Guest guest Posted May 27, 2006 Report Share Posted May 27, 2006 The American CFIDS Association - www.cfids.org is pushing for the name change. You can sign up for their newsletters, become an activities and become a member. They are mostly about raising awareness of the disease and raising money for research. > > > Where did you read that, about the NIH ? If you have a link would you mind > posting. I would like to read it. > Thanks, > Kate > > In a message dated 5/26/2006 7:57:57 PM Pacific Standard Time, > janel450@... writes: > > I am with ya on that - the whole term " chronic Fatigue Syndrome " needs to be > deleted from our lives! I just read the NIH (?) wants to reterm it > " neuroendocrineimmune dysfunction syndrome " I'm all for that - it pretty well > covers the bases, dontcha think? > Jane > Quote Link to comment Share on other sites More sharing options...
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