Re: Teen Supposed to be having fun in senior year, diaginosed with RA SCHOOL

[Guest guest]

There are websites that discuss IEPs and accomodations and 504s. One is here at

called .

I know I have 2 special needs kids- one is 17 with bipolar disorder and major

anxiety attacks where she stops breathing and her heart rate shoots up to 200

beats per minute. The other is my 10 year old who has something called

heterotopia (the gray matter and white matter of his brain are reversed) and he

has atypical seizures and mild cerebal palsy.and now he lost his vision in one

eye in an accident end of Oct this year....both have IEPs at school (more

enforceable than 504s)

as for getting more money from fed government, not so sure just how much more-

my husband is 100% service connected disabled...neither of my kids gets any SSI

becuz they already get compensation as a dependant whether disabled or

not.....and they get ChampVA for health coverage, but it has nothing to do with

their disability- we all get it anyway. SO my husband is 100% service connected

disabled and gets veterans disability and ChampVA and has since 1990, and I am

disabled via social security...

Now when I was in nursing school I DID get help from DORS (dept of

rehabiliatative services) for being a displaced homemaker---due to my husbands

disability and me having to go learn a job that made more than minimum wage.

and also due to my bipolar disorder- as me being a handicapped person..and in

nursing school DORS helped me pay for tuition and they also helped me get a

" note taker " - someone who used carbon paper when they took their own notes and

they gave me a copy of their notes- cuz sometimes I had a hard time writing.

Yes, an IEP can have on it that you can use a heat pack...my sons IP says he

gets books on tape (he cannot yet read) and he gets it on his IEP to be able to

use a word processor for all written work (cuz he cannot write legibly) and he

is in a standard classroom. My dtr had it in her IEP that she could leave the

room and go to guidance office if she felt a panic attack coming on...(she was

in a special ed room due to the bigger ratio of staff to students) SO certainly

you should be able to get an IEP based on needing a

heat pack. If your school has stairs and they cause you difficulty, you should

also be able to get it on an IEP that you may use the school elevator or have

your classes all on one floor. and if it is hard for you to write,

accomodations should be found to help you with that, too.

Maybe you can check out the group and discuss school

accomodations with them.and you should also be able to use the accomodations in

HS as well.

- In , " Bridget Hiskins " <nashirafae@c...> wrote:

>

> I can tell ya, I have a special needs child as well. I have a little boy

with an unknown neuromuscular disorder. I have been though the whole rigmarole

with IEPS and so on and I can tell ya it is pretty much the same here in Mass as

it is where you are in Texas. I always assumed it was the same no matter where

you are.

>

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> Good luck

>

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> Beannu Si

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> Nash

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> [ ] Re: Teen Supposed to be having fun in senior year,

diaginosed with RA

>

>

> ,

> I have a special needs teenager..though she does not have RA she has

> sickle cell anemia. There is something called a 504 accomodation for

> special needs. It will require some documentation from your doc.

> But since you are 18 yrs old you can do all the paperwork yourself.

>

> You need to state your needs...like access to heating pad...longer

> time to comeplete assignments due to fatigue. Half or short school

> days. Whatever you feel is reasonable to help you finish out the

> school year. See your school counselor when you return back to

> school. Once you request 504 the school has so many days to schedule

> an appnt with your counselor the coordinator of special ed, your

> teachers and you.

>

> I have had to do this for both my children...but the 18yr who is also

> a senior is the only one due to her health issues that still has a

> current one in effect. I don't know where you are in the country,

> but I am in Texas and they take this paperwork very serious because

> the federal government will fine them if they fail to follow

> procedure as well as they get extra money fo each child they educate

> under the special ed rules...and if that child is a military

> dependent or federal government emloyee dependent they get even more

> money.

>

> Good luck

>

> toni

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> >

> > Hey everyone,

> >

> > ok, im 18 1/2 and a senior. I found out recently that I have RA. I

> > have it mostly in my right wrist and hands, but all my other joints

> > are stiff, and my back and wrist and fingers bother me the most. I

> get

> > inflammation so much sometimes i cry and have to wear my splint at

> > school, and im supposed to be enjoying my rest of senior year, and

> im

> > getting married in 2 years to my bf (weve been dating for over 3

> > years) and i cant enjoy it. I have terrible fatigue, and hurting

> all

> > the time. pain medicane wont work, and know im getting to the point

> of

> > being depressed all the time. any suggestions, or any teens out

> there

> > in school, what r ur suggestions for dealing with it in school? i

> have

> > a little ball i roll around with my hand and have my splint but i

> wish

> > i could bring my heating pad or anything thats warm.

> >

> > please reply back

> >

> > melissa

> >

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