Guest guest Posted December 31, 2005 Report Share Posted December 31, 2005 Casey's heart was bad after a bad " flu " when he was nine. this is why the blood and tissue bank is so important for people diagnosed with ME and CFIDS/CFS. We were promised over 12 years ago by Reeves and company, that there would be a blood and tissue bank to test people diagnosed with ME or CF " IDS.CFS Casey was diagnosed with CFS and died from CFS as Dr. Schweitzer said in her testimony to the CFSAC a few months ago. The Blood and tissue bank are at two of the most famous doctors in research in USA, you can find all of this on the Wisconsin web page. Oh and docotors cannot always see how bad a heart is by echo. Science has it's limits. meghan > > Do you know of any tests that you can check to see what virus or bacteria is in your body? > > Also what kinds of illnesses cause virus or bacteria? > > I read about Casey Fero but I thought his heart was bad? > > I think he had mycarditis? Something like that? > > My one problem is low blood volume and that's where alot of my fatigue comes in because it pools at the bottom and then when I lay down it has a chance to flow properly. > > I didn't want people to misread what I wrote. The Cardiologist is calling me this week. The office was closed today because of the holiday. Also they're excellent at calling back every single time. > > The reason the Cardiologist said a couple years was because it was just a trace. That's what he meant by that. Cardiologists's can figure out by echo's whether it's serious or not. > > I didn't mean for anyone to get a wrong idea that he doesn't want to see me. > > Lou > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2005 Report Share Posted December 31, 2005 Sorry for the large type, buy I have a vision deficit. It seems to me you might want to have an immunologist explore for bacteria vs virus. I had that done one when I had been on antiB's for 2 yrs. and he finally put me on one that would stop the symptoms. I've been investigating the Mycoplasmas, and may need to return to him, as reg. docs don't seem to " get it. " cindy post wrote: Do you know of any tests that you can check to see what virus or bacteria is in your body? Also what kinds of illnesses cause virus or bacteria? I read about Casey Fero but I thought his heart was bad? I think he had mycarditis? Something like that? My one problem is low blood volume and that's where alot of my fatigue comes in because it pools at the bottom and then when I lay down it has a chance to flow properly. I didn't want people to misread what I wrote. The Cardiologist is calling me this week. The office was closed today because of the holiday. Also they're excellent at calling back every single time. The reason the Cardiologist said a couple years was because it was just a trace. That's what he meant by that. Cardiologists's can figure out by echo's whether it's serious or not. I didn't mean for anyone to get a wrong idea that he doesn't want to see me. Lou Quote Link to comment Share on other sites More sharing options...
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