Guest guest Posted December 15, 2005 Report Share Posted December 15, 2005 I know its ok, but i still hate asking questions.. me being mixed connective, ive gotten a lot of help on the RA part and fibro but the lupus part im still seeking personal encounters cause the docs dont seem to want to say much..cept how r you feeling??? Gee and on tv right now is a news thing on abc with the insurance crisis in america????Anyways, i was told without the rash on face they were sure i didnt have it but my tests come up positive... Chronic eye sores, mouth ulcers , rashes, hives ,, and i had written before on how all my biopsies came up with different diag. and all had lupus in them. the plaquenil had gotten rid of all of it for while. Thought all was gone... summer was the best i had felt in many yrs. (i was diagnosed initially at 27 with poss sle and ra im 43 now) Once the cold hit i got real bad... sunburned looking, plus ranauds that really hurts....and all the nodes as i had said before.. Im sorry im feeling really bad sometimes i wish the pain was everyday so i could MENTALLY deal with it better..It is much harder to deal with something that is gone for a bit and then bites ya in the ass the next.. At least i know i have mixed ... but really lookin for help for lupus part... My lungs and intestines and blood vessels always seem to be effected with the flares... i think the docs are finally taking notice after all these yrs......Lungs are always the worst.... thanks guys i love this group... you guys are great... thank you.... debbie Quote Link to comment Share on other sites More sharing options...
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