Guest guest Posted May 22, 2006 Report Share Posted May 22, 2006 What you are describing is Restless Legs Syndrome, something that many of us fibro people have. I take Mirapex for it. It can be located anywhere in the body. It feels awful. Remeron made it much worse for me. Diane in Ks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2006 Report Share Posted May 22, 2006 Hi Rach! I get them where you get them also but moreso in the legs especially with a flare-up. It drives me crazy and so does the pain. I either ache or burn and in a bad flare up it feels like it's all over my body. Plus I sweat and I get gold. Like I said very weird. Feel better - Lynn P.S. That burning sensation is the worst symptom for me. It's the Fibro acting up as far as I know and it's chronic sometimes worse then others and sometimes not there almost but any of my pain is chronic. How about you? --- Ray wrote: > Hi, > I also get creepy crawlies. But I get them in my > neck, head and arms. > It drives me crazy. I am constantly thinking I have > a bug on me. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2006 Report Share Posted May 22, 2006 Yeah - and it's itchy sometimes too right Jane? Lynn --- Jane Luft wrote: > Me too - what is that all about? I get it on my > shins ??? I can scratch until I'm raw too. > Jane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2006 Report Share Posted May 22, 2006 Ohh, that sounds awful. I don't get any burning, mainly just deep aches. Sometimes sharp pains in by my ribs. Rach P.S. I hope that you have a pain free week. > That burning sensation is the worst symptom for me. It's the Fibro acting up as far as I know and it's chronic sometimes worse then others and sometimes not there almost but any of my pain is chronic. How about you? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2006 Report Share Posted May 23, 2006 Ray and Rach, I also have the creepy-crawlies. It drives me crazy. I also get itchy. I use Aveeno lotion for the itching, which seems to work pretty well most of the time, but boy is it irritating! Ray wrote: Hi, I also get creepy crawlies. But I get them in my neck, head and arms. It drives me crazy. I am constantly thinking I have a bug on me. My son thinks it is so funny when mommy jumps and there is nothing there, lol. At least it is easy entertainment for him. Rach Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2006 Report Share Posted May 23, 2006 Hi Ray! It's gross! Another person I know from one of my EBV groups said she gets burning all over too! I also get what you get sharp pain and muscle pains. Today I felt like I had to flu except I wasn't nausus. Lynn --- Ray wrote: > Ohh, that sounds awful. I don't get any burning, > mainly just deep > aches. Sometimes sharp pains in by my ribs. > Rach > P.S. I hope that you have a pain free week. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2006 Report Share Posted May 24, 2006 absolutely! Beyond belief -I've tried every lotion and cream put on this earth! Jane lynn paulino wrote: Yeah - and it's itchy sometimes too right Jane? Lynn --- Jane Luft wrote: > Me too - what is that all about? I get it on my > shins ??? I can scratch until I'm raw too. > Jane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2006 Report Share Posted May 24, 2006 Never so sick in my life Jane! I know what you are going through! > > absolutely! Beyond belief -I've tried every lotion and cream put on this earth! > Jane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2006 Report Share Posted May 25, 2006 Creepy/Crawlies are known as Restless Legs Syndrome, though the crawlies can be located anywhere in the body. There are meds for it, also my neurologist said RLS is aggravated by B-12 deficiency. Though I take a lot of it and certainly know when I forget it, the med certainly helps. I guess the B-12 works with the med. Diane in Ks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2006 Report Share Posted May 25, 2006 I'm glad it's not everyday - Hang in there Lynn! lynnsprinkles wrote: Never so sick in my life Jane! I know what you are going through! > > absolutely! Beyond belief -I've tried every lotion and cream put on this earth! > Jane Quote Link to comment Share on other sites More sharing options...
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