Guest guest Posted November 1, 2005 Report Share Posted November 1, 2005 Welcome Please tell us more about your sons. There's always someone here that can identify. Ruth Crystal Isaacs wrote: hi i am a 22 year old mother of twins one of my sons was diagnosed with PMG when he was 3 weeks old he is now 6 months old. me and my husband are having a hard time understanding this and we would like to tlk to people that have been throgh it that might help. we have had genetics testing and see doctors but they arent really any help if you can help with any information or just maybe to chat my email if Twinmomma422@... or sadie216@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2005 Report Share Posted November 1, 2005 Hi my name is my son Peyton is 3 he has PMG where are you from if we Know that we could give you some doctors to go go see to get better info my email is asandlin317@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2005 Report Share Posted November 2, 2005 Hi Crystal, My name is Chrissy and I am also a young mom (22) with a son who has Polymircogyria. His name is Mason and he was diagnosed when he was 6 weeks, he's now 10 months so we're starting to learn a lot more about this disorder. Its hard being a young mother to begin with and then you add on this disorder and its a lot harder, I'm not saying its not as hard for someone who's a little older because in general its a hard thing to deal with. But these kids are sooo loving and adorable. If you need any help just let me know. Chrissy Mom to Mason (10 months) BF Polymicrogyria, seizure disorder, cortical vison impairment. > > hi i am a 22 year old mother of twins one of my sons was diagnosed with > PMG when he was 3 weeks old he is now 6 months old. me and my husband > are having a hard time understanding this and we would like to tlk to > people that have been throgh it that might help. we have had genetics > testing and see doctors but they arent really any help if you can help > with any information or just maybe to chat my email if > > Twinmomma422@h... or sadie216@y... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2005 Report Share Posted November 2, 2005 We see an opthamologist and we have had no seizures so far. All we can tell is that he is a little behind his brother in some areas, but other than that he is doing as well as to be expected. All the doctors that we see have said that he is doing better than they thought he would, but he still says that he looks like a baby that has problems. > > > > hi i am a 22 year old mother of twins one of my sons was diagnosed with > > PMG when he was 3 weeks old he is now 6 months old. me and my husband > > are having a hard time understanding this and we would like to tlk to > > people that have been throgh it that might help. we have had genetics > > testing and see doctors but they arent really any help if you can help > > with any information or just maybe to chat my email if > > > > Twinmomma422@h... or sadie216@y... > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2005 Report Share Posted November 3, 2005 HI Chrissy and Crystal, I too am a 22 yr old mom with a son with pmg. I havent been able to write in awhile but My son is 10 months old as well and was diagnosed at 6 weeks too. I havent seen any seizures yet, but he does have a large head and because of that he is having a lot of difficulty holding it up, so his motor skills are behind. My sons dad left us when he knew the baby had the disorder. Yes it is hard to be young and alone. But it is great to have people to turn to to help. But what I would like to know is what you were told when you received the diagnosis as to why your child was born with it? Im just curious. Please let me know. Thanks, Mother of Rylan 10 mo. w/ frontal parital polymicrogyria. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2005 Report Share Posted November 3, 2005 , I found out had pmg just before his second birthday. No prognosis was given as far as what it means developmentally. also has other issues that put him behind in the area of gross motor skills. Please don't automatically think the worst about your son's condition. No research has been conclusive on what causes pmg. No one has even tried to give us an explanation for 's conditions. I'm primarily a lurker at this site and since I've been a member I have yet to see two children with the same exact diagnosis and problems associated with pmg. Always remember you are not alone. There are a lot of folks here to encourage you. Kaye, mom to Johanan, " " , sb t12 to s?, 2 yrs old, Chiari II, VP Shunt (1 revision/1 setting change), biparietal polymicrogyra, cath 5x day, ditropan, occasionally Mirilax; also mom to 6 other wonderful gifts from the Lord - ages 4 to 15, wife to super husband Farrel. Re: Re: im new HI Chrissy and Crystal, I too am a 22 yr old mom with a son with pmg. I havent been able to write in awhile but My son is 10 months old as well and was diagnosed at 6 weeks too. I havent seen any seizures yet, but he does have a large head and because of that he is having a lot of difficulty holding it up, so his motor skills are behind. My sons dad left us when he knew the baby had the disorder. Yes it is hard to be young and alone. But it is great to have people to turn to to help. But what I would like to know is what you were told when you received the diagnosis as to why your child was born with it? Im just curious. Please let me know. Thanks, Mother of Rylan 10 mo. w/ frontal parital polymicrogyria. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2005 Report Share Posted November 4, 2005 Hi , It is really great having people that can relate to you because a lot of people just don't understand. I have a friend who had her son 3 weeks after Mason was born. She just told me he's trying to walk now, and my son who's 3 weeks older than hers can't hold his head up yet. Which is pretty upsetting, but Mason has his own pace. And he, as well as your child, will continue to do things at his pace and in time will be able to do more. We were told, when he was 2 months old and diagnosed him with Polymicrogyria, that the worst was that he could never walk or talk and the best is him going to a normal school with help. Thats a pretty wide range difference so we're trying to stay optomistic about things and hope for the best. I will pray for your son. Hopefully someday we can meet up and introduce our son's if you live near by, I live in PA. Because its always good having someone who can relate to you. Best of luck. Chrissy Mom to Mason (10 months) BF Polymicrogyria, seizure disorder, cortical vison impairment. > > HI Chrissy and Crystal, > I too am a 22 yr old mom with a son with pmg. I havent been able to > write in awhile but My son is 10 months old as well and was diagnosed at 6 weeks > too. I havent seen any seizures yet, but he does have a large head and > because of that he is having a lot of difficulty holding it up, so his motor > skills are behind. > My sons dad left us when he knew the baby had the disorder. Yes it is > hard to be young and alone. But it is great to have people to turn to to > help. But what I would like to know is what you were told when you received the > diagnosis as to why your child was born with it? Im just curious. Please > let me know. > Thanks, > > Mother of Rylan 10 mo. w/ > frontal parital polymicrogyria. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2006 Report Share Posted February 11, 2006 Hello- I am Stacey. I am 34 yrs old. I am in my 2nd Marriage of 3yrs. I just found out that I have a touch of Asthma. I am So confused about this disease. I have read so much on it,that it confuses me. I am overweight also with a Acid reflux,Depression,Borderline Personality disorder, and Thyroid diseases as well. I guess my question is Since im overweight --how can you exercise when you Get out of breath on exertion. Is this part of Asthma. I am on Advair and Albuterol. Well I hope I can get help and the support I need --this really scares me. Stacey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2006 Report Share Posted February 11, 2006 Getting rid of some lbs will help. If you cant exercise you will have to diet. Not a fad diet but an standard diet of eating 9 servings of fruits and veggies a day, control your portion sizes (on everything), watch your intake of fat and only drink water. One of the problems with Americans is we over eat. The anti-carb diet is only half right. We eat to many carbs but cutting them all out is not good either. If you all have a Pasta House in your town (like Olive Garden or Spaghetti Factory) a large plate of pasta is about 6-8 servings of carbs on one plate. Yes 6 to 8. And who eats pasta without bread? So watch what you eat, control your portions, stay away from sugary drinks and get out and walk (slow is OK) every other day. That should help. Try this website for more information..... www.mypyramid.gov/ > > Hello- > I am Stacey. I am 34 yrs old. I am in my 2nd Marriage of > 3yrs. I just found out that I have a touch of Asthma. I am > So confused about this disease. I have read so much on it,that it confuses > me. I am overweight also with a Acid reflux,Depression,Borderline > Personality disorder, > and Thyroid diseases as well. I guess my question is > Since im overweight --how can you exercise when you > Get out of breath on exertion. Is this part of Asthma. I am on > Advair and Albuterol. Well I hope I can get help and the support I need > --this really scares me. > Stacey > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2006 Report Share Posted February 11, 2006 Thank you ---I am going to start to workout on my Gazelle machine About 10 minutes a day. I drink about 10 -16oz. Glasses of water A day. I hardly eat. Stacey -- Re: Im New Getting rid of some lbs will help. If you cant exercise you will have to diet. Not a fad diet but an standard diet of eating 9 servings of fruits and veggies a day, control your portion sizes (on everything), watch your intake of fat and only drink water. One of the problems with Americans is we over eat. The anti-carb diet is only half right. We eat to many carbs but cutting them all out is not good either. If you all have a Pasta House in your town (like Olive Garden or Spaghetti Factory) a large plate of pasta is about 6-8 servings of carbs on one plate. Yes 6 to 8. And who eats pasta without bread? So watch what you eat, control your portions, stay away from sugary drinks and get out and walk (slow is OK) every other day. That should help. Try this website for more information.....www.mypyramid.gov/--- In asthma , "Stacey May" wrote:>> Hello-> I am Stacey. I am 34 yrs old. I am in my 2nd Marriage of> 3yrs. I just found out that I have a touch of Asthma. I am> So confused about this disease. I have read so much on it,that it confuses> me. I am overweight also with a Acid reflux,Depression,Borderline> Personality disorder,> and Thyroid diseases as well. I guess my question is > Since im overweight --how can you exercise when you > Get out of breath on exertion. Is this part of Asthma. I am on> Advair and Albuterol. Well I hope I can get help and the support I need> --this really scares me. > Stacey> Quote Link to comment Share on other sites More sharing options...
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