Guest guest Posted December 21, 2005 Report Share Posted December 21, 2005 Hi, My name is , I have RA.and Asthma (severe, been intubated 13x) and Diabetes induced by long term, high dose prednisone use.Also, degenerative disc disease (fusion at L3/4) and osteoarthritis. Dx'ed with RA in Jan 2003. Currently the meds I'm supposed to be on, I say supposed, because I am on SSD and Medicare, and the meds are too expensive.... Humera (doc is changing it to Remicade in Jan, b/c it gets billed differently, and will be covered) MTX (was put on for the asthma experimentally before RA dx'd) off most of this year due to no insurance, just restarted this month. Plaquenil (also not currently on due to $) Folic Acid Advair (again, the $$ ) $150 for ONE inhaler???? MS-contin Seasonale for period regulation and back on Prednisone because currently have an upper resp. infec. Anyway, I live in Oklahoma with my partner, Amy and our 2 boys, one is 7 and one is 12. The 7 year old has Down Syndrome and Autism (and is currently in time out for tipping over the Christmas tree!). He is non verbal and we are working on the potty training, so he is still in pull ups. He also doesn't understand why there are times (this week especially) that Mommy can't pick him up. The 12 yo has ADHD and Aspergers and typical pre-teen attitudes on top of that! (did I mention they are home on Christmas break?????) I'm very glad to have found this group. I've been suffering lately from the " but you don't LOOK sick " syndrome from others (not immediate in house family, but extended that I see at the holidays). No one gets why I have a handicapped parking pass....I use it the days I need to, and am dam* glad to have it to use. I am getting the " you WERE working, why can't you now " ..... ummm, bosses don't take kindly to workers missing more than half of schedules b/c of illness. And, to top it off, today is my 40th birthday. Not bummed about turning 40, bummed about being forty and FEELING a heck of alot older! The RA is really beginning to affect my hands. I used to knit, crochet, spin and weave ALOT. Now, if I can get a few stitches off, I feel lucky. Anyway, just realized how long this is getting. I am glad to have found the group. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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