gets this will have to make some alterations in life

style, just some more that others.We are all effected by the symptoms, and

hard ships it brings on us.

Take care,

Jeanette

[Guest guest]

Can we agree that excessive stress is a possible cause?

I think some people think they are type A because they have had great

responsibility thrust on them and they have gotten sick from too much stress.

Excessive stress, I've been told, is a basic reason the immune system goes

kaflooey.