Guest guest Posted June 9, 2006 Report Share Posted June 9, 2006 EXACTLY - I was always worried I'd get pulled over driving home from work LOL But now, my PCP thinks that becuz of the " drunken gait " and slurred speech, it must suddenly be MS ! This was ruled out two neurologists ago! And he is now referring me to my 4th! I worked for 3 ophthalmologists before I " retired " in Feb of this year (I was actually fired!), I was the 'go to girl' for any and all questions, medical or technical, I could code anything by memory for billing purposes. Towards the end, I had to look up everything, couldn't remember stuff I have known without even thinking about it, for 15 years! My boss did all my eye exams and found no signs of MS in my optic nerve. I really don't feel MS is my problem, ESPECIALLY after hearing what everyone here is saying. There is no doubt in my mind that CFIDS / ME is my diagnosis and I'm frustrated that now, after all these years of treating it as CFIDS, my doctor is backpeddling when I need him most since I'm fighting for disability. If he's telling SSA he doesn't know what it is, how could I have a chance? Ugh! Just another day in paradise! LOL Jane Frugal Gal wrote: Jane, I worked as a court reporter when I " retired " with CFS/FM. I was also single and going out from time-to-time with friends. I would tease the Judges during break - and ask them to watch me to do the sobriety tests. I couldn't close my eyes and touch my nose - or even stand up with my eyes closed. I didn't have enough balance to walk a straight line most days - and when I finally " gave up " and " retired " I couldn't even remember what a witness said 10 minutes before - when I was the one taking down every word for the record. I would say " Okay, IF I get stopped this week-end, don't be calling in a visiting judge for my hearing - just say you know I can't pass any of those tests, and dismiss it. LOL! Marty Frugal Gal cfsgal@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2006 Report Share Posted June 9, 2006 Hi Jane, In your case if you can go and push to go with what you already know. Later these other things can be checked out, but like you said you need strong stuff for this hearing...Are you working with a lawyer, perhaps he can help you get exactly what you need. It is so scary if you feel you don't have enough medical info to present to them... Jeanette Re: Jane - drunk etc. EXACTLY - I was always worried I'd get pulled over driving home from work LOL But now, my PCP thinks that becuz of the " drunken gait " and slurred speech, it must suddenly be MS ! This was ruled out two neurologists ago! And he is now referring me to my 4th! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2006 Report Share Posted June 10, 2006 Ya know, you never really know what your doctors are saying or sending ( I don't personally have a copy of all my medical files from all my doctors.) Funny thing is, I used to fill out disability forms for patients - and I know personally, the form is a good 8 pages long and you can't make a statement on that form that you can't back up with medical records. Well, I know my doc has it DOCUMENTED in my chart, I have that copy, he told me it was CFIDS back in July of 1999. I know he's just really concerned and I guess wants to keep 'ruling out " other diseases. I've been with this guy for 20+ years, he knows me well and I think he just wants to do right by me, ya know? Yes, I have hired an attorney and she is awesome. She got a real eyeful on the day I met with her. I was all jaw and head jerking, mouth jerking open , very difficult speech and drunk walking all over the place (was that good or bad ?? LOL) I feel that is the biggest benefit, she can speak with my physicians and help them " document correctly " . At least, that's what I'm hoping for. I feel, by the records I have, they can't really confirm it's anything else....isn't that part of the problem? No confirming tests? Frustrating, but here we go............ Jane Jeanette French wrote: Hi Jane, In your case if you can go and push to go with what you already know. Later these other things can be checked out, but like you said you need strong stuff for this hearing...Are you working with a lawyer, perhaps he can help you get exactly what you need. It is so scary if you feel you don't have enough medical info to present to them... Jeanette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2006 Report Share Posted June 10, 2006 Hi Jane, Yes, I can relate, at my recent hearing the judge read a statement supposedly from one of my Rheumies that I was slowly getting better, and I was like where did that come from. I totally denied any improvement and tried to say if anything it was worse, but he cut me off and moved on. I am wondering if he threw that in out of the blue or is it really in my records... Sounds like you have a good lawyer, that is so good. I hope it all works out... Jeanette Re: Jane - drunk etc. Ya know, you never really know what your doctors are saying or sending ( I don't personally have a copy of all my medical files from all my doctors.) Funny thing is, I used to fill out disability forms for patients - and I know personally, the form is a good 8 pages long and you can't make a statement on that form that you can't back up with medical records. Well, I know my doc has it DOCUMENTED in my chart, I have that copy, he told me it was CFIDS back in July of 1999. I know he's just really concerned and I guess wants to keep 'ruling out " other diseases. I've been with this guy for 20+ years, he knows me well and I think he just wants to do right by me, ya know? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2006 Report Share Posted June 12, 2006 Good Morning Jeanette, So..........how did it go otherwise? Are you approved? Jane Jeanette French wrote: Hi Jane, Yes, I can relate, at my recent hearing the judge read a statement supposedly from one of my Rheumies that I was slowly getting better, and I was like where did that come from. I totally denied any improvement and tried to say if anything it was worse, but he cut me off and moved on. I am wondering if he threw that in out of the blue or is it really in my records... Sounds like you have a good lawyer, that is so good. I hope it all works out... Jeanette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2006 Report Share Posted June 12, 2006 Hi Jane, Of course I have to wait for up to 2 months, maybe longer to know. I try hard not to think about it, feel guilty if I don't, lol Pray everyday, and I can see it going either way. Just don't know, drive myself crazy trying to figure it out. I go over and over it all, again and again....lol Then if politics or budget cuts have any bearing on it....UGH !!! Jeanette Re: Jane - drunk etc. Good Morning Jeanette, So..........how did it go otherwise? Are you approved? Jane Jeanette French wrote: Hi Jane, Yes, I can relate, at my recent hearing the judge read a statement supposedly from one of my Rheumies that I was slowly getting better, and I was like where did that come from. I totally denied any improvement and tried to say if anything it was worse, but he cut me off and moved on. I am wondering if he threw that in out of the blue or is it really in my records... Sounds like you have a good lawyer, that is so good. I hope it all works out... Jeanette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2006 Report Share Posted June 13, 2006 oh my gosh, you mean at least 2 more months for the judge to give you his decision? If they had the disease, it would be alot quicker wouldn't it? That's awful! I had no idea, but I'm learning quickly. Good Luck to You Jeannette I'll keep you in my prayers! Jane Jeanette French wrote: Hi Jane, Of course I have to wait for up to 2 months, maybe longer to know. I try hard not to think about it, feel guilty if I don't, lol Pray everyday, and I can see it going either way. Just don't know, drive myself crazy trying to figure it out. I go over and over it all, again and again....lol Then if politics or budget cuts have any bearing on it....UGH !!! Jeanette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2006 Report Share Posted June 14, 2006 Hi Jane, Thanks, I know what you mean, if I could give it to him for a few days, then see what he says. I guess I have waited over 2 years now, so a few more months is ok, as long as I win, Thanks Jeanette Re: Jane - drunk etc. oh my gosh, you mean at least 2 more months for the judge to give you his decision? If they had the disease, it would be alot quicker wouldn't it? That's awful! I had no idea, but I'm learning quickly. Good Luck to You Jeannette I'll keep you in my prayers! Jane Jeanette French wrote: Hi Jane, Of course I have to wait for up to 2 months, maybe longer to know. I try hard not to think about it, feel guilty if I don't, lol Pray everyday, and I can see it going either way. Just don't know, drive myself crazy trying to figure it out. I go over and over it all, again and again....lol Then if politics or budget cuts have any bearing on it....UGH !!! Jeanette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2006 Report Share Posted June 15, 2006 Excellent Attitude Jeanette....btw, what State are you in? And does that make a difference? Jane Jeanette French wrote: Hi Jane, Thanks, I know what you mean, if I could give it to him for a few days, then see what he says. I guess I have waited over 2 years now, so a few more months is ok, as long as I win, Thanks Jeanette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2006 Report Share Posted June 15, 2006 Excellent Attitude Jeanette, and btw, what State are you in and does it make a difference? Jane > > Hi Jane, > Thanks, I know what you mean, if I could give it to him for a few days, then see what he says. I guess I have waited over 2 years now, so a few more months is ok, as long as I win, > Thanks > Jeanette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2006 Report Share Posted June 15, 2006 hey, I am in West Virginia, so who knows out here.... Jeanette Re: Re: Jane - drunk etc. Excellent Attitude Jeanette....btw, what State are you in? And does that make a difference? Jane Jeanette French wrote: Hi Jane, Thanks, I know what you mean, if I could give it to him for a few days, then see what he says. I guess I have waited over 2 years now, so a few more months is ok, as long as I win, Thanks Jeanette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2006 Report Share Posted June 17, 2006 I'm in Missouri, you wouldn't think the state would make a difference, but, you wouldn't think it would be so difficult for us to obtain financial assistance either, so .....there ya go! Again, you're in my prayers and good luck, keep us posted! Jane Jeanette French wrote: hey, I am in West Virginia, so who knows out here.... Jeanette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2006 Report Share Posted June 17, 2006 Thanks Jane Jeanette Re: Jane - drunk etc. I'm in Missouri, you wouldn't think the state would make a difference, but, you wouldn't think it would be so difficult for us to obtain financial assistance either, so .....there ya go! Again, you're in my prayers and good luck, keep us posted! Jane Jeanette French wrote: hey, I am in West Virginia, so who knows out here.... Jeanette Quote Link to comment Share on other sites More sharing options...
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