Re: [BULK] re: Char

[Guest guest]

I've never had problems with my allergies causing asthma before last month. The people lied to me about mold being in the mobile when I bought it. The mold had never bothered me. Since the Asthma just started, maybe the mold is bothering me now. I never really had a need to educate myself on Asthma since I never had it until now.

I'm reading now but it will take time to learn. And don't forget, I haven't even seen my pulmonolgist yet. I know I saw a pulmonologist in 2001 but he just said to watch everything I eat and to get help with acid reflux. That's it.

Sorry I sound so uneducated. I can only try. No one is perfect when they first find out they have asthma. Like you

said, they have to read.

Char

[bULK] re: Char

Char,

Quite honestly, you sound like a very poorly controlled astmatic, and you are also living inside a mold filled trailer (as you mentioned prior is one of your allergies) you also sound very uneducated on your illness's, considering you have known you had allergies since 2001, I think you need to really understand your disease's and their process of what is really happening in your body with your asthma & allergies. Take a trip to your local library (or reputable websites on the web) and spend time reading about asthma & allergies, the more you educate yourself the better you will be controlled.

Bonnie

****************************

3d. Re: [bULK] daughter newly diagnosed... Posted by: "char from Spokane wa" adanaturkey8385webband adanaturkey8385 Maybe they are telling me wrong. I'm afraid to take my meds more than the perscription says so I just go on having asthma attacks w/o any more meds. I don't know what else to do. One day when I was having an attack after having meds, I went to the VA and by the time I got there, I was all better so they didn't do anything for me.

[Guest guest]

Well...my small piece of advice for someone new about asthma is this... Medication only doesn't really work, with asthma. You have to approach it from both sides attacking the problem from both ends. Meaning, approaching it from all angles with education and usage of: Medication ( try to gain control over asthma, and reduce or eliminate permanent damage ) Home remedies (bolster support of effects of medication, ease symptoms and reliance on others, and feel easier about going about chores, duties) Knowledge and Avoidance of triggers Family (and Spiritual) support (family often don't understand or realize how difficult a position it is, them having realistic expectations of what you can and can't do can help you to still be able to somehow find a way to be a strength and support to them, even if in small ways ) Diet and Food Plan ( will reduce symptoms, though

sometimes doesn't entirely eliminate them, such as reduction of phlegm. ) Even then...I really don't feel like my asthma is under control...so I wish I could sound more positive than I really am. I wish people could understand how terrible asthma is, today I haven't left the bed, because I can hardly breathe and I'm just trying to avoid going to the emergency room today. To the rest of you, I am grateful for your encouragement and advice, and hope to continually be able to hear from you. Sorry that I sound like a complainer, but it's easier to vent with people I don't know, so that when I talk to my family today I can at least sound positive and happy to them, even if that is difficult by itself. I think that I want to sound positive at least to them. char from Spokane wa wrote: I've never had problems with my allergies causing asthma before last month. The people lied to me about mold being in the mobile when I bought it. The mold had never bothered me. Since the Asthma just started, maybe the mold is bothering me now. I never really had a need to educate myself on Asthma since I never had it until now. I'm reading now but it will take time to learn. And don't forget, I haven't even seen my pulmonolgist yet. I know I saw a pulmonologist in 2001 but he just said to watch everything I eat

and to get help with acid reflux. That's it. Sorry I sound so uneducated. I can only try. No one is perfect when they first find out they have asthma. Like you said, they have to read. Char [bULK] re: Char Char, Quite honestly, you sound like a very poorly controlled astmatic, and you are also living inside a mold filled trailer (as you mentioned prior is one of your allergies) you also sound very uneducated on your illness's, considering you have known you had allergies since 2001, I think you need to really understand your disease's and their process of what is really happening in your body with your asthma & allergies. Take a trip to your local library (or reputable websites on the web) and spend time reading about asthma & allergies, the more you educate yourself the better you will be controlled. Bonnie **************************** 3d. Re: [bULK] daughter newly diagnosed... Posted by: "char from Spokane wa" adanaturkey8385webband adanaturkey8385 Maybe they are telling me wrong. I'm afraid to take my meds more than the perscription says so I just go on having asthma attacks w/o any more meds. I don't know what else to do. One day when I was having an attack after having meds, I went to the VA and by the time I got there, I was all better so they didn't do anything for me.

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[Guest guest]

And you can't take another treatment? Today I had a very bad day too. Should have stayed home but I didn't realize how bad it was going to get.

Char

[bULK] re: Char

Char,

Quite honestly, you sound like a very poorly controlled astmatic, and you are also living inside a mold filled trailer (as you mentioned prior is one of your allergies) you also sound very uneducated on your illness's, considering you have known you had allergies since 2001, I think you need to really understand your disease's and their process of what is really happening in your body with your asthma & allergies. Take a trip to your local library (or reputable websites on the web) and spend time reading about asthma & allergies, the more you educate yourself the better you will be controlled.

Bonnie

****************************

3d. Re: [bULK] daughter newly diagnosed... Posted by: "char from Spokane wa" adanaturkey8385webband adanaturkey8385 Maybe they are telling me wrong. I'm afraid to take my meds more than the perscription says so I just go on having asthma attacks w/o any more meds. I don't know what else to do. One day when I was having an attack after having meds, I went to the VA and by the time I got there, I was all better so they didn't do anything for me.

Need Mail bonding?Go to the Yahoo! Mail Q & A for great tips from Yahoo! Answers users.

[Guest guest]

You said, "if you already have food allergies, then you need to better educate yourself on cross reactive allergies!".

I never knew there was such a thing. Wouldn't a doctor, knowing I have allergies, tell me there is such a thing to look into? I didn't mean to upset everyone but it seems like everyone is upset with me. I signed on with this site to learn how to manage my asthma better for a start anyway.

Char

[bULK] re: Char

Well Char,

if you have those allergies then you may also be suffering from cross reactions of pollens & other foods and even hidden allergens as well! All of which can be contributing to your current asthma issues.

Folks with latex allergies often react to banana's (such as myself)

ragweed allergy can also = banana & melons allergy.

Mugwort allery= carrot, celery, apple, peanut & kiwi.

birch allery = apple, pear, peach, cherry, hazelnuts.

if you already have food allergies, then you need to better educate yourself on cross reactive allergies!

*******************

Posted by: "char from Spokane wa" adanaturkey8385webband adanaturkey8385I do have allergies to pears, blueberries, lettuce, tomatoes, any kind of wild animal meat, rice, oatmeal, rye, shrimp from Japan(LOL, I haven't been to Japan in years), cashews, hazelnuts, 1/2 of all molds, unknown kind of grass.

[Guest guest]

I haven't even seen the pulmonologist yet, haven't even gotten a peek meter flow thingy, haven't been told what

to do between the 4 hr times when I have attacks, nothing.

When I see the pulmonologist, this will be the time to ask some questions. And then I'll read.

Char

[bULK] Re: Char

Char,

You are not upsetting anyone! Sorry if it seemed that way to you. I am just offering my own opnion's and what has worked for me, and what I have been taught by allergists and pulmo docs. If you had a good allergy doc then that doc should have educated you on cross reaction allergy's.

however.....we are trully the only keeper of our bodies and hopefully towards our own better health by educating ourselves.

Seriously, we wait an average of 1 hour in a waiting room to see our doctors & then the average appt is only 10-15 minutes, what can they really help us with or actaully DX us with in that short visit?? Most docs prescribe and cater to the most obvious problem on that ONE particular day (not what bothered us for the past week/month before the visit) and they do not look beyond that one symptom before they send us out the door.

Basically, many patients are treated like a white horse (the most obvious diagnosis) when on occassion there is a zebra i(one who needs futrher tests and exams) in the herd.

Bonnie

*****************************

5d. Re: [bULK] re: Char Posted by: "char from Spokane wa" adanaturkey8385webband adanaturkey8385You said, "if you already have food allergies, then you need to better educate yourself on cross reactive allergies!". I never knew there was such a thing. Wouldn't a doctor, knowing I have allergies, tell me there is such a thing to look into? I didn't mean to upset everyone but it seems like everyone is upset with me. I signed on with this site to learn how to manage my asthma better for a start anyway.

[Guest guest]

I would suggest calling the pumonologist and explaining you are having more frequent attacks and what should you do - relay your concerns over the phone and not wait until you see the pulmologist. If you do not assert yourself for your care, nobody will do that for you. You have to take a assertive approach, your health is too important to put aside.>>> adanaturkey8385@... 04/13/07 9:58 AM >>>

I haven't even seen the pulmonologist yet, haven't even gotten a peek meter flow thingy, haven't been told what

to do between the 4 hr times when I have attacks, nothing.

When I see the pulmonologist, this will be the time to ask some questions. And then I'll read.

Char

[bULK] Re: Char

Char,

You are not upsetting anyone! Sorry if it seemed that way to you. I am just offering my own opnion's and what has worked for me, and what I have been taught by allergists and pulmo docs. If you had a good allergy doc then that doc should have educated you on cross reaction allergy's.

however.....we are trully the only keeper of our bodies and hopefully towards our own better health by educating ourselves.

Seriously, we wait an average of 1 hour in a waiting room to see our doctors & then the average appt is only 10-15 minutes, what can they really help us with or actaully DX us with in that short visit?? Most docs prescribe and cater to the most obvious problem on that ONE particular day (not what bothered us for the past week/month before the visit) and they do not look beyond that one symptom before they send us out the door.

Basically, many patients are treated like a white horse (the most obvious diagnosis) when on occassion there is a zebra i(one who needs futrher tests and exams) in the herd.

Bonnie

*****************************

5d. Re: [bULK] re: Char Posted by: "char from Spokane wa" adanaturkey8385webband adanaturkey8385You said, "if you already have food allergies, then you need to better educate yourself on cross reactive allergies!". I never knew there was such a thing. Wouldn't a doctor, knowing I have allergies, tell me there is such a thing to look into? I didn't mean to upset everyone but it seems like everyone is upset with me. I signed on with this site to learn how to manage my asthma better for a start anyway.

[Guest guest]

The pulmonologist's office will not speek to me until I've seen him and my appt is not until the 25th. Friday night, I'm wondering what was going on with me. Do any of you with asthma ever get a pain so bad in the base of your brain so bad you can't open your eyes and burning so bad in your chest, it feels like a big bad fire? That's what happened to me at 1:30 in the morning Saturday. 911 came and said my

sats were fine and my blood pressure fine and it all went away so they said to try to wait till morning when urgent care is open in the VA Hosp. I was better so I didn't go to the hosp ER. 911 said not to take any asthma meds till I see the urgent care at the VA. So, I waited. In the morn, I went to urgent care and the doc there said I was clear and my PFT looked fine so she said to cut back on my meds if I wanted to. She didn't think anything of the so called attack I had. I told her I couldn't cut back on my meds. She said I might try. So, I tried and it was 7:30pm last night and I started having a bad attack when I was at Outback Steak House. I took all my meds when I was there and it helped a little. By the time we got to the dance hall, I had to take another treatment, only an hour later. it got so bad after that, I got to wear I couldn't dance and I could hardly speek, my legs and my arms and chest were so heavy and tired.

I asked the guy that took us to take me home. I took the nebilizer treatment then and again an hour later and then felt

pretty good by then. Then I made it to morning and just took another treatment at 7:45 and I feel like I'm still having an attack. I'll go ahead and take another neb treatment at 8:45.

I hate taking them so close together like this but I think if I don't, I'll end up calling 911 again. I takes days and sometimes weeks to get into my regular physician at the VA. I see there's an e-mail on her card and call Monday to try to get into see her again.

Char

[bULK] Re: Char

Char,

You are not upsetting anyone! Sorry if it seemed that way to you. I am just offering my own opnion's and what has worked for me, and what I have been taught by allergists and pulmo docs. If you had a good allergy doc then that doc should have educated you on cross reaction allergy's.

however.....we are trully the only keeper of our bodies and hopefully towards our own better health by educating ourselves.

Seriously, we wait an average of 1 hour in a waiting room to see our doctors & then the average appt is only 10-15 minutes, what can they really help us with or actaully DX us with in that short visit?? Most docs prescribe and cater to the most obvious problem on that ONE particular day (not what bothered us for the past week/month before the visit) and they do not look beyond that one symptom before they send us out the door.

Basically, many patients are treated like a white horse (the most obvious diagnosis) when on occassion there is a zebra i(one who needs futrher tests and exams) in the herd.

Bonnie

*****************************

5d. Re: [bULK] re: Char Posted by: "char from Spokane wa" adanaturkey8385webband adanaturkey8385You said, "if you already have food allergies, then you need to better educate yourself on cross reactive allergies!". I never knew there was such a thing. Wouldn't a doctor, knowing I have allergies, tell me there is such a thing to look into? I didn't mean to upset everyone but it seems like everyone is upset with me. I signed on with this site to learn how to manage my asthma better for a start anyway.

[Guest guest]

When the PFT test was done, the lady administering it said "by looking at it, although it is within normal range, you did better after a treatment and you probably do have Asthma but only the doctor can tell you for sure." but that lady in the urgent care doesn't think so. that lady in Urgent care was horrible. Her attitude stunk.

[bULK] Re: Char

Char,

You are not upsetting anyone! Sorry if it seemed that way to you. I am just offering my own opnion's and what has worked for me, and what I have been taught by allergists and pulmo docs. If you had a good allergy doc then that doc should have educated you on cross reaction allergy's.

however.....we are trully the only keeper of our bodies and hopefully towards our own better health by educating ourselves.

Seriously, we wait an average of 1 hour in a waiting room to see our doctors & then the average appt is only 10-15 minutes, what can they really help us with or actaully DX us with in that short visit?? Most docs prescribe and cater to the most obvious problem on that ONE particular day (not what bothered us for the past week/month before the visit) and they do not look beyond that one symptom before they send us out the door.

Basically, many patients are treated like a white horse (the most obvious diagnosis) when on occassion there is a zebra i(one who needs futrher tests and exams) in the herd.

Bonnie

*****************************

5d. Re: [bULK] re: Char Posted by: "char from Spokane wa" adanaturkey8385webband adanaturkey8385You said, "if you already have food allergies, then you need to better educate yourself on cross reactive allergies!". I never knew there was such a thing. Wouldn't a doctor, knowing I have allergies, tell me there is such a thing to look into? I didn't mean to upset everyone but it seems like everyone is upset with me. I signed on with this site to learn how to manage my asthma better for a start anyway.

[Guest guest]

Bonnie,

No, I'm sure it wasn't a panic attack or migraine. I took my

asthma meds(4 of them), then I took 3 other meds, iron, acyclivor, and a med for acid reflux. The acid reflux med I hadn't taken before with the other meds. I kind of felt like it was an almost deadly combination. I haven't taken anything but my asthma meds since then and I've been fine. They didn't have an appt for me to see my doc until the day I see my pulmonologist so I asked the nurse to let her know I want to see her ASAP. I didn't hear anything back today.

Char

[bULK] re: Char

Hi Char,

By any chance did you have a panic attack? Sometimes it can become a vicious cycle, Or possibly, one heck of a migraine headache?

Sometime my migraines start at the base of my neck and feel like they are creeping up overto the center of my forehead, but they settle near my temple & eye.

________________________________________________________________________> > 1a. Re: [bULK] Re: Char> Posted by: "char from Spokane wa" adanaturkey8385webband adanaturkey8385

Do any of you with asthma ever get a pain so bad in the base of your brain so bad you can't open your eyes and burning so bad in your chest, it feels like a big bad fire? That's what happened to me at 1:30 in the morning Saturday.