Guest guest Posted June 10, 2007 Report Share Posted June 10, 2007 Hi - My son is 7 months old. He had RSV at 2 days old, was hospitalized for 2 days and sent home with a nebulizer for xopinex. Since then, he has had a few times when I have used teh neb - he has a pretty chronic cough. The doc calls his condition - reactive airway disease. He tested negative for all of the allergies that the allergist tested (about 10). Apparantly babies rarely have allergies. he got a little virus last week and it his his lungs. He was coughing and crackling a lot.. The pedi added pulmacort to his neb treatements and said to use the xopinex every 4 hours. The allergist added singulair powder. He is definitly breathing better and coughing a lot less - much less crackly. The singulair seems to be working well. Anyway, the pedi now wants to test him for cystic fibrosis just to rule that out. I am worried sick. I was upset enough that he was likely to have asthma, but the possibility of CF is terrifying. Does anyone have similar stories? Is his case typical for early asthma sufferers? or does it seem like something more. Thanks, Nora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2007 Report Share Posted June 10, 2007 My son was like that when he was born in Florida. We moved to Spokane, WA and he isn't as bad here. Char baby with asthma? Hi - My son is 7 months old. He had RSV at 2 days old, was hospitalized for 2 days and sent home with a nebulizer for xopinex. Since then, he has had a few times when I have used teh neb - he has a pretty chronic cough. The doc calls his condition - reactive airway disease. He tested negative for all of the allergies that the allergist tested (about 10). Apparantly babies rarely have allergies. he got a little virus last week and it his his lungs. He was coughing and crackling a lot.. The pedi added pulmacort to his neb treatements and said to use the xopinex every 4 hours. The allergist added singulair powder. He is definitly breathing better and coughing a lot less - much less crackly. The singulair seems to be working well. Anyway, the pedi now wants to test him for cystic fibrosis just to rule that out. I am worried sick. I was upset enough that he was likely to have asthma, but the possibility of CF is terrifying. Does anyone have similar stories? Is his case typical for early asthma sufferers? or does it seem like something more. Thanks,Nora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2007 Report Share Posted June 10, 2007 My DD has a similar story. Hospitalized for three days with Pnuemonia. After a lot of continuous ER visits and wheezing, etc, she has since been diagnosed with asthma. She uses a nebulizer daily with various medications including Albuterol with Pulmicort. She also takes Singulair and Zantac. Initially, she was also tested for CF. They said it was something they routinely do to rule it out b/c the treatments for asthma and CF are totally different. CF is inherited and I believe both parents have to be carriers for the genes. Even then, your child still has only a 1 in 4 chance of developing it. I remember the DR also saying that children with CF have certain " body types " but he didn't elaborate. What I read later was that children with CF tend to have swollen hands? So take all that info into consideration and unless it runs in your family, I wouldn't be too concerned. Good Luck and feel free to email me. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2007 Report Share Posted June 11, 2007 DD had a very similar start to life. She was hospitalized w/ pneumonia for 3 days when she was 7 months old. Started on liquid albuterol and liquid prednisone whenever she had a cold or any stuffiness to help or hopefully prevent the asthmatic gasping and cough that always came with it. 16 years ago there were no steroids for inhaled use. When she was 18 months old, after 3 asthma related hospital admissions, she was started on neb treatments with intal (again, this is what there was at the time). She stabilized for the most part, but a cold of any type pretty much guaranteed an ER trip. When she was about 4 she started on inhaled steroids (beclovent) and we had our first winter without any hospitalizations. Over the years she's stabilized, and was lucky enough to have the remission that often happens as a teen. She's still very susceptible to illness, and the slightest thing will set off the asthmatic reaction and she's back on all the drugs and may end up in the hospital. edieowenmom wrote: > Hi - > > My son is 7 months old. He had RSV at 2 days old, was hospitalized for 2 days and sent > home with a nebulizer for xopinex. Since then, he has had a few times when I have used > teh neb - he has a pretty chronic cough. The doc calls his condition - reactive airway > disease. He tested negative for all of the allergies that the allergist tested (about 10). > Apparantly babies rarely have allergies. he got a little virus last week and it his his lungs. > He was coughing and crackling a lot.. The pedi added pulmacort to his neb treatements > and said to use the xopinex every 4 hours. The allergist added singulair powder. He is > definitly breathing better and coughing a lot less - much less crackly. The singulair seems > to be working well. Anyway, the pedi now wants to test him for cystic fibrosis just to rule > that out. I am worried sick. I was upset enough that he was likely to have asthma, but the > possibility of CF is terrifying. Does anyone have similar stories? Is his case typical for > early asthma sufferers? or does it seem like something more. > > Thanks, > Nora > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2007 Report Share Posted June 11, 2007 The cystic fibrosis gene (CFDR, there are ~3200 different mutations) is an autosomal (not on the x chromosome) recessive allele, which means that a child has to have two copies of the gene to have CF. If you are a carrier of the CF gene, you have a 50% chance of passing that gene on to your child (making the child a carrier). If the other parent is a carrier as well then they have a 50% chance of passing that gene on to the child, thus the child has a 25% chance of having CF (0.5 x 0.5 = 0.25). How CF effects a person depends on the types of mutations their CFDR genes have. Some children/adults have both digestive and respiratory symptoms, while others only have respiratory symptoms. The symptoms can be mild or severe, which is why some adults with mild cases are being diagnosed with CF these days. The 'body type' some people with CF have is usually due to some of digestive problems they have (mainly the pancrease does not function correctly because the ducts are blocked with thick mucus, and they can not produce digestive enzymes) which make it hard for them to absorb nutrients and gain weight. The swollen hands, called clubbed fingers, develop as a result of long term oxygen deprivation. As someone else mentioned testing to make sure you are dealing with asthma and not CF is crucial when treating such a young child. The treatment is different because of the impact CF has on digestion (which can be partialy treated with supplemental enzymes at meals), and the abnormal mucus in the lungs which help infections take hold. Treating CF as early as possible helps prevent early loss of lung function due to infections and ensures the child gets the proper nutrients needed for development. It can be a scarey diagnosis, but they are making leaps and bounds in treatment options. It used to be children with CF did not live past age 10, and now the average lifespan is well into the 30's. Brittney _________________________________________________________________________________________________ Do not go where the path may lead, go instead where there is no path and leave a trail. --Ralph Waldo Emerson Be a better Globetrotter. Get better travel answers from someone who knows.Yahoo! Answers - Check it out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2007 Report Share Posted June 11, 2007 Thanks - How old is your daughter now? Was she always crackly as a baby? My sone crackles more than he wheezes. While the thought of asthma doesn't thrill me, it is is a whole lot eeasier to swallow than CF. I sure hope teh sweat test is negative. Were you worried while waiting for your daughter's results? peace, nora > > > > My DD has a similar story. Hospitalized for three days with > Pnuemonia. After a lot of continuous ER visits and wheezing, etc, > she has since been diagnosed with asthma. She uses a nebulizer daily > with various medications including Albuterol with Pulmicort. She also > takes Singulair and Zantac. Initially, she was also tested for CF. > They said it was something they routinely do to rule it out b/c the > treatments for asthma and CF are totally different. CF is inherited > and I believe both parents have to be carriers for the genes. Even > then, your child still has only a 1 in 4 chance of developing it. I > remember the DR also saying that children with CF have certain " body > types " but he didn't elaborate. What I read later was that children > with CF tend to have swollen hands? So take all that info into > consideration and unless it runs in your family, I wouldn't be > too concerned. Good Luck and feel free to email me. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2007 Report Share Posted June 11, 2007 This sounds a lot like Owen - his asthma seems to be triggered by illness. Thanks for your replies!! > > Hi - > > > > My son is 7 months old. He had RSV at 2 days old, was hospitalized for 2 days and sent > > home with a nebulizer for xopinex. Since then, he has had a few times when I have used > > teh neb - he has a pretty chronic cough. The doc calls his condition - reactive airway > > disease. He tested negative for all of the allergies that the allergist tested (about 10). > > Apparantly babies rarely have allergies. he got a little virus last week and it his his lungs. > > He was coughing and crackling a lot.. The pedi added pulmacort to his neb treatements > > and said to use the xopinex every 4 hours. The allergist added singulair powder. He is > > definitly breathing better and coughing a lot less - much less crackly. The singulair seems > > to be working well. Anyway, the pedi now wants to test him for cystic fibrosis just to rule > > that out. I am worried sick. I was upset enough that he was likely to have asthma, but the > > possibility of CF is terrifying. Does anyone have similar stories? Is his case typical for > > early asthma sufferers? or does it seem like something more. > > > > Thanks, > > Nora > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2007 Report Share Posted June 11, 2007 Actually the funny part is is that before she got sick with pnuemonia, she never had any problems whatsoever. they told me in the pulmonary clinic that because of my family history, she was predisposed to it and it took getting really sick to kickstart it. = ( We are having a tough time keeping it in check b/c we are waiting for insurance approval (HMO nightmare) to give the green light for her to see various specialists. She is now 20 months. My son on the other hand is 4years old and he has always been the " crackly " one. Straight from the get go whenever he got sick he always sounded like he had rice krispies in his chest and was always on antibiotics. They said he had Reactive Airway Disease. But he has never had an asthma attack in the traditional sense like my daughter has. All the medical professionals have told me that each individual's asthma is as unique to that person as a fingerprint. Go figure!Quoting edieowenmom :> Thanks - How old is your daughter now? Was she always > crackly as a baby? My> sone crackles more than he wheezes. While the thought of asthma > doesn't thrill me, it is> is a whole lot eeasier to swallow than CF. I sure hope teh sweat > test is negative. Were you> worried while waiting for your daughter's results?>> peace, nora>>>>> Quote Link to comment Share on other sites More sharing options...
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