Guest guest Posted October 31, 2000 Report Share Posted October 31, 2000 Thank you so much for the card. I really did need it :?| Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2000 Report Share Posted October 31, 2000 Thank you so much for the card. I really did need it :?| Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2000 Report Share Posted November 21, 2000 Heidi, You made me smile today. Three cheers for your very specail doc. MITZI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2000 Report Share Posted November 21, 2000 Heidi That was a very sweet story. Rosemary Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2000 Report Share Posted November 21, 2000 Heidi...... what a great story! I love hearing things like that......Thanks! jerry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2000 Report Share Posted December 8, 2000 Heidi in PA, I get that pinch-twitch quite often. My doc says it is from gastritis. shireen >From: KOOLMOM@... >Reply- egroups > egroups >Subject: [ ] To Everyone >Date: Fri, 08 Dec 2000 16:48:46 -0000 > >I have noticed the past three days I have had a small I quess you >would caal it a pain or a twitch in my right side under my reb cage. >It comes and goes> My labs are pretty good . This is the first time I >have ever felt this. Has anyone ever had a flare up with something >like this. I never had any pain with a flare up . Any input would be >appreciated. > Thanks > Heidi in PA > ________________________________________________________________________________\ _____ Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2000 Report Share Posted December 9, 2000 Yes. I have had those twitches frequently after my transplant and still do to this day. My transplant was done three months ago yesterday. [ ] To Everyone I have noticed the past three days I have had a small I quess you would caal it a pain or a twitch in my right side under my reb cage. It comes and goes> My labs are pretty good . This is the first time I have ever felt this. Has anyone ever had a flare up with something like this. I never had any pain with a flare up . Any input would be appreciated. Thanks Heidi in PA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2001 Report Share Posted January 9, 2001 This is a hoax that has been circulated by email for a couple of years. There is no such drug as progesterex. I don't know if this is true but itis scary, better safe than sorry I guess. Please pass on to everyone you know. Attachment: Forwarded Message From: CELL2002@... Date: Sun, 7 Jan 2001 11:07:01 EST Subject: Is this possible EVELYNBEATTIE@... This is important! PLEASE BE CAREFUL GIRLS!!! PLEASE PAST THIS ON TO EVERYONE! TO A DAUGHTER, FRIEND AND E-MAIL BUDDIES PLEASE!!!! Ladies, be more alert and cautious when getting a drink offer from a guy. Good guys out there, please forward this message to your lady friends. And boyfriends take heed. There is a new drug that has been out for less than a year. Progesterex, that is an essentially a small sterilization pill. Rapists at parties are now using the drug to rape AND sterilize their victims. Progesterex is available to vets to sterilize large animals. Rumor has it that the Progesterex is being used together with Rohypnol, the date rape drug. As with Rohypnol, all they have to do is drop it into the girl's drink. The girl can't remember a thing the next morning, of all that had taken place the night before. Progesterex, which dissolves in drinks just as easily, is such that the Victim doesn't conceive from the rape and the rapist needn't worry about having a paternity test identifying him months later. The drug's affects AREN'T TEMPORARY. Progesterex was designed to sterilize horses. Any female that takes it WILL NEVER BE ABLE TO CONCEIVE. The crooks can get this drug from anyone who is in the vet School of any university. It's that easy, and Progesterex is about to break out big on campuses everywhere. Believe it or not, there is even a site on the Internet telling people how to use it. Please forward this to everyone you know, especially the gals. This kind of thing cannot be tolerated. Thanks everyone for passing this along Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2001 Report Share Posted September 28, 2001 hi, i was just wanted to ask if anyone knew if drinking those protein powder mixes like you get at GNC with all the vitamins, amino acids,carbs,and so on was either good or bad. i have not had any restrictions on my diet but it seems like i have read that a lot of people do and one thing was to cut down on salt and protein. i didn't know why you would cut down on protein since I have never had to. Other than that everything is OK around here. I am getting real familiar with all the "Good Times" and "CHIPS" reruns and you would be surprised what you can learn about the texture of the paint on the walls when you are a total INSOMNIAC like myself. Greg Houston, TX Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2001 Report Share Posted September 30, 2001 In a message dated 9/28/01 10:36:15 PM Pacific Daylight Time, kgreg777@... writes: i have not had any restrictions on my diet but it seems like i have read that a lot of people do and one thing was to cut down on salt and protein. I believe that protein restrictions may apply to people whose condition is severe. I don't have any scarring, and my doctor told me to be sure I got plenty of protein. I know this conflicts with what others have been told, so check with your own doctor. My doctor said that recent theories suggest that perhaps even people with advanced cirrhosis should have a lot of protein rather than limiting it. Harper (AIH 5/00) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2001 Report Share Posted September 30, 2001 Hi Harper: According to Jodi's Hepatologist the liver has a very hard time with beef and pork. Hope your doing well, Genny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2002 Report Share Posted September 23, 2002 Hi everybody: All of you have made me feel so loved and accepted for who I am..not what I look like, how I talk, or what I wear. Dr. Gish is supposed to be a good doctor, and I am sure that extra weight isnt good for the liver, but neither is stress, alcohol, tylenol, and alot of food. Thanks for making me feel so loved. If there is ever anything that I can do or say...that doesnt cost me a million dollars, please feel free to ask or just use me as a venting machine. Lord knows we all need someone to vent to. Love and Hugs to all Sandy Sizer wrote: Too bad your doctor couldn't meet my doctor. He'd probably get served aknuckle sandwich!Regards, Re: [ ] hello.> well, Greg is back from the doctor and i am real disappointed. Greg askedabout viral loads> and genotypes and the doc just said all that stuff isn't important to himat all. he said all that is> important is that Greg has the disease and needs to be cured. he said onlythirty pervcent of> eople onthe treatment are cured. he didn't want to do a biopsy because hesaid it takes a> chunk out of the liver, and people can bleed to death. greg wants a biopsybecause he had> one ten years ago which showed minor scarring, and he wants to know ifit's worse or the> same. the doc said if the biopsy shows worse, then he recommends treatmentof one shot a> week and all the pills. he laughed in Greg's face when Greg mentioned AHCCand milk thistle> and said it was ridiculous. We have no choice since we have group healthinsurance. he did> draw more blood for testing, took a urine sample, and suggested that yes,i be tested. before,> he said no.> Someone is supposed to contact us about when the biopsy will be. I guess iwill call my doc> and have him send a slip to the lab so I can be tested.> Bye for now.> Sue in WA state>>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2003 Report Share Posted April 30, 2003 Patti, So sorry things are going so rough for you right now. I pray that I never have to face a transplant but I can imagine if I were facing one, I'd feel as you do - just find me a liver and get it over with! You are in a constant state of limbo right now and that is never good even when the limbo is over something much less significant than a liver transplant. I cannot imagine how hard this must be for you. You would not be normal if you didn't have to have some pity party days. Please know that you are in my prayers for God to be with you through this very difficult time. W Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2003 Report Share Posted April 30, 2003 Hang in there . You are going to make it. I am glad you stopped by to visit. You mentioned about work. Are you still working while you are so ill? You are one mighty strong woman! Keep the faith! Debby [ ] to everyone This is a group message. I cannot even try to respond to all the email I just read, I have been off for the past ten days and just sat here and read, I wanted so many times to respond but I knew I'd never make it through, plus messages get old here real quick, Bert, it makes no sense to send you my prayers for Zack's surgery when I knew it was over when I read your posts, or to tell you Tony, I hoped your biopsy was normal when I knew you would have the results before you got my message. By the way, Bert, I'm glad it went well, and Tony, you handle everything that comes your way with such grace you are truly our spiritual inspiration here. Thanks, and I found Zofran was somewhat helpful but my honest experience from chemotherapy is similar in sentiment to yours... get the bucket ready. I don't even know where to start so I will ramble. I am very distressed then comforted, then distressed again by the cheese story. I LOVE Gorgonzola, Blues, Brie, Feta, in fact I had a Greek salad for lunch with wonderful fresh feta. I hope someone can help me get this straight!. I miss the ocean. I grew up being told if I was stressed I just needed some good salt air and a swim... and a walk (preferably, according to my mother) on the beach. The pics are great! Jan I love your sunset, I am jealous. Tony, you are handsome. , I recommend Dr. Neff. He is quiet and thoughtful, and unbelievably intelligent, not to mention good looking. The nurses all call him the 'babe' of Hepatology, personally, I like the man alot but he's not my type. Also he's from Oklahoma so he has that slow, thoughtful, laid-back quality to him (remember other readers, this is Miami, before I moved here I spent 10 years in OKC so I appreciate the people). AIH and transplant. As all of you are aware by now, I had a transplant in 1998. It saved my life. I was dx w/ AIH in 1980 and had cirrhosis then. I am awaiting a second with the damage due to a spinal lymphoma for which they took me off my anti-rejection meds for 4 months to help me fight the effects of Chemotherapy. I went into chronic rejection for which there is no treatment. My read of the literature is that less than a third of people w/AIH end up in liver failure (maybe 10%... someone help me). I don't think transplantation is so bad. What is so awful is the waiting once you are in liver failure. I would much rather have a transplant then go through Chemotherapy. I have not been on-line because I am so tired and heading a bit over the edge. Overtime the phone rings I hope it is the transplant center calling that they have found me a liver. I am glued to my cell phone when I am out of the hospital. I am not sleeping even though I have resorted to taking Ambien. It does not help. The encephalopathy is driving me crazy, I am doing so many stupid things. I am at the point that when I d have labs I don't want them to be better (I don't have to worry, they never are) because I want to be retransplanted and get back to being healthy. I know that sounds strange to some of you, Jerry will understand, I think I am loosing my mind. What drives me most crazy is that there have been alot of events at work lately, It is the end of the semester and commencement etc. etc. etc., and I am tired of people telling me how wonderful I look! This is in reaction to the cancer treatment, I was gone all Fall semester, lost all my hair, and am now sporting a short (1" haircut) and 30 less pounds.. anorexic basically except for my 7 month pregnant liver belly. These people are obviously not looking at my yellow eyes and the yellowish tinge to my skin makes me look like I've been on vacation! OK, thanks for letting me have a pity party. I'm having a constant one over here! Last night my husband came home early from work to find me in tears, something that nearly never happens. It occurred to me later how much better I felt after talking to him for just a few minutes. Then we went out to dinner at this Indian Restaurant we both love and I could barely eat my stomach feels so full by the end of the day. I will leave with one question. Am I to understand Bozena that froddies are various type chocolate flat bellied no limb frogs? If so we can put this to rest. Love you all. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2003 Report Share Posted April 30, 2003 Thanks , It felt good to let loose. Glad I have you guys to let loose on. Patty -----Original Message-----From: Weston [mailto:karenw@...] Sent: Wednesday, April 30, 2003 10:41 PM Subject: Re: [ ] to everyone Patti, So sorry things are going so rough for you right now. I pray that I never have to face a transplant but I can imagine if I were facing one, I'd feel as you do - just find me a liver and get it over with! You are in a constant state of limbo right now and that is never good even when the limbo is over something much less significant than a liver transplant. I cannot imagine how hard this must be for you. You would not be normal if you didn't have to have some pity party days. Please know that you are in my prayers for God to be with you through this very difficult time. W Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2003 Report Share Posted April 30, 2003 Debby, Working keeps me sane. I am one of those lucky people who loves what she does. I get tired and don't always make it a full day but I really value it. Thanks, Patty -----Original Message-----From: tdcc [mailto:tdcc2000@...] Sent: Wednesday, April 30, 2003 10:44 PM Subject: Re: [ ] to everyone Hang in there . You are going to make it. I am glad you stopped by to visit. You mentioned about work. Are you still working while you are so ill? You are one mighty strong woman! Keep the faith! Debby [ ] to everyone This is a group message. I cannot even try to respond to all the email I just read, I have been off for the past ten days and just sat here and read, I wanted so many times to respond but I knew I'd never make it through, plus messages get old here real quick, Bert, it makes no sense to send you my prayers for Zack's surgery when I knew it was over when I read your posts, or to tell you Tony, I hoped your biopsy was normal when I knew you would have the results before you got my message. By the way, Bert, I'm glad it went well, and Tony, you handle everything that comes your way with such grace you are truly our spiritual inspiration here. Thanks, and I found Zofran was somewhat helpful but my honest experience from chemotherapy is similar in sentiment to yours... get the bucket ready. I don't even know where to start so I will ramble. I am very distressed then comforted, then distressed again by the cheese story. I LOVE Gorgonzola, Blues, Brie, Feta, in fact I had a Greek salad for lunch with wonderful fresh feta. I hope someone can help me get this straight!. I miss the ocean. I grew up being told if I was stressed I just needed some good salt air and a swim... and a walk (preferably, according to my mother) on the beach. The pics are great! Jan I love your sunset, I am jealous. Tony, you are handsome. , I recommend Dr. Neff. He is quiet and thoughtful, and unbelievably intelligent, not to mention good looking. The nurses all call him the 'babe' of Hepatology, personally, I like the man alot but he's not my type. Also he's from Oklahoma so he has that slow, thoughtful, laid-back quality to him (remember other readers, this is Miami, before I moved here I spent 10 years in OKC so I appreciate the people). AIH and transplant. As all of you are aware by now, I had a transplant in 1998. It saved my life. I was dx w/ AIH in 1980 and had cirrhosis then. I am awaiting a second with the damage due to a spinal lymphoma for which they took me off my anti-rejection meds for 4 months to help me fight the effects of Chemotherapy. I went into chronic rejection for which there is no treatment. My read of the literature is that less than a third of people w/AIH end up in liver failure (maybe 10%... someone help me). I don't think transplantation is so bad. What is so awful is the waiting once you are in liver failure. I would much rather have a transplant then go through Chemotherapy. I have not been on-line because I am so tired and heading a bit over the edge. Overtime the phone rings I hope it is the transplant center calling that they have found me a liver. I am glued to my cell phone when I am out of the hospital. I am not sleeping even though I have resorted to taking Ambien. It does not help. The encephalopathy is driving me crazy, I am doing so many stupid things. I am at the point that when I d have labs I don't want them to be better (I don't have to worry, they never are) because I want to be retransplanted and get back to being healthy. I know that sounds strange to some of you, Jerry will understand, I think I am loosing my mind. What drives me most crazy is that there have been alot of events at work lately, It is the end of the semester and commencement etc. etc. etc., and I am tired of people telling me how wonderful I look! This is in reaction to the cancer treatment, I was gone all Fall semester, lost all my hair, and am now sporting a short (1" haircut) and 30 less pounds.. anorexic basically except for my 7 month pregnant liver belly. These people are obviously not looking at my yellow eyes and the yellowish tinge to my skin makes me look like I've been on vacation! OK, thanks for letting me have a pity party. I'm having a constant one over here! Last night my husband came home early from work to find me in tears, something that nearly never happens. It occurred to me later how much better I felt after talking to him for just a few minutes. Then we went out to dinner at this Indian Restaurant we both love and I could barely eat my stomach feels so full by the end of the day. I will leave with one question. Am I to understand Bozena that froddies are various type chocolate flat bellied no limb frogs? If so we can put this to rest. Love you all. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2003 Report Share Posted April 30, 2003 WOW...you are one incredible woman to be able to work! You give me courage! Debby [ ] to everyone This is a group message. I cannot even try to respond to all the email I just read, I have been off for the past ten days and just sat here and read, I wanted so many times to respond but I knew I'd never make it through, plus messages get old here real quick, Bert, it makes no sense to send you my prayers for Zack's surgery when I knew it was over when I read your posts, or to tell you Tony, I hoped your biopsy was normal when I knew you would have the results before you got my message. By the way, Bert, I'm glad it went well, and Tony, you handle everything that comes your way with such grace you are truly our spiritual inspiration here. Thanks, and I found Zofran was somewhat helpful but my honest experience from chemotherapy is similar in sentiment to yours... get the bucket ready. I don't even know where to start so I will ramble. I am very distressed then comforted, then distressed again by the cheese story. I LOVE Gorgonzola, Blues, Brie, Feta, in fact I had a Greek salad for lunch with wonderful fresh feta. I hope someone can help me get this straight!. I miss the ocean. I grew up being told if I was stressed I just needed some good salt air and a swim... and a walk (preferably, according to my mother) on the beach. The pics are great! Jan I love your sunset, I am jealous. Tony, you are handsome. , I recommend Dr. Neff. He is quiet and thoughtful, and unbelievably intelligent, not to mention good looking. The nurses all call him the 'babe' of Hepatology, personally, I like the man alot but he's not my type. Also he's from Oklahoma so he has that slow, thoughtful, laid-back quality to him (remember other readers, this is Miami, before I moved here I spent 10 years in OKC so I appreciate the people). AIH and transplant. As all of you are aware by now, I had a transplant in 1998. It saved my life. I was dx w/ AIH in 1980 and had cirrhosis then. I am awaiting a second with the damage due to a spinal lymphoma for which they took me off my anti-rejection meds for 4 months to help me fight the effects of Chemotherapy. I went into chronic rejection for which there is no treatment. My read of the literature is that less than a third of people w/AIH end up in liver failure (maybe 10%... someone help me). I don't think transplantation is so bad. What is so awful is the waiting once you are in liver failure. I would much rather have a transplant then go through Chemotherapy. I have not been on-line because I am so tired and heading a bit over the edge. Overtime the phone rings I hope it is the transplant center calling that they have found me a liver. I am glued to my cell phone when I am out of the hospital. I am not sleeping even though I have resorted to taking Ambien. It does not help. The encephalopathy is driving me crazy, I am doing so many stupid things. I am at the point that when I d have labs I don't want them to be better (I don't have to worry, they never are) because I want to be retransplanted and get back to being healthy. I know that sounds strange to some of you, Jerry will understand, I think I am loosing my mind. What drives me most crazy is that there have been alot of events at work lately, It is the end of the semester and commencement etc. etc. etc., and I am tired of people telling me how wonderful I look! This is in reaction to the cancer treatment, I was gone all Fall semester, lost all my hair, and am now sporting a short (1" haircut) and 30 less pounds.. anorexic basically except for my 7 month pregnant liver belly. These people are obviously not looking at my yellow eyes and the yellowish tinge to my skin makes me look like I've been on vacation! OK, thanks for letting me have a pity party. I'm having a constant one over here! Last night my husband came home early from work to find me in tears, something that nearly never happens. It occurred to me later how much better I felt after talking to him for just a few minutes. Then we went out to dinner at this Indian Restaurant we both love and I could barely eat my stomach feels so full by the end of the day. I will leave with one question. Am I to understand Bozena that froddies are various type chocolate flat bellied no limb frogs? If so we can put this to rest. Love you all. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2003 Report Share Posted April 30, 2003 Patty it is always good to see you on line The only time I would wnt to see you off line is when they give you your new liver....but thenonly for a week. As you stated i know exactly what you are going thru, especially the encephalopathy, However there are 2 things you mentioned that I am not familiar with. 1) eventho I have cancer it has not progressed to chemotherapy and I hope I'm somewhere else when it does and they have to find me and 2) how in the world are you able to keep working...wow what a strong lady, my hat(s) (which I hardly ever wear...but put on for this occasion) is off to you. Keep on keeping on, you are a great inspiration and I hope they find a liver tomorrow if not sooner. BTw...i am not as jealous as a month ago as spring has sprung and the weather has joined it..i'm getting ready for my annual (world class ) tan. love jerry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2003 Report Share Posted May 1, 2003 Hi Patty, I have not ever had to have a transplant, but I think it is understandable to want your life back. I think it must be harder too, because you have had the enceplopathy and all the other side effects of a liver that is shutting down. When you have gone down that road before, you have to deal with facing it again and you need to have positive folks to listen and really care. Patty, I really related to what you said about people saying that you look good. I think people do that when they can't face serious health problems, I don't know if they are afraid that they too might have it happen to them, facing their own mortality, but I find it is one of the most frustrating parts of having chronic illness when folks minimize what we are going through. What bothers me most is that we aren't people who are feeling sorry for ourselves we just want to be treated like a normal person. It really helps me when people in our group are able to voice their frustrations, it helps to know that we are not alone. Thank you Patty for your transparency, I pray that you will get to have your transplant quickly and that you will have loving support from people instead of minimizing what you are going through. Love, Ruth" J. " <scott_p@...> wrote: This is a group message. I cannot even try to respond to all the email I just read, I have been off for the past ten days and just sat here and read, I wanted so many times to respond but I knew I'd never make it through, plus messages get old here real quick, Bert, it makes no sense to send you my prayers for Zack's surgery when I knew it was over when I read your posts, or to tell you Tony, I hoped your biopsy was normal when I knew you would have the results before you got my message. By the way, Bert, I'm glad it went well, and Tony, you handle everything that comes your way with such grace you are truly our spiritual inspiration here. Thanks, and I found Zofran was somewhat helpful but my honest experience from chemotherapy is similar in sentiment to yours... get the bucket ready. I don't even know where to start so I will ramble. I am very distressed then comforted, then distressed again by the cheese story. I LOVE Gorgonzola, Blues, Brie, Feta, in fact I had a Greek salad for lunch with wonderful fresh feta. I hope someone can help me get this straight!. I miss the ocean. I grew up being told if I was stressed I just needed some good salt air and a swim... and a walk (preferably, according to my mother) on the beach. The pics are great! Jan I love your sunset, I am jealous. Tony, you are handsome. , I recommend Dr. Neff. He is quiet and thoughtful, and unbelievably intelligent, not to mention good looking. The nurses all call him the 'babe' of Hepatology, personally, I like the man alot but he's not my type. Also he's from Oklahoma so he has that slow, thoughtful, laid-back quality to him (remember other readers, this is Miami, before I moved here I spent 10 years in OKC so I appreciate the people). AIH and transplant. As all of you are aware by now, I had a transplant in 1998. It saved my life. I was dx w/ AIH in 1980 and had cirrhosis then. I am awaiting a second with the damage due to a spinal lymphoma for which they took me off my anti-rejection meds for 4 months to help me fight the effects of Chemotherapy. I went into chronic rejection for which there is no treatment. My read of the literature is that less than a third of people w/AIH end up in liver failure (maybe 10%... someone help me). I don't think transplantation is so bad. What is so awful is the waiting once you are in liver failure. I would much rather have a transplant then go through Chemotherapy. I have not been on-line because I am so tired and heading a bit over the edge. Overtime the phone rings I hope it is the transplant center calling that they have found me a liver. I am glued to my cell phone when I am out of the hospital. I am not sleeping even though I have resorted to taking Ambien. It does not help. The encephalopathy is driving me crazy, I am doing so many stupid things. I am at the point that when I d have labs I don't want them to be better (I don't have to worry, they never are) because I want to be retransplanted and get back to being healthy. I know that sounds strange to some of you, Jerry will understand, I think I am loosing my mind. What drives me most crazy is that there have been alot of events at work lately, It is the end of the semester and commencement etc. etc. etc., and I am tired of people telling me how wonderful I look! This is in reaction to the cancer treatment, I was gone all Fall semester, lost all my hair, and am now sporting a short (1" haircut) and 30 less pounds.. anorexic basically except for my 7 month pregnant liver belly. These people are obviously not looking at my yellow eyes and the yellowish tinge to my skin makes me look like I've been on vacation! OK, thanks for letting me have a pity party. I'm having a constant one over here! Last night my husband came home early from work to find me in tears, something that nearly never happens. It occurred to me later how much better I felt after talking to him for just a few minutes. Then we went out to dinner at this Indian Restaurant we both love and I could barely eat my stomach feels so full by the end of the day. I will leave with one question. Am I to understand Bozena that froddies are various type chocolate flat bellied no limb frogs? If so we can put this to rest. Love you all. 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Guest guest Posted May 1, 2003 Report Share Posted May 1, 2003 Patty, you have far too much going on to get stressed about cheese. For goodness sake, eat what you fancy! As I said before, the risks are in non-pasteurised dairy produce and I cannot imagine much of that stuff around in the USA. My father's pet subject is food scandals and he can really take away your appetite with the stuff he digs up (don't even ask about gelatine, which is in almost all jelly sweets and most capsule-shaped meds...). My husband once suggested him as a guest speaker for weight watchers: 20 minutes of his talk will put anyone off food for several weeks. I wish you well and hope your new liver turnes up soon. And enjoy your Greek salads! Much love, Sophie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2003 Report Share Posted May 1, 2003 Patti, Pity party away anytime...you know this is the best place to have one! You seem to be coping really well with the wait, but I hope you get that phone call real soon. Keeping you in prayers and thoughts, nne > > > This is a group message. I cannot even try to respond to all the email I > just read, I have been off for the past ten days and just sat here and read, > I wanted so many times to respond but I knew I'd never make it through, plus > messages get old here real quick, Bert, it makes no sense to send you my > prayers for Zack's surgery when I knew it was over when I read your posts, > or to tell you Tony, I hoped your biopsy was normal when I knew you would > have the results before you got my message. By the way, Bert, I'm glad it > went well, and Tony, you handle everything that comes your way with such > grace you are truly our spiritual inspiration here. Thanks, and I found > Zofran was somewhat helpful but my honest experience from chemotherapy is > similar in sentiment to yours... get the bucket ready. > > I don't even know where to start so I will ramble. I am very distressed then > comforted, then distressed again by the cheese story. I LOVE Gorgonzola, > Blues, Brie, Feta, in fact I had a Greek salad for lunch with wonderful > fresh feta. I hope someone can help me get this straight!. > > I miss the ocean. I grew up being told if I was stressed I just needed some > good salt air and a swim... and a walk (preferably, according to my mother) > on the beach. > > The pics are great! Jan I love your sunset, I am jealous. Tony, you are > handsome. > > , I recommend Dr. Neff. He is quiet and thoughtful, and unbelievably > intelligent, not to mention good looking. The nurses all call him the 'babe' > of Hepatology, personally, I like the man alot but he's not my type. Also > he's from Oklahoma so he has that slow, thoughtful, laid-back quality to him > (remember other readers, this is Miami, before I moved here I spent 10 years > in OKC so I appreciate the people). > > AIH and transplant. As all of you are aware by now, I had a transplant in > 1998. It saved my life. I was dx w/ AIH in 1980 and had cirrhosis then. I am > awaiting a second with the damage due to a spinal lymphoma for which they > took me off my anti-rejection meds for 4 months to help me fight the > effects of Chemotherapy. I went into chronic rejection for which there is no > treatment. My read of the literature is that less than a third of people > w/AIH end up in liver failure (maybe 10%... someone help me). I don't think > transplantation is so bad. What is so awful is the waiting once you are in > liver failure. I would much rather have a transplant then go through > Chemotherapy. > > I have not been on-line because I am so tired and heading a bit over the > edge. Overtime the phone rings I hope it is the transplant center calling > that they have found me a liver. I am glued to my cell phone when I am out > of the hospital. I am not sleeping even though I have resorted to taking > Ambien. It does not help. The encephalopathy is driving me crazy, I am doing > so many stupid things. I am at the point that when I d have labs I don't > want them to be better (I don't have to worry, they never are) because I > want to be retransplanted and get back to being healthy. I know that sounds > strange to some of you, Jerry will understand, I think I am loosing my > mind. What drives me most crazy is that there have been alot of events at > work lately, It is the end of the semester and commencement etc. etc. etc., > and I am tired of people telling me how wonderful I look! This is in > reaction to the cancer treatment, I was gone all Fall semester, lost all my > hair, and am now sporting a short (1 " haircut) and 30 less pounds.. anorexic > basically except for my 7 month pregnant liver belly. These people are > obviously not looking at my yellow eyes and the yellowish tinge to my skin > makes me look like I've been on vacation! > > OK, thanks for letting me have a pity party. I'm having a constant one over > here! Last night my husband came home early from work to find me in tears, > something that nearly never happens. It occurred to me later how much better > I felt after talking to him for just a few minutes. Then we went out to > dinner at this Indian Restaurant we both love and I could barely eat my > stomach feels so full by the end of the day. > > I will leave with one question. Am I to understand Bozena that froddies are > various type chocolate flat bellied no limb frogs? If so we can put this to > rest. > > Love you all. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2003 Report Share Posted May 1, 2003 I just realized how alliterative that sounds..... " pity party Patti " .... Patti ...I have never received the notion that you wee self pitying, but rather the opposite... love jerry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2003 Report Share Posted May 2, 2003 , I have never heard of this new hepatologist, I hope she is good, they are pretty picky so I bet she is, if not ask for Dr. Neff. I have also been very please with my care at UM. Thanks for the kind words, I certainly don't see my life as more trying than anyone else in this group, in fact, you my dear have had it pretty rough yourself. So, we'll all do a lot of praying! Take care , Good night. Patty -----Original Message-----From: gina413@... [mailto:gina413@...] Sent: Friday, May 02, 2003 12:20 PM Subject: Re: [ ] to everyonePatty: Oh, how my heart goes out to you. You have been through such trying times, and yet you are so strong.I am praying that you will receive your new liver soon. You deserve to have health and peace now.Thank you for the info on Dr. Neff. They have already hooked me up with Dr. Arie Regev, a new hepatologist in the group. My appt is for August 1, so we will see. And, my rheumatologist at UM yesterday wrote a referral to the pain clinic there for my back problem, Dr. Yili Zhou. I have been very pleased with my care there so far.My thoughts and prayers are with you.Love -gina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2005 Report Share Posted December 20, 2005 I wanted to post a note to everyone to wish you well and hope that the stress of the holidays doesn't get to you too much. I have had so much going on this month, none of it that great, that I am actually looking forward to the family get together this Christmas eve. Usually I dread that. I just wish it didn't have to be so dog gone cold!! LOL But, tis the season!! Merry Christmas everyone and Happy Holidays. I have a fortune from a cookie I got a months back. I keep it at my computer for the words of wisdome that they say. " Your path is arduous, but will be amply rewarding " . Arduous it is!! Rewarding? I don't know. But, the path of life and of goodness isn't easy. If it were, everyone would be doing it!! LOL Take care all....Marina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2010 Report Share Posted October 6, 2010 That doctor should be responsible ( pay for , not do ) for any and all surgeries that you may have to have in the future. What he did was pure laziness..... Bless your heart, we will pray that you heal despite the situation......I do believe in miracles....but also know reality... We are here for you ! Hugs Dede When the power of love overcomes the love of power the world will know peace. ~ Jimi Hendrix To Everyone Let's say a gag order was a non issue, who are the ladies that want to kick silicone ass the most and have the energy and time to do it? Any women or men who share PJ Brent's drive and passion for justice wanting to attempt round two and have the time to take it on? ------------------------------------ Quote Link to comment Share on other sites More sharing options...
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