ideas

[Guest guest]

I have Lyme and co infection 15 yrs now and about 4 yrs ago was also dx'd

with HHV-6 as well.

Robyn

-- [ ] ideas

On my first visit the the LLMD, he said that he thinks the virus HHV-6

invades the body after many years of being ravaged by Lyme. Anyone

else heard this idea?

Thanks,

cooky

For up to date information about Lyme disease and the known co-infections

delivered to your email address see:

Robynns_Lyme_List/

[Guest guest]

I have very high, I'm told off the chart, HHV 6B as well :0

I have known about it for years and I believe that's one of the

reasons some people are more affected by lyme than others....Just my

HO.

: )

>

> I have Lyme and co infection 15 yrs now and about 4 yrs ago was

also dx'd

> with HHV-6 as well.

>

> Robyn

>

>

>

> -- [ ] ideas

>

>

>

> On my first visit the the LLMD, he said that he thinks the virus

HHV-6

>

> invades the body after many years of being ravaged by Lyme. Anyone

>

> else heard this idea?

>

>

>

> Thanks,

>

>

>

> cooky

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> For up to date information about Lyme disease and the known co-

infections

> delivered to your email address see:

>

> Robynns_Lyme_List/

>

>

>

>

[Guest guest]

I don't know the answer to your guestion, but I am positive for EBV

and HHV6a virus.

Kathy

>

> On my first visit the the LLMD, he said that he thinks the virus HHV-

6

> invades the body after many years of being ravaged by Lyme. Anyone

> else heard this idea?

>

> Thanks,

>

> cooky

>

[Guest guest]

Hi,

Maybe that is why after 15/16 years of antibiotic therapy, I am still

sick. About two or three years ago, I got much worse and I am evan

having a lot of trouble making it to work any more, and I cannot

afford to not work, so it is really killing me. I have been tested

for co-infections though, and we have not found any? Oh well, it was

a thought for me, I am just wondering why I just do not get better

after such a long time.

Thanks,

>

> I have very high, I'm told off the chart, HHV 6B as well :0

> I have known about it for years and I believe that's one of the

> reasons some people are more affected by lyme than others....Just

my

> HO.

>

> : )

>

>

>

[Guest guest]

From this side, I've had Lyme & Ehrlichia since Spring, 2001. I had a negative

HHV-6 test earlier this year.

Re: [ ] ideas

I have Lyme and co infection 15 yrs now and about 4 yrs ago was also dx'd

with HHV-6 as well.

Robyn

[Guest guest]

Thank you all for your ideas. Ken, I thought of that this week, just

am about to look for local support groups. I am in another state

doing a 3month assignment per contract, so not familiar with things

yet. Have no vehicle here, to run around easily, and a limited cell

phone for calls. So is a slower process, but that is something to

look at. Local doctors are $100+ a visit, and are not ok with

starting something for a temp person, one whom they have no records,

etc. The local sliding scale clinic won't accept me, except full pay,

which is $108 a visit. And I need all the labs and meds on top of

those fees. This whole thing started about a week before I came out

here, so bad timing.I just didn't expect it to escalate to this. The

first time I had problems in 8/05, it only lasted a week or so and

was only a tiny bit of what I am having now. I may go to the ER and

try to get something done in an emergency sense first. Or if worst

comes to worst, may be able to have my regular MD call one of these

docs about the labs (all negative)I got and treatment with the NSaids

in August. This whole problem is just too new, no records yet. I am

making a lot of money, but remember I am also paying for 2

residences, etc, now. So I don't have much left over. And I signed a

contract, so can't just quit at this point. I looked into private

insurance, found some adequate for about $300+ a month. And have been

having trouble finding a job where I can have my worship nights off--

fri and sat.That I can't compromise, according to my belief system.

I may have to switch to clinic nursing, and just take a tremendous

cut in pay. I just am hitting brick walls, whatever direction I turn,

so frustrating. Yes, some meds can be gotten as samples, and some

companies have free or low-cost meds, will have to be aggressive in

asking for them, if possible. Thanks for the support to all of you.

It helps to be able to organize all the ideas and thoughts!

Pam

[Guest guest]

I just wanted to ask you all if there were any great ideas you had come

across for the kids as far as techno-type gifts.

The biggest hits at our house (beside video games, which we limit) have been

Tomy Constructables (a huge hit... used to be called Motor Blocks) for the

little kids, Duplo, Legos, Erector sets (although with motor problems they

have been a challenge), Rokenbok, and Snap Circuits (my older son LOVES

those... another major hit, especially since we found out that we can buy

parts and upgrade kits from the company). Another thing my older son LOVES

is a little cheapo sort of Palm Planner wannabe device I think he won for a

prize.

Anyway, I just wondered if any of you had any more ideas along those lines.

Caroline

[Guest guest]

Caroline,

I'm not sure I know the age(s) of your child(ren). My twins are 4, and we

got them a kid-friendly iPOD (the new one from Fisher Price) to put music

and books on (mostly to listen to in the car - it seems like even local

trips take 20+ minutes with traffic & road construction) and the Fisher

Price digital camera. They are also getting a Lego airport set and my

daughter is getting the iDog (it's the only thing she really wants, but I'm

not sure she even knows what it is) and a Little Petshop set (I swear she's

a future veterinarian). I prefer non-electronic type toys, but I love my

iPod (for listening to books, since I have no time to read other than

textbooks) and I love my digital camera.

I Googled kid friendly mp3 and got a great list of them.

Kristy

Re: Re: ideas

I just wanted to ask you all if there were any great ideas you had come

across for the kids as far as techno-type gifts.

The biggest hits at our house (beside video games, which we limit) have

been

Tomy Constructables (a huge hit... used to be called Motor Blocks) for the

little kids, Duplo, Legos, Erector sets (although with motor problems they

have been a challenge), Rokenbok, and Snap Circuits (my older son LOVES

those... another major hit, especially since we found out that we can buy

parts and upgrade kits from the company). Another thing my older son LOVES

is a little cheapo sort of Palm Planner wannabe device I think he won for

a

prize.

Anyway, I just wondered if any of you had any more ideas along those

lines.

Caroline

[Guest guest]

Kristy,

Thanks so much!

Those are all great ideas. My " Dr. G. " boys are 6 and 11... and we've got 3

other kids ages 2, 9, and 13.

My 11 year old son seems to be the hardest one to buy for... because he has

very limited interests and poor coordination and terrible vision.

I love the Fisher Price iPod idea for little ones. For kids who are a

little older, the Disney Mix Stick is a great choice. It's half the price

of an iPod (shuffle) and has 1G capacity. My 9 year loves hers.

Caroline

> From: Kristy Nardini <krnardini@...>

> Reply-< >

> Date: Sat, 09 Dec 2006 07:41:27 -0800

> < >

> Subject: RE: Re: ideas

>

> Caroline,

>

> I'm not sure I know the age(s) of your child(ren). My twins are 4, and we

> got them a kid-friendly iPOD (the new one from Fisher Price) to put music

> and books on (mostly to listen to in the car - it seems like even local

> trips take 20+ minutes with traffic & road construction) and the Fisher

> Price digital camera. They are also getting a Lego airport set and my

> daughter is getting the iDog (it's the only thing she really wants, but I'm

> not sure she even knows what it is) and a Little Petshop set (I swear she's

> a future veterinarian). I prefer non-electronic type toys, but I love my

> iPod (for listening to books, since I have no time to read other than

> textbooks) and I love my digital camera.

>

> I Googled kid friendly mp3 and got a great list of them.

>

> Kristy

[Guest guest]

Caroline,

The FP player doesn't use MP3 format, but you can still copy CD's onto it.

For your 11 y.o., I remember reading a review on some kind of mat you attach

to (I think) the TV, and it helps with coordination because the kids do some

kind of game where they watch the TV screen and step on the pads on the mat.

I read about it on a site for kids with different abillties. Sorry - I

didn't bookmark it! This might have some ideas, though:

http://specialneedsparenting.suite101.com/article.cfm/toys_for_special_tots_

and_tweens

Does the Disney Mix Stick allow them to choose what to listen to, or does it

just play through what's on there?

Kristy

RE: Re: ideas

>

> Caroline,

>

> I'm not sure I know the age(s) of your child(ren). My twins are 4, and

we

> got them a kid-friendly iPOD (the new one from Fisher Price) to put

music

> and books on (mostly to listen to in the car - it seems like even local

> trips take 20+ minutes with traffic & road construction) and the Fisher

> Price digital camera. They are also getting a Lego airport set and my

> daughter is getting the iDog (it's the only thing she really wants, but

I'm

> not sure she even knows what it is) and a Little Petshop set (I swear

she's

> a future veterinarian). I prefer non-electronic type toys, but I love my

> iPod (for listening to books, since I have no time to read other than

> textbooks) and I love my digital camera.

>

> I Googled kid friendly mp3 and got a great list of them.

>

> Kristy

[Guest guest]

Kristy,

The Disney Mix Stick (by the way they sell them at Target and on the Disney

website) works just like an iPod... you can load whatever you want... from

your own CDs or from iTunes, etc. When you receive it there is nothing on

it until you load it. You can buy little " albums " called mix clips that fit

into a slot on the top, but we prefer to just buy a CD and then load it

in... that way we still have a hard copy. The tiny Mix Clips look easy to

lose, and to be honest I'm not a big fan of a lot of Disney's " hot babe "

music.

My sister got little folding speakers for $5 at store called something like

" $5 store " near polis that plug into the iPods or the Mix Stick. They

sound GREAT! She's giving them to the kids for Christmas. A friend was so

excited about them she bought 20.

I think maybe the other thing you're thinking of is Dance Dance Revolution.

There was a Dance Dance Revolution Mix that I wanted to get for my

kids but they quit making it. That is an excellent idea, though. I need to

research some other DDR things 'tweens might like. The one would have

been so nice because it was an easier level and my kids love .

Caroline

> Does the Disney Mix Stick allow them to choose what to listen to, or does it

> just play through what's on there?

>

> Kristy

[Guest guest]

My son just got the talking Lightening McQueen car (from the movie

Cars) for his birthday. It is fun and it is programmable so the

kids have control over the car but also challeneges them to think

about it. Not sure of what ages would like it, but he loves it at a

VERY YOUNG 7.

>

> I just wanted to ask you all if there were any great ideas you had

come

> across for the kids as far as techno-type gifts.

>

> The biggest hits at our house (beside video games, which we limit)

have been

> Tomy Constructables (a huge hit... used to be called Motor Blocks)

for the

> little kids, Duplo, Legos, Erector sets (although with motor

problems they

> have been a challenge), Rokenbok, and Snap Circuits (my older son

LOVES

> those... another major hit, especially since we found out that we

can buy

> parts and upgrade kits from the company). Another thing my older

son LOVES

> is a little cheapo sort of Palm Planner wannabe device I think he

won for a

> prize.

>

> Anyway, I just wondered if any of you had any more ideas along

those lines.

>

> Caroline

>

[Guest guest]

Has anybody used the Leapster games? We have Leappad and love it but I'm

looking for something more game like.

At 08:34 PM 12/9/2006, you wrote:

>My son just got the talking Lightening McQueen car (from the movie

>Cars) for his birthday. It is fun and it is programmable so the

>kids have control over the car but also challeneges them to think

>about it. Not sure of what ages would like it, but he loves it at a

>VERY YOUNG 7.

>

>

>

> >

> > I just wanted to ask you all if there were any great ideas you had

>come

> > across for the kids as far as techno-type gifts.

> >

> > The biggest hits at our house (beside video games, which we limit)

>have been

> > Tomy Constructables (a huge hit... used to be called Motor Blocks)

>for the

> > little kids, Duplo, Legos, Erector sets (although with motor

>problems they

> > have been a challenge), Rokenbok, and Snap Circuits (my older son

>LOVES

> > those... another major hit, especially since we found out that we

>can buy

> > parts and upgrade kits from the company). Another thing my older

>son LOVES

> > is a little cheapo sort of Palm Planner wannabe device I think he

>won for a

> > prize.

> >

> > Anyway, I just wondered if any of you had any more ideas along

>those lines.

> >

> > Caroline

> >

>

>

[Guest guest]

Hmmm...

I like that idea.... I'll have to check into that for my 6 year old. That

was the first movie my little guy ever saw at the movie theater... with his

attention problems, he seems to have trouble following movie story lines at

home so he gives up and just runs off to play, but he liked Cars...he sat in

my lap and I kept telling him what was going on so he wouldn't get lost.

Caroline

> From: meljackmom <meljackmom@...>

> Reply-< >

> Date: Sun, 10 Dec 2006 01:34:13 +0000

> < >

> Subject: Re: ideas

>

> My son just got the talking Lightening McQueen car (from the movie

> Cars) for his birthday. It is fun and it is programmable so the

> kids have control over the car but also challeneges them to think

> about it. Not sure of what ages would like it, but he loves it at a

> VERY YOUNG 7.

>

[Guest guest]

,

My now 6.5 year old started off with watching the " Letter Factory " DVDs

(there's a series of 3 and then there's a math one as well... " Math Circus " )

when he was 4.5. He had been through a horrible ordeal with multiple

seizures in the year prior to that and had lost all speech and his motor

skills were horrible... he couldn't walk a straight line. He also couldn't

draw a straight line.

We started out with the Letter Factory video, and at first he didn't seem

that interested but I played it once a day and shortly he really got into it

(once he learned the story line)... he still asks daily to watch one of the

series. Those videos were a huge part of his learning to read... a month

after we got the first video he knew all of the upper case letters and their

sounds, which was miraculous. He really blew his preschool teachers away.

They had been working with him to start learning letters and not getting

very far.

Since he was loving the videos so much, when he turned 5 we got him a

Leapster. He LOVES it. He has played it almost daily since he got it... In

fact we just sent it back to the company to have it replaced for half price

because he has worn parts of the touch screen out. It has held up well,

though... he has dropped it on cement several times and been pretty rough

with it. He's had it for 1.5 years.

We did go ahead and buy the charger and I think that it has definitely paid

for itself.

I was really afraid he wouldn't be able to use the stylus or even understand

how to play, but he just jumped in with both feet. He knows which games

he's ready for and when he learns more and realizes he's ready to challenge

himself with a game that is a little more difficult he gets really excited

telling me about how he " can do it now! " .

The cartridges he has enjoyed most are probably the Kindergarten cartridge,

" Mr. Pencil's Learn to Draw and Write " , and & Friends Calling All

Engines (He LOVES ). The Mr. Pencil game helped him so much on his

fine motor skills... it was really amazing. He has learned so many things

from the different games... he knows all about primary colors and what

colors to mix to make other colors and he learned to count to 100 without my

even knowing it. He probably would have loved the Letter Factory Cartridge

but since we already had the video I skipped that one.

I didn't get the case because I read reviews and people didn't like it. The

handle is at the top and you zip it around the bottom... so what happens is

that kids put it in the case, forget to zip it, pick up the case and the

Leapster falls out and hits the floor. Not a good design.

I can't recommend Leapster itself highly enough, but of course some kids

like one thing and some like another.

We have just the basic Leapster.

By the way, his older siblings (who have Gameboys) beg for turns!

Caroline

> From: and Daron Freedberg <mdfreedberg@...>

> Reply-< >

> Date: Sat, 09 Dec 2006 20:39:30 -0500

> < >

> Subject: Re: Re: ideas

>

> Has anybody used the Leapster games? We have Leappad and love it but I'm

> looking for something more game like.

>

[Guest guest]

Thanks Caroline and !